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30-08-2015 | Original Paper | Uitgave 1/2016

Contextual Factors Predict Patterns of Change in Functioning over 10 Years Among Adolescents and Adults with Autism Spectrum Disorders

Tijdschrift:: Journal of Autism and Developmental Disorders > Uitgave 1/2016

Auteurs:: Ashley C. Woodman, Leann E. Smith, Jan S. Greenberg, Marsha R. Mailick

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Abstract

In the present study, we jointly employ and integrate variable- and person-centered approaches to identify groups of individuals with autism spectrum disorders (ASD) who have similar profiles of change over a period of 10 years across three critical domains of functioning: maladaptive behaviors, autism symptoms, and daily living skills. Two distinct developmental profiles were identified. Above and beyond demographic and individual characteristics, aspects of both the educational context (level of inclusion) and the family context (maternal positivity) were found to predict the likelihood of following a positive pattern of change. Implementing evidence-based interventions that target the school and home environments during childhood and adolescence may have lasting impacts on functioning into adulthood for individuals with ASD.

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Meer informatie

American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author.

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric.

Anderson, D. K., Liang, J. W., & Lord, C. (2014). Predicting young adult outcome among more and less cognitively able individuals with autism spectrum disorders. Journal of Child Psychology and Psychiatry, 55(5), 485–494. doi: 10.1111/jcpp.12178. PubMedCrossRef

Baker, J. K., Smith, L. E., Greenberg, J. S., Seltzer, M. M., & Taylor, J. L. (2011). Change in maternal criticism and behavior problems in adolescents and adults with autism across a 7-year period. Journal of Abnormal Psychology, 120(2), 465–475. doi: 10.1037/a0021900. PubMedPubMedCentralCrossRef

Beadle-Brown, J., Murphy, G., & Wing, L. (2006). The Camberwell cohort 25 years on: Characteristics and changes in skills over time. Journal of Applied Research in Intellectual Disabilities, 19, 317–329. doi: 10.1111/j.1468-3148.2005.00289.x. CrossRef

Beadle-Brown, J., Murphy, G., Wing, L., Gould, J., Shah, A., & Holmes, N. (2000). Changes in skills for people with intellectual disability: A follow-up of the Camberwell cohort. Journal of Intellectual Disability Research, 44(1), 12–24. PubMedCrossRef

Billstedt, E., Gillberg, I. C., & Gillberg, C. (2007). Autism in adults: Symptom patterns and early childhood predictors. Use of the DISCO in a community sample followed from childhood. Journal of Child Psychology and Psychiatry, 48(11), 1102–1110. doi: 10.1111/j.1469-7610.2007.01774.x. PubMedCrossRef

Bishop-Fitzpatrick, L., Minshew, N. J., & Eack, S. M. (2013). A systematic review of psychosocial interventions for adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(3), 687–694. PubMedPubMedCentralCrossRef

Brereton, A. V., Tonge, B. J., & Einfeld, S. L. (2006). Psychopathology in children and adolescents with autism compared to young people with intellectual disability. Journal of Autism and Developmental Disorders, 36(7), 863–870. doi: 10.1007/s10803-006-0125-y. PubMedCrossRef

Bronfenbrenner, U. (1979). Contexts of child rearing: Problems and prospects. American Psychologist, 34(10), 844. CrossRef

Bronfenbrenner, U. (1992). Ecological systems theory. London: Jessica Kingsley.

Bruininks, R. H., Woodcock, R. W., Weatherman, R. F., & Hill, B. K. (1996). Scales of independent behaviour-revised. Itasca, IL: Riverside.

Centers for Disease Control. (2014). Prevalence of autism spectrum disorders among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report, 63(2), 1–21.

Chadwick, O., Cuddy, M., Kusel, Y., & Taylor, E. (2005a). Handicaps and the development of skills between childhood and early adolescence in young people with severe intellectual disabilities. Journal of Intellectual Disability Research, 49(12), 877–888. PubMedCrossRef

Chadwick, O., Kusel, Y., Cuddy, M., & Taylor, E. (2005b). Psychiatric diagnoses and behaviour problems from childhood to early adolescence in young people with severe intellectual disabilities. Psychological Medicine, 35(5), 751–760. PubMedCrossRef

Charman, T. (2002). The prevalence of autism spectrum disorders. Recent evidence and future challenges. European Child and Adolescent Psychiatry, 11(6), 249–256. doi: 10.1007/s00787-002-0297-8. PubMedCrossRef

Chowdhury, M., Benson, B. A., & Hillier, A. (2010). Changes in restricted repetitive behaviors with age: A study of high-functioning adults with autism spectrum disorders. Research in Autism Spectrum Disorders, 4(2), 210–216. doi: 10.1016/j.rasd.2009.09.006. CrossRef

Coppus, A. M. W. (2013). People with intellectual disability: What do we know about adulthood and life expectancy? Developmental Disabilities Research Reviews, 18(6), 6–16. PubMedCrossRef

Davies, E., & Higginson, I. J. (Eds.). (2004). The solid facts: Palliative care. Copenhagen: World Health Organization.

Di Nuovo, S. F., & Buono, S. (2007). Psychiatric syndromes comorbid with mental retardation: Differences in cognitive and adaptive skills. Journal of Psychiatric Research, 41(9), 795–800. PubMedCrossRef

Einfeld, S. L., Piccinin, A. M., Mackinnon, A., Hofer, S. M., Taffe, J., Gray, K. M., et al. (2006). Psychopathology in young people with intellectual disability. Journal of American Medical Association, 296(16), 1981–1989. doi: 10.1001/jama.296.16.1981. CrossRef

Esbensen, A. J., Seltzer, M. M., Lam, K. S. L., & Bodfish, J. W. (2009). Age-related differences in restricted repetitive behaviors in autism spectrum disorders. Journal of Autism and Developmental Disorders, 39(1), 57–66. doi: 10.1007/s10803-008-0599-x. PubMedPubMedCentralCrossRef

Fecteau, S., Mottron, L., Berthiaume, C., & Burack, J. A. (2003). Developmental changes of autistic symptoms. Autism, 7(3), 255–268. doi: 10.1177/1362361303007003003. PubMedCrossRef

Fombonne, E. (2005). Epidemiological studies of pervasive developmental disorders. In F. R. Volkmar, R. Paul, A. Klin, & D. Cohen (Eds.), Handbook of autism and pervasive developmental disorders: Diagnosis, development, neurobiology, and behavior (3rd ed., Vol. 1, pp. 42–69). Hoboken, NJ: Wiley.

Glutting, J., Adams, W., & Sheslow, D. (2000). Wide range intelligence test. Wilmington, DE: Wide Range.

Gray, K., Keating, C., Taffe, J., Brereton, A., Einfeld, S., & Tonge, B. (2012). Trajectory of behavior and emotional problems in autism. American Journal on Intellectual and Developmental Disabilities, 117(2), 121–133. doi: 10.1352/1944-7588-117-2.121. PubMedCrossRef

Greenberg, J. S., Seltzer, M. M., Hong, J., & Orsmond, G. I. (2006). Bidirectional effects of expressed emotion and behavior problems and symptoms in adolescents and adults with autism. American Journal on Mental Retardation, 111(4), 229–249. PubMedCrossRef

Grieco, E. M. (2001). The white population: 2000. http://www.census.gov/population/www/cen2000/briefs/.

Happé, F., & Charlton, R. A. (2011). Aging in autism spectrum disorders: A mini-review. Gerontology, 58(1), 70–78. PubMedCrossRef

Hastings, R. P., Daley, D., Burns, C., & Beck, A. (2006). Maternal distress and expressed emotion: Cross-sectional and longitudinal relationships with behavior problems of children with intellectual disabilities. American Journal on Mental Retardation, 111(1), 48–61. PubMedCrossRef

Henninger, N. A., & Taylor, J. L. (2012). Outcomes in adults with autism spectrum disorders: A historical perspective. Autism, 17(1), 103–116. doi: 10.1177/1362361312441266. PubMedPubMedCentralCrossRef

Hill, A., Bölte, S., Petrova, G., Beltcheva, D., Tacheva, S., & Poustka, F. (2001). Stability and interpersonal agreement of the interview-based diagnosis of autism. Psychopathology, 34(4), 187–191. doi: 10.1159/000049305. PubMedCrossRef

Howlin, P. (2005). Outcomes in autism spectrum disorders. In F. R. Volkmar, R. Paul, A. Klin, & D. Cohen (Eds.), Handbook of autism and pervasive developmental disorders, diagnosis, development, neurobiology, and behavior (3rd ed., Vol. 1, pp. 201–220). Hoboken, NJ: Wiley.

Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry, 45(2), 212–229. doi: 10.1111/j.1469-7610.2004.00215.x. PubMedCrossRef

Howlin, P., Moss, P., Savage, S., & Rutter, M. (2013). Social outcomes in mid to later adulthood among individuals diagnosed with autism and average nonverbal IQ as children. Journal of the American Academy of Child and Adolescent Psychiatry, 52(6), 572–581. PubMedCrossRef

Hunt, P., & McDonnell, J. (2007). Inclusive education. In S. L. Odom, R. H. Horner, M. E. Snell, & J. Blacher (Eds.), Handbook on developmental disabilities (pp. 269–291). New York: Guilford Press.

Hunt, P., Soto, G., Maier, J., & Doering, K. (2003). Collaborative teaming to support students at risk and students with severe disabilities in general education classrooms. Exceptional Children, 69(3), 315–332. CrossRef

Individuals with Disability Education Act Amendments of 1997 [IDEA]. (1997). Retrieved from http://thomas.loc.gov/home/thomas.php.

Laursen, B. P., & Hoff, E. (2006). Person-centered and variable-centered approaches to longitudinal data. Merrill-Palmer Quarterly, 52(3), 377–389. CrossRef

Levy, A., & Perry, A. (2011). Outcomes in adolescents and adults with autism: A review of the literature. Research in Autism Spectrum Disorders, 5(4), 1271–1282. doi: 10.1016/j.rasd.2011.01.023. CrossRef

Liss, M., Harel, B., Fein, D., Allen, D., Dunn, M., Feinstein, C., et al. (2001). Predictors and correlates of adaptive functioning in children with developmental disorders. Journal of Autism and Developmental Disorders, 31(2), 219–230. PubMedCrossRef

Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism diagnostic interview-revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24, 659–685. doi: 10.1007/BF02172145. PubMedCrossRef

Lowe, K., Allen, D., Jones, E., Brophy, S., Moore, K., & James, W. (2007). Challenging behaviours: Prevalence and topographies. Journal of Intellectual Disability Research, 51(8), 625–636. doi: 10.1111/j.1365-2788.2006.00948.x. PubMedCrossRef

Luckasson, R., Borthwick-Duffy, S. E. H., Coulter, D. L., Craig, E. M., Reeve, A., et al. (2002). Mental retardation: Definition, classification, and systems of supports (10th ed., Vol. xiii). Washington, DC: American Association on Mental Retardation.

Maenner, M. J., Smith, L. E., Hong, J., Makuch, R., Greenberg, J. S., & Mailick, M. R. (2013). Evaluation of an activities of daily living scale for adolescents and adults with developmental disabilities. Disability and Health Journal, 6(1), 8–17. PubMedPubMedCentralCrossRef

Magaña, A. B., Goldstein, M. J., Karno, M., Miklowitz, D. J., Jenkins, J., & Falloon, I. R. (1986). A brief method for assessing expressed emotion in relatives of psychiatric patients. Psychiatry Research, 17(3), 203–212. PubMedCrossRef

Magaña, S., Parish, S. L., Rose, R. A., Timberlake, M., & Swaine, J. G. (2012). Racial and ethnic disparities in quality of health care among children with autism and other developmental disabilities. Intellectual and Developmental Disabilities, 50(4), 287–299. PubMedCrossRef

Magiati, I., Tay, X. W., & Howlin, P. (2014). Cognitive, language, social and behavioural outcomes in adults with autism spectrum disorders: A systematic review of longitudinal follow-up studies in adulthood. Clinical Psychology Review, 34, 73–86. PubMedCrossRef

Magnusson, D. (1998). The logic and implications of a person-oriented approach. In R. B. Cairns, L. R. Bergman, & J. Kagan (Eds.), Methods and models for studying the individual (pp. 33–64). Thousand Oaks, CA: Sage.

Matson, J. L., Dempsey, T., & Fodstad, J. C. (2009). The effect of autism spectrum disorders on adaptive independent living skills in adults with severe intellectual disability. Research in Developmental Disabilities, 30(6), 1203–1211. PubMedCrossRef

Matson, J. L., & Horovitz, M. (2010). Stability of autism spectrum disorders symptoms over time. Journal of Developmental and Physical Disabilities, 22(4), 331–342. doi: 10.1007/s10882-010-9188-y. CrossRef

McCarty, C. A., Lau, A. S., Valeri, S. M., & Weisz, J. R. (2004). Parent–child interactions in relation to critical and emotionally overinvolved expressed emotion (EE): Is EE a proxy for behavior? Journal of Abnormal Child Psychology, 32(1), 83–93. PubMedPubMedCentralCrossRef

McGovern, C. W., & Sigman, M. (2005). Continuity and change from early childhood to adolescence in autism. Journal of Child Psychology and Psychiatry, 46(4), 401–408. doi: 10.1111/j.1469-7610.2004.00361.x. PubMedCrossRef

Meyer, A., Rose, D. H., & Gordon, D. (2013). Universal design for learning: Theory and practice. Wakefield, MA: CAST.

Murphy, G. H., Beadle-Brown, J., Wing, L., Gould, J., Shah, A., & Holmes, N. (2005). Chronicity of challenging behaviours in people with severe intellectual disabilities and/or autism: A total population sample. Journal of Autism and Developmental Disorders, 35(4), 405–418. doi: 10.1007/s10803-005-5030-2. PubMedCrossRef

Muthén, B. (2001). Second-generation structural equation modeling with a combination of categorical and continuous latent variables: New opportunities for latent class–latent growth modeling. In L. M. Collins & A. G. Sayer (Eds.), New methods for the analysis of change (pp. 291–322). Washington, DC: American Psychological Association. CrossRef

Muthén, L. K., & Muthén, B. O. (2010). MPlus user’s guide (6th ed.). Los Angeles: Muthen & Muthen.

Park, C. J., Yelland, G. W., Taffe, J. R., & Gray, K. M. (2012). Brief report: The relationship between language skills, adaptive behavior, and emotional and behavior problems in pre-schoolers with autism. Journal of Autism and Developmental Disorders, 42(12), 2761–2766. PubMedCrossRef

Paskiewicz, T. L. (2009). A comparison of adaptive behavior skills and IQ in three populations: Children with learning disabilities, mental retardation, and autism (Unpublished doctoral dissertation), Temple University, Philadelphia, PA.

Pastor, D. A., Barron, K. E., Miller, B. J., & Davis, S. L. (2007). A latent profile analysis of college students’ achievement goal orientation. Contemporary Educational Psychology, 32(1), 8–47. CrossRef

Perry, A., Flanagan, H. E., Geier, J. D., & Freeman, N. L. (2009). Brief report: The Vineland Adaptive Behavior Scales in young children with autism spectrum disorders at different cognitive levels. Journal of Autism and Developmental Disorders, 39(7), 1066–1078. PubMedCrossRef

Pickles, A., Anderson, D. K., & Lord, C. (2014). Heterogeneity and plasticity in the development of language: A 17-year follow-up of children referred early for possible autism. Journal of Child Psychology and Psychiatry, 55(12), 1354–1362. doi: 10.1111/jcpp.12269. PubMedCrossRef

Raudenbush, S. W., & Bryk, A. S. (2002). Hierarchical linear models: Applications and data analysis methods. Thousand Oaks, CA: Sage.

Raudenbush, S., Bryk, A., & Congdon, R. (2008). HLM (version 6). Lincolnwood, IL: Scientific Software International.

Reinhardt, V. P., Wtherby, A. M., Schatschneider, C., & Lord, C. (2015). Examination of sex differences in a large sample of young children with autism spectrum disorder and typical development. Journal of Autism and Developmental Disorders, 45, 697–706. PubMedCrossRef

Sameroff, A. (2010). A unified theory of development: A dialectic integration of nature and nurture. Child Development, 81(1), 6–22. PubMedCrossRef

Schmiege, S. J., Meek, P., Bryan, A. D., & Petersen, H. (2012). Latent variable mixture modeling: A flexible statistical approach for identifying and classifying heterogeneity. Nursing Research, 61(3), 204–212. PubMedCrossRef

Seltzer, M. M., Greenberg, J. S., Taylor, J. L., Smith, L., Orsmond, G. I., Esbensen, A., & Hong, J. (2011). Adolescents and adults with autism spectrum disorders. In D. G. Amaral, G. Dawson, & D. Geschwind (Eds.), Autism spectrum disorders (pp. 241–252). New York: Oxford University Press. CrossRef

Seltzer, M. M., Krauss, M. W., Shattuck, P. T., Orsmond, G., Swe, A., & Lord, C. (2003). The symptoms of autism spectrum disorders in adolescence and adulthood. Journal of Autism and Developmental Disorders, 33(6), 565–581. doi: 10.1023/B:JADD.0000005995.02453.0b. PubMedCrossRef

Seltzer, M. M., Shattuck, P., Abbeduto, L., & Greenberg, J. S. (2004). Trajectory of development in adolescents and adults with autism. Mental Retardation and Developmental Disabilities Research Reviews, 10(4), 234–247. doi: 10.1002/mrdd.20038. PubMedCrossRef

Shattuck, P. T., Roux, A. M., Hudson, L. E., Taylor, J. L., Maenner, M. J., & Trani, J. F. (2012). Services for adults with an autism spectrum disorder. Canadian Journal of Psychiatry, 57(5), 284–291.

Shattuck, P. T., Seltzer, M. M., Greenberg, J. S., Orsmond, G. I., Bolt, D., Kring, S., et al. (2007). Change in autism symptoms and maladaptive behaviors in adolescents and adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 37(9), 1735–1747. doi: 10.1007/s10803-006-0307-7. PubMedPubMedCentralCrossRef

Shea, V., & Mesibov, G. B. (2005). Adolescents and adults with autism. In F. R. Volkmar, R. Paul, A. Klin, & D. Cohen (Eds.), Handbook of autism and pervasive developmental disorders (pp. 288–311). Hoboken, NJ: Wiley.

Smith, L. E., Greenberg, J. S., Seltzer, M. M., & Hong, J. (2008). Symptoms and behavior problems of adolescents and adults with autism: Effects of mother–child relationship quality, warmth, and praise. American Journal on Mental Retardation, 113(5), 378–393. doi: 10.1352/2008.113:387-402. CrossRef

Smith, L. E., Maenner, M. J., & Seltzer, M. M. (2012). Developmental trajectories in adolescents and adults with autism: The case of daily living skills. Journal of the American Academy of Child and Adolescent Psychiatry, 51(6), 622–631. PubMedPubMedCentralCrossRef

Sparrow, S. S., Carter, A. S., & Cicchetti, D. V. (1993). Vineland screener: Overview, reliability, validity, administration, and scoring. New Haven, CT: Yale University Child Study Center.

Totsika, V., Felce, D., Kerr, M., & Hastings, R. P. (2010). Behavior problems, psychiatric symptoms, and quality of life for older adults with intellectual disability with and without autism. Journal of Autism and Developmental Disorders, 40(10), 1171–1178. doi: 10.1007/s10803-010-0975-1. PubMedCrossRef

Totsika, V., Hastings, R. P., Emerson, E., Lancaster, G. A., & Berridge, D. M. (2011). A population-based investigation of behavioural and emotional problems and maternal mental health: Associations with autism spectrum disorder and intellectual disability. Journal of Child Psychology and Psychiatry, 52(1), 91–99. doi: 10.1111/j.1469-7610.2010.02295.x. PubMedCrossRef

U.S. Department of Education (2015). Digest of education statistics, 2013 (NCES 2015-011). Retrieved from http://nces.ed.gov/programs/digest/d13/tables/dt13_204.60.asp.

Wearden, A. J., Tarrier, N., Barrowclough, C., Zastowny, T. R., & Rahill, A. A. (2000). A review of expressed emotion research in health care. Clinical Psychology Review, 20(5), 633–666. PubMedCrossRef

White, I. R., Royston, P., & Wood, A. M. (2011). Multiple imputation using chained equations: Issues and guidance for practice. Statistics in Medicine, 30(4), 377–399. PubMedCrossRef

Widaman, K. F. (2006). Best practices in quantitative methods for developmentalists: III. Missing data: What to do with or without them. Monographs of the Society for Research in Child Development, 71(3), 42–64.

Woodman, A. C., Mailick, M. R., & Greenberg, J. S. (under review). Trajectories of psychopathology in adults with autism spectrum disorders. Development & Psychopathology.

Woodman, A. C., Smith, L. E., Greenberg, J. S., & Mailick, M. R. (2015). Change in autism symptoms and maladaptive behaviors in adolescence and adulthood: The role of positive family processes. Journal of Autism and Developmental Disorders, 45(1), 111–126. doi: 10.1007/s10803-014-2199-2. PubMedPubMedCentralCrossRef

World Health Organization. (1987). ICD-10 1986 draft of chapter 5 categories F00–F99. Mental, behavioural and developmental disorders. Geneva: Author.

Titel: Contextual Factors Predict Patterns of Change in Functioning over 10 Years Among Adolescents and Adults with Autism Spectrum Disorders
Auteurs:: Ashley C. Woodman
Leann E. Smith
Jan S. Greenberg
Marsha R. Mailick
Publicatiedatum: 30-08-2015
DOI: https://doi.org/10.1007/s10803-015-2561-z
Uitgeverij: Springer US
Tijdschrift: Journal of Autism and Developmental Disorders
Uitgave 1/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432

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