Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in:

19-08-2016 | Original Paper

Collaboration, Empowerment, and Advocacy: Consumer Perspectives about Treatment Engagement

Auteurs: Sara L. Buckingham, Nicole Evangelista Brandt, Kimberly D. Becker, Deb Gordon, Nicole Cammack

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 12/2016

Abstract

Engagement in children’s mental health treatment is strikingly low. This might be due to differences in perspectives about what it means to be engaged in treatment as well as the strategies that are most effective at engaging families, as little is known about how well consumers’ perspectives map onto current models of engagement and the empirical literature. This qualitative study examined family perspectives of (1) aspirational and actual engagement in treatment, (2) barriers that impeded engagement, and (3) engagement strategies they recommended their providers and agencies use. Four focus groups were conducted with 20 caregivers (ages 24–75), and 11 youth and young adults (ages 15–23). All participants were currently or formerly enrolled in children’s mental health services. Data were analyzed through consensual qualitative research methods. Findings revealed that youth and caregivers’ definitions of engagement included both attitudinal and behavioral components. Numerous barriers impeded components of aspirational engagement, and agency- and provider-related barriers were most pervasive. Youth reported more attitudinal barriers, whereas caregivers reported more behavioral barriers. Participants described advocacy (e.g., taking direct action to influence treatment) as a key engagement component; however, such advocacy often involved treatment non-adherence that could be interpreted by providers as disengagement. Families recommended strategies to strengthen the therapeutic relationship and build trust that are empirically supported. However, families described many experiences in which providers did not use these empirically supported strategies. Families also described some theoretically supported engagement strategies as having a negative impact on engagement. In sum, the findings suggest that providers should take an empowering family-centered treatment approach where they seek to understand and build upon clients’ engagement perspectives.

vorige artikel Coming-Out to Family Members and Internalized Sexual Stigma in Bisexual, Lesbian and Gay People

volgende artikel Effects of the Incredible Years Program in Families of Children with ADHD

Alleen toegankelijk voor geautoriseerde gebruikers

Alegria, M., Vallas, M., & Pumariega, A. J. (2010). Racial and ethnic disparities in pediatric mental health. Child and Adolescent Psychiatric Clinics of North America, 19, 759–774. doi: 10.1016/j.chc.2010.07.001. CrossRefPubMedPubMedCentral

Baker-Ericzén, M. R., Jenkins, M., & Haine-Schlagel, R. (2013). Therapist, parent, and youth perspectives of treatment barriers to family-focused community outpatient mental health services. Journal of Child & Family Studies, 22, 854–868. CrossRef

Barrett, M. S., Chua, W., Crits-Christoph, P., Gibbons, M. B., & Thompson, D. (2008). Early withdrawal from mental health treatment: Implications for psychotherapy practice. Psychotherapy: Theory, Research, Practice, Training, 45, 247–267. doi: 10.1037/0033-3204.45.2.247. CrossRef

Becker, K. D., Buckingham, S. L., & Brandt, N. E. (2015). Engaging youth and families in school mental health services. Child Psychiatric Clinics of North America, 24, 385–398. doi: 10.1016/j.chc.2014.11.002. CrossRef

Becker, K. D., Lee, B. R., Daleiden, E. L., Lindsey, M., Brandt, N. E., & Chorpita, B. F. (2015). The common elements of engagement in children’s mental health services: Which elements for which outcomes?. Journal of Clinical Child and Adolescent Psychology, 44, 30–43. doi: 10.1080/15374416.2013.814543. CrossRefPubMed

Brannan, A. M., Heflinger, C. A., & Foster, E. M. (2003). The role of caregiver strain and other family variables in determining children’s use of mental health services. Journal of Emotional and Behavioral Disorders, 11, 78–92. CrossRef

Charmaz, K. (2000). Grounded theory: Objectivist & constructivist methods. In N. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (2nd ed., pp. 509–535). Thousand Oaks, CA: Sage Publications, Inc.

Costello, E. J., Copeland, W., & Angold, A. (2011). Trends in psychopathology across the adolescent years: What changes when children become adolescents, and when adolescents become adults?. Journal of Child Psychology and Psychiatry, 52, 1015–1025. CrossRef

Crabtree, B. F., & Miller, W. L. (Eds.) (1999). Using codes and code manuals: A template organizing style of interpretation. In Doing qualitative research in primary care: Multiple strategies (2nd ed., pp. 163–177). Newbury Park, CA: Sage Publications, Inc.

Ellis, M. L., Lindsey, M. A., Barker, E. D., Boxmeyer, C. L., & Lochman, J. E. (2013). Predictors of engagement in a school-based family preventive intervention for youth experiencing behavioral difficulties. Prevention Science, 14, 457–467. doi: 10.1007/s11121-012-0319-9. CrossRefPubMedPubMedCentral

George, M. W., McDaniel, H. L., Michael, K. D., & Weist, M. D. (2014). Clinician and caregiver perspectives on family involvement in school mental health services for youth receiving mood disorders treatment. Emotional & Behavioral Disorders in Youth, 14, 16–21.

Glesne, C. (2011). Becoming qualitative researchers: An introduction(4th ed.). Boston, MA: Pearson Education, Inc.

Gopalan, G., Goldstein, L., Klingenstein, K., Sicher, C., Blake, C., & McKay, M. M. (2010). Engaging families into child mental health treatment: Updates and special considerations. Journal of the Canadian Academy of Child & Adolescent Psychiatry, 19, 182–196.

Guba, E. G. & Lincoln, Y. S. (2005). Paradigmatic controversies and emerging confluences. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (3rd ed., pp. 191–216). Thousand Oaks, CA: Sage Publications, Inc.

Hill, C. E., Thompson, B. J., & Williams, E .N. (1997). A guide to conducting consensual qualitative research. The Counseling Psychologist, 25, 517–572. doi: 10.1177/0011000097254001. CrossRef

Hoepfl, M. (1997). Choosing qualitative research: A primer for technology education researchers. Journal of Technology Education, 9, 47–63. CrossRef

Hogan, M. F. (2003). The President’s New Freedom Commission: Recommendations to transform mental health care in America. Psychiatric Services, 54, 1467–1474. CrossRefPubMed

Hopkins, P. E. (2007). Thinking critically and creatively about focus groups. Area, 39, 528–535. CrossRef

Howell, E. (2004). Access to children’s mental health services under Medicaid and SCHIP. Washington, DC: The Urban Institute.

Iachini, A. L., Hock, R. M., Thomas, M., & Clone, S. (2015). Exploring the youth and parent perspective on practitioner behaviors that promote treatment engagement. Journal of Family Social Work, 18, 57–73. doi: 10.1080/10522158.2014.974293. CrossRef

Kazdin, A. E., Holland, L., Crowley, M., & Breton, S. (1997). Barriers to treatment participation scale: Evaluation and validation in the context of child outpatient treatment. Child Psychology and Psychiatry and Allied Disciplines, 38, 1051–1062. doi: 10.1111/j.1469-7610.1997.tb01621.x. CrossRef

Kelleher, K. J., & Hoagwood, K. (2015). Beyond blame: Parents as partners. The Journal of Pediatrics, 167, 795–796. CrossRefPubMed

Krueger, R. A., & Casey, M. A. (2009). Focus groups: A practical guide for applied research. Thousand Oaks, CA: Sage Publications.

Lester, H., Marshall, M., Jones, P., Fowler, D., Amos, T., Khan, N., & Birchwood, M. (2011). Views of young people in early intervention services for first-episode psychosis in England. Psychiatric Services, 62, 882–887. CrossRefPubMed

Lindsey, M. A., Brandt, N. E., Becker, K. D., Lee, B. R., Barth, R. P., Daleiden, E. L., & Chorpita, B. F. (2014). Identifying the common elements of treatment engagement interventions in children’s mental health services. Clinical Child and Family Psychology Review, 17, 283–298. doi: 10.1007/s10567-013-0163-x. CrossRefPubMed

Lindsey, M. A., Chambers, K., Pohle, C., Beall, P., & Lucksted, A. (2013). Understanding the behavioral determinants of mental health service use by urban, under-resourced black youth: Adolescent and caregiver perspectives. Journal of Child and Family Studies, 22, 107–121. CrossRef

Lowie, J. A., Lever, N. A., Ambrose, M. G., Tager, S. B., & Hill, S. (2003). Partnering with families in expanded school mental health programs. In M. D. Weist, S. W. Evans, & N. A. Lever (Eds.), Handbook of school mental health: Advancing practice and research (pp. 135–148). New York, NY, US: Kluwer Academic/Plenum Publishers.

MacLean, L., Greenough, T., Jorgenson, V., & Couldwell, M. (1989). Getting through the front door: Improving initial appointment attendance at a mental-health clinic. Canadian Journal of Community Mental Health, 8, 123–133. CrossRef

Marshall, C., & Rossman, G. B. (1995). Designing qualitative research (2nd ed.). Thousand Oaks, CA: Sage Publications, Inc.

McKay, M. M., & Bannon, W. M. (2004). Engaging families in child mental health services . Child and Adolescent Psychiatric Clinics of North America, 13, 905–921. doi: 10.1016/j.chc.2004.04.001. CrossRefPubMed

Merikangas, K. R., He, J., Burstein, M., Swanson, S. A., Avenevoli, S., Cui, L., & Swendsen, J. (2010). Lifetime prevalence of mental disorders in US adolescents: Results from the national comorbidity study-adolescent supplement (NCS-A). Journal of the American Academy of Child and Adolescent Psychiatry, 49, 980–989. CrossRefPubMedPubMedCentral

Nelson, G., & Prilleltensky, I. (2010). Community psychology: In pursuit of liberation and wellbeing (2nd ed.). London, UK: Palgrave Macmillan.

Nock, M. C., & Ferriter, C. (2005). Parent management of attendance and adherence in child and adolescent therapy: A conceptual and empirical review. Clinical Child and Family Psychology Review, 8, 149–166. CrossRef

Nock, M. K., & Kazdin, A. E. (2005). Randomized controlled trial of a brief intervention for increasing participation in parent management training. Journal of Consulting and Clinical Psychology, 73, 872–879. doi: 10.1037/0022-006X.73.5.872. CrossRefPubMed

Osher, T., Garay, L., Jennings, B., Jimerson, D., Markus, S., & Martinez, K. (2011). Closing the gap: Cultural perspectives on family-driven care. Washington, DC: National Federation of Families for Children's Mental Health.

Parrish, J., Charlop, M., & Fenton, L. (1986). Use of a stated waiting list contingency and reward opportunity to increase appointment keeping in an outpatient pediatric psychology clinic. Journal of Pediatric Psychology, 11, 81–89. CrossRefPubMed

Pellerin, K., Costa, N., Weems, C., & Dalton, R. (2010). An examination of treatment completers and non-completers at a child and adolescent community mental health clinic. Community Mental Health Journal, 46, 273–281. CrossRefPubMed

Schauer, C., Everett, A., del Vecchio, P., & Anderson, L. (2007). Promoting the value and practice of shared decision-making in mental health care. Psychiatric Rehabilitation Journal, 31, 54–61. doi: 10.2975/31.1.2007.54.61. CrossRefPubMed

Schwandt, T. A. (1997). Qualitative inquiry: A dictionary of terms. Thousand Oaks, CA: Sage Publications, Inc.

Staudt, M. (2007). Treatment engagement with caregivers of at-risk children: Gaps in research and conceptualization. Journal of Child and Family Studies, 16, 183–196. CrossRef

Tanskanen, S., Morant, N., Hinton, M., Lloyd-Evans, B., Crosby, M., Killaspy, H., & Johnson, S. (2011). Service user and carer experiences of seeking help for a first episode of psychosis: A UK qualitative study. BMC Psychiatry, 11, doi: 10.1186/1471-244X-11-157-172.

Titel: Collaboration, Empowerment, and Advocacy: Consumer Perspectives about Treatment Engagement
Auteurs: Sara L. Buckingham
Nicole Evangelista Brandt
Kimberly D. Becker
Deb Gordon
Nicole Cammack
Publicatiedatum: 19-08-2016
Uitgeverij: Springer US
Gepubliceerd in: Journal of Child and Family Studies / Uitgave 12/2016
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI: https://doi.org/10.1007/s10826-016-0507-5

Bohn Stafleu van Loghum

Tip

Swipe om te navigeren naar een ander artikel

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 12/2016

The Care and Development of Children Living in Contexts of Poverty

Empathy as an Essential Foundation to Successful Foster Parenting

Family Conflict Moderates the Relation Between Negative Mood and Youth Internalizing and Externalizing Symptoms

Raising American Citizens: Socialization Goals of Low-Income Immigrant Latino Mothers and Fathers of Young Children

Psychological Inflexibility and Child Anxiety

High Hopes? Educational, Socioeconomic, and Ethnic Differences in Parents’ Aspirations for their Unborn Children