Skip to main content
Top
Gepubliceerd in: Journal of Child and Family Studies 12/2016

19-08-2016 | Original Paper

Collaboration, Empowerment, and Advocacy: Consumer Perspectives about Treatment Engagement

Auteurs: Sara L. Buckingham, Nicole Evangelista Brandt, Kimberly D. Becker, Deb Gordon, Nicole Cammack

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 12/2016

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Engagement in children’s mental health treatment is strikingly low. This might be due to differences in perspectives about what it means to be engaged in treatment as well as the strategies that are most effective at engaging families, as little is known about how well consumers’ perspectives map onto current models of engagement and the empirical literature. This qualitative study examined family perspectives of (1) aspirational and actual engagement in treatment, (2) barriers that impeded engagement, and (3) engagement strategies they recommended their providers and agencies use. Four focus groups were conducted with 20 caregivers (ages 24–75), and 11 youth and young adults (ages 15–23). All participants were currently or formerly enrolled in children’s mental health services. Data were analyzed through consensual qualitative research methods. Findings revealed that youth and caregivers’ definitions of engagement included both attitudinal and behavioral components. Numerous barriers impeded components of aspirational engagement, and agency- and provider-related barriers were most pervasive. Youth reported more attitudinal barriers, whereas caregivers reported more behavioral barriers. Participants described advocacy (e.g., taking direct action to influence treatment) as a key engagement component; however, such advocacy often involved treatment non-adherence that could be interpreted by providers as disengagement. Families recommended strategies to strengthen the therapeutic relationship and build trust that are empirically supported. However, families described many experiences in which providers did not use these empirically supported strategies. Families also described some theoretically supported engagement strategies as having a negative impact on engagement. In sum, the findings suggest that providers should take an empowering family-centered treatment approach where they seek to understand and build upon clients’ engagement perspectives.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
go back to reference Baker-Ericzén, M. R., Jenkins, M., & Haine-Schlagel, R. (2013). Therapist, parent, and youth perspectives of treatment barriers to family-focused community outpatient mental health services. Journal of Child & Family Studies, 22, 854–868.CrossRef Baker-Ericzén, M. R., Jenkins, M., & Haine-Schlagel, R. (2013). Therapist, parent, and youth perspectives of treatment barriers to family-focused community outpatient mental health services. Journal of Child & Family Studies, 22, 854–868.CrossRef
go back to reference Barrett, M. S., Chua, W., Crits-Christoph, P., Gibbons, M. B., & Thompson, D. (2008). Early withdrawal from mental health treatment: Implications for psychotherapy practice. Psychotherapy: Theory, Research, Practice, Training, 45, 247–267. doi:10.1037/0033-3204.45.2.247.CrossRef Barrett, M. S., Chua, W., Crits-Christoph, P., Gibbons, M. B., & Thompson, D. (2008). Early withdrawal from mental health treatment: Implications for psychotherapy practice. Psychotherapy: Theory, Research, Practice, Training, 45, 247–267. doi:10.​1037/​0033-3204.​45.​2.​247.CrossRef
go back to reference Becker, K. D., Lee, B. R., Daleiden, E. L., Lindsey, M., Brandt, N. E., & Chorpita, B. F. (2015). The common elements of engagement in children’s mental health services: Which elements for which outcomes?. Journal of Clinical Child and Adolescent Psychology, 44, 30–43. doi:10.1080/15374416.2013.814543.CrossRefPubMed Becker, K. D., Lee, B. R., Daleiden, E. L., Lindsey, M., Brandt, N. E., & Chorpita, B. F. (2015). The common elements of engagement in children’s mental health services: Which elements for which outcomes?. Journal of Clinical Child and Adolescent Psychology, 44, 30–43. doi:10.​1080/​15374416.​2013.​814543.CrossRefPubMed
go back to reference Brannan, A. M., Heflinger, C. A., & Foster, E. M. (2003). The role of caregiver strain and other family variables in determining children’s use of mental health services. Journal of Emotional and Behavioral Disorders, 11, 78–92.CrossRef Brannan, A. M., Heflinger, C. A., & Foster, E. M. (2003). The role of caregiver strain and other family variables in determining children’s use of mental health services. Journal of Emotional and Behavioral Disorders, 11, 78–92.CrossRef
go back to reference Charmaz, K. (2000). Grounded theory: Objectivist & constructivist methods. In N. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (2nd ed., pp. 509–535). Thousand Oaks, CA: Sage Publications, Inc. Charmaz, K. (2000). Grounded theory: Objectivist & constructivist methods. In N. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (2nd ed., pp. 509–535). Thousand Oaks, CA: Sage Publications, Inc.
go back to reference Costello, E. J., Copeland, W., & Angold, A. (2011). Trends in psychopathology across the adolescent years: What changes when children become adolescents, and when adolescents become adults?. Journal of Child Psychology and Psychiatry, 52, 1015–1025.CrossRef Costello, E. J., Copeland, W., & Angold, A. (2011). Trends in psychopathology across the adolescent years: What changes when children become adolescents, and when adolescents become adults?. Journal of Child Psychology and Psychiatry, 52, 1015–1025.CrossRef
go back to reference Crabtree, B. F., & Miller, W. L. (Eds.) (1999). Using codes and code manuals: A template organizing style of interpretation. In Doing qualitative research in primary care: Multiple strategies (2nd ed., pp. 163–177). Newbury Park, CA: Sage Publications, Inc. Crabtree, B. F., & Miller, W. L. (Eds.) (1999). Using codes and code manuals: A template organizing style of interpretation. In Doing qualitative research in primary care: Multiple strategies (2nd ed., pp. 163–177). Newbury Park, CA: Sage Publications, Inc.
go back to reference George, M. W., McDaniel, H. L., Michael, K. D., & Weist, M. D. (2014). Clinician and caregiver perspectives on family involvement in school mental health services for youth receiving mood disorders treatment. Emotional & Behavioral Disorders in Youth, 14, 16–21. George, M. W., McDaniel, H. L., Michael, K. D., & Weist, M. D. (2014). Clinician and caregiver perspectives on family involvement in school mental health services for youth receiving mood disorders treatment. Emotional & Behavioral Disorders in Youth, 14, 16–21.
go back to reference Glesne, C. (2011). Becoming qualitative researchers: An introduction(4th ed.). Boston, MA: Pearson Education, Inc. Glesne, C. (2011). Becoming qualitative researchers: An introduction(4th ed.). Boston, MA: Pearson Education, Inc.
go back to reference Gopalan, G., Goldstein, L., Klingenstein, K., Sicher, C., Blake, C., & McKay, M. M. (2010). Engaging families into child mental health treatment: Updates and special considerations. Journal of the Canadian Academy of Child & Adolescent Psychiatry, 19, 182–196. Gopalan, G., Goldstein, L., Klingenstein, K., Sicher, C., Blake, C., & McKay, M. M. (2010). Engaging families into child mental health treatment: Updates and special considerations. Journal of the Canadian Academy of Child & Adolescent Psychiatry, 19, 182–196.
go back to reference Guba, E. G. & Lincoln, Y. S. (2005). Paradigmatic controversies and emerging confluences. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (3rd ed., pp. 191–216). Thousand Oaks, CA: Sage Publications, Inc. Guba, E. G. & Lincoln, Y. S. (2005). Paradigmatic controversies and emerging confluences. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (3rd ed., pp. 191–216). Thousand Oaks, CA: Sage Publications, Inc.
go back to reference Hoepfl, M. (1997). Choosing qualitative research: A primer for technology education researchers. Journal of Technology Education, 9, 47–63.CrossRef Hoepfl, M. (1997). Choosing qualitative research: A primer for technology education researchers. Journal of Technology Education, 9, 47–63.CrossRef
go back to reference Hogan, M. F. (2003). The President’s New Freedom Commission: Recommendations to transform mental health care in America. Psychiatric Services, 54, 1467–1474.CrossRefPubMed Hogan, M. F. (2003). The President’s New Freedom Commission: Recommendations to transform mental health care in America. Psychiatric Services, 54, 1467–1474.CrossRefPubMed
go back to reference Hopkins, P. E. (2007). Thinking critically and creatively about focus groups. Area, 39, 528–535.CrossRef Hopkins, P. E. (2007). Thinking critically and creatively about focus groups. Area, 39, 528–535.CrossRef
go back to reference Howell, E. (2004). Access to children’s mental health services under Medicaid and SCHIP. Washington, DC: The Urban Institute. Howell, E. (2004). Access to children’s mental health services under Medicaid and SCHIP. Washington, DC: The Urban Institute.
go back to reference Iachini, A. L., Hock, R. M., Thomas, M., & Clone, S. (2015). Exploring the youth and parent perspective on practitioner behaviors that promote treatment engagement. Journal of Family Social Work, 18, 57–73. doi:10.1080/10522158.2014.974293.CrossRef Iachini, A. L., Hock, R. M., Thomas, M., & Clone, S. (2015). Exploring the youth and parent perspective on practitioner behaviors that promote treatment engagement. Journal of Family Social Work, 18, 57–73. doi:10.​1080/​10522158.​2014.​974293.CrossRef
go back to reference Kazdin, A. E., Holland, L., Crowley, M., & Breton, S. (1997). Barriers to treatment participation scale: Evaluation and validation in the context of child outpatient treatment. Child Psychology and Psychiatry and Allied Disciplines, 38, 1051–1062. doi:10.1111/j.1469-7610.1997.tb01621.x.CrossRef Kazdin, A. E., Holland, L., Crowley, M., & Breton, S. (1997). Barriers to treatment participation scale: Evaluation and validation in the context of child outpatient treatment. Child Psychology and Psychiatry and Allied Disciplines, 38, 1051–1062. doi:10.​1111/​j.​1469-7610.​1997.​tb01621.​x.CrossRef
go back to reference Kelleher, K. J., & Hoagwood, K. (2015). Beyond blame: Parents as partners. The Journal of Pediatrics, 167, 795–796.CrossRefPubMed Kelleher, K. J., & Hoagwood, K. (2015). Beyond blame: Parents as partners. The Journal of Pediatrics, 167, 795–796.CrossRefPubMed
go back to reference Krueger, R. A., & Casey, M. A. (2009). Focus groups: A practical guide for applied research. Thousand Oaks, CA: Sage Publications. Krueger, R. A., & Casey, M. A. (2009). Focus groups: A practical guide for applied research. Thousand Oaks, CA: Sage Publications.
go back to reference Lester, H., Marshall, M., Jones, P., Fowler, D., Amos, T., Khan, N., & Birchwood, M. (2011). Views of young people in early intervention services for first-episode psychosis in England. Psychiatric Services, 62, 882–887.CrossRefPubMed Lester, H., Marshall, M., Jones, P., Fowler, D., Amos, T., Khan, N., & Birchwood, M. (2011). Views of young people in early intervention services for first-episode psychosis in England. Psychiatric Services, 62, 882–887.CrossRefPubMed
go back to reference Lindsey, M. A., Brandt, N. E., Becker, K. D., Lee, B. R., Barth, R. P., Daleiden, E. L., & Chorpita, B. F. (2014). Identifying the common elements of treatment engagement interventions in children’s mental health services. Clinical Child and Family Psychology Review, 17, 283–298. doi:10.1007/s10567-013-0163-x.CrossRefPubMed Lindsey, M. A., Brandt, N. E., Becker, K. D., Lee, B. R., Barth, R. P., Daleiden, E. L., & Chorpita, B. F. (2014). Identifying the common elements of treatment engagement interventions in children’s mental health services. Clinical Child and Family Psychology Review, 17, 283–298. doi:10.​1007/​s10567-013-0163-x.CrossRefPubMed
go back to reference Lindsey, M. A., Chambers, K., Pohle, C., Beall, P., & Lucksted, A. (2013). Understanding the behavioral determinants of mental health service use by urban, under-resourced black youth: Adolescent and caregiver perspectives. Journal of Child and Family Studies, 22, 107–121.CrossRef Lindsey, M. A., Chambers, K., Pohle, C., Beall, P., & Lucksted, A. (2013). Understanding the behavioral determinants of mental health service use by urban, under-resourced black youth: Adolescent and caregiver perspectives. Journal of Child and Family Studies, 22, 107–121.CrossRef
go back to reference Lowie, J. A., Lever, N. A., Ambrose, M. G., Tager, S. B., & Hill, S. (2003). Partnering with families in expanded school mental health programs. In M. D. Weist, S. W. Evans, & N. A. Lever (Eds.), Handbook of school mental health: Advancing practice and research (pp. 135–148). New York, NY, US: Kluwer Academic/Plenum Publishers. Lowie, J. A., Lever, N. A., Ambrose, M. G., Tager, S. B., & Hill, S. (2003). Partnering with families in expanded school mental health programs. In M. D. Weist, S. W. Evans, & N. A. Lever (Eds.), Handbook of school mental health: Advancing practice and research (pp. 135–148). New York, NY, US: Kluwer Academic/Plenum Publishers.
go back to reference MacLean, L., Greenough, T., Jorgenson, V., & Couldwell, M. (1989). Getting through the front door: Improving initial appointment attendance at a mental-health clinic. Canadian Journal of Community Mental Health, 8, 123–133.CrossRef MacLean, L., Greenough, T., Jorgenson, V., & Couldwell, M. (1989). Getting through the front door: Improving initial appointment attendance at a mental-health clinic. Canadian Journal of Community Mental Health, 8, 123–133.CrossRef
go back to reference Marshall, C., & Rossman, G. B. (1995). Designing qualitative research (2nd ed.). Thousand Oaks, CA: Sage Publications, Inc. Marshall, C., & Rossman, G. B. (1995). Designing qualitative research (2nd ed.). Thousand Oaks, CA: Sage Publications, Inc.
go back to reference Merikangas, K. R., He, J., Burstein, M., Swanson, S. A., Avenevoli, S., Cui, L., & Swendsen, J. (2010). Lifetime prevalence of mental disorders in US adolescents: Results from the national comorbidity study-adolescent supplement (NCS-A). Journal of the American Academy of Child and Adolescent Psychiatry, 49, 980–989.CrossRefPubMedPubMedCentral Merikangas, K. R., He, J., Burstein, M., Swanson, S. A., Avenevoli, S., Cui, L., & Swendsen, J. (2010). Lifetime prevalence of mental disorders in US adolescents: Results from the national comorbidity study-adolescent supplement (NCS-A). Journal of the American Academy of Child and Adolescent Psychiatry, 49, 980–989.CrossRefPubMedPubMedCentral
go back to reference Nelson, G., & Prilleltensky, I. (2010). Community psychology: In pursuit of liberation and wellbeing (2nd ed.). London, UK: Palgrave Macmillan. Nelson, G., & Prilleltensky, I. (2010). Community psychology: In pursuit of liberation and wellbeing (2nd ed.). London, UK: Palgrave Macmillan.
go back to reference Nock, M. C., & Ferriter, C. (2005). Parent management of attendance and adherence in child and adolescent therapy: A conceptual and empirical review. Clinical Child and Family Psychology Review, 8, 149–166.CrossRef Nock, M. C., & Ferriter, C. (2005). Parent management of attendance and adherence in child and adolescent therapy: A conceptual and empirical review. Clinical Child and Family Psychology Review, 8, 149–166.CrossRef
go back to reference Osher, T., Garay, L., Jennings, B., Jimerson, D., Markus, S., & Martinez, K. (2011). Closing the gap: Cultural perspectives on family-driven care. Washington, DC: National Federation of Families for Children's Mental Health. Osher, T., Garay, L., Jennings, B., Jimerson, D., Markus, S., & Martinez, K. (2011). Closing the gap: Cultural perspectives on family-driven care. Washington, DC: National Federation of Families for Children's Mental Health.
go back to reference Parrish, J., Charlop, M., & Fenton, L. (1986). Use of a stated waiting list contingency and reward opportunity to increase appointment keeping in an outpatient pediatric psychology clinic. Journal of Pediatric Psychology, 11, 81–89.CrossRefPubMed Parrish, J., Charlop, M., & Fenton, L. (1986). Use of a stated waiting list contingency and reward opportunity to increase appointment keeping in an outpatient pediatric psychology clinic. Journal of Pediatric Psychology, 11, 81–89.CrossRefPubMed
go back to reference Pellerin, K., Costa, N., Weems, C., & Dalton, R. (2010). An examination of treatment completers and non-completers at a child and adolescent community mental health clinic. Community Mental Health Journal, 46, 273–281.CrossRefPubMed Pellerin, K., Costa, N., Weems, C., & Dalton, R. (2010). An examination of treatment completers and non-completers at a child and adolescent community mental health clinic. Community Mental Health Journal, 46, 273–281.CrossRefPubMed
go back to reference Schwandt, T. A. (1997). Qualitative inquiry: A dictionary of terms. Thousand Oaks, CA: Sage Publications, Inc. Schwandt, T. A. (1997). Qualitative inquiry: A dictionary of terms. Thousand Oaks, CA: Sage Publications, Inc.
go back to reference Staudt, M. (2007). Treatment engagement with caregivers of at-risk children: Gaps in research and conceptualization. Journal of Child and Family Studies, 16, 183–196.CrossRef Staudt, M. (2007). Treatment engagement with caregivers of at-risk children: Gaps in research and conceptualization. Journal of Child and Family Studies, 16, 183–196.CrossRef
go back to reference Tanskanen, S., Morant, N., Hinton, M., Lloyd-Evans, B., Crosby, M., Killaspy, H., & Johnson, S. (2011). Service user and carer experiences of seeking help for a first episode of psychosis: A UK qualitative study. BMC Psychiatry, 11, doi:10.1186/1471-244X-11-157-172. Tanskanen, S., Morant, N., Hinton, M., Lloyd-Evans, B., Crosby, M., Killaspy, H., & Johnson, S. (2011). Service user and carer experiences of seeking help for a first episode of psychosis: A UK qualitative study. BMC Psychiatry, 11, doi:10.​1186/​1471-244X-11-157-172.
Metagegevens
Titel
Collaboration, Empowerment, and Advocacy: Consumer Perspectives about Treatment Engagement
Auteurs
Sara L. Buckingham
Nicole Evangelista Brandt
Kimberly D. Becker
Deb Gordon
Nicole Cammack
Publicatiedatum
19-08-2016
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 12/2016
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-016-0507-5

Andere artikelen Uitgave 12/2016

Journal of Child and Family Studies 12/2016 Naar de uitgave