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Journal of Autism and Developmental Disorders

Gepubliceerd in:

03-04-2017 | Original Paper

Comparative Effects of Mindfulness and Support and Information Group Interventions for Parents of Adults with Autism Spectrum Disorder and Other Developmental Disabilities

Auteurs: Yona Lunsky, Richard P. Hastings, Jonathan A. Weiss, Anna M. Palucka, Sue Hutton, Karen White

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2017

Abstract

This study evaluated two community based interventions for parents of adults with autism spectrum disorder and other developmental disabilities. Parents in the mindfulness group reported significant reductions in psychological distress, while parents in the support and information group did not. Reduced levels of distress in the mindfulness group were maintained at 20 weeks follow-up. Mindfulness scores and mindful parenting scores and related constructs (e.g., self-compassion) did not differ between the two groups. Results suggest the psychological components of the mindfulness based group intervention were effective over and above the non-specific effects of group processes and informal support.

vorige artikel Formal Thought Disorder and Executive Functioning in Children and Adolescents with Autism Spectrum Disorder: Old Leads and New Avenues

volgende artikel Caregiver-Teacher Concordance of Challenging Behaviors in Children with Autism Spectrum Disorder Served in Community Mental Health Settings

Altmaier, E., & Maloney, R. (2007). An initial evaluation of a mindful parenting program. Journal of Clinical Psychology, 63(12), 1231–1238.CrossRefPubMed

Baer, R. A., Smith, G. T., Hopkins, J., Krietemeyer, J., & Toney, L. (2006). Using self-report assessment methods to explore facets of mindfulness. Assessment, 13(1), 27–45.CrossRefPubMed

Bazzano, A., Wolfe, C., Zylowska, L., Wang, S., Schuster, E., Barrett, C., et al. (2015). Mindfulness based stress reduction (MBSR) for parents and caregivers of individuals with developmental disabilities: a community-based approach. Journal of Child and Family Studies, 24(2), 298–308.CrossRef

Benn, R., Akiva, T., Arel, S., & Roeser, R. W. (2012). Mindfulness training effects for parents and educators of children with special needs. Developmental Psychology, 48(5), 1476.CrossRefPubMed

Birnie, K., Garland, S. N., & Carlson, L. E. (2010). Psychological benefits for cancer patients and their partners participating in mindfulness-based stress reduction (MBSR). Psycho-Oncology, 19(9), 1004–1009.CrossRefPubMed

Bögels, S., Hoogstad, B., van Dun, L., de Schutter, S., & Restifo, K. (2008). Mindfulness training for adolescents with externalizing disorders and their parents. Behavioural and Cognitive Psychotherapy, 36(02), 193–209.CrossRef

Bögels, S. M., Hellemans, J., van Deursen, S., Römer, M., & van der Meulen, R. (2014). Mindful parenting in mental health care: Effects on parental and child psychopathology, parental stress, parenting, co-parenting, and marital functioning. Mindfulness, 5(5), 536–551.CrossRef

Braddock, D., Emerson, E., Felce, D., & Stancliffe, R. J. (2001). Living circumstances of children and adults with mental retardation or developmental disabilities in the United States, Canada, England and Wales, and Australia. Mental Retardation and Developmental Disabilities Research Reviews, 7(2), 115–121.CrossRefPubMed

Cachia, R. L., Anderson, A., & Moore, D. W. (2016). Mindfulness, stress and well-being in parents of children with autism spectrum disorder: A systematic review. Journal of Child and Family Studies, 25(1), 1–14.CrossRef

Chiesa, A., & Serretti, A. (2011). Mindfulness based cognitive therapy for psychiatric disorders: A systematic review and meta-analysis. Psychiatry Research, 187(3), 441–453.CrossRefPubMed

Dillenburger, K., & McKerr, L. (2011). ‘How long are we able to go on?’ Issues faced by older family caregivers of adults with disabilities. British Journal of Learning Disabilities, 39(1), 29–38.

Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. (2014). Reducing distress in mothers of children with autism and other disabilities: A randomized trial. Pediatrics, 134(2), 454–463.CrossRef

Epstein-Lubow, G., McBee, L., Darling, E., Armey, M., & Miller, I. W. (2011). A pilot investigation of mindfulness-based stress reduction for caregivers of frail elderly. Mindfulness, 2(2), 95–102.CrossRef

Ferraioli, S. J., & Harris, S. L. (2013). Comparative effects of mindfulness and skills-based parent training programs for parents of children with autism: Feasibility and preliminary outcome data. Mindfulness, 4(2), 89–101.CrossRef

Geiger, P., Boggero, I., Brake, C., Caldera, C., Combs, H., Peters, J., et al. (2016). Mindfulness-based interventions for older adults: A review of the effects on physical and emotional well-being. Mindfulness, 7(2), 296–307.CrossRefPubMed

Hatzidimitriadou, E., & Milne, A. (2005). Planning ahead: Meeting the needs of older people with intellectual disabilities in the United Kingdom. Dementia, 4(3), 341–359.CrossRef

Haveman, M., van Berkum, G., Reijnders, R., & Heller, T. (1997). Differences in service needs, time demands, and caregiving burden among parents of persons with mental retardation across the life cycle. Family Relations, 46(4), 417–425.CrossRef

Henry, J. D., & Crawford, J. R. (2005). The short-form version of the depression anxiety stress scales (DASS-21): Construct validity and normative data in a large non-clinical sample. British Journal of Clinical Psychology, 44(2), 227–239.CrossRefPubMed

Jones, L., Gold, E., Totsika, V., Hastings, R. P., Griffiths, A., Jones, M. et al. (2016). A mindfulness parent well-being course: Evaluation of outcomes for parents of children with autism and related disabilities recruited through special schools. European Journal of Special Needs Education.

Jones, L., Hastings, R. P., Totsika, V., Keane, L., & Rhule, N. (2014). Child behavior problems and parental well-being in families of children with autism: The mediating role of mindfulness and acceptance. American Journal on Intellectual and Developmental Disabilities, 119(2), 171–185.CrossRefPubMed

Kabat-Zinn, J. (1990). Full catastrophe living: The program of the stress reduction clinic at the University of Massachusetts Medical Center. Boston: University of Massachusetts Medical Center.

Kabat-Zinn, J. (2003). Mindfulness-based interventions in context: Past, present, and future. Clinical Psychology: Science and Practice, 10(2), 144–156.

Kallapiran, K., Koo, S., Kirubakaran, R., & Hancock, K. (2015). Review: Effectiveness of mindfulness in improving mental health symptoms of children and adolescents: A meta-analysis. Child and Adolescent Mental Health, 20(4), 182–194.CrossRef

Khoury, B., Lecomte, T., Fortin, G., Masse, M., Therien, P., Bouchard, V., et al. (2013). Mindfulness-based therapy: A comprehensive meta-analysis. Clinical Psychology Review, 33(6), 763–771.CrossRefPubMed

Koren, P. E., DeChillo, N., & Friesen, B. J. (1992). Measuring empowerment in families whose children have emotional disabilities: A brief questionnaire. Rehabilitation Psychology, 37(4), 305.CrossRef

Lakin, K. C. (1998). On the outside looking in: Attending to waiting lists in systems of services for people with developmental disabilities. Mental Retardation, 36(2), 157–162.CrossRefPubMed

Lawton, M. P., Moss, M., Hoffman, C., & Perkinson, M. (2000). Two transitions in daughter’s caregiving careers. The Gerontologist, 40, 437–448.CrossRefPubMed

Lloyd, T., & Hastings, R. P. (2008). Psychological variables as correlates of adjustment in mothers of children with intellectual disabilities: Cross-sectional and longitudinal relationships. Journal of Intellectual Disability Research, 52, 37–48.PubMed

Lunsky, Y., Robinson, S., Reid, M., & Palucka, A. (2015). Development of a mindfulness-based coping with stress group for parents of adolescents and adults with developmental disabilities. Mindfulness, 6(6), 1335–1344.CrossRef

MacDonald, E. E., Hastings, R. P., & Fitzsimons, E. (2010). Psychological acceptance mediates the impact of the behaviour problems of children with intellectual disability on fathers’ psychological adjustment. Journal of Applied Research in Intellectual Disabilities, 23, 27–37.CrossRef

Marlatt, G. A., & Kristeller, J. L. (1999). Mindfulness and meditation. In W. E. Miller (Ed.), Integrating spirituality into treatment: Resources for practitioners (pp. 67–84). Washington, DC: American Psychological Association.CrossRef

Minor, H. G., Carlson, L. E., Mackenzie, M. J., Zernicke, K., & Jones, L. (2006). Evaluation of a mindfulness-based stress reduction (MBSR) program for caregivers of children with chronic conditions. Social Work in Healthcare, 43(1), 91–109.

Neece, C. L. (2014). Mindfulness-based stress reduction for parents of young children with developmental delays: Implications for parental mental health and child behavior problems. Journal of Applied Research in Intellectual Disabilities, 27(2), 174–186.CrossRefPubMed

Neece, C. L., Kraemer, B. R., & Blacher, J. (2009). Transition satisfaction and family well being among parents of young adults with severe intellectual disability. Intellectual and Developmental Disabilities, 47(1), 31–43.CrossRefPubMed

Neff, K. D. (2003). The development and validation of a scale to measure self-compassion. Self and Identity, 2(3), 223–250.CrossRef

Piet, J., Würtzen, H., & Zachariae, R. (2012). The effect of mindfulness-based therapy on symptoms of anxiety and depression in adult cancer patients and survivors: A systematic review and meta-analysis. Journal of Consulting and Clinical Psychology, 80(6), 1007.CrossRefPubMed

Pit-ten Cate, I. (2003). Positive gain in mothers of children with physical disabilities (Unpublished Doctoral Dissertation). United Kingdom: University of Southampton.

Rayan, A., & Ahmad, M. (2016). Effectiveness of mindfulness-based intervention on perceived stress, anxiety, and depression among parents of children with autism spectrum disorder. Mindfulness, pp. 1–14.

Segal, Z. V., Williams, J. M. G., & Teasdale, J. D. (2002). Mindfulness-based cognitive therapy for depression. New York: The Guilford Press.

Seltzer, M. M., Floyd, F., Song, J., Greenberg, J., & Hong, J. (2011). Midlife and aging parents of adults with intellectual and developmental disabilities: Impacts of lifelong parenting. American Journal on Intellectual and Developmental Disabilities, 116(6), 479–499.CrossRefPubMedPubMedCentral

Singh, N. N., Lancioni, G. E., Winton, A. S., Singh, J., Curtis, W. J., Wahler, R. G., et al. (2007). Mindful parenting decreases aggression and increases social behavior in children with developmental disabilities. Behavior Modification, 31(6), 749–771.CrossRefPubMed

Singh, N. N., Singh, J., Lancioni, G. E., Winton, A. S. W., Curtis, W. J., Wahler, R. G. et al. (2006). Mindful staff increase learning and reduce aggression in adults with developmental disabilities. Research in Developmental Disabilities, 27(5), 545–558.CrossRefPubMed

Spijkerman, M. P. J., Pots, W. T. M., & Bohlmeijer, E. T. (2016). Effectiveness of online mindfulness-based interventions in improving mental health: A review and meta-analysis of randomised controlled trials. Clinical Psychology Review, 45, 102–114.CrossRefPubMed

Van der Oord, S., Bögels, S. M., & Peijnenburg, D. (2012). The effectiveness of mindfulness training for children with ADHD and mindful parenting for their parents. Journal of Child and Family Studies, 21(1), 139–147.CrossRefPubMed

Weiss, J. A., Cappadocia, M. C., MacMullin, J. A., Viecili, M., & Lunsky, Y. (2012). The impact of child problem behaviors of children with ASD on parent mental health: The mediating role of acceptance and empowerment. Autism: The international journal of research and practice, 16(3), 261–274.CrossRef

Whitebird, R. R., Kreitzer, M., Crain, A. L., Lewis, B. A., Hanson, L. R., & Enstad, C. J. (2012). Mindfulness-based stress reduction for family caregivers: a randomized controlled trial. The Gerontologist, 53(4), 676–686.CrossRefPubMedPubMedCentral

Whittingham, K., Sanders, M. R., McKinlay, L., & Boyd, R. N. (2016). Parenting intervention combined with acceptance and commitment therapy: A trial with families of children with cerebral palsy. Journal of Pediatric Psychology, 41(5), 531–542. doi:10.1093/jpepsy/jsv118.CrossRefPubMed

Williams, M., & Penman, D. (2012). Mindfulness: An eight-week plan for finding peace in a frantic world. Emmaus, Pennsylvania: Rodale.

Titel: Comparative Effects of Mindfulness and Support and Information Group Interventions for Parents of Adults with Autism Spectrum Disorder and Other Developmental Disabilities
Auteurs: Yona Lunsky
Richard P. Hastings
Jonathan A. Weiss
Anna M. Palucka
Sue Hutton
Karen White
Publicatiedatum: 03-04-2017
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 6/2017
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-017-3099-z

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