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There is a lack of research on how mental health diagnoses are delivered and explained to children and the effectiveness of these strategies. This qualitative study examines how emerging adults recall the delivery of mental health diagnoses in childhood and how they suggest these diagnoses should be delivered to children. Semi-structured interviews were conducted with 42 emerging adults (aged 18–22) who were diagnosed with attention deficit hyperactivity disorder (ADHD), depressive disorders, generalized anxiety disorder (GAD), and/or bipolar disorder in childhood. Findings reveal that parents, rather than mental health professionals, often inform children of their diagnoses. The data suggest that parents often act as translators of diagnostic information, acting as liaisons between mental health professionals and their children. The paper explores ways in which parents and mental health professionals withhold diagnoses from children, and how this affects children’s experiences. Drawing on their own experiences, participants offer suggestions regarding the best ways to deliver diagnoses to children. Findings suggest that adults should share mental health diagnoses openly with children. Implications for social workers and other allied health professionals who support families when children are diagnosed are discussed.
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Bibace, R., & Walsh, M. E. (1981). Children’s conceptions of illness. In R. Bibace (Ed.), Children’s conceptions of health, illness and bodily functions (pp. 31–48). San Francisco, CA: Jossey-Bass.
Bringewatt, E. H. (2011). Hidden diagnosis: Attention deficit hyperactivity disorder from a child’s perspective. In P. J. McGann, D. J. Hutson (Eds.), Sociology of diagnosis: Advances in medical sociology (Vol. 12, pp. 259–279). Bingley, UK: Emerald. CrossRef
Chesson, R., Harding, L., Hart, C., & O’Loughlin, V. (1997). Do parents and children have common perceptions of admission, treatment and outcome in a child psychiatric unit? Clinical Child Psychology and Psychiatry, 2(2), 251–270. CrossRef
Cole, A. L., & Knowles, J. G. (2001). Lives in context: The art of life history research. Lanham, MD: AltaMira Press.
Cooper, P., & Shea, T. (1998). Pupils’ perceptions of AD/HD. Emotional & Behavioural Difficulties, 3(3), 36–48. CrossRef
Cooper, P., & Shea, T. (1999). ADHD from the inside: An empirical study of young people’s perceptions of the experience of ADHD. In K. Bilton, & P. Cooper (Eds.), ADHD: Research, practice and opinion (pp. 223–245). London, England: Whurr.
Crotty, M. (1998). The foundations of social research: Meaning and perspective in the research process. London, England: Sage Publications.
Davies, J., & Wright, J. (2008). Children’s voices: A review of the literature pertinent to looked-after children’s views of mental health services. Child and Adolescent Mental Health, 13(1), 26–31. CrossRef
Eiser, C., & Eiser, J. R. (1987). Explaining illness to children. Communication & Cognition, 20(2–3), 277–290.
Elkington, K. S., Hackler, D., McKinnon, K., Borges, C., Wright, E. R., & Wainberg, M. L. (2012). Perceived mental illness stigma among youth in psychiatric outpatient treatment. Journal of Adolescent Research, 27(2), 290–317. CrossRef
Emerson, R. M., Fretz, R. I., & Shaw, L. L. (1995). Writing ethnographic fieldnotes. Chicago, IL: University of Chicago Press. CrossRef
Freeman, M., & Mathison, S. (2009). Researching children’s experiences. New York, NY: The Guilford Press.
Gillotti, C. M., & Applegate, J. L. (2000). Explaining illness as bad news: Individual differences in explaining illness-related information. In B. B. Whaley (Ed.), Explaining illness: Research, theory, and strategies (pp. 101–120). Mahwah, NJ: Lawrence Erlbaum Associates.
Hepper, F., Weaver, T., & Rose, G. (2005). Children’s understanding of a psychiatric in-patient admission. Clinical Child Psychology and Psychiatry, 10(4), 557–573. CrossRef
Heritage, J., & Maynard, D. W. (2006). Problems and prospects in the study of physician-patient interaction: 30 years of research. Annual Review of Sociology, 32, 351–374. CrossRef
Jivanjee, P., Kruzich, J. M., & Gordon, L. J. (2009). The age of uncertainty: Parent perspectives on the transitions of young people with mental health difficulties to adulthood. Journal of Child and Family Studies, 18(4), 435–446. CrossRef
Kranke, D., Floersch, J., Townsend, L., & Munson, M. (2010). Stigma experience among adolescents taking psychiatric medication. Children and Youth Services Review, 32(4), 496–505. CrossRef
Kranke, D., Jackson, S. E., Taylor, D. A., Landguth, J., & Floersch, J. (2015). ‘I’m loving life’: Adolescents’ empowering experiences of living with a mental illness. Qualitative Social Work: Research and Practice, 14(1), 102–118. CrossRef
Mendenhall, A., Frauenholtz, S., & Conrad-Hiebner, A. (2014). Provider perceptions of mental health literacy among youth. Child & Adolescent Social Work Journal, 31(3), 281–293. CrossRef
Merikangas, K. R., He, J. P., Burstein, M., Swanson, S. A., Avenevoli, S., Cui, L., et al. (2010). Lifetime prevalence of mental disorders in U.S. adolescents: Results from the National comorbidity survey Replication-Adolescent supplement (NCS-A). Journal of the American Academy of Child & Adolescent Psychiatry, 49(10), 980–989. CrossRef
Moses, T. (2009). Self-labeling and its effects among adolescents diagnosed with mental disorders. Social Science & Medicine, 68(3), 570–578. CrossRef
Moses, T. (2010). Being treated differently: Stigma experiences with family, peers, and school staff among adolescents with mental health disorders. Social Science & Medicine, 70(7), 985–993. CrossRef
Moses, T., & Kirk, S. A. (2005). Psychosocial side effects of drug treatment of youth. In S. A. Kirk (Ed.), Mental disorders in the social environment: Critical perspectives (pp. 385–407). New York, NY: Columbia University Press.
Mowbray, C. T., Megivern, D., & Strauss, S. (2002). College students’ narratives of high school experiences: Coping with serious emotional disturbance. In D. T. Marsh, & M. A. Fristad (Eds.), Handbook of serious emotional disturbance in children and adolescents (pp. 14–29). New York, NY: John Wiley & Sons Inc.
Riessman, C. K. (1993). Narrative analysis. Newbury Park, CA: Sage Publications.
Saldaña, J. (2009). The coding manual for qualitative researchers. Thousand Oaks, CA: Sage.
Schwandt, T. A. (1994). Constructivist, interpretivist approaches to human inquiry. In N. K. Denzin, & Y. S. Lincoln (Eds.). Handbook of qualitative research (pp. 118–137). Thousand Oaks, CA: Sage.
Stivers, C. (1993). Reflections on the role of personal narrative in social science. Signs, 18(2), 408–425. CrossRef
Svarstad, B. L., & Lipton, H. L. (1977). Informing parents about mental retardation: A study of professional communication and parent acceptance. Social Science & Medicine, 11(11–13), 645–651. CrossRef
Tates, K., & Meeuwesen, L. (2001). Doctor–parent–child communication. A (re)view of the literature. Social Science & Medicine, 52(6), 839–851. CrossRef
Thompson, T. L. (2000). The nature and language of illness explanations. In B. B. Whaley (Ed.), Explaining illness: Research, theory, and strategies (pp. 3–39). Mahwah, NJ: Lawrence Erlbaum Associates.
Weiss, R. S. (1994). Learning from strangers: The art and method of qualitative interview studies. New York, NY: Free Press.
- Delivering Diagnoses: Parents as Translators and Withholders of Children’s Mental Health Diagnoses
Elizabeth H. Bringewatt
- Springer US