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Gepubliceerd in: Journal of Autism and Developmental Disorders 9/2022

24-09-2021 | Original Paper

Cultural Influences on Sibling Relationships, Roles, and Self-Concept in the Context of Autism: Perspectives of Latino/a/x and non-Latino/a/x Siblings

Auteurs: Kristin A. Long, Lydia Chevalier, Andrea Chu, Kate M. Guthrie, Barbara Kao, Wendy Plante, Debra Lobato

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 9/2022

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Abstract

Siblings describe positive and negative aspects of autism and often assume lifelong support roles. Less is known about cultural influences on sibling relationships. This qualitative study characterizes processes linking siblings’ autism conceptualizations, sibling relationships, and self-concept using a multicultural framework. Siblings (12 Latino/a/x, 9 non-Latino/a/x white) participated. Data were stratified by ethnicity and analyzed using applied thematic analysis. Latino/a/x and non-Latino/a/x siblings described processes linking autism, relationships, and self-concept differently. Latino/a/x siblings emphasized family roles and identified as caregivers and protectors. Non-Latino/a/x siblings emphasized general sensitivity toward individuals who differed from themselves. Findings may reflect cultural differences in familism, caregiving expectations, and autism conceptualizations, thereby illuminating foundations of siblings’ lifelong caregiving roles and highlighting the importance of culturally-sensitive, family-centered care.
Voetnoten
1
We use the term “individuals on the autism spectrum” as the middle ground between person-first language (i.e., “individual with autism” as recommended by the APA style guide) and identity-first language (i.e., “autistic individual” as preferred by autistic self-advocates) (Kenny et al., 2016).
 
2
We use the term Latino/a/x to encompass both gender-inclusive language (i.e., Latinx) as well as the more traditional Latino/a language that is more commonly used and/or preferred by members of this ethnic group (Noe-Bustamante et al., 2020; Salinas, 2020).
 
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Metagegevens
Titel
Cultural Influences on Sibling Relationships, Roles, and Self-Concept in the Context of Autism: Perspectives of Latino/a/x and non-Latino/a/x Siblings
Auteurs
Kristin A. Long
Lydia Chevalier
Andrea Chu
Kate M. Guthrie
Barbara Kao
Wendy Plante
Debra Lobato
Publicatiedatum
24-09-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 9/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-05287-z

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