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Gepubliceerd in: Journal of Autism and Developmental Disorders 7/2014

01-07-2014 | Original Paper

Determinants of Stress in Parents of Children with Autism Spectrum Disorders

Auteurs: Mélina Rivard, Amélie Terroux, Claudel Parent-Boursier, Céline Mercier

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2014

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Abstract

Parents of children with autism spectrum disorder are known to experience more stress than parents of children with any other conditions. The current study describes the parental stress of 118 fathers and 118 mothers at the onset of their children’s Early Intensive Behavioral Intervention program. The objectives of the study were to compare and analyze each parent’s stress and to identify factors that might predict their stress. Results indicated that fathers reported higher levels of stress than mothers. Correlations indicated that the stress levels of both parents were associated with their child’s age, intellectual quotient, severity of autistic symptoms, and adaptive behaviors. Paternal stress, but not maternal stress, was predicted by severity of autistic symptoms and child’s gender. Results are discussed in terms of their implications for services and early interventions.
Literatuur
go back to reference Abidin, R. R. (1995). The parenting stress index (3rd ed.). Odessa, FL: Psychological Assessment Resources. Abidin, R. R. (1995). The parenting stress index (3rd ed.). Odessa, FL: Psychological Assessment Resources.
go back to reference American Association on Intellectual and Developmental Disabilities. (2011). Intellectual disability: Definition, classification, and systems of supports (11th ed.). Washington, DC: Author. American Association on Intellectual and Developmental Disabilities. (2011). Intellectual disability: Definition, classification, and systems of supports (11th ed.). Washington, DC: Author.
go back to reference American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders—text revision (4th ed.). Washington, DC: Author. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders—text revision (4th ed.). Washington, DC: Author.
go back to reference Anthony, L. G., Anthony, B. J., Glanville, D. N., Naiman, D. Q., Waanders, C., & Shaffer, S. (2005). The relationship between parenting stress, parenting behaviour and preschoolers’ social competence and behaviour problems in the classroom. Infant and Child Development, 14(2), 133–154. doi: 10.​1002/​icd.​385. CrossRef Anthony, L. G., Anthony, B. J., Glanville, D. N., Naiman, D. Q., Waanders, C., & Shaffer, S. (2005). The relationship between parenting stress, parenting behaviour and preschoolers’ social competence and behaviour problems in the classroom. Infant and Child Development, 14(2), 133–154. doi: 10.​1002/​icd.​385. CrossRef
go back to reference Baker-Ericzen, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30(4), 194–204. doi: 10.​2511/​rpsd.​30.​4.​194. CrossRef Baker-Ericzen, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30(4), 194–204. doi: 10.​2511/​rpsd.​30.​4.​194. CrossRef
go back to reference Ballard, K., Bray, A., Shelton, E. J., & Clarkson, J. (1997). Children with disabilities and the education system: The experiences of fifteen fathers. International Journal of Disability, Development and Education, 44(3), 229–241. doi: 10.​1080/​0156655970440305​. CrossRef Ballard, K., Bray, A., Shelton, E. J., & Clarkson, J. (1997). Children with disabilities and the education system: The experiences of fifteen fathers. International Journal of Disability, Development and Education, 44(3), 229–241. doi: 10.​1080/​0156655970440305​. CrossRef
go back to reference Bebko, J. M., Konstantareas, M. M., & Springer, J. (1987). Parent and professional evaluations of family stress associated with characteristics of autism. Journal of Autism and Developmental Disorders, 17(4), 565–576. doi: 10.​1007/​BF01486971. PubMedCrossRef Bebko, J. M., Konstantareas, M. M., & Springer, J. (1987). Parent and professional evaluations of family stress associated with characteristics of autism. Journal of Autism and Developmental Disorders, 17(4), 565–576. doi: 10.​1007/​BF01486971. PubMedCrossRef
go back to reference Benson, P. R. (2006). The impact of child symptom severity on depressed mood among parents of children with ASD: The mediating role of stress proliferation. Journal of Autism and Developmental Disorder, 36(5), 685–695. CrossRef Benson, P. R. (2006). The impact of child symptom severity on depressed mood among parents of children with ASD: The mediating role of stress proliferation. Journal of Autism and Developmental Disorder, 36(5), 685–695. CrossRef
go back to reference Cox, A., Klein, K., Charman, T., Baird, G., Baron-Cohen, S., Swettenham, J., et al. (1999). Autism spectrum disorders at 20 and 42 months of age: Stability of clinical and ADI-R diagnosis. Journal of Child Psychology and Psychiatry, 40(5), 719–732. doi: 10.​1111/​1469-7610.​00488. PubMedCrossRef Cox, A., Klein, K., Charman, T., Baird, G., Baron-Cohen, S., Swettenham, J., et al. (1999). Autism spectrum disorders at 20 and 42 months of age: Stability of clinical and ADI-R diagnosis. Journal of Child Psychology and Psychiatry, 40(5), 719–732. doi: 10.​1111/​1469-7610.​00488. PubMedCrossRef
go back to reference Crnic, K. A., Gaze, C., & Hoffman, C. (2005). Cumulative parenting stress across the preschool period: Relations to maternal parenting and child behaviour at age 5. Infant and Child Development, 14(2), 117–132. doi: 10.​1002/​icd.​384. CrossRef Crnic, K. A., Gaze, C., & Hoffman, C. (2005). Cumulative parenting stress across the preschool period: Relations to maternal parenting and child behaviour at age 5. Infant and Child Development, 14(2), 117–132. doi: 10.​1002/​icd.​384. CrossRef
go back to reference Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal on Autism and Developmental Disorders, 38(7), 1278–1291. doi: 10.​1007/​s10803-007-0512-z. CrossRef Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal on Autism and Developmental Disorders, 38(7), 1278–1291. doi: 10.​1007/​s10803-007-0512-z. CrossRef
go back to reference Dumas, J. E., Wolf, L. C., Fisman, S. N., & Culligan, A. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, behavior disorders, and normal development. Exceptionality, 2(2), 97–110. doi: 10.​1080/​0936283910952477​0. CrossRef Dumas, J. E., Wolf, L. C., Fisman, S. N., & Culligan, A. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, behavior disorders, and normal development. Exceptionality, 2(2), 97–110. doi: 10.​1080/​0936283910952477​0. CrossRef
go back to reference Flippin, M., & Crais, E. R. (2011). The need for more effective father involvement in early autism intervention: A systematic review and recommendations. Journal of Early Intervention, 33(1), 24–50. doi: 10.​1177/​1053815111400415​. CrossRef Flippin, M., & Crais, E. R. (2011). The need for more effective father involvement in early autism intervention: A systematic review and recommendations. Journal of Early Intervention, 33(1), 24–50. doi: 10.​1177/​1053815111400415​. CrossRef
go back to reference Griffith, G. M., Hastings, R. P., Nash, S., & Hill, C. (2010). Using matched groups to explore child behaviour problems and maternal well-being in children with Down syndrome and autism. Journal of Autism and Developmental Disorders, 40(5), 610–619. doi: 10.​1007/​s10803-009-0906-1. PubMedCrossRef Griffith, G. M., Hastings, R. P., Nash, S., & Hill, C. (2010). Using matched groups to explore child behaviour problems and maternal well-being in children with Down syndrome and autism. Journal of Autism and Developmental Disorders, 40(5), 610–619. doi: 10.​1007/​s10803-009-0906-1. PubMedCrossRef
go back to reference Harrison, P. L., & Oakland, T. (2003). Adaptive Behavior Assessment System—Second Edition. San Antonio, TX: The Psychological Corporation. Harrison, P. L., & Oakland, T. (2003). Adaptive Behavior Assessment System—Second Edition. San Antonio, TX: The Psychological Corporation.
go back to reference Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., degli Espinosa, F., & Remington, B. (2005a). Coping strategies in mothers and fathers of preschool and school-age Children with autism. Autism: The International Journal of Research and Practice, 9(4), 377–391. doi: 10.​1177/​1362361305056078​. CrossRef Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., degli Espinosa, F., & Remington, B. (2005a). Coping strategies in mothers and fathers of preschool and school-age Children with autism. Autism: The International Journal of Research and Practice, 9(4), 377–391. doi: 10.​1177/​1362361305056078​. CrossRef
go back to reference Hastings, R. P., Kovshoff, H., Ward, N., degli Espinosa, F., Brown, T., & Remington, B. (2005b). System analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35(5), 635–644. doi: 10.​1007/​s10803-005-0007-8. PubMedCrossRef Hastings, R. P., Kovshoff, H., Ward, N., degli Espinosa, F., Brown, T., & Remington, B. (2005b). System analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35(5), 635–644. doi: 10.​1007/​s10803-005-0007-8. PubMedCrossRef
go back to reference Holroyd, J., & McArthur, D. (1976). Mental retardation and stress on the parents: A contrast between Down’s syndrome and childhood autism. American Journal of Mental Deficiency, 80(4), 431–436. PubMed Holroyd, J., & McArthur, D. (1976). Mental retardation and stress on the parents: A contrast between Down’s syndrome and childhood autism. American Journal of Mental Deficiency, 80(4), 431–436. PubMed
go back to reference Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 337–344. doi: 10.​1016/​j.​rasd.​2010.​04.​017. CrossRef Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 337–344. doi: 10.​1016/​j.​rasd.​2010.​04.​017. CrossRef
go back to reference Konstantareas, M. M., Homatidis, S., & Plowright, C. M. (1992). Assessing resources and stress in parents of severely dysfunctional children through the Clarke modification of Holroyd’s Questionnaire on Resources and Stress. Journal of Autism and Developmental Disorders, 22(2), 217–234. doi: 10.​1007/​BF01058152. PubMedCrossRef Konstantareas, M. M., Homatidis, S., & Plowright, C. M. (1992). Assessing resources and stress in parents of severely dysfunctional children through the Clarke modification of Holroyd’s Questionnaire on Resources and Stress. Journal of Autism and Developmental Disorders, 22(2), 217–234. doi: 10.​1007/​BF01058152. PubMedCrossRef
go back to reference MacDonald, E. E., & Hastings, R. P. (2010). Fathers of children with developmental disabilities. In M. E. Lamb (Ed.), The role of the father in child development (5th ed., pp. 486–516). New York: Wiley. MacDonald, E. E., & Hastings, R. P. (2010). Fathers of children with developmental disabilities. In M. E. Lamb (Ed.), The role of the father in child development (5th ed., pp. 486–516). New York: Wiley.
go back to reference Pleck, J., & Masciadrelli, B. (2004). Paternal involvement in US residential fathers: Levels, sources, and consequences. In M. Lamb (Ed.), The role of the father in child development (4th ed., pp. 222–276). New York, NY: Wiley. Pleck, J., & Masciadrelli, B. (2004). Paternal involvement in US residential fathers: Levels, sources, and consequences. In M. Lamb (Ed.), The role of the father in child development (4th ed., pp. 222–276). New York, NY: Wiley.
go back to reference Rodrigue, J. R., Morgan, S. B., & Geffken, G. R. (1992). Psychosocial adaptation of fathers of children with autism, Down syndrome, and normal development. Journal of Autism and Developmental Disorders, 22(2), 249–263. PubMedCrossRef Rodrigue, J. R., Morgan, S. B., & Geffken, G. R. (1992). Psychosocial adaptation of fathers of children with autism, Down syndrome, and normal development. Journal of Autism and Developmental Disorders, 22(2), 249–263. PubMedCrossRef
go back to reference Sanders, J. L., & Morgan, S. B. (1997). Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention. Child and Family Behavior Therapy, 19(4), 15–32. doi: 10.​1300/​J019v19n04_​02. CrossRef Sanders, J. L., & Morgan, S. B. (1997). Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention. Child and Family Behavior Therapy, 19(4), 15–32. doi: 10.​1300/​J019v19n04_​02. CrossRef
go back to reference Schalock, R. L., Luckasson, R. A., Shogren, K. A., Borthwick-Duffy, S., Bradley, V., Buntix, W. H. E., et al. (2010). The renaming of mental retardation: Understanding the change to the term intellectual disability. Intellectual and Developmental Disabilities, 45(2), 116–124. CrossRef Schalock, R. L., Luckasson, R. A., Shogren, K. A., Borthwick-Duffy, S., Bradley, V., Buntix, W. H. E., et al. (2010). The renaming of mental retardation: Understanding the change to the term intellectual disability. Intellectual and Developmental Disabilities, 45(2), 116–124. CrossRef
go back to reference Schopler, E., Reichler, R. J., & Rochen Renner, B. (1988). The Childhood Autism Rating Scale (CARS). Los Angeles, CA: Western Psychological Services. Schopler, E., Reichler, R. J., & Rochen Renner, B. (1988). The Childhood Autism Rating Scale (CARS). Los Angeles, CA: Western Psychological Services.
go back to reference Shannon, J. D., Tamis-LeMonda, C. S., London, K., & Cabrera, N. (2002). Beyond rough and tumble: Low-income fathers’ interactions and children’s cognitive development at 24 months. Parenting: Science and Practice, 2(2), 77–104. doi: 10.​1207/​S15327922PAR0202​_​01. CrossRef Shannon, J. D., Tamis-LeMonda, C. S., London, K., & Cabrera, N. (2002). Beyond rough and tumble: Low-income fathers’ interactions and children’s cognitive development at 24 months. Parenting: Science and Practice, 2(2), 77–104. doi: 10.​1207/​S15327922PAR0202​_​01. CrossRef
go back to reference Sparrow, S. S., Cicchetti, D. V., & Balla, D. A. (2005). Vineland II: A revision of the Vineland Adaptive Behavior Scales: I. Survey/caregiver form. Circle Pines, MN: American Guidance Service. Sparrow, S. S., Cicchetti, D. V., & Balla, D. A. (2005). Vineland II: A revision of the Vineland Adaptive Behavior Scales: I. Survey/caregiver form. Circle Pines, MN: American Guidance Service.
go back to reference Strauss, K., Vicari, S., Valeri, G., D’Elia, L., Arima, S., & Fava, L. (2012). Parent inclusion in early intensive behavioral intervention: The influence of parental stress, parent treatment fidelity and parent-mediated generalization of behavior targets on child outcomes. Research in Developmental Disabilities, 33(2), 688–703. doi: 10.​1016/​j.​ridd.​2011.​11.​008. PubMedCrossRef Strauss, K., Vicari, S., Valeri, G., D’Elia, L., Arima, S., & Fava, L. (2012). Parent inclusion in early intensive behavioral intervention: The influence of parental stress, parent treatment fidelity and parent-mediated generalization of behavior targets on child outcomes. Research in Developmental Disabilities, 33(2), 688–703. doi: 10.​1016/​j.​ridd.​2011.​11.​008. PubMedCrossRef
go back to reference Szatmari, P., Archer, L., Fisman, S., & Steiner, D. L. (1994). Parent and teacher agreement in the assessment of pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24(6), 703–717. doi: 10.​1007/​BF02172281. PubMedCrossRef Szatmari, P., Archer, L., Fisman, S., & Steiner, D. L. (1994). Parent and teacher agreement in the assessment of pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24(6), 703–717. doi: 10.​1007/​BF02172281. PubMedCrossRef
go back to reference Wechsler, D. (2002). Wechsler preschool and primary scale of intelligence (WPPSI III). San Antonio: Psychological Corp. Wechsler, D. (2002). Wechsler preschool and primary scale of intelligence (WPPSI III). San Antonio: Psychological Corp.
go back to reference Wolf, L., Noh, S., Fisman, S., & Speechley, M. (1989). Brief report: Psychological effects of parenting stress on parents of autistic children. Journal of Autism and Developmental Disorders, 19(1), 157–166. doi: 10.​1007/​BF02212727. PubMedCrossRef Wolf, L., Noh, S., Fisman, S., & Speechley, M. (1989). Brief report: Psychological effects of parenting stress on parents of autistic children. Journal of Autism and Developmental Disorders, 19(1), 157–166. doi: 10.​1007/​BF02212727. PubMedCrossRef
Metagegevens
Titel
Determinants of Stress in Parents of Children with Autism Spectrum Disorders
Auteurs
Mélina Rivard
Amélie Terroux
Claudel Parent-Boursier
Céline Mercier
Publicatiedatum
01-07-2014
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 7/2014
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-013-2028-z