Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

11-10-2017 | Original Paper

COMPASS for Hope: Evaluating the Effectiveness of a Parent Training and Support Program for Children with ASD

Auteurs: Grace M. Kuravackel, Lisa A. Ruble, Robert J. Reese, Amanda P. Ables, Alexis D. Rodgers, Michael D. Toland

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 2/2018

Abstract

Despite the growing number of studies that demonstrate the importance of empowering parents with knowledge and skills to act as intervention agents for their children with autism spectrum disorder (ASD), there are limited examples of parent-mediated interventions that focus on problem behaviors. Additionally, access to ASD-trained clinicians and research supported delivery options for families in rural areas is severely limited. COMPASS for Hope (C-HOPE) is an 8-week parent intervention program that was developed with the option of telehealth or face-to-face delivery. Parents who received C-HOPE intervention reported a reduction in parenting stress and an increase in competence. Parents also reported significant reductions in child behavior problems, both when compared to pre-intervention levels and to a waitlist control condition.

vorige artikel Profiling Autism Symptomatology: An Exploration of the Q-ASC Parental Report Scale in Capturing Sex Differences in Autism

volgende artikel White Matter Microstructure of the Human Mirror Neuron System is Related to Symptom Severity in Adults with Autism

Abidin, R. (1995). Parenting Stress Index (3rd edn.). Lutz (FL): Psychological Assessment Resources, Inc.

Aldred, C., Green, J., & Adams, C. (2004). A new social communication intervention for children with autism: Pilot randomized controlled treatment study suggesting effectiveness. Journal of Child Psychology and Psychiatry, 45(8), 1420–1430. doi:10.1111/j.1469-7610.2004.00338.x.CrossRefPubMed

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders: DSM-5. Washington, DC: American Psychiatric Association.CrossRef

Anderson, D. J., Lakin, K. C., Hill, B. K., & Chen, T. (1992). Social integration of older persons with mental retardation in residential facilities. American Journal on Mental Retardation, 96(5), 488–501. Multiple imputation with Mplus. Retrieved from http://www.statmodel.com/download/Imputations7.pdf.

Asparouhov, T., & Muthén, B. (2010). Computing the strictly positive Satorra-Bentler chi-square test in Mplus. Mplus Web Notes: No. 12. January 24, 2012.

Baggett, K. M., Davis, B., Feil, E. G., Sheeber, L. B., Landry, S. H., Carta, J. J., & Leve, C. (2010). Technologies for expanding the reach of evidence-based interventions: Preliminary results for promoting social-emotional development in early childhood. Topics in Early Childhood Special Education, 29(4), 226–238.CrossRefPubMedPubMedCentral

Barak, A., Hen, L., Boniel-Nissim, M., & Shapira, N. (2008). A comprehensive review and a meta-analysis of the effectiveness of internet-based psychotherapeutic interventions. Journal of Technology in Human Services, 26(2), 109–160.CrossRef

Barkley, R. A. (1997). Attention-deficit/hyperactivity disorder, self-regulation, and time: Toward a more comprehensive theory. Journal of Developmental and Behavioral Pediatrics, 18(4), 271–279. doi:10.1097/00004703-199708000-00009.CrossRefPubMed

Baron-Cohen, S., Leslie, A. M., & Frith, U. (1985). Does the autistic child have a “theory of mind”? Cognition, 21(1), 37–46. doi:10.1016/0010-0277(85)90022-8.CrossRefPubMed

Baron-Cohen, S., Tager-Flusberg, H., & Cohen, D. J. (2000). Understanding other minds: Perspectives from developmental cognitive neuroscience (2nd edn.). New York, NY: Oxford University Press.

Bearss, K., Johnson, C., Smith, T., Lecavalier, L., Swiezy, N., Aman, M., … Scahill, L. (2015). Effect of parent training vs parent education on behavioral problems in children with autism spectrum disorder: A randomized clinical trial. JAMA: Journal of the American Medical Association, 313(15), 1524–1533.CrossRefPubMed

Berument, S. K., Rutter, M., Lord, C., Pickles, A., & Bailey, A. (1999). Autism screening questionnaire: diagnostic validity. The British Journal of Psychiatry: The Journal of Mental Science, 175, 444–451.CrossRef

Bordin, E. (1979). The generalizability of the psychoanalytic concept of the working alliance. Psychotherapy: Theory, Research and Practice, 16, 252–260.CrossRef

Braithwaite, K., & Richdale, A. (2000). Functional communication training to replace challenging behaviors across two behavioral outcomes. Behavioral Interventions, 15(1), 21–36.CrossRef

Brookman-Frazee, L. I., Stahmer, A. C., Baker-Ericzen, M. J., & Tsai, K. (2006). Parenting interventions for children with autism spectrum and disruptive behavior disorders: Opportunities for cross-fertilization. Clinical Child and Family Psychology Review, 9(3–4), 181–200. doi:10.1007/s10567-006-0010-4.CrossRefPubMedPubMedCentral

Buggey, T. (2005). Video self-modeling applications with students with autism spectrum disorder in a small private school setting. Focus on Autism and Other Developmental Disabilities, 20(1), 52–63. doi:10.1177/10883576050200010501.CrossRef

Buschbacher, P. W., & Fox, L. (2003). Understanding and intervening with the challenging behavior of young children with autism spectrum disorder. Language, Speech & Hearing Services in Schools, 34(3), 217–227. doi:10.1177/10883576050200010501.CrossRef

Cachia, R. L., Anderson, A., & Moore, D. W. (2016). Mindfulness, stress and well-being in parents of children with autism spectrum disorder: A systematic review. Journal of Child and Family Studies, 25(1), 1–14. doi:10.1007/s10826-015-0193-8.CrossRef

Cann, W., Rogers, H., & Worley, G. (2003). Report on a program evaluation of a telephone assisted parenting support service for families living in isolated rural areas. Australian e-Journal for the Advancement of Mental Health, 2(3), 201–207. doi:10.5172/jamh.2.3.201.CrossRef

Centers for Disease Control and Prevention. (2012a). Autism spectrum disorders(s). Retrieved from http://www.cdc.gov/ncbddd/ autism/signs.html.

Chen, C., Liu, C., Su, W., Huang, S., & Lin, K. (2007). Factors associated with the diagnosis of neurodevelopmental disorders: a population-based longitudinal study. Pediatrics, 119(2), e435–e443.CrossRefPubMed

Chen, Y., Rodgers, J., & McConachie, H. (2009). Restricted and repetitive behaviours, sensory processing and cognitive style in children with autism spectrum disorders. Journal of Autism & Developmental Disorders, 39(4), 635–642. doi:10.1007/s10803-008-0663-6.CrossRef

Childres, J. L., Shaffer-Hudkins, E., & Armstrong, K. (2012). Helping our toddlers, developing our children’s skills (HOT DOCS): A problem-solving approach for parents of young children with autism spectrum disorders. Journal of Developmental and Behavioral Pediatrics, 34(6), S9-S10.

Cohen, J. (1992). Statistical power analysis. Current Directions in Psychological Science, 1(3), 98–101. doi:10.1111/1467-8721.ep10768783.CrossRef

Colvin, A., Eyberg, S. M., & Adams, C. D. (1999). Restandardization of the eyberg child behavior inventory. Gainesville, FL: University of Florida, Child Study Laboratory.

Crone, R., & Mehta, S. S. (2016). Parent training on generalized use of behavior analytic strategies for decreasing the problem behavior of children with autism spectrum disorder: A data-based case study. Education and Treatment of Children, 39(1), 64–94.

Dudding, C. C. (2009). Digital videoconferencing: Applications across the Disciplines. Communication Disorders Quarterly, 30(3), 178–182.CrossRef

Dumont-Mathieu, T., & Fein, D. (2005). Screening for autism in young children: The modified checklist for autism in toddlers (M-CHAT) and other measures. Mental Retardation & Developmental Disabilities Research Reviews, 11(3), 253–262. doi:10.1002/mrdd.20072.CrossRef

Duncan, B. L., & Miller, S. D. (2007). The group session rating scale. Jensen Beach, FL: Author.

Enders, C. K., Mistler, S., A., & Keller, B. T. (2016). Multilevel multiple imputation: A review and evaluation of joint modeling and chained equations imputation. Psychological Methods, 21(2), 222–240. doi:10.1037/met000006.CrossRefPubMed

Eyberg, S. M., & Pincus, D. (1999). Eyberg child behavior inventory and sutter-eyberg student behavior inventory-revised: Professional manual. Odessa, FL: Psychological Assessment Resources.

Frea, W., Arnold, C., & Vittimberga, G. (2001). A demonstration of the effects of augmentative communication on the extreme aggressive behavior of a child with autism within an integrated preschool setting. Journal of Positive Behavior Interventions, 3(4), 194–198.CrossRef

Funderburk, B. W., Eyberg, S. M., Rich, B. A., & Behar, L. (2003). Further Psychometric evaluation of the eyberg and behar rating scales for parents and teachers of preschoolers. Early Education and Development, 14(1), 67–81.CrossRef

Green, J., Charman, T., McConachie, H., Aldred, C., Slonims, V., Howlin, P., … Pickles, A. (2010). Parentmediated communication-focused treatment in children with autism (PACT): A randomised controlled trial. Lancet, 375(9732), 2152–2160. doi:10.1016/s0140-6736(10)60587-9.CrossRefPubMedPubMedCentral

Happe, F., Briskman, J., & Frith, U. (2001). Exploring the cognitive phenotype of autism: Weak “central coherence” in parents and siblings of children with autism: I. Experimental tests. Journal of Child Psychology and Psychiatry, 42(3), 299–307.CrossRefPubMed

Happe, F., & Frith, U. (1996). The neuropsychology of autism. Brain, 119(4), 1377–1400. doi:10.1093/brain/119.4.1377.CrossRefPubMed

Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642. doi:10.1007/s10803-012-1604-y.CrossRefPubMed

Heitzman-Powell, L. S., Buzhardt, J., Rusinko, L. C., & Miller, T. M. (2014). Formative evaluation of an ABA outreach training program for parents of children with autism in remote areas. Focus on Autism and Other Developmental Disabilities, 29(1), 23–38.CrossRef

Horner, R. H., Carr, E. G., Strain, P. S., Todd, A. W., & Reed, H. K. (2002). Problem behavior interventions for young children with autism: A research synthesis. Journal of Autism and Developmental Disorders, 32(5), 423–446.CrossRefPubMed

Hsieh, H., Wilder, D. A., & Abellon, O. E. (2011). The effects of training on caregiver implementation of incidental teaching. Journal of Applied Behavior Analysis, 44(1), 199–203.CrossRefPubMedPubMedCentral

Iovannone, R., Dunlap, G., Huber, H., & Kinkaid, D. (2003). Effective educational practices for students with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 18, 150–165.CrossRef

Johnston, C., & Mash, E. J. (1989). A measure of parenting satisfaction and efficacy. Journal of Clinical Child Psychology, 18(2), 167–175.CrossRef

Kasari, C., Gulsrud, A. C., Wong, C., Kwon, S., & Locke, J. (2010). Randomized controlled caregiver mediated joint engagement intervention for toddlers with autism. Journal of Autism and Developmental Disorders, 40(9), 1045–1056. doi:10.1007/s10803-010-0955-5.CrossRefPubMedPubMedCentral

Kazdin, A. E. (2005). Evidence-based assessment for children and adolescents: Issues in measurement development and clinical application. Journal of Clinical Child Adolescent Psychology, 34(3), 548–558. doi:10.1207/s15374424jccp3403_10.CrossRefPubMed

Keeling, K., Myles, Smith, Gagnon, B., E., & Simpson, R. (2003). Using the power card strategy to teach sportsmanship skills to a child with autism. Focus on Autism and Other Developmental Disabilities, 18(2), 103–109.CrossRef

Krakovich, T. M., McGrew, J. H., Yu, Y., & Ruble, L. A. (2016). Stress in parents of children with autism spectrum disorder: An exploration of demands and resources. Journal of Autism and Developmental Disorders, 46(6), 2042–2053. doi:10.1007/s10803-016-2728-2.CrossRefPubMed

Lundahl, B. W., Nimer, J., & Parsons, B. (2006). Preventing child abuse: A meta-analysis of parent training programs. Research on Social Work Practice, 16(3), 251–262.CrossRef

MacKenzie, K. R. (1998). The alliance in time limited group psychotherapy. In J. D. Safran & J. C. Muran (Eds.), The therapeutic alliance in brief psychotherapy (pp. 193–215). Washington, DC: American Psychological Association.CrossRef

Mandell, D. S., Novak, M. M., & Zubritsky, C. D. (2005). Factors associated with age of diagnosis among children with autism spectrum disorders. Pediatrics, 116(6), 1480–1486.CrossRefPubMedPubMedCentral

Matson, J. L., & Nebel-Schwalm, M. S. (2007). Comorbid psychopathology with autism spectrum disorder in children: An overview. Research Developmental Disabilities: A Multidisciplinary Journal, 28(4), 341–352.CrossRef

McConachie, H., & Diggle, T. (2007). Parent implemented early intervention for young children with autism spectrum disorder: A systematic review. Journal of Evaluation in Clinical Practice, 13(1), 120–129. doi:10.1111/j.1365-2753.2006.00674.x.CrossRefPubMed

McCrimmon, A., Rostad, K. (2014). Test review: Lord, C., Luyster, C., Gotham, R. J., K., & Guthrie, W. (2012). “Autism diagnostic observation schedule, second edition (ADOS-2) manual (Part II): Toddler module.” Torrance, CA: Western Psychological Services, 2012. Lord, C., Rutter, M., DiLavore, P. C., Risi, S., Gotham, K., & Bishop, S. “Autism diagnostic observation schedule, second edition.” Torrance, CA: Western Psychological Services, 2012. Journal of Psychoeducational Assessment, 32(1), 88–92.CrossRef

McGrew, J. H., Ruble, L. A., & Smith, I. M. (2016). Autism spectrum disorder and evidence-based practice in psychology. Clinical Psychology: Science And Practice, 23(3), 239–255. doi:10.1111/cpsp.12160.

Mello, M. P., Goldman, S. E., Urbano, R. C., & Hodapp, R. M. (2016). Services for children with autism spectrum disorder: Comparing rural and non-rural communities. Education and Training in Autism and Developmental Disabilities, 51(4), 355–365.

Murphy, M. A., & Ruble, L. A. (2012). A comparative study of rurality and urbanicity on access to and satisfaction with services for children with autism spectrum disorders. Rural Special Education Quarterly, 31(3), 3–11.CrossRef

Muthén, L. K., & Muthén, B. O. (1998–2015). Mplus (version 7.4) [Computer software]. Los Angeles, CA: Authors.

National Research Council (NRC) (2001). Educating students with autism. Washington, DC: National Academy Press.

Pennington, B. F., & Ozonoff, S. (1996). Executive functions and developmental psychopathology. Journal of Child Psychology and Psychiatry, 37(1), 51–87.CrossRefPubMed

Pillay, M., Alderson-Day, B., Wright, B., Williams, C., & Urwin, B. (2011). Autism spectrum conditions-enhancing nurture and development (ASCEND): An evaluation of intervention support groups for parents. Clinical Child Psychology and Psychiatry, 16(1), 5–20.CrossRefPubMed

Pisula, E., & Kossakowska, Z. (2010). Sense of coherence and coping with stress among mothers and fathers of children with autism. Journal of Autism and Developmental Disorders, 40(12), 1485–1494.CrossRefPubMed

Quirk, K., Miller, S., Duncan, B., & Owen, J. (2013). ‘Group Session Rating Scale: Preliminary psychometrics in substance abuse group interventions’: Corrigendum. Counselling & Psychotherapy Research, 13(3), i. doi:10.1080/14733145.2013.764658.CrossRef

Reyno, S. M., & McGrath, P. J. (2006). Predictors of parent training efficacy for child externalizing behavior problem: A meta-analytic review. Journal of Child Psychology and Psychiatry, 47(1), 99–111.CrossRefPubMed

Robins, D. L., Fein, D., Barton, M. L., & Green, J. A. (2001). Reply to Charman et al.’s commentary on the modified checklist for autism in toddlers. Journal of Autism & Developmental Disorders, 31(2), 149.CrossRef

Ruble, L. A., Dalrymple, N. J., & McGrew, J. H. (2010). The effects of consultation on individualized education program outcomes for young children with autism: The collaborative model for promoting competence and success. Journal of Early Intervention, 32(4), 286–301.CrossRefPubMedPubMedCentral

Ruble, L. A., Dalrymple, N. J., & McGrew, J. H. (2012). Collaborative model for promoting competence and success for students with ASD. New York, NY: Springer.CrossRef

Ruble, L. A., McGrew, J. H., Toland, M. D., Dalrymple, N. J., & Jung, L. A. (2013). A randomized controlled trial of COMPASS web-based and face-to-face teacher coaching in autism. Journal of Consulting and Clinical Psychology, 81(3), 566–572. doi:10.1037/a0032003.CrossRefPubMedPubMedCentral

Rutter, M., Bailey, A., & Lord, C. (2003). The social communication questionnaire: Manual. Los Angeles: Western Psychological Services.

Schafer, J. L., & Yucel, R. M. (2002). Computational strategies for multivariate linear mixed effects models with missing data. Journal of Computational and Graphical Statistics, 11, 437–457.CrossRef

Schilling, D., & Schwartz, I. (2004). Alternative seating for young children with autism spectrum disorder: Effects on classroom behavior. Journal of Autism and Developmental Disorders, 34(4), 423–432.CrossRefPubMed

Schopler, E., & Reichler, R. J. (1971). Parents as cotherapists in the treatment of psychotic children. Journal of Autism and Childhood Schizophrenia, 1(1), 87–102.CrossRefPubMed

Snow, A. V., & Lecavalier, L. (2008). Sensitivity and specificity of the modified checklist for autism in toddlers and the social communication questionnaire in preschoolers suspected of having pervasive developmental disorders. Autism: The International Journal of Research and Practice, 12(6), 627–644.CrossRef

Sofronoff, K., Leslie, A., & Brown, W. (2004). Parent management training and Asperger Syndrome: A randomized controlled trial to evaluate a parent based intervention. Autism: The International Journal of Research and Practice, 8(3), 301–317.CrossRef

Sparrow, S. S., Cicchetti, D. V., & Balla, D. A. (2005). Vineland adaptive behavior scales, (2nd edn.). Circle Pines, MN: AGS.

Turnbull, I. I. I., Wilcox, H. R., B. L., & Stowe, M. J. (2002). A brief overview of special education law with focus on autism. Journal of Autism & Developmental Disorders, 32(5), 479.CrossRef

Turner, J. W. (2003). Telemedicine: Expanding health care into virtual environments. In T. L. Thompson, A. M. Dorsey, K. I. Miller, R. Parrott, T. L. Thompson & A. M. Dorsey, …R. Parrott (Eds.), Handbook of health communication (pp. 515–535). Mahwah, NJ: Lawrence Erlbaum Associates Publishers.

U.S. Census Bureau. (2015). American community survey (ACS). Retrieved September 21, 2016, from https://factfinder.census.gov/faces/tableservices/jsf/pages/productview.xhtml?pid=ACS_15_1YR_DP02&prodType=table.

Vismara, L. A., Young, G. S., & Rogers, S. J. (2012). Telehealth for expanding the reach of early autism training to parents. Autism Research and Treatment. doi:10.1155/2012/121878.PubMedPubMedCentral

Wainer, A., & Ingersoll, B. R. (2015). Increasing access to an ASD imitation intervention via a telehealth parent training program. Journal of Autism & Developmental Disorders, 45(12), 3877–3890. doi:10.1007/s10803-014-2186-7.CrossRef

West, E. A., Travers, J. C., Kemper, T. D., Libertry, L. M., Cote, D. L., McCollow, M. M., & Stansberrry Brusnahan, L. L. (2016). Racial and ethnic diversity of participants in research supporting evidence-based practices for learners with Autism Spectrum Disorder. The Journal of Special Education, 50, 151–163. doi:10.1177/0022466916632495.CrossRef

Whittingham, K., Sofronoff, K., Sheffield, J., & Sanders, M. R. (2009). Stepping Stones Triple P: An RCT of a parenting program with parents of a child diagnosed with an autism spectrum disorder. Journal of Abnormal Child Psychology, 37(4), 469–480.CrossRefPubMed

Yalom, I. D. (1995). The theory and practice of group psychotherapy (4th edn.). New York: Basic Books.

Yalom, I. D., & Leszcz, M. (2005). The theory and practice of group psychotherapy (5th edn.). New York, NY: Basic Books.

Zisser, A., & Eyberg, S. (2010). Parent-child interaction therapy and the treatment of disruptive behavior disorders. In J. R. Weisz & A. E. Kazdin (Eds.), Evidence-based psychotherapies for children and adolescents (2nd edn., pp. 179–193). New York, NY: Guilford Press.

Titel: COMPASS for Hope: Evaluating the Effectiveness of a Parent Training and Support Program for Children with ASD
Auteurs: Grace M. Kuravackel
Lisa A. Ruble
Robert J. Reese
Amanda P. Ables
Alexis D. Rodgers
Michael D. Toland
Publicatiedatum: 11-10-2017
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 2/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-017-3333-8

Andere artikelen Uitgave 2/2018

Brief Report: Physical Activity, Body Mass Index and Arterial Stiffness in Children with Autism Spectrum Disorder: Preliminary Findings

Brief Report

Sensory Sensitivity and Food Selectivity in Children with Autism Spectrum Disorder

Original Paper

Brief Report: Body Image in Autism: Evidence from Body Size Estimation

Brief Report

White Matter Microstructure of the Human Mirror Neuron System is Related to Symptom Severity in Adults with Autism

Original Paper

Array-CGH Analysis in a Cohort of Phenotypically Well-Characterized Individuals with “Essential” Autism Spectrum Disorders

Original Paper

Assessing Autism in Adults: An Evaluation of the Developmental, Dimensional and Diagnostic Interview—Adult Version (3Di-Adult)

Open Access
Original Paper