Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

10-07-2017 | Original Paper

Coherence of Representations Regarding the Child, Resolution of the Child’s Diagnosis and Emotional Availability: A Study of Arab-Israeli Mothers of Children with ASD

Auteurs: Efrat Sher-Censor, Smadar Dolev, Marwa Said, Nagham Baransi, Kholud Amara

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 10/2017

Abstract

This study examined the interplay of mothers’ coherent representations of their child (i.e., multidimensional and balanced view); resolution of the child’s ASD diagnosis (i.e., acceptance); and emotional availability to the child in the unique cultural context of Arab-Israeli families. Participants were 46 mothers and their 2–8 year old sons. Coherent representations and resolution of the diagnosis were assessed using narrative measures. Emotional availability (namely, sensitivity, structuring, and lack of intrusiveness and hostility) was observed during mother–child play interactions. Results suggested that coherent and resolved mothers were more emotionally available than incoherent and/or unresolved mothers. These findings highlight the importance of supporting mothers’ ability to accept the child’s diagnosis and see the unique characteristics of the child beyond his ASD symptoms.

vorige artikel Differences in Neural Correlates of Speech Perception in 3 Month Olds at High and Low Risk for Autism Spectrum Disorder

volgende artikel Phenotypic Characteristics of Autism Spectrum Disorder in a Diverse Sample of Somali and Other Children

Al-Krenawi, A., Graham, J. R., & Al-Gharaibeh, F. (2011). The impact of intellectual disability, caregiver burden, family functioning, marital quality, and sense of coherence. Disability and Society, 26, 139–150. doi:10.1080/09687599.2011.543861.CrossRef

Ainsworth, M. D. S., Blehar, M., Waters, E., & Wall, S. (1978). Patterns of attachment: A psychological study of the strange situation. Hillsdale: Erlbaum.

Al-Krenawi, A., & Graham, J. R. (2009). Helping professional practice with indigenous peoples: The Bedouin-Arab case. Lanham, MD: University Press of America.

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-V). Arlington: American Psychiatric Publishers.CrossRef

Baker, J. K., Messinger, D. S., Lyons, K. K., & Grantz, C. J. (2010). A pilot study of maternal sensitivity in the context of emergent autism. Journal of Autism and Developmental Disorders, 40, 988–999. doi:10.1007/s10803-010-0948-4.CrossRefPubMedPubMedCentral

Barnett, D., Clements, M., Kaplan-Estrin, M., McCaskill, J. W., Hunt, K. H., Butler, C. M., ... Janisse, H. C. et al. (2006). Maternal resolution of child diagnosis: Stability and relations with child attachment across the toddler to preschooler transition. Journal of Family Psychology, 20, 100–107. doi:10.1037/0893-3200.20.1.100.CrossRefPubMed

Belsky, J. (1984). The determinants of parenting: A process model. Child Development, 55, 83–96. doi:10.2307/1129836.CrossRefPubMed

Benoit, D., Zeanah, C. H., Parker, K. C., Nicholson, E., & Coolbear, J. (1997). “Working model of the child interview”: Infant clinical status related to maternal perceptions. Infant Mental Health Journal, 18, 107–121. doi:10.1002/(SICI)1097-0355(199721)18:1107::AID-IMHJ83.0.CO;2-N.CrossRef

Biringen, Z., Derscheid, D., Vliegen, N., Closson, L., & Easterbrooks, M. A. (2014). Emotional availability (EA): Theoretical background, empirical research using the EA Scales, and clinical applications. Developmental Review, 34, 114–167. doi:10.1016/j.dr.2014.01.002.CrossRef

Biringen, Z., Robinson, J., & Emde, B. (1998). The Emotional Availability Scales – third edition. Unpublished manuscript. Denver: University of Colorado Health Sciences Center.

Blacher, J. (1984). The sequential stages of parental adjustment to the birth of a child with handicaps: Fact or artifact. Mental Retardation, 22(2), 55–68.PubMed

Bowlby, J. (1969/1982). Attachment and loss v. 3. Vol. 1. New York, NY: Basic Books.

Bowlby, J. (1982). Attachment and loss: retrospect and prospect. American Journal of Orthopsychiatry, 52, 664–678. doi:10.1111/j.1939-0025.1982.tb01456.x.CrossRefPubMed

Button, S., Pianta, R. C., & Marvin, R. S. (2001). Partner support and maternal stress in families raising young children with cerebral palsy. Journal of Developmental and Physical Disabilities, 13, 61–81. doi:10.1023/A:1026509400487.CrossRef

Crabtree, S. A. (2007). Family responses to the social inclusion of children with developmental disabilities in the United Arab Emirates. Disability & Society, 22, 49–62. doi:10.1080/09687590601056618.CrossRef

Curran, P. J., West, S., & Finch, J. F. (1996). The robustness of test statistics to nonnormality and specification error in confirmatory factor analysis. Psychological Methods, 1, 16–23. doi:10.1037/1082-989X.1.1.16.CrossRef

Dolev, S., Oppenheim, D., Koren-Karie, N., & Yirmiya, N. (2009). Emotional availability in mother-child interaction: The case of children with autism spectrum disorders. Parenting: Science and Practice, 9, 183–197. doi:10.1080/15295190902844332.CrossRef

Dolev, S., Sher-Censor, E., Baransi, N., Amarah K., & Said, M. (2016). Resolution of the child’s ASD diagnosis among Arab-Israeli mothers: Associations with maternal sensitivity and wellbeing. Research in Autism Spectrum Disorders, 21, 73–83.CrossRef

Duvdevany, I., & Abboud, S. (2003). Stress, social support and well-being of Arab mothers of children with intellectual disability who are served by welfare services in northern Israel. Journal of Intellectual Disability Research, 47, 264–272. doi:10.1046/j.1365-2788.2003.00488.x.CrossRefPubMed

Feldman, R., & Masalha, S. (2010). Parent–child and triadic antecedents of children’s social competence: Cultural specificity, shared process. Developmental Psychology, 46, 455–567. doi:10.1037/a0017415.CrossRefPubMed

Feniger-Schaal, R., & Oppenheim, D. (2013). Resolution of the diagnosis and maternal sensitivity among mothers of children with Intellectual Disability. Research in Developmental Disabilities, 34, 306–313. doi:10.1016/j.ridd.2012.08.007.CrossRefPubMed

Florian, V. (1989). The cultural impact on the family dynamics of parents who have a child with a disability. Journal of Comparative Family Studies, 20, 97–111. http://www.jstor.org/stable/41601996.

Grinker, R. R. (2007). Unstrange minds: Remapping the world of autism. New York: Basic Books.

Haltigan, J. D., Leerkes, E. M., Wong, M. S., Fortuna, K., Roisman, G. I., Supple, A. J., ... Plamondon, A. (2014). Adult attachment states of mind: Measurement invariance across ethnicity and associations with maternal sensitivity. Child Development, 85, 1019–1035. doi:10.1111/cdev.12180.CrossRefPubMed

Hartley, S. L., Mihaila, I., Otalora-Fadner, H. S., & Bussanich, P. M. (2014). Division of labor in families of children and adolescents with autism spectrum disorder. Family Relations, 63, 627–638. doi:10.1111/fare.12093.CrossRefPubMedPubMedCentral

Hutman, T., Siller, M., & Sigman, M. (2009). Mothers’ narratives regarding their child with autism predict maternal synchronous behavior during play. Journal of Child Psychology and Psychiatry, 50, 1255–1263. doi:10.1111/j.1469-7610.2009.02109.x.CrossRefPubMed

Israel Central Bureau of Statistics (2016). Population by religion. Retrieved from http://www.cbs.gov.il/reader/cw_usr_view_SHTML?ID=802.

Kandel, I., Morad, M., Vardi, G., Press, J., & Merrick, J. (2004). The Arab community in Israel coping with intellectual and developmental disability. The Scientific World Journal, 4, 324–332. doi:10.1100/tsw.2004.31.CrossRefPubMed

Koren-Karie, N., & Oppenheim, D. (2004). Insightfulness Procedure administration and coding manual. Unpublished manuscript. Haifa: University of Haifa.

Koren-Karie, N., Oppenheim, D., Dolev, S., Sher, E., & Etzion-Carasso, A. (2002). Mother’s insightfulness regarding their infants’ internal experience: Relations with maternal sensitivity and infant attachment. Developmental Psychology, 38, 534–542. doi:10.1037/0012-1649.38.4.534.CrossRefPubMed

Koren-Karie, N., Oppenheim, D., Dolev, S., & Yirmiya, N. (2009). Mothers of securely attached children with autism spectrum disorder are more sensitive than mothers of insecurely attached children. Journal of Child Psychology and Psychiatry, 50, 643–650. doi:10.1111/j.1469-7610.2008.02043.x.CrossRefPubMed

Lev-Wiesel, R., & Al-Krenawi, A. (1999). Attitude towards marriage and marital quality: A comparison among Israeli Arabs differentiated by religion. Family Relations, 48, 51–56. doi:10.2307/585682.CrossRef

Levy-Erez, D., Levy, J., Friger, M., Aharoni-Mayer, Y., Cohen-Iliz, M., & Goldstein, E. (2010). Assessment of cognitive and adaptive behaviour among individuals with congenital insensitivity to pain and anhidrosis. Developmental Medicine and Child Neurology, 52, 559–562. doi:10.1111/j.1469-8749.2009.03567.x.CrossRefPubMed

Little, R. J. A. (1988). A test of missing completely at random for multivariate data with missing values. Journal of the American Statistical Association, 83, 1198–1202. doi:10.1080/01621459.1988.10478722.CrossRef

Magaña, A. B., Goldstein, J. M., Karno, M., Miklowitz, D. J., Jenkins, J., & Falloon, I. R. (1986). A brief method for assessing expressed emotion in relatives of psychiatric patients. Psychiatry Research, 17, 203–212. doi:10.1016/0165-1781(86)90049-1.CrossRefPubMed

Main, M., Kaplan, N., & Cassidy, J. (1985). Security in infancy, childhood, and adulthood: A move to the level of representation. Monographs of the Society for Research in Child Development, 50, 66–104. http://www.jstor.org/stable/3333827.

Marvin, R. S., & Pianta, R. C. (1996). Mothers’ reactions to their child’s diagnosis: Relations with security of attachment. Journal of Clinical Child Psychology, 25, 436–445. doi:10.1207/s15374424jccp2504_8.CrossRef

Mesman, J., van IJzendoorn, M. H., & Bakermans-Kranenburg, M. J. (2012). Unequal in opportunity, equal in process: Parental sensitivity promotes positive child development in ethnic minority families. Child Development Perspectives, 6, 239–250. doi:10.1111/j.1750-8606.2011.00223.x.CrossRef

Oppenheim, D. (2006). Child, parent, and parent–child emotion narratives: Implications for developmental psychopathology. Development and Psychopathology, 18, 771–790. doi:10.1017/S095457940606038X.CrossRefPubMed

Oppenheim, D., Koren-Karie, N., Dolev, S., & Yirmiya, N. (2012). Maternal sensitivity mediates the link between maternal insightfulness/resolution and child–mother attachment: The case of children with Autism Spectrum Disorder. Attachment and Human Development, 14, 567–584. doi:10.1080/14616734.2012.727256.CrossRefPubMed

Pianta, R. C., & Marvin, R. S. (1993). Manual for classification of the reaction to diagnosis interview. Unpublished manual, Charlottesville: University of Virginia.

Pitten, K. (2008). How cultural values influence diagnosis, treatment and the welfare of families with an autistic child. InSight: Rivier Academic Journal, 4, 1–5.

Poslawsky, I. E., Naber, F. B., Van Daalen, E., & Van Engeland, H. (2014). Parental reaction to early diagnosis of their children’s autism spectrum disorder: an exploratory study. Child Psychiatry and Human Development, 45, 294–305. doi:10.1007/s10578-013-0400-z.CrossRefPubMed

Ravindran, N., & Myers, B. J. (2012). Cultural influences on perceptions of health, illness, and disability: A review and focus on autism. Journal of Child and Family Studies, 21, 311–319. doi:10.1007/s10826-011-9477-9.CrossRef

Sher-Censor, E., Grey, I., & Yates, T. M. (2013). The intergenerational congruence of mothers’ and preschoolers’ narrative affective content and narrative coherence. The International Journal of Behavioral Development, 37, 340–348. doi:10.1177/0165025413482760.CrossRef

Sher-Censor, E., Khafi, T. Y., & Yates, T. M. (2016). Preschoolers’ self-regulation moderates relations between mothers’ representations and children’s adjustment to school. Developmental Psychology, 52, 1793–1804. doi:10.1037/dev0000178.CrossRefPubMed

Sher-Censor, E., & Yates, T. M. (2012). Five Minute Speech Sample Narrative Coherence Coding Manual. Riverside, CA: University of California.

Sher-Censor, E., & Yates, T. M. (2015). Mothers’ expressed emotion and narrative coherence: Associations with preschoolers’ behavior problems in a multiethnic sample. Journal of Child and Family Studies, 24, 1392–1405. doi:10.1007/s10826-014-9946-z.CrossRef

Siegel, B. (1996). The world of the autistic child: Understanding and treating autistic spectrum disorders. Oxford: Oxford University Press.

Siller, M., & Sigman, M. (2002). The behaviors of parents of children with autism predict the subsequent development of their children’s communication. Journal of Autism and Developmental Disorders, 32, 77–89. doi:10.1023/A:1014884404276 CrossRefPubMed

Simmerman, S., Blacher, J., & Baker, B. L. (2001). Fathers’ and mothers’ perceptions of father involvement in families with young children with a disability. Journal of Intellectual and Developmental Disability, 26, 325–338. doi:10.1080/13668250120087335.CrossRef

Slade, A., Belsky, J., Aber, J. L., & Phelps, J. L. (1999). Mothers’ representations of their relationships with their toddlers: links to adult attachment and observed mothering. Developmental Psychology, 35, 611–619. doi:‏ 10.1037/0012-1649.35.3.611.CrossRefPubMed

Sparrow, S. S., Balla, D. A., & Cicchetti, D. V. (1984). Vineland Adaptive Behavior Scales. Circle Pines, MN: American Guidance Services.

van IJzendoorn, M., & Bakermans-Kranenburg, M. (2010). Invariance of adult attachment across gender, age, culture, and socioeconomic status? Journal of Social and Personal Relationships, 27, 200–208. doi:10.1177/0265407509360908.CrossRef

Wachtel, K., & Carter, A. S. (2008). Reaction to diagnosis and parenting styles among mothers of young children with ASDs. Autism, 12, 575–594. doi:10.1177/1362361308094505.CrossRefPubMed

Titel: Coherence of Representations Regarding the Child, Resolution of the Child’s Diagnosis and Emotional Availability: A Study of Arab-Israeli Mothers of Children with ASD
Auteurs: Efrat Sher-Censor
Smadar Dolev
Marwa Said
Nagham Baransi
Kholud Amara
Publicatiedatum: 10-07-2017
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 10/2017
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-017-3228-8

Andere artikelen Uitgave 10/2017

Comparison of Autism Screening in Younger and Older Toddlers

Original Paper

Autism and Equine-Assisted Interventions: A Systematic Mapping Review

Original Paper

Differences in Neural Correlates of Speech Perception in 3 Month Olds at High and Low Risk for Autism Spectrum Disorder

Original Paper

Development of a College Transition and Support Program for Students with Autism Spectrum Disorder

Original Paper

Brief Report: Social Support and Coping Strategies of Mothers of Children Suffering from ASD in Kuwait

Brief Report

Parental Outcomes Following Participation in Cognitive Behavior Therapy for Children with Autism Spectrum Disorder

Original Paper