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01-08-2015 | Original Paper | Uitgave 8/2015

Journal of Autism and Developmental Disorders 8/2015

Community and Social Participation Among Individuals with Autism Spectrum Disorder Transitioning to Adulthood

Journal of Autism and Developmental Disorders > Uitgave 8/2015
Emily Myers, Beth Ellen Davis, Gary Stobbe, Kristie Bjornson
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This information or content and conclusions are those of the authors and should be construed as the official position or policy of, nor any endorsements be inferred by HRSA, HHS, or the US Government.
Preliminary results were presented in Poster Format at the International Meeting for Autism Research (May, 2012; Toronto, Canada) and 13th Chronic Illness and Disability Conference, Transition from Pediatric to Adult-based Care (October, 2012; Houston, TX).


Individuals with Autism Spectrum Disorders (ASDs) are at increased risk for poor psychosocial outcomes as adults. We described community and social participation in adolescents with ASDs as they transitioned from adolescence to adulthood, and identified adolescent factors associated with community and social participation outcomes in adulthood. We performed a secondary data analysis of a nationally representative cohort using the National Longitudinal Transition Study 2 and observed a significant decrease in community participation from adolescence to adulthood (63 to 46 %); social participation remained stable. The presence of case management in adolescence was associated with increased community and social participation in adulthood. Case management may be crucial for optimal levels of participation among adults with ASDs.

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