Skip to main content
Top
Gepubliceerd in:

24-09-2021 | Original Paper

Cultural Influences on Sibling Relationships, Roles, and Self-Concept in the Context of Autism: Perspectives of Latino/a/x and non-Latino/a/x Siblings

Auteurs: Kristin A. Long, Lydia Chevalier, Andrea Chu, Kate M. Guthrie, Barbara Kao, Wendy Plante, Debra Lobato

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 9/2022

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Siblings describe positive and negative aspects of autism and often assume lifelong support roles. Less is known about cultural influences on sibling relationships. This qualitative study characterizes processes linking siblings’ autism conceptualizations, sibling relationships, and self-concept using a multicultural framework. Siblings (12 Latino/a/x, 9 non-Latino/a/x white) participated. Data were stratified by ethnicity and analyzed using applied thematic analysis. Latino/a/x and non-Latino/a/x siblings described processes linking autism, relationships, and self-concept differently. Latino/a/x siblings emphasized family roles and identified as caregivers and protectors. Non-Latino/a/x siblings emphasized general sensitivity toward individuals who differed from themselves. Findings may reflect cultural differences in familism, caregiving expectations, and autism conceptualizations, thereby illuminating foundations of siblings’ lifelong caregiving roles and highlighting the importance of culturally-sensitive, family-centered care.
Voetnoten
1
We use the term “individuals on the autism spectrum” as the middle ground between person-first language (i.e., “individual with autism” as recommended by the APA style guide) and identity-first language (i.e., “autistic individual” as preferred by autistic self-advocates) (Kenny et al., 2016).
 
2
We use the term Latino/a/x to encompass both gender-inclusive language (i.e., Latinx) as well as the more traditional Latino/a language that is more commonly used and/or preferred by members of this ethnic group (Noe-Bustamante et al., 2020; Salinas, 2020).
 
Literatuur
go back to reference Angell, A. M., Empey, A., & Zuckerman, K. E. (2018). A review of diagnosis and service disparities among children with autism from racial and ethnic minority groups in the United States. In International review of research in developmental disabilities (Vol. 55, pp. 145–180). Academic Press. Angell, A. M., Empey, A., & Zuckerman, K. E. (2018). A review of diagnosis and service disparities among children with autism from racial and ethnic minority groups in the United States. In International review of research in developmental disabilities (Vol. 55, pp. 145–180). Academic Press.
go back to reference American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders: DSM-5 (5th ed.). American Psychiatric Association. American Psychiatric Association. (2013). Diagnostic and Statistical Manual of Mental Disorders: DSM-5 (5th ed.). American Psychiatric Association.
go back to reference Bamm, E. L., & Rosenbaum, P. (2008). Family-centered theory: Origins, development, barriers, and supports to implementation in rehabilitation medicine. Archives of Physical Medicine and Rehabilitation, 89(8), 1618–1624.PubMedCrossRef Bamm, E. L., & Rosenbaum, P. (2008). Family-centered theory: Origins, development, barriers, and supports to implementation in rehabilitation medicine. Archives of Physical Medicine and Rehabilitation, 89(8), 1618–1624.PubMedCrossRef
go back to reference Beffel, J. H., & Nuttall, A. K. (2020). Influences of parentification and benefit finding on prosocial behavior among typically developing siblings of individuals with autism spectrum disorder. Research in Developmental Disabilities, 104, 103694.PubMedCrossRef Beffel, J. H., & Nuttall, A. K. (2020). Influences of parentification and benefit finding on prosocial behavior among typically developing siblings of individuals with autism spectrum disorder. Research in Developmental Disabilities, 104, 103694.PubMedCrossRef
go back to reference Bronfenbrenner, U. (1977). Toward an experimental ecology of human development. American Psychologist, 32(7), 513.CrossRef Bronfenbrenner, U. (1977). Toward an experimental ecology of human development. American Psychologist, 32(7), 513.CrossRef
go back to reference Burke, M. M., Arnold, C. K., & Owen, A. L. (2015). Sibling advocacy: Perspectives about advocacy from siblings of individuals with intellectual and developmental disabilities. Inclusion, 3(3), 162–175.CrossRef Burke, M. M., Arnold, C. K., & Owen, A. L. (2015). Sibling advocacy: Perspectives about advocacy from siblings of individuals with intellectual and developmental disabilities. Inclusion, 3(3), 162–175.CrossRef
go back to reference Burke, M. M., Taylor, J. L., Urbano, R., & Hodapp, R. M. (2012). Predictors of future caregiving by adult siblings of individuals with intellectual and developmental disabilities. American Journal Intellectual and Developmental Disabilities, 117(1), 33–47.CrossRef Burke, M. M., Taylor, J. L., Urbano, R., & Hodapp, R. M. (2012). Predictors of future caregiving by adult siblings of individuals with intellectual and developmental disabilities. American Journal Intellectual and Developmental Disabilities, 117(1), 33–47.CrossRef
go back to reference Cho, S., Crenshaw, K. W., & McCall, L. (2013). Toward a field of intersectionality studies: Theory, applications, and praxis. Signs: Journal of Women in Culture and Society., 38(4), 785–810.CrossRef Cho, S., Crenshaw, K. W., & McCall, L. (2013). Toward a field of intersectionality studies: Theory, applications, and praxis. Signs: Journal of Women in Culture and Society., 38(4), 785–810.CrossRef
go back to reference Clauss-Ehlers, C. S., Chiriboga, D. A., Hunter, S. J., Roysircar, G., & Tummala-Narra, P. (2019). APA Multicultural Guidelines executive summary: Ecological approach to context, identity, and intersectionality. American Psychologist, 74(2), 232–244.PubMedCrossRef Clauss-Ehlers, C. S., Chiriboga, D. A., Hunter, S. J., Roysircar, G., & Tummala-Narra, P. (2019). APA Multicultural Guidelines executive summary: Ecological approach to context, identity, and intersectionality. American Psychologist, 74(2), 232–244.PubMedCrossRef
go back to reference Corsano, P., Musetti, A., Guidotti, L., & Capelli, F. (2017). Typically developing adolescents’ experience of growing up with a brother with an autism spectrum disorder. Journal of Intellectual & Developmental Disability, 42(2), 151–161.CrossRef Corsano, P., Musetti, A., Guidotti, L., & Capelli, F. (2017). Typically developing adolescents’ experience of growing up with a brother with an autism spectrum disorder. Journal of Intellectual & Developmental Disability, 42(2), 151–161.CrossRef
go back to reference Cridland, E. K., Jones, S. C., Magee, C. A., & Caputi, P. (2014). Family-focused autism spectrum disorder research: A review of the utility of family systems approaches. Autism, 18(3), 213–222.PubMedCrossRef Cridland, E. K., Jones, S. C., Magee, C. A., & Caputi, P. (2014). Family-focused autism spectrum disorder research: A review of the utility of family systems approaches. Autism, 18(3), 213–222.PubMedCrossRef
go back to reference D’Arcy, F., Flynn, J., McCarthy, Y., O’Connor, C., & Tierney, E. (2005). Sibshops: An evaluation of an interagency model. Journal of Intellectual Disabilities, 9(1), 43–57.PubMedCrossRef D’Arcy, F., Flynn, J., McCarthy, Y., O’Connor, C., & Tierney, E. (2005). Sibshops: An evaluation of an interagency model. Journal of Intellectual Disabilities, 9(1), 43–57.PubMedCrossRef
go back to reference Epstein, N. B., Bishop, D. S., & Levin, S. (1978). The McMaster model of family functioning. Journal of Marital and Family Therapy, 4(4), 19–31.CrossRef Epstein, N. B., Bishop, D. S., & Levin, S. (1978). The McMaster model of family functioning. Journal of Marital and Family Therapy, 4(4), 19–31.CrossRef
go back to reference Feinberg, M. E., Solmeyer, A. R., & McHale, S. M. (2012). The third rail of family systems: Sibling relationships, mental and behavioral health, and preventive intervention in childhood and adolescence. Clinical Child and Family Psychology Review, 15(1), 43–57.PubMedPubMedCentralCrossRef Feinberg, M. E., Solmeyer, A. R., & McHale, S. M. (2012). The third rail of family systems: Sibling relationships, mental and behavioral health, and preventive intervention in childhood and adolescence. Clinical Child and Family Psychology Review, 15(1), 43–57.PubMedPubMedCentralCrossRef
go back to reference Goldstein, S., & Naglieri, J. A. (2009). Autism Spectrum Rating Scales (ASRS). Multi-Health System. Goldstein, S., & Naglieri, J. A. (2009). Autism Spectrum Rating Scales (ASRS). Multi-Health System.
go back to reference Gordillo, M. L., Chu, A., & Long, K. A. (2020). Mothers’ adjustment to autism: Exploring the roles of autism knowledge and culture. Journal of Pediatric Psychology, 45(8), 877–886.PubMedCrossRef Gordillo, M. L., Chu, A., & Long, K. A. (2020). Mothers’ adjustment to autism: Exploring the roles of autism knowledge and culture. Journal of Pediatric Psychology, 45(8), 877–886.PubMedCrossRef
go back to reference Gorjy, R. S., Fielding, A., & Falkmer, M. (2017). ‘It’s better than it used to be’: Perspectives of adolescent siblings of children with an autism spectrum condition. Child & Family Social Work, 22, 1488–1496.CrossRef Gorjy, R. S., Fielding, A., & Falkmer, M. (2017). ‘It’s better than it used to be’: Perspectives of adolescent siblings of children with an autism spectrum condition. Child & Family Social Work, 22, 1488–1496.CrossRef
go back to reference Guest, G., MacQueen, K. M., & Namey, E. E. (2011). Applied Thematic Analysis. Sage Publications. Guest, G., MacQueen, K. M., & Namey, E. E. (2011). Applied Thematic Analysis. Sage Publications.
go back to reference Interagency Autism Coordinating Committee. (2019). 2016–2017 Interagency Autism Coordinating Committee Strategic Plan for Autism Spectrum Disorder. Interagency Autism Coordinating Committee. (2019). 2016–2017 Interagency Autism Coordinating Committee Strategic Plan for Autism Spectrum Disorder.
go back to reference Jones, E. A., Fiani, T., Stewart, J. L., Sheikh, R., Neil, N., & Fienup, D. M. (2019). When one sibling has autism: Adjustment and sibling relationship. Journal of Child and Family Studies, 28(5), 1272–1282.CrossRef Jones, E. A., Fiani, T., Stewart, J. L., Sheikh, R., Neil, N., & Fienup, D. M. (2019). When one sibling has autism: Adjustment and sibling relationship. Journal of Child and Family Studies, 28(5), 1272–1282.CrossRef
go back to reference Kao, B., Romero-Bosch, L., Plante, W., & Lobato, D. (2012). The experiences of Latino siblings of children with developmental disabilities. Child: Care, Health, and Development, 38(4), 545–552.CrossRef Kao, B., Romero-Bosch, L., Plante, W., & Lobato, D. (2012). The experiences of Latino siblings of children with developmental disabilities. Child: Care, Health, and Development, 38(4), 545–552.CrossRef
go back to reference Kazak, A. E. (1989). Families of chronically ill children: A systems and social-ecological model of adaptation and challenge. Journal of Consulting and Clinical Psychology, 57(1), 25–30.PubMedCrossRef Kazak, A. E. (1989). Families of chronically ill children: A systems and social-ecological model of adaptation and challenge. Journal of Consulting and Clinical Psychology, 57(1), 25–30.PubMedCrossRef
go back to reference Kenny, L., Hattersley, C., Molins, B., Buckley, C., Povey, C., & Pellicano, E. (2016). Which terms should be used to describe autism? Perspectives from the UK autism community. Autism, 20(4), 442–462.PubMedCrossRef Kenny, L., Hattersley, C., Molins, B., Buckley, C., Povey, C., & Pellicano, E. (2016). Which terms should be used to describe autism? Perspectives from the UK autism community. Autism, 20(4), 442–462.PubMedCrossRef
go back to reference King, M., Ruggles, S., Alexander, J. T., Flood, S., Genadek, K., Schroeder, M. B., Trampe, B., & Vick, R. (2010). Integrated public use microdata series, current population survey: Version 3.0. [machine-readable database]. University of Minnesota, 20. King, M., Ruggles, S., Alexander, J. T., Flood, S., Genadek, K., Schroeder, M. B., Trampe, B., & Vick, R. (2010). Integrated public use microdata series, current population survey: Version 3.0. [machine-readable database]. University of Minnesota, 20.
go back to reference Kramer, L., Conger, K. J., Rogers, C. R., & Ravindran, N. (2019). Siblings. In B. Fiese (Ed.), APA Handbook of Contemporary Family Psychology (pp. 521–538). American Psychological Association. Kramer, L., Conger, K. J., Rogers, C. R., & Ravindran, N. (2019). Siblings. In B. Fiese (Ed.), APA Handbook of Contemporary Family Psychology (pp. 521–538). American Psychological Association.
go back to reference Kryzak, L. A., Cengher, M., Feeley, K. M., Fienup, D. M., & Jones, E. A. (2015). A community support program for children with autism and their typically developing siblings: Initial investigation. Journal of Intellectual Disabilities, 19(2), 159–177.PubMedCrossRef Kryzak, L. A., Cengher, M., Feeley, K. M., Fienup, D. M., & Jones, E. A. (2015). A community support program for children with autism and their typically developing siblings: Initial investigation. Journal of Intellectual Disabilities, 19(2), 159–177.PubMedCrossRef
go back to reference La Roche, M. J., Bush, H. H., & D’Angelo, E. (2018). The assessment and treatment of autism spectrum disorder: A cultural examination. Practice Innovations, 3(2), 107–122.CrossRef La Roche, M. J., Bush, H. H., & D’Angelo, E. (2018). The assessment and treatment of autism spectrum disorder: A cultural examination. Practice Innovations, 3(2), 107–122.CrossRef
go back to reference Lauderdale-Littin, S., & Blacher, J. (2017). Young adults with severe intellectual disability: Culture, parent, and sibling impact. Journal of Intellectual and Developmental Disability, 42(3), 230–239.CrossRef Lauderdale-Littin, S., & Blacher, J. (2017). Young adults with severe intellectual disability: Culture, parent, and sibling impact. Journal of Intellectual and Developmental Disability, 42(3), 230–239.CrossRef
go back to reference Lee, C. E., Hagiwara, M., & Black, H. (2021). A scoping review of cross-cultural experiences of siblings of individuals with intellectual and developmental disabilities in the United States. Research in Developmental Disabilities, 112, 1916.CrossRef Lee, C. E., Hagiwara, M., & Black, H. (2021). A scoping review of cross-cultural experiences of siblings of individuals with intellectual and developmental disabilities in the United States. Research in Developmental Disabilities, 112, 1916.CrossRef
go back to reference Lobato, D., Kao, B., Plante, W., Seifer, R., Grullon, E., Cheas, L., & Canino, G. (2011). Psychological and school functioning of Latino siblings of children with intellectual disability. Journal of Child Psychology and Psychiatry, 52(6), 696–703.PubMedCrossRef Lobato, D., Kao, B., Plante, W., Seifer, R., Grullon, E., Cheas, L., & Canino, G. (2011). Psychological and school functioning of Latino siblings of children with intellectual disability. Journal of Child Psychology and Psychiatry, 52(6), 696–703.PubMedCrossRef
go back to reference Lobato, D. J., & Kao, B. T. (2002). Integrated sibling-parent group intervention to improve sibling knowledge and adjustment to chronic illness and disability. Journal of Pediatric Psychology, 27(8), 711–716.PubMedCrossRef Lobato, D. J., & Kao, B. T. (2002). Integrated sibling-parent group intervention to improve sibling knowledge and adjustment to chronic illness and disability. Journal of Pediatric Psychology, 27(8), 711–716.PubMedCrossRef
go back to reference Lobato, D. J., & Kao, B. T. (2005). Brief report: Family-based group intervention for young siblings of children with chronic illness and developmental disability. Journal of Pediatric Psychology, 30(8), 678–682.PubMedCrossRef Lobato, D. J., & Kao, B. T. (2005). Brief report: Family-based group intervention for young siblings of children with chronic illness and developmental disability. Journal of Pediatric Psychology, 30(8), 678–682.PubMedCrossRef
go back to reference Long, K., & Alderfer, M. (2020). Where are siblings of children with specific health care needs in family-centered care? The Clinical Psychologist, 73(1), 5–11. Long, K., & Alderfer, M. (2020). Where are siblings of children with specific health care needs in family-centered care? The Clinical Psychologist, 73(1), 5–11.
go back to reference Long, K. A., Gordillo, M., & Orsmond, G. I. (2020). Improving the validity and generalizability of adult autism research through incorporating family and cultural contexts. Autism in Adulthood, 2(3), 177–184.PubMedPubMedCentralCrossRef Long, K. A., Gordillo, M., & Orsmond, G. I. (2020). Improving the validity and generalizability of adult autism research through incorporating family and cultural contexts. Autism in Adulthood, 2(3), 177–184.PubMedPubMedCentralCrossRef
go back to reference Long, K. A., Lobato, D., Kao, B., Plante, W., Grullón, E., Cheas, L., Houck, C., & Seifer, R. (2013). Perceptions of emotion expression and sibling–parent emotion communication in Latino and non-Latino white siblings of children with intellectual disabilities. Journal of Pediatric Psychology, 38(5), 551–562.PubMedPubMedCentralCrossRef Long, K. A., Lobato, D., Kao, B., Plante, W., Grullón, E., Cheas, L., Houck, C., & Seifer, R. (2013). Perceptions of emotion expression and sibling–parent emotion communication in Latino and non-Latino white siblings of children with intellectual disabilities. Journal of Pediatric Psychology, 38(5), 551–562.PubMedPubMedCentralCrossRef
go back to reference Lopez, K., Magaña, S., Xu, Y., & Guzman, J. (2018). Mother’s Reaction to Autism Diagnosis: A Qualitative Analysis Comparing Latino and White Parents. Journal of Rehabilitation; Alexandria, 84(1), 41–50 Lopez, K., Magaña, S., Xu, Y., & Guzman, J. (2018). Mother’s Reaction to Autism Diagnosis: A Qualitative Analysis Comparing Latino and White Parents. Journal of Rehabilitation; Alexandria, 84(1), 41–50
go back to reference Magaña, S., & Smith, M. J. (2006). Psychological distress and well–being of Latina and non–Latina white mothers of youth and adults with an autism spectrum disorder: Cultural attitudes towards coresidence status. American Journal of Orthopsychiatry, 76(3), 346–357.PubMedCrossRef Magaña, S., & Smith, M. J. (2006). Psychological distress and well–being of Latina and non–Latina white mothers of youth and adults with an autism spectrum disorder: Cultural attitudes towards coresidence status. American Journal of Orthopsychiatry, 76(3), 346–357.PubMedCrossRef
go back to reference Maenner, M. J., Shaw, K. A., & Baio, J. (2020). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR Surveillance Summaries, 69(4), 1.PubMedCentralCrossRef Maenner, M. J., Shaw, K. A., & Baio, J. (2020). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR Surveillance Summaries, 69(4), 1.PubMedCentralCrossRef
go back to reference Mandleco, B., & Webb, A. E. (2015). Sibling perceptions of living with a young person with Down syndrome or autism spectrum disorder: An integrated review. Journal for Specialists in Pediatric Nursing, 20(3), 138–156.PubMedCrossRef Mandleco, B., & Webb, A. E. (2015). Sibling perceptions of living with a young person with Down syndrome or autism spectrum disorder: An integrated review. Journal for Specialists in Pediatric Nursing, 20(3), 138–156.PubMedCrossRef
go back to reference McHale, S. M., Updegraff, K. A., & Feinberg, M. E. (2016). Siblings of youth with autism spectrum disorders: Theoretical perspectives on sibling relationships and individual adjustment. Journal of Autism and Developmental Disorders, 46(2), 589–602.PubMedPubMedCentralCrossRef McHale, S. M., Updegraff, K. A., & Feinberg, M. E. (2016). Siblings of youth with autism spectrum disorders: Theoretical perspectives on sibling relationships and individual adjustment. Journal of Autism and Developmental Disorders, 46(2), 589–602.PubMedPubMedCentralCrossRef
go back to reference McHale, S. M., Updegraff, K. A., & Whiteman, S. D. (2012). Sibling relationships and influences in childhood and adolescence. Journal of Marriage and the Family, 74(5), 913–930.PubMedPubMedCentralCrossRef McHale, S. M., Updegraff, K. A., & Whiteman, S. D. (2012). Sibling relationships and influences in childhood and adolescence. Journal of Marriage and the Family, 74(5), 913–930.PubMedPubMedCentralCrossRef
go back to reference Meadan, H., Stoner, J. B., & Angell, M. E. (2010). Review of literature related to the social, emotional, and behavioral adjustment of siblings of individuals with autism spectrum disorder. Journal of Developmental and Physical Disabilities, 22(1), 83–100.CrossRef Meadan, H., Stoner, J. B., & Angell, M. E. (2010). Review of literature related to the social, emotional, and behavioral adjustment of siblings of individuals with autism spectrum disorder. Journal of Developmental and Physical Disabilities, 22(1), 83–100.CrossRef
go back to reference Morse, J. (1995). The significance of saturation. Qualitative Health Research, 5, 147–149.CrossRef Morse, J. (1995). The significance of saturation. Qualitative Health Research, 5, 147–149.CrossRef
go back to reference Noe-Bustamante, L., Mora, L., & Lopez, H. (2020). About one-in-four US Hispanics have heard of Latinx, but just 3% use it. Pew Research Center. Noe-Bustamante, L., Mora, L., & Lopez, H. (2020). About one-in-four US Hispanics have heard of Latinx, but just 3% use it. Pew Research Center.
go back to reference Nuttall, A. K., Coberly, B., & Diesel, S. J. (2018). Childhood caregiving roles, perceptions of benefits, and future caregiving intentions among typically developing adult siblings of individuals with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(4), 1199–1209.PubMedCrossRef Nuttall, A. K., Coberly, B., & Diesel, S. J. (2018). Childhood caregiving roles, perceptions of benefits, and future caregiving intentions among typically developing adult siblings of individuals with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(4), 1199–1209.PubMedCrossRef
go back to reference Orsmond, G., & Long, K. A. (2020). Family impact and adjustment across the lifespan: Siblings of individuals with intellectual and developmental disabilities. In L. Glidden (Ed.), APA Handbook of Intellectual and Developmental Disabilities. American Psychological Association. Orsmond, G., & Long, K. A. (2020). Family impact and adjustment across the lifespan: Siblings of individuals with intellectual and developmental disabilities. In L. Glidden (Ed.), APA Handbook of Intellectual and Developmental Disabilities. American Psychological Association.
go back to reference Petalas, M. A., Hastings, R. P., Nash, S., Dowey, A., & Reilly, D. (2009). “I like that he always shows who he is”: The perceptions and experiences of siblings with a brother with autism spectrum disorder. International Journal of Disability, Development and Education, 56(4), 381–399.CrossRef Petalas, M. A., Hastings, R. P., Nash, S., Dowey, A., & Reilly, D. (2009). “I like that he always shows who he is”: The perceptions and experiences of siblings with a brother with autism spectrum disorder. International Journal of Disability, Development and Education, 56(4), 381–399.CrossRef
go back to reference Petalas, M. A., Hastings, R. P., Nash, S., & Duff, S. (2015). Typicality and subtle difference in sibling relationships: Experiences of adolescents with autism. Journal of Child and Family Studies, 24(1), 38–49.CrossRef Petalas, M. A., Hastings, R. P., Nash, S., & Duff, S. (2015). Typicality and subtle difference in sibling relationships: Experiences of adolescents with autism. Journal of Child and Family Studies, 24(1), 38–49.CrossRef
go back to reference Petalas, M. A., Hastings, R. P., Nash, S., Reilly, D., & Dowey, A. (2012). The perceptions and experiences of adolescent siblings who have a brother with autism spectrum disorder. Journal of Intellectual and Developmental Disabilities, 37(4), 303–314.CrossRef Petalas, M. A., Hastings, R. P., Nash, S., Reilly, D., & Dowey, A. (2012). The perceptions and experiences of adolescent siblings who have a brother with autism spectrum disorder. Journal of Intellectual and Developmental Disabilities, 37(4), 303–314.CrossRef
go back to reference Peterson, G. W., & Bush, K. R. (2013). Conceptualizing cultural influences on socialization: Comparing parent-adolescent relationships in the United States and Mexico. In G. Peterson, K. Bush (Eds). Handbook of Marriage and the Family. Boston: Springer. Peterson, G. W., & Bush, K. R. (2013). Conceptualizing cultural influences on socialization: Comparing parent-adolescent relationships in the United States and Mexico. In G. Peterson, K. Bush (Eds). Handbook of Marriage and the Family. Boston: Springer.
go back to reference Phillips, R. S. (1999). Intervention with siblings of children with developmental disabilities from economically disadvantaged families. Families in Society, 80(6), 569–577.CrossRef Phillips, R. S. (1999). Intervention with siblings of children with developmental disabilities from economically disadvantaged families. Families in Society, 80(6), 569–577.CrossRef
go back to reference QSR. (2012). NVivo qualitative data analysis software, Version 10. QSR International Pty Ltd. QSR. (2012). NVivo qualitative data analysis software, Version 10. QSR International Pty Ltd.
go back to reference Rossiter, L., & Sharpe, D. (2001). The siblings of individuals with mental retardation: A quantitative integration of the literature. Journal of Child and Family Studies, 10(1), 65–84.CrossRef Rossiter, L., & Sharpe, D. (2001). The siblings of individuals with mental retardation: A quantitative integration of the literature. Journal of Child and Family Studies, 10(1), 65–84.CrossRef
go back to reference Sabogal, F., Marín, G., Otero-Sabogal, R., Marín, B. V., & Perez-Stable, E. J. (1987). Hispanic familism and acculturation: What changes and what doesn’t? Hispanic Journal of Behavioral Sciences, 9(4), 397–412.CrossRef Sabogal, F., Marín, G., Otero-Sabogal, R., Marín, B. V., & Perez-Stable, E. J. (1987). Hispanic familism and acculturation: What changes and what doesn’t? Hispanic Journal of Behavioral Sciences, 9(4), 397–412.CrossRef
go back to reference Sage, K. D., & Jegatheesan, B. (2010). Perceptions of siblings with autism and relationships with them: European American and Asian American siblings draw and tell. Journal of Intellectual and Developmental Disability, 35(2), 92–103.PubMedCrossRef Sage, K. D., & Jegatheesan, B. (2010). Perceptions of siblings with autism and relationships with them: European American and Asian American siblings draw and tell. Journal of Intellectual and Developmental Disability, 35(2), 92–103.PubMedCrossRef
go back to reference Salinas, C., Jr. (2020). The complexity of the “x” in Latinx: How Latinx/a/o students relate to, identify with, and understand the term Latinx. Journal of Hispanic Higher Education, 19(2), 149–168.CrossRef Salinas, C., Jr. (2020). The complexity of the “x” in Latinx: How Latinx/a/o students relate to, identify with, and understand the term Latinx. Journal of Hispanic Higher Education, 19(2), 149–168.CrossRef
go back to reference Shivers, C. M., & Plavnick, J. B. (2015). Sibling involvement in interventions for individuals with autism spectrum disorders: A systematic review. Journal of Autism and Developmental Disorders, 45(3), 685–696.PubMedCrossRef Shivers, C. M., & Plavnick, J. B. (2015). Sibling involvement in interventions for individuals with autism spectrum disorders: A systematic review. Journal of Autism and Developmental Disorders, 45(3), 685–696.PubMedCrossRef
go back to reference Smith, T., & Perry, A. (2005). A sibling support group for brothers and sisters of children with autism. Journal on Developmental Disabilities, 11(1), 77–88. Smith, T., & Perry, A. (2005). A sibling support group for brothers and sisters of children with autism. Journal on Developmental Disabilities, 11(1), 77–88.
go back to reference Tomeny, T. S., Barry, T. D., Fair, E. C., & Riley, R. (2017). Parentification of adult siblings of individuals with autism spectrum disorder. Journal of Child and Family Studies, 26(4), 1056–1067.CrossRef Tomeny, T. S., Barry, T. D., Fair, E. C., & Riley, R. (2017). Parentification of adult siblings of individuals with autism spectrum disorder. Journal of Child and Family Studies, 26(4), 1056–1067.CrossRef
go back to reference Tozer, R., Atkin, K., & Wenham, A. (2013). Continuity, commitment and context: Adult siblings of people with autism plus learning disability. Health and Social Care in the Community, 21(5), 480–488.PubMedCrossRef Tozer, R., Atkin, K., & Wenham, A. (2013). Continuity, commitment and context: Adult siblings of people with autism plus learning disability. Health and Social Care in the Community, 21(5), 480–488.PubMedCrossRef
go back to reference Tsai, H. W. J., Cebula, K., Liang, S. H., & Fletcher-Watson, S. (2018). Siblings’ experiences of growing up with children with autism in Taiwan and the United Kingdom. Research in Developmental Disabilities, 83, 206–216.PubMedCrossRef Tsai, H. W. J., Cebula, K., Liang, S. H., & Fletcher-Watson, S. (2018). Siblings’ experiences of growing up with children with autism in Taiwan and the United Kingdom. Research in Developmental Disabilities, 83, 206–216.PubMedCrossRef
go back to reference Tudor, M. E., Rankin, J., & Lerner, M. D. (2018). A model of family and child functioning in siblings of youth with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(4), 1210–1227.PubMedCrossRef Tudor, M. E., Rankin, J., & Lerner, M. D. (2018). A model of family and child functioning in siblings of youth with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(4), 1210–1227.PubMedCrossRef
go back to reference Umaña-Taylor, A. J., & Updegraff, K. A. (2013). Latino families in the United States. In Handbook of marriage and the family (pp. 723–747). Springer. Umaña-Taylor, A. J., & Updegraff, K. A. (2013). Latino families in the United States. In Handbook of marriage and the family (pp. 723–747). Springer.
go back to reference Updegraff, K. A., McHale, S. M., Killoren, S. E., & Rodríguez, A. S. (2010). Cultural variations in sibling relationships. In J. Caspi (Ed.), Siblings Development: Implications for mental health practitioners (pp. 83–106). Springer. Updegraff, K. A., McHale, S. M., Killoren, S. E., & Rodríguez, A. S. (2010). Cultural variations in sibling relationships. In J. Caspi (Ed.), Siblings Development: Implications for mental health practitioners (pp. 83–106). Springer.
go back to reference Updegraff, K. A., McHale, S. M., Whiteman, S. D., Thayer, S. M., & Delgado, M. Y. (2005). Adolescent sibling relationships in Mexican American families: Exploring the role of familism. Journal of Family Psychology, 19(4), 512–522.PubMedPubMedCentralCrossRef Updegraff, K. A., McHale, S. M., Whiteman, S. D., Thayer, S. M., & Delgado, M. Y. (2005). Adolescent sibling relationships in Mexican American families: Exploring the role of familism. Journal of Family Psychology, 19(4), 512–522.PubMedPubMedCentralCrossRef
go back to reference Updegraff, K. A., Umaña-Taylor, A. J., Rodríguez De Jesús, S. A., McHale, S. M., Feinberg, M. F., & Kuo, S. I. (2016). Family-focused prevention with Latinos: What about sisters and brothers? Journal of Family Psychology, 30(5), 633–640.PubMedCrossRef Updegraff, K. A., Umaña-Taylor, A. J., Rodríguez De Jesús, S. A., McHale, S. M., Feinberg, M. F., & Kuo, S. I. (2016). Family-focused prevention with Latinos: What about sisters and brothers? Journal of Family Psychology, 30(5), 633–640.PubMedCrossRef
go back to reference Walton, K. M., & Ingersoll, B. R. (2015). Psychosocial adjustment and sibling relationships in siblings of children with autism spectrum disorder: Risk and protective Factors. Journal of Autism and Developmental Disorders, 45(9), 2764–2778.PubMedCrossRef Walton, K. M., & Ingersoll, B. R. (2015). Psychosocial adjustment and sibling relationships in siblings of children with autism spectrum disorder: Risk and protective Factors. Journal of Autism and Developmental Disorders, 45(9), 2764–2778.PubMedCrossRef
go back to reference Zuckerman, K. E., Sinche, B., Mejia, A., Cobian, M., Becker, T., & Nicolaidis, C. (2014). Latino parents’ perspectives of barriers to autism diagnosis. Academic Pediatrics, 14(3), 301–308.PubMedPubMedCentralCrossRef Zuckerman, K. E., Sinche, B., Mejia, A., Cobian, M., Becker, T., & Nicolaidis, C. (2014). Latino parents’ perspectives of barriers to autism diagnosis. Academic Pediatrics, 14(3), 301–308.PubMedPubMedCentralCrossRef
Metagegevens
Titel
Cultural Influences on Sibling Relationships, Roles, and Self-Concept in the Context of Autism: Perspectives of Latino/a/x and non-Latino/a/x Siblings
Auteurs
Kristin A. Long
Lydia Chevalier
Andrea Chu
Kate M. Guthrie
Barbara Kao
Wendy Plante
Debra Lobato
Publicatiedatum
24-09-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 9/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-05287-z

Andere artikelen Uitgave 9/2022

Journal of Autism and Developmental Disorders 9/2022 Naar de uitgave