Swipe om te navigeren naar een ander artikel
The online version of this article (doi:10.1007/s10803-017-3105-5) contains supplementary material, which is available to authorized users.
The WHO Quality of Life-Brief questionnaire was used to assess quality of life (QoL) among 52 adults with autism (mean age 49 years) followed-up since childhood. Overall, assessments of QOL were more positive than measures of objective social outcome (jobs, independence, relationships etc.) but correlations between caregiver and self-reports were low. Informant ratings indicated few correlations between current QoL and any child or adult factors. On self-report ratings, QoL was significantly negatively correlated with severity of repetitive behaviours in childhood; higher QoL was positively associated with better adult social outcomes. However, only a minority of adults (n = 22) could provide self-report data and findings highlight the need to develop valid measures for assessing the well-being of adults with autism.
Supplementary material 1 (DOCX 58 KB)10803_2017_3105_MOESM1_ESM.docx
Barneveld, P. S., Swaab, H., Fagel, S., van Engeland, H., & de Sonneville, L. M. (2014). Quality of life: A case-controlled long-term follow-up study, comparing young high-functioning adults with autism spectrum disorders with adults with other psychiatric disorders diagnosed in childhood. Comprehensive Psychiatry, 55(2), 302–310. CrossRefPubMed
Bishop-Fitzpatrick, L., Hong, J., Smith, L. E., Makuch, R. A., Greenberg, J. S., & Mailick, M. R. (2016). Characterizing objective quality of life and normative outcomes in adults with autism spectrum disorder: An exploratory latent class analysis. Journal of Autism and Developmental Disorders, 46(8), 1–13. CrossRef
Chiang, H. M., & Wineman, I. (2014). Factors associated with quality of life in individuals with autism spectrum disorders: A review of literature. Research in Autism Spectrum Disorders, 8(8), 974–986. CrossRef
Clark, B. G., Magill-Evans, J. E., & Koning, C. J. (2015). Youth with autism spectrum disorders self-and proxy-reported quality of life and adaptive functioning. Focus on Autism and Other Developmental Disabilities, 30(1), 57–64. CrossRef
Hawthorne, G., Herrman, H., & Murphy, B. (2006). Interpreting the WHOQOL-BREF: Preliminary population norms and effect sizes. Social Indicators Research, 77(1), 37–59. CrossRef
Helles, A., Gillberg, I. C., Gillberg, C., & Billstedt, E. (2016). Asperger syndrome in males over two decades: Quality of life in relation to diagnostic stability and psychiatric comorbidity. Autism. doi: 10.1177/1362361316650090.
Hong, J., Bishop-Fitzpatrick, L., Smith, L. E., Greenberg, J. S., & Mailick, M. R. (2016). Factors associated with subjective quality of life of adults with autism spectrum disorder: Self-report versus maternal reports. Journal of Autism and Developmental Disorders, 46(4), 1368–1378. CrossRefPubMedPubMedCentral
Howlin, P. & Magiati, I. (2017). Autism spectrum disorder: Outcomes in adulthood. Current Opinion in Psychiatry (Online).
Howlin, P., Moss, P., Savage, S., & Rutter, M. (2013). Social outcomes in mid- to later adulthood among individuals diagnosed with autism and average nonverbal IQ as children. Journal of American Academy of Child and Adolescent Psychiatry, 52(6), 572–581 e571. doi: 10.1016/j.jaac.2013.02.017. CrossRef
Jonsson, U., Alaie, I., Löfgren Wilteus, A., Zander, E., Marschik, P. B., Coghill, D., & Bölte, S. (2016). Annual Research Review: Quality of life and childhood mental and behavioural disorders–a critical review of the research. Journal of Child Psychology and Psychiatry.
Pallant, J. (2007). SPSS survival manual (Vol. 3rd). Maidenhead: Open University Press.
Rutter, M., Le Couteur, A., & Lord, C. (2003). The autism diagnostic interview-revised. Los Angeles: Western Psychological Services.
Sheldrick, R. C., Neger, E. N., Shipman, D., & Perrin, E. C. (2012). Quality of life of adolescents with autism spectrum disorders: Concordance among adolescents’ self-reports, parents’ reports, and parents’ proxy reports. Quality of Life Research, 21(1), 53–57. doi: 10.1007/s11136-011-9916-5. CrossRefPubMed
Tavernor, L., Barron, E., Rodgers, J., & McConachie, H. (2013). Finding out what matters: Validity of quality of life measurement in young people with ASD. Child: Care, Health and Development, 39(4), 592–601.
The WHOQOL GROUP (1998). Development of the World Health Organization WHOQOL-BREF quality of life assessment. The WHOQOL Group. Psychological Medicine, 28(3), 551–558. CrossRef
Wechsler, D., Wycherley, R. J., & Benjamin, L. (1997). Wechsler adult intelligence scale: Administration manual (Vol. 3rd). London: The Psychological Corporation.
- Child and Adult Factors Related to Quality of Life in Adults with Autism
- Springer US