Skip to main content
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Quality of Life Research 11/2017

22-06-2017

Children’s family experiences: development of the PROMIS® pediatric family relationships measures

Auteurs: Katherine B. Bevans, Anne W. Riley, Jeanne M. Landgraf, Adam C. Carle, Rachel E. Teneralli, Barbara H. Fiese, Lisa J. Meltzer, Anna K. Ettinger, Brandon D. Becker, Christopher B. Forrest

Gepubliceerd in: Quality of Life Research | Uitgave 11/2017

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

To describe the development of pediatric family relationships measures, with versions for child self-report (8–17 years) and parent-report for children 5–17 years old. Measures were created for integration into the Patient Reported Outcomes Measurement Information System (PROMIS®).

Methods

Semi-structured interviews with 10 experts, 24 children, and 8 parents were conducted to elicit and clarify essential elements of family relationships. A systematic literature review was conducted to identify item concepts representative of each element. The concepts were transformed into items that were iteratively revised based on cognitive interviews (n = 43 children) and item translatability review. Psychometric studies involving 2846 children and 2262 parents were conducted to further refine and validate the instruments.

Results

Qualitative procedures supported the development of content valid Family Relationships item banks. Final child- and parent-report item banks each contain 47 items. Unidimensional item banks were calibrated using IRT-modeling to estimate item parameters representative of the US population and to enable computerized adaptive test administration. Four- and eight-item short forms were constructed for standard fixed format administration. All instruments have strong internal consistency, retest-reliability, and provide precise estimates of various levels of family relationship quality. Preliminary evidence of the instruments’ validity was provided by known-group comparisons and convergence with legacy measures.

Conclusion

The PROMIS pediatric Family Relationships measures can be applied in research focused on determinants, outcomes, and the protective effects of children’s subjective family relationship experiences.

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Podotherapeut Totaal

Binnen de bundel kunt u gebruik maken van boeken, tijdschriften, e-learnings, web-tv's en uitlegvideo's. BSL Podotherapeut Totaal is overal toegankelijk; via uw PC, tablet of smartphone.

Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
3.
go back to reference Maslow, A. H. (1968). Toward a psychology of being. New York: Van Nostrand. Maslow, A. H. (1968). Toward a psychology of being. New York: Van Nostrand.
5.
go back to reference Moos, R. H., & Moos, B. S. (1994). Family environment scale manual. Palo Alto, CA: Consulting Psychologists Press. Moos, R. H., & Moos, B. S. (1994). Family environment scale manual. Palo Alto, CA: Consulting Psychologists Press.
7.
go back to reference Forrest, C. B., Bevans, K. B., Tucker, C., Riley, A. W., Ravens-Sieberer, U., Gardner, W., et al. (2012). The patient reported outcome measurement information system (PROMIS) for children and youth: Application to pediatric psychology. Journal of Pediatric Psychology, 37(6), 614–621. CrossRefPubMedPubMedCentral Forrest, C. B., Bevans, K. B., Tucker, C., Riley, A. W., Ravens-Sieberer, U., Gardner, W., et al. (2012). The patient reported outcome measurement information system (PROMIS) for children and youth: Application to pediatric psychology. Journal of Pediatric Psychology, 37(6), 614–621. CrossRefPubMedPubMedCentral
8.
go back to reference DeWalt, D. A., Rothrock, N., Yount, S., & Stone, A. A. (2007). Evaluation of item candidates: The PROMIS qualitative item review. Medical Care, 5(1), S12–S21. CrossRef DeWalt, D. A., Rothrock, N., Yount, S., & Stone, A. A. (2007). Evaluation of item candidates: The PROMIS qualitative item review. Medical Care, 5(1), S12–S21. CrossRef
9.
go back to reference Reeve, B. B., Hays, R. D., Bjorner, J. B., Cook, K. F., Crane, P. K., Teresi, J. A., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: plans for the patient-reported outcomes measurement information system (PROMIS). Medical Care, 45(5 Suppl 1), S22–S31. CrossRefPubMed Reeve, B. B., Hays, R. D., Bjorner, J. B., Cook, K. F., Crane, P. K., Teresi, J. A., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: plans for the patient-reported outcomes measurement information system (PROMIS). Medical Care, 45(5 Suppl 1), S22–S31. CrossRefPubMed
11.
go back to reference Bjorner, J. B., Chang, C. H., Thissen, D., & Reeve, B. B. (2007). Developing tailored instruments: item banking and computerized adaptive assessment. Quality of Life Research, 16(Suppl 1), 95–108. CrossRefPubMed Bjorner, J. B., Chang, C. H., Thissen, D., & Reeve, B. B. (2007). Developing tailored instruments: item banking and computerized adaptive assessment. Quality of Life Research, 16(Suppl 1), 95–108. CrossRefPubMed
12.
go back to reference Teresi, J. A., & Fleishman, J. A. (2007). Differential item functioning and health assessment. Quality of Life Research, 16(Suppl 1), 33–42. CrossRefPubMed Teresi, J. A., & Fleishman, J. A. (2007). Differential item functioning and health assessment. Quality of Life Research, 16(Suppl 1), 33–42. CrossRefPubMed
13.
go back to reference van der Linden, W. J., & Hambleton, R. K. (1997). Item response theory: Brief history, common models, and extensions (pp. 1–28). New York: Springer. van der Linden, W. J., & Hambleton, R. K. (1997). Item response theory: Brief history, common models, and extensions (pp. 1–28). New York: Springer.
14.
go back to reference Hahn, E. A., DeVellis, R. F., Bode, R. K., Garcia, S. F., Castel, L. D., Eisen, S. V., et al. (2010). Measuring social health in the patient-reported outcomes measurement information system (PROMIS): Item bank development and testing. Quality of Life Research, 19, 1035–1044. doi: 10.​1007/​s11136-010-9654-0. CrossRefPubMedPubMedCentral Hahn, E. A., DeVellis, R. F., Bode, R. K., Garcia, S. F., Castel, L. D., Eisen, S. V., et al. (2010). Measuring social health in the patient-reported outcomes measurement information system (PROMIS): Item bank development and testing. Quality of Life Research, 19, 1035–1044. doi: 10.​1007/​s11136-010-9654-0. CrossRefPubMedPubMedCentral
15.
go back to reference Bowlby, J. (1973). Attachment and Loss: Vol. 2. separation. New York: Basic Books. Bowlby, J. (1973). Attachment and Loss: Vol. 2. separation. New York: Basic Books.
17.
go back to reference Bronfenbrenner, U., & Morris, P. A. (1998). The ecology of social development. In R. M. Lerner & W. Damon (Eds.), Handbook of child psychology: Vol 1, theoretical models of human development (6th ed., pp. 993–1023). New York: Wiley. Bronfenbrenner, U., & Morris, P. A. (1998). The ecology of social development. In R. M. Lerner & W. Damon (Eds.), Handbook of child psychology: Vol 1, theoretical models of human development (6th ed., pp. 993–1023). New York: Wiley.
19.
go back to reference Diamond, L. M., & Fagundes, C. P. (2008). Developmental perspectives on links between attachment and affect regulation over the lifespan. Advances in Child Behavior and Development, 36, 83–134. CrossRef Diamond, L. M., & Fagundes, C. P. (2008). Developmental perspectives on links between attachment and affect regulation over the lifespan. Advances in Child Behavior and Development, 36, 83–134. CrossRef
27.
go back to reference Fiese, B. H., & Wamboldt, F. (2000). Family routines, rituals, and asthma management: A proposal for family-based strategies to increase treatment adherence. Family Systems and Health, 18, 405–418. doi: 10.​1037/​h0091864. CrossRef Fiese, B. H., & Wamboldt, F. (2000). Family routines, rituals, and asthma management: A proposal for family-based strategies to increase treatment adherence. Family Systems and Health, 18, 405–418. doi: 10.​1037/​h0091864. CrossRef
28.
go back to reference Lasch, K. E., Marquis, P., Vigneux, M., Abetz, L., Arnould, B., Bayliss, M., et al. (2010). PRO development: rigorous qualitative research as the crucial foundation. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(8), 1087–1096. doi: 10.​1007/​s11136-010-9677-6. CrossRef Lasch, K. E., Marquis, P., Vigneux, M., Abetz, L., Arnould, B., Bayliss, M., et al. (2010). PRO development: rigorous qualitative research as the crucial foundation. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(8), 1087–1096. doi: 10.​1007/​s11136-010-9677-6. CrossRef
29.
go back to reference Klem, M., Saghafi, E., Abromitis, R., Stover, A., Dew, M. A., & Pilkonis, P. (2009). Building PROMIS item banks: Librarians as co-investigators, 18(7), 881–888. doi: 10.​1007/​s11136-009-9498-7. Klem, M., Saghafi, E., Abromitis, R., Stover, A., Dew, M. A., & Pilkonis, P. (2009). Building PROMIS item banks: Librarians as co-investigators, 18(7), 881–888. doi: 10.​1007/​s11136-009-9498-7.
30.
go back to reference Irwin, D. E., Varni, J. W., Yeatts, K., & Dewalt, D. A. (2009). Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) study. Health and Quality of Life Outcomes, 7(1), 3. CrossRefPubMedPubMedCentral Irwin, D. E., Varni, J. W., Yeatts, K., & Dewalt, D. A. (2009). Cognitive interviewing methodology in the development of a pediatric item bank: A patient reported outcomes measurement information system (PROMIS) study. Health and Quality of Life Outcomes, 7(1), 3. CrossRefPubMedPubMedCentral
31.
go back to reference Wild, D., Eremenco, S., Mear, I., Martin, M., Houchin, C., & Gawlicki, M. (2009). Multinational trials-recommendations on the translations required, approaches to using the same language in different countries, and the approaches to support pooling the data: The ISPOR patient-reported outcomes translation and linguistic validation good. Value in Health, 12(4), 430–440. CrossRefPubMed Wild, D., Eremenco, S., Mear, I., Martin, M., Houchin, C., & Gawlicki, M. (2009). Multinational trials-recommendations on the translations required, approaches to using the same language in different countries, and the approaches to support pooling the data: The ISPOR patient-reported outcomes translation and linguistic validation good. Value in Health, 12(4), 430–440. CrossRefPubMed
32.
go back to reference Wild, D., Grove, A., Martin, M., Eremenco, S., McElroy, S., & Verjee-Lorenz, A. (2005). Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: Report of the ISPOR task force for translation and cultural adaptation. Value in Health, 8(2), 94–104. CrossRefPubMed Wild, D., Grove, A., Martin, M., Eremenco, S., McElroy, S., & Verjee-Lorenz, A. (2005). Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: Report of the ISPOR task force for translation and cultural adaptation. Value in Health, 8(2), 94–104. CrossRefPubMed
33.
go back to reference IQOLA. (2011). The international quality of life assessment (IQOL) project. IQOLA. (2011). The international quality of life assessment (IQOL) project.
34.
35.
go back to reference DiSogra, C., Dennis, J., & Fahimi, M. (2010). On the quality of ancillary data available for address- based sampling. Proceedings of the American Statistical Association, Section on Survey Research Methods, pp. 4174–4183. DiSogra, C., Dennis, J., & Fahimi, M. (2010). On the quality of ancillary data available for address- based sampling. Proceedings of the American Statistical Association, Section on Survey Research Methods, pp. 4174–4183.
37.
go back to reference Lohr, S. (2009). Sampling: design and analysis. Toronto, ON: Nelson Education. Lohr, S. (2009). Sampling: design and analysis. Toronto, ON: Nelson Education.
38.
go back to reference Reeve, B. B., Hays, R. D., Bjorner, J. B., Cook, K. F., Crane, P. K., Teresi, J. A., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: plans for the patient-reported outcomes measurement information system (PROMIS). Medical Care, 45(5 Suppl 1), S22–S31. doi: 10.​1097/​01.​mlr.​0000250483.​85507.​04. CrossRefPubMed Reeve, B. B., Hays, R. D., Bjorner, J. B., Cook, K. F., Crane, P. K., Teresi, J. A., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: plans for the patient-reported outcomes measurement information system (PROMIS). Medical Care, 45(5 Suppl 1), S22–S31. doi: 10.​1097/​01.​mlr.​0000250483.​85507.​04. CrossRefPubMed
39.
go back to reference Hu, L., & Bentler, P. M. (1999). Cuttoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling, 6, 1–55. CrossRef Hu, L., & Bentler, P. M. (1999). Cuttoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling, 6, 1–55. CrossRef
40.
go back to reference Bollen, K. (1989). Structural equations with latent variables. New York, NY: Wiley. CrossRef Bollen, K. (1989). Structural equations with latent variables. New York, NY: Wiley. CrossRef
41.
go back to reference Carle, A. (2010). Mitigating systematic measurement error in comparative effectiveness research in heterogeneous populations. Medical Care, 48(6), S68. CrossRefPubMed Carle, A. (2010). Mitigating systematic measurement error in comparative effectiveness research in heterogeneous populations. Medical Care, 48(6), S68. CrossRefPubMed
42.
go back to reference Benjamini, Y., & Hochberg, Y. (1995). Controlling the false discovery rate: A practical and powerful approach to multiple testing. Journal of the Royal Statistical Society: Series B (Methodological). doi: 10.​2307/​2346101. Benjamini, Y., & Hochberg, Y. (1995). Controlling the false discovery rate: A practical and powerful approach to multiple testing. Journal of the Royal Statistical Society: Series B (Methodological). doi: 10.​2307/​2346101.
43.
go back to reference Choi, S., Gibbons, L., & Crane, P. (2011). Lordif: An R package for detecting differential item functioning using iterative hybrid ordinal logistic regression/item response theory and Monte Carlo simulations. Journal of Statistical Software, 39(8), 1–30. CrossRefPubMedPubMedCentral Choi, S., Gibbons, L., & Crane, P. (2011). Lordif: An R package for detecting differential item functioning using iterative hybrid ordinal logistic regression/item response theory and Monte Carlo simulations. Journal of Statistical Software, 39(8), 1–30. CrossRefPubMedPubMedCentral
44.
go back to reference Millsap, R., & Yun-Tein, J. (2004). Assessing factorial invariance in ordered-categorical measures. Multivariate Behavioral Research, 39(3), 479–513. CrossRef Millsap, R., & Yun-Tein, J. (2004). Assessing factorial invariance in ordered-categorical measures. Multivariate Behavioral Research, 39(3), 479–513. CrossRef
45.
go back to reference Green, B. F., Bock, D., Humphres, R. L., & Linn, M. D. (1984). Technical guidelines for assessing computerized adaptive tests. Journal of Educational Measurement, 21(4), 347–360. CrossRef Green, B. F., Bock, D., Humphres, R. L., & Linn, M. D. (1984). Technical guidelines for assessing computerized adaptive tests. Journal of Educational Measurement, 21(4), 347–360. CrossRef
46.
go back to reference Bock, R. D., & Mislevy, R. J. (1982). Adaptive EAP estimation of ability in a microcomputer environment. Applied Psychological Measurement, 6, 431–444. CrossRef Bock, R. D., & Mislevy, R. J. (1982). Adaptive EAP estimation of ability in a microcomputer environment. Applied Psychological Measurement, 6, 431–444. CrossRef
47.
go back to reference Choi, S. (2009). Firestar: Computerized adaptive testing simulation program for polytomous item response theory models. Applied Psychological Measurement, 33(8), 644–645. CrossRef Choi, S. (2009). Firestar: Computerized adaptive testing simulation program for polytomous item response theory models. Applied Psychological Measurement, 33(8), 644–645. CrossRef
49.
go back to reference Gundy, C. M., & Aaronson, N. K. (2010). Effects of mode of administration (MOA) on the measurement properties of the EORTC QLQ-C30: A randomized study. Health and Quality of Life Outcomes, 8, 35–42. CrossRefPubMedPubMedCentral Gundy, C. M., & Aaronson, N. K. (2010). Effects of mode of administration (MOA) on the measurement properties of the EORTC QLQ-C30: A randomized study. Health and Quality of Life Outcomes, 8, 35–42. CrossRefPubMedPubMedCentral
51.
go back to reference Reise, S., Morizot, J., & Hays, R. D. (2007). The role of the bifactor model in resolving dimensionality issues in health outcomes measures. Quality of Life Research, 16, 19–31. CrossRefPubMed Reise, S., Morizot, J., & Hays, R. D. (2007). The role of the bifactor model in resolving dimensionality issues in health outcomes measures. Quality of Life Research, 16, 19–31. CrossRefPubMed
52.
go back to reference Stochl, J., Bohnke, J. R., Pickett, K. E., & Croudace, T. J. (2016). Computerized adaptive testing of population psychological distress: simulation-based evaluation of GHQ-30. Social Psychiatry and Psychiatric Epidemiology, 51, 895–906. doi: 10.​1007/​s00127-015-1157-4. CrossRefPubMed Stochl, J., Bohnke, J. R., Pickett, K. E., & Croudace, T. J. (2016). Computerized adaptive testing of population psychological distress: simulation-based evaluation of GHQ-30. Social Psychiatry and Psychiatric Epidemiology, 51, 895–906. doi: 10.​1007/​s00127-015-1157-4. CrossRefPubMed
Metagegevens
Titel
Children’s family experiences: development of the PROMIS® pediatric family relationships measures
Auteurs
Katherine B. Bevans
Anne W. Riley
Jeanne M. Landgraf
Adam C. Carle
Rachel E. Teneralli
Barbara H. Fiese
Lisa J. Meltzer
Anna K. Ettinger
Brandon D. Becker
Christopher B. Forrest
Publicatiedatum
22-06-2017
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 11/2017
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-017-1629-y