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25-03-2017 | Original Paper | Uitgave 6/2017 Open Access

Journal of Autism and Developmental Disorders 6/2017

Child and Adult Factors Related to Quality of Life in Adults with Autism

Journal of Autism and Developmental Disorders > Uitgave 6/2017
Philippa Moss, William Mandy, Patricia Howlin
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The online version of this article (doi:10.​1007/​s10803-017-3105-5) contains supplementary material, which is available to authorized users.


The WHO Quality of Life-Brief questionnaire was used to assess quality of life (QoL) among 52 adults with autism (mean age 49 years) followed-up since childhood. Overall, assessments of QOL were more positive than measures of objective social outcome (jobs, independence, relationships etc.) but correlations between caregiver and self-reports were low. Informant ratings indicated few correlations between current QoL and any child or adult factors. On self-report ratings, QoL was significantly negatively correlated with severity of repetitive behaviours in childhood; higher QoL was positively associated with better adult social outcomes. However, only a minority of adults (n = 22) could provide self-report data and findings highlight the need to develop valid measures for assessing the well-being of adults with autism.

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