Skip to main content
Mijn bibliotheek
Shop
Nieuws Boeken Tijdschriften E-learning Web-tv Video Audio
Tips voor Mijn BSL
UITGEBREID ZOEKEN
Inloggen
Top
Journal of Child and Family Studies
Gepubliceerd in: Journal of Child and Family Studies 3/2015

01-03-2015 | Original Paper

Coping Strategies of Children and Adolescents with Clinically Diagnosed Short Stature

Auteurs: Julia Quitmann, Anja Rohenkohl, Anja Specht, Corinna Petersen-Ewert, Zita Schillmöller, Monika Bullinger, the QoLISSY Study Group

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 3/2015

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

This paper focusses on coping strategies employed by children and adolescents with diagnosed short stature, assesses the impact of socio-demographic and clinical characteristics on coping, examines the relationship between coping and health related quality of life (QoL) and investigates the role of coping strategies in mediating the relationship between height and QoL. Coping with a disease (CODI) and quality of life in short stature youth (QoLISSY–QoL) questionnaires were completed by 137 short-statured children and adolescents between 8 and 18 years, participating in the crosssectional European QoLISSY study. Clinical and socio-demographic data were collected to examine differences in coping via variance and regression analyses, associations between CODI and QoLISSY were inspected using correlation and mediation analyses. Most frequently employed coping strategies in the CODI were “Acceptance” and “Wishful Thinking”, with “Emotional Reaction” used least. Significant effects of age, diagnosis and treatment status on coping strategies were detected. CODI scales “Acceptance” and “Distance” were associated with higher QoLISSY–QoL scores, “Emotional Reaction” and “Wishful Thinking” with lower scores. Coping strategies predicted 60 % of the QoLISSY–QoL variance. Relationships between height deviation and QoLISSY–QoL were mediated by the coping strategies of “Wishful Thinking” and “Distance”. Findings suggest that coping efforts vary with socio-demographic and clinical characteristics, that protective coping strategies in terms of QoL can be identified and that coping mediates the relationship between short stature and QoL. Future longitudinal research should focus on the adaptive function of coping in relation to QoL over time.
vorige artikel Turkish Mothers’ Parenting Beliefs in Response to Preschoolers’ Aggressive and Socially Withdrawn Behaviors
volgende artikel The Associations of Executive Function and Temperament in a Model of Risk for Childhood Anxiety
Literatuur
Abe, S., Okumura, A., Mukae, T., Niijima, S., Yamashiro, Y., & Shimizu, T. (2009). Depressive tendency in children with growth hormone deficiency. Journal of Paediatrics and Child Health, 45, 636–640.CrossRefPubMed
Aldwin, C. M. (2007). Stress. Coping and development: An integrative perspective (2nd ed.). New York: The Guilford Press.
Attanasio, A. F., Shavrikova, E. P., Blum, W. F., & Shalet, S. M. (2005). Quality of life in childhood onset growth hormone-deficient patients in the transition phase from childhood to adulthood. Journal of Clinical Endocrinology and Metabolism, 90, 4525–4529.CrossRefPubMed
Binder, G., Nagel, B. H. P., Ranke, M. B., & Mullis, P. E. (2002). Isolated GH deficiency (IGHD) type II: Imaging of the pituitary gland by magnetic resonance reveals characteristic differences in comparison with severe IGHD of unknown origin. European Journal of Endocrinology, 147, 755–760.CrossRefPubMed
Bisacchi, N., Bal, M. O., Nardi, L., Bettocchi, I., D’Addabbo, G., Conti, V., et al. (2011). Psychological and behavioural aspects in children and adolescents with congenital hypothyroidism diagnosed by neonatal screening: Comparison between parents’ and children’s perceptions. European Journal of Endocrinology, 164, 269–276.CrossRefPubMed
Bullinger, M., Koltowska-Häggstöm, M., Sandberg, D., Chaplin, J. E., Wollmann, H., & Noeker, M. (2009). Health-related quality of life of children and adolescents with growth hormone deficiency or idiopathic short stature - part 2: Available results and future directions. Hormone Research, 72, 74–81.CrossRefPubMed
Bullinger, M., Quitmann, J., Power, M., Herdman, M., Mimoun, E., DeBusk, K., et al. (2013). Assessing the quality of life of health-referred children and adolescents with short stature: Development and psychometric testing of the QoLISSY instrument. Health and Quality of Life Outcomes, 11, 76.CrossRefPubMedCentralPubMed
Chaplin, J. E., Kriström, B., Jonsson, B., Hägglöf, B., Tuvemo, T., & Aronson, A. S. (2011). Improvements in behavior and self-esteem following growth hormone treatment in short prepubertal children. Hormone Research in Paediatrics, 75, 291–303.CrossRefPubMed
Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). Hillsdale, N J: Lawrence Erlbaum Associates.
Cohen, P., Rogol, A. D., Deal, C. L., Saenger, P., Reiter, E. O., Ross, J. L., et al. (2008). Consensus statement on the diagnosis and treatment of children with idiopathic short stature: A summary of the growth hormone research society, the Lawson Wilkins pediatric endocrine society, and the European society for paediatric endocrinology workshop. Journal of Clinical Endocrinology and Metabolism, 93, 4210–4217.CrossRefPubMed
Compas, B. E., Connor-Smith, J. K., Saltzman, H., Harding Thompson, A., & Wadsworth, M. E. (2001). Coping with Stress during childhood and adolescence: Problems, progress, and potential. Theory and Research. Psychological Bulletin, 127, 87–127.CrossRef
Compas, B. E., Jaser, S. S., Dunn, M. J., & Rodriguez, E. M. (2012). Coping with chronic illness in childhood and adolescence. Annual Review of Clinical Psychology, 8, 455–480.CrossRefPubMedCentralPubMed
Drummond, A., Looman, W. S., & Phillips, A. (2012). Coping among parents of children with special health care needs with and without a health care home. Journal of Pediatric Health Care, 26, 266–275.CrossRefPubMed
Eccleston, C., Palermo, T. M., Fisher, E., & Law, E. (2012). Psychological interventions for parents of children and adolescents with chronic illness. Cochrane Database Systematic Review. doi:10.​1002/​14651858.​CD009660.
Field, A. (2009). Discovering statistics using SPSS (3rd ed.). London: Sage.
Finkelstein, B. S., Imperiale, T. F., Speroff, T., Marrero, U., Radcliffe, D. J., & Cuttler, L. (2002). Effect of growth hormone therapy on height in children with idiopathic short stature: A meta-analysis. Archives of Pediatrics and Adolescent Medicine, 156, 230–240.CrossRefPubMed
Gannoni, A. F., & Shute, R. H. (2009). Parental and child perspectives on adaptation to childhood chronic illness: A qualitative study. Clinical Child Psychology and Psychiatry, 15, 39–53.CrossRefPubMed
Geisler, A., Lass, N., Reinsch, N., Uysal, Y., Singer, V., Ravens-Sieberer, U., et al. (2012). Quality of life in children and adolescents with growth hormone deficiency: Association with growth hormone treatment. Hormone Research in Paediatrics, 78, 94–99.CrossRefPubMed
Goodman, R. (1997). The strengths and difficulties questionnaire: A research note. Journal of Child Psychology and Psychiatry, 38, 581–586.CrossRefPubMed
Gordon, M., Crouthamel, C., Post, E. M., & Richman, R. A. (1982). Psychosocial aspects of constitutional short stature: Social competence, behavior problems, self-esteem, and family functioning. Journal of Pediatrics, 101, 477–480.CrossRefPubMed
Greenley, R. N., Hommel, K. A., Nebel, J., Raboin, T., Li, S. H., Simpson, P., et al. (2010). A meta-analytic review of the psychosocial adjustment of youth with inflammatory bowel disease. Journal of Pediatric Psychology, 8, 857–869.CrossRef
Guion, K., & Mrug, S. (2012). The role of parental and adolescent attributions in adjustment of adolescents with chronic illness. Journal of Clinical Psychology in Medical Settings, 19, 262–269.CrossRefPubMed
Harter, S. (2001). The construction of the self: A developmental perspective. New York: The Guilford Press.
Hauffa, B. (2008). Normales Wachstum und Wachstumsstörungen. Stuttgart: Thieme Verlag.
Holmes, C. S., Karlsson, J. A., & Thompson, R. G. (1985). Social and school competencies in children with short stature: Longitudinal patterns. Journal of Developmental and Behavioral Pediatrics, 6, 263–267.PubMed
Jaser, S. S., & White, L. E. (2011). Coping and resilience in adolescents with type 1 diabetes. Child Care Health, 37, 335–342.CrossRef
Kieckhefer, G. M., Trahms, C. M., Churchill, S. S., Kratz, L., Uding, N., & Villareale, N. (2013). A randomized clinical trial of the building on family strengths program: An education program for parents of children with chronic health conditions. Maternal and Child Health Journal. doi:10.​1007/​s10995-013-1273-2.
Kranzler, J. H., Rosenbloom, A. L., Proctor, B., Diamond, F. B., & Watson, M. (2000). Is short stature a handicap? A comparison of the psychosocial functioning of referred and nonreferred children with normal short stature and children with normal stature. Journal of Pediatrics, 136, 96–102.CrossRefPubMed
Lazarus, R. S. (1966). Psychological stress and the coping process. New York: McGraw-Hill.
Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal and coping. New York: Springer.
Lee, J. M., Appugliese, D., Coleman, S. M., Kaciroti, N., Corwyn, R. F., Bradley, R. H., et al. (2009). Short stature in a population-based cohort: Social, emotional, and behavioral functioning. Pediatrics, 124, 903–910.CrossRefPubMed
Leiberman, E., Pilpel, D., Carel, C. A., Levi, E., & Zadik, Z. (1993). Coping and satisfaction with growth hormone treatment among short-stature children. Hormone Research, 40, 128–135.CrossRefPubMed
Li, L., & Power, C. (2004). Influences on childhood height: Comparing two generations in the 1958 British birth cohort. International Journal of Epidemiology, 33, 1320–1328.CrossRefPubMed
Maes, S., Leventhal, H., & De Ridder, D. (1996). Coping with chronic disease. In M. Zeidner & N. S. Endler (Eds.), Handbook of coping. Theory, research, applications (pp. 221–251). New York: Wiley.
Magnusson, P. K., Gunnell, D., Tynelius, P., Davey Smith, G., & Rasmussen, F. (2005). Strong inverse association between height and suicide in a large cohort of Swedish men: Evidence of early life origins of suicidal behavior. American Journal of Psychiatry, 162, 1373–1375.CrossRefPubMed
Nehring, J. W., Call, A., Mandleco, B. L., & Dyches, T. T. (2009). Daily stressors and coping responses of children and adolescents with type 1 diabetes. Child: Care, Health and Development, 35, 330–339.
Noeker, M. (2009). Management of idiopathic short stature: Psychological endpoints, assessment strategies and cognitive-behavioral intervention. Hormone Research, 71, 75–81.CrossRefPubMed
Noeker, M., & Haverkamp, F. (2000). Adjustment in conditions with short stature: A conceptual framework. Journal of Pediatric Endocrinology and Metabolism, 13, 1585–1594.CrossRefPubMed
Papastefanou, C. (2009). Entwicklungspsychologische Grundlagen. In C. v. Hagen & H. P. Schwarz (Eds.), Psychische Entwicklung bei chronischer Krankheit im Kindes- und Jugendalter (pp. 39–52). Stuttgart: Kohlhammer.
Peeters, Y., Boersma, S. N., & Koopman, H. M. (2008). Predictors of quality of life: A quantitative investigation of the stress-coping model in children with asthma. Health and Quality of Life Outcomes, 24, 1–9.
Petersen, C., Schmidt, S., Bullinger, M., & the DISABKIDS Group. (2004). Brief report: Development and pilot testing of a coping questionnaire for children and adolescents with chronic health conditions. Journal of Pediatric Psychology, 29, 635–640.CrossRefPubMed
Petersen, C., Schmidt, S., Bullinger, M., & the DISABKIDS Group. (2006). Coping with a chronic pediatric health condition and health-related quality of life. European Psychologist, 11, 50–56.CrossRef
Preacher, K. J., & Hayes, A. F. (2008). Asymptotic and resampling strategies for assessing and comparing indirect effects in multiple mediator models. Behavior Research Methods, 40, 879–891.CrossRefPubMed
Quitmann, J., Behnke, J., Doerr, H. G., Willig, R. P., Wüsthof, A., Stahnke, N., et al. (2012). Gesundheitsbezogene Lebensqualität und psychische Gesundheit von kleinwüchsigen Kindern und Jugendlichen. Zeitschrift für Medizinische Psychologie, 21, 132–139.
Quitmann, J., Chaplin, J., DeBusk, K., Dellenmark Bloom, M., Feigerlova, E., Herdman, M., et al. (2010). Quality of life in short stature youth: The QoLISSY study. In: Proceedings of the 12th Biennial conference of the European association for research on adolescents (pp. 41–46).
Ranke, M. B. (1996). Towards a consensus on the definition of idiopathic short stature. Hormone Research, 45, 64–66.CrossRefPubMed
Richmond, E. J., & Rogol, A. D. (2008). Recombinant human insulin-like growth factor-I therapy with growth disorders. Advances in Therapy, 25, 1276–1287.CrossRefPubMed
Roberts, J. C., Barnard, M. U., Roberts, M. C., Moore, W. V., Verneberg, E. M., Grunt, J. A., et al. (2000). Mediators of psychological adjustment in children and adolescents with short stature. In B. Stabler & B. B. Bercu (Eds.), Therapeutic outcome of endocrine disorders: efficacy, innovation and quality of life. New York: Springer.
Ross, J. L., Sandberg, D. E., Rose, S. R., Werber Leschek, E., Baron, J., Chipman, J. J., et al. (2004). Psychological adaptation in children with idiopathic short stature treated with growth hormone or placebo. Journal of Clinical Endocrinology and Metabolism, 89, 4873–4878.CrossRefPubMed
Sandberg, D. E., Bukowski, W. M., Fung, C. M., & Noll, R. B. (2004). Height and social adjustment: Are extremes a cause for concern and action? Pediatrics, 114, 744–750.CrossRefPubMed
Sandberg, D. E., & Colsman, M. (2005a). Growth hormone treatment of short stature: Status of the quality of life rationale. Hormone Research, 63, 275–283.CrossRefPubMed
Sandberg, D. E., & Colsman, M. (2005b). Assessment of psychosocial aspects of short stature. Growth, Genetics & Hormones, 21, 18–25.
Sandberg, D. E., & Voss, L. D. (2002). The psychosocial consequences of short stature: A review of the evidence. Best Practice & Research: Clinical Endocrinology & Metabolism, 16, 449–463.CrossRef
Savage, M. O. (2009). Should idiopathic short stature be treated with growth hormone? Nature Reviews Endocrinology, 5, 148–149.
Schmidt, H. (2007). Kleinwuchs. In D. Reinhard (Ed.), Therapie der Krankheiten im Kindes- und Jugendalter (pp. 83–86). Heidelberg: Springer.CrossRef
Schmidt, C., Petersen, C., & Bullinger, M. (2003). Coping with chronic disease from the perspective of children and adolescents: A conceptual framework and its implications for participations. Child: care. Health & Development, 29, 63–75.
Scholten, L., Willemen, A. M., Grootenhuis, M. A., Maurice-Stam, H., Schuengel, C., & Last, B. F. (2011). A cognitive behavioral based group intervention for children with a chronic illness and their parents: A multicentre randomized controlled trial. BMC Pediatrics, 65. doi: 10.​1186/​1471-2431-11-65.
Scholten, L., Willemen, A. M., Last, B. F., Maurice-Stam, H., van Dijk, E. M., Ensink, E., et al. (2013). Efficacy of psychosocial group intervention for children with chronic illness and their parents. Pediatrics, 131, 1196–1203.CrossRef
Skinner, E., Edge, K., Altman, J., & Sherwood, H. (2003). Searching for the structure of coping: A review and critique of category systems for classifying ways of coping. Psychological Bulletin, 129, 216–269.CrossRefPubMed
Stabler, B., Clopper, R. R., Siegel, P. T., Stoppani, C., Compton, P. G., & Underwood, L. E. (1994). Academic achievement and psychological adjustment in short children. The national cooperative growth study. Journal of Developmental Behavioral Pediatrics, 15, 1–6.CrossRefPubMed
Stabler, B., Siegel, P., Clopper, R., Stoppani, C., Compton, P., & Underwood, L. (1998). Behavior change after growth hormone treatment of children with short stature. Journal of Pediatrics, 133, 366–373.CrossRefPubMed
The European QoLISSY Group. (2013). The QoLISSY questionnaire: User’s manual. Lengerich: Pabst Publishers.
The KIDSCREEN Group Europe. (2006). The KIDSCREEN questionnaires: Quality of life questionnaires for children and adolescents. Lengerich: Pabst Verlag.
Thompson, R. D., Delaney, P., Flores, I., & Szigethy, E. (2011). Cognitive-behavioral therapy for children with comorbid physical illness. Child and Adolescent Psychiatric Clinics of North America, 2, 329–348.CrossRef
Visser-van Balen, H., Geenen, R., Kamp, G. A., Huisman, J., Wit, J. M., & Sinnema, G. (2007). Long-term psychosocial consequences of hormone treatment for short stature. Acta Pediatrica, 96, 715–719.CrossRef
Visser-van Balen, H., Sinnema, G., & Geenen, R. (2006). Growing up with idiopathic short stature: Psychosocial development and hormone treatment; A critical review. Archives of Disease in Childhood, 91, 433–439.CrossRefPubMedCentralPubMed
Voss, L. D., & Sandberg, D. E. (2004). The psychological burden of short stature: Evidence against. European Journal of Endocrinology, 151, 29–33.CrossRef
Wheeler, P. G., Bresnahan, K., Shephard, B. A., Lau, J., & Balk, E. M. (2004). Short stature and functional impairment: A systematic review. Archives of Pediatrics and Adolescent Medicine, 158, 236–243.CrossRefPubMed
Wygold, T. (2002). Psychosocial adaptation to short stature: An indication for growth hormone therapy? Hormone Research, 58, 20–23.CrossRefPubMed
Zimmer-Gembeck, M. J., & Skinner, E. A. (2011). The development of coping across childhood and adolescence: An integrative review and critique of research. International Journal of Behavioral Development, 35, 1–17.CrossRef
Metagegevens
Titel
Coping Strategies of Children and Adolescents with Clinically Diagnosed Short Stature
Auteurs
Julia Quitmann
Anja Rohenkohl
Anja Specht
Corinna Petersen-Ewert
Zita Schillmöller
Monika Bullinger
the QoLISSY Study Group
Publicatiedatum
01-03-2015
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 3/2015
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-013-9880-5

Andere artikelen Uitgave 3/2015

Journal of Child and Family Studies 3/2015 Naar de uitgave

Original Paper

Predictors, Moderators, and Treatment Parameters of Community and Clinic-Based Treatment for Child Disruptive Behavior Disorders

Original Paper

Profiles of Self-reported Parenting Competence and Stress Among Women With/Without Histories of Childhood Sexual Abuse

Original Paper

Predictors of Reduction in Symptoms of Depression for Children and Adolescents in Foster Care

Original Paper

Rejection Sensitivity and Adjustment during Adolescence: Do Friendship Self-Silencing and Parent Support Matter?

Original Paper

Parents’ Perceptions of Risk and the Influence on Children’s Everyday Activities

Original Paper

Ambiguous Information and the Verbal Information Pathway to Fear in Children