Swipe om te navigeren naar een ander artikel
The online version of this article (doi:10.1007/s11136-017-1629-y) contains supplementary material, which is available to authorized users.
To describe the development of pediatric family relationships measures, with versions for child self-report (8–17 years) and parent-report for children 5–17 years old. Measures were created for integration into the Patient Reported Outcomes Measurement Information System (PROMIS®).
Semi-structured interviews with 10 experts, 24 children, and 8 parents were conducted to elicit and clarify essential elements of family relationships. A systematic literature review was conducted to identify item concepts representative of each element. The concepts were transformed into items that were iteratively revised based on cognitive interviews (n = 43 children) and item translatability review. Psychometric studies involving 2846 children and 2262 parents were conducted to further refine and validate the instruments.
Qualitative procedures supported the development of content valid Family Relationships item banks. Final child- and parent-report item banks each contain 47 items. Unidimensional item banks were calibrated using IRT-modeling to estimate item parameters representative of the US population and to enable computerized adaptive test administration. Four- and eight-item short forms were constructed for standard fixed format administration. All instruments have strong internal consistency, retest-reliability, and provide precise estimates of various levels of family relationship quality. Preliminary evidence of the instruments’ validity was provided by known-group comparisons and convergence with legacy measures.
The PROMIS pediatric Family Relationships measures can be applied in research focused on determinants, outcomes, and the protective effects of children’s subjective family relationship experiences.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
Supplementary material 1 (PDF 395 kb)11136_2017_1629_MOESM1_ESM.pdf
Maslow, A. H. (1968). Toward a psychology of being. New York: Van Nostrand.
Moos, R. H., & Moos, B. S. (1994). Family environment scale manual. Palo Alto, CA: Consulting Psychologists Press.
Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., et al. (2007). The patient-reported outcomes measurement information system (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Medical Care, 45(5 Suppl 1), S3–S11. doi: 10.1097/01.mlr.0000258615.42478.55. CrossRefPubMedPubMedCentral
Forrest, C. B., Bevans, K. B., Tucker, C., Riley, A. W., Ravens-Sieberer, U., Gardner, W., et al. (2012). The patient reported outcome measurement information system (PROMIS) for children and youth: Application to pediatric psychology. Journal of Pediatric Psychology, 37(6), 614–621. CrossRefPubMedPubMedCentral
DeWalt, D. A., Rothrock, N., Yount, S., & Stone, A. A. (2007). Evaluation of item candidates: The PROMIS qualitative item review. Medical Care, 5(1), S12–S21. CrossRef
Reeve, B. B., Hays, R. D., Bjorner, J. B., Cook, K. F., Crane, P. K., Teresi, J. A., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: plans for the patient-reported outcomes measurement information system (PROMIS). Medical Care, 45(5 Suppl 1), S22–S31. CrossRefPubMed
PROMIS. PROMIS instrument development and psychometric evaluation scientific standards. Retrieved May 21, 2016, from http://www.nihpromis.org/Documents/PROMIS_Standards_050212.pdf.
van der Linden, W. J., & Hambleton, R. K. (1997). Item response theory: Brief history, common models, and extensions (pp. 1–28). New York: Springer.
Hahn, E. A., DeVellis, R. F., Bode, R. K., Garcia, S. F., Castel, L. D., Eisen, S. V., et al. (2010). Measuring social health in the patient-reported outcomes measurement information system (PROMIS): Item bank development and testing. Quality of Life Research, 19, 1035–1044. doi: 10.1007/s11136-010-9654-0. CrossRefPubMedPubMedCentral
Bowlby, J. (1973). Attachment and Loss: Vol. 2. separation. New York: Basic Books.
Bronfenbrenner, U., & Morris, P. A. (1998). The ecology of social development. In R. M. Lerner & W. Damon (Eds.), Handbook of child psychology: Vol 1, theoretical models of human development (6th ed., pp. 993–1023). New York: Wiley.
Diamond, L. M., & Fagundes, C. P. (2008). Developmental perspectives on links between attachment and affect regulation over the lifespan. Advances in Child Behavior and Development, 36, 83–134. CrossRef
Lasch, K. E., Marquis, P., Vigneux, M., Abetz, L., Arnould, B., Bayliss, M., et al. (2010). PRO development: rigorous qualitative research as the crucial foundation. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(8), 1087–1096. doi: 10.1007/s11136-010-9677-6. CrossRef
Klem, M., Saghafi, E., Abromitis, R., Stover, A., Dew, M. A., & Pilkonis, P. (2009). Building PROMIS item banks: Librarians as co-investigators, 18(7), 881–888. doi: 10.1007/s11136-009-9498-7.
Wild, D., Eremenco, S., Mear, I., Martin, M., Houchin, C., & Gawlicki, M. (2009). Multinational trials-recommendations on the translations required, approaches to using the same language in different countries, and the approaches to support pooling the data: The ISPOR patient-reported outcomes translation and linguistic validation good. Value in Health, 12(4), 430–440. CrossRefPubMed
Wild, D., Grove, A., Martin, M., Eremenco, S., McElroy, S., & Verjee-Lorenz, A. (2005). Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: Report of the ISPOR task force for translation and cultural adaptation. Value in Health, 8(2), 94–104. CrossRefPubMed
IQOLA. (2011). The international quality of life assessment (IQOL) project.
Salsman, J. M., Butt, Z., Pilkonis, P., Cyranowski, J. M., Zill, N., Hendrie, H. C., et al. (2013). Emotion assessment using the NIH Toolbox. Neurology, 80(11 Supplement 3), S45–S48. doi: 10.1212/WNL.0b013e3182872dd2.
DiSogra, C., Dennis, J., & Fahimi, M. (2010). On the quality of ancillary data available for address- based sampling. Proceedings of the American Statistical Association, Section on Survey Research Methods, pp. 4174–4183.
Dennis, J. (2010). Knowledgepanel ®: Processes & procedures contributing to sample representativeness & tests for self-selection Bias. Retrieved June 6, 2016, from http://www.knowledgenetworks.com/ganp/docs/KnowledgePanelR-Statistical-Methods-Note.pdf.
Lohr, S. (2009). Sampling: design and analysis. Toronto, ON: Nelson Education.
Reeve, B. B., Hays, R. D., Bjorner, J. B., Cook, K. F., Crane, P. K., Teresi, J. A., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: plans for the patient-reported outcomes measurement information system (PROMIS). Medical Care, 45(5 Suppl 1), S22–S31. doi: 10.1097/01.mlr.0000250483.85507.04. CrossRefPubMed
Hu, L., & Bentler, P. M. (1999). Cuttoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling, 6, 1–55. CrossRef
Bollen, K. (1989). Structural equations with latent variables. New York, NY: Wiley. CrossRef
Benjamini, Y., & Hochberg, Y. (1995). Controlling the false discovery rate: A practical and powerful approach to multiple testing. Journal of the Royal Statistical Society: Series B (Methodological). doi: 10.2307/2346101.
Millsap, R., & Yun-Tein, J. (2004). Assessing factorial invariance in ordered-categorical measures. Multivariate Behavioral Research, 39(3), 479–513. CrossRef
Green, B. F., Bock, D., Humphres, R. L., & Linn, M. D. (1984). Technical guidelines for assessing computerized adaptive tests. Journal of Educational Measurement, 21(4), 347–360. CrossRef
Bock, R. D., & Mislevy, R. J. (1982). Adaptive EAP estimation of ability in a microcomputer environment. Applied Psychological Measurement, 6, 431–444. CrossRef
Choi, S. (2009). Firestar: Computerized adaptive testing simulation program for polytomous item response theory models. Applied Psychological Measurement, 33(8), 644–645. CrossRef
- Children’s family experiences: development of the PROMIS® pediatric family relationships measures
Katherine B. Bevans
Anne W. Riley
Jeanne M. Landgraf
Adam C. Carle
Rachel E. Teneralli
Barbara H. Fiese
Lisa J. Meltzer
Anna K. Ettinger
Brandon D. Becker
Christopher B. Forrest
- Springer International Publishing