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06-09-2017 | Review

Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review

Auteurs: Laura C. Pinheiro, Molly McFatrich, Nicole Lucas, Jennifer S. Walker, Janice S. Withycombe, Pamela S. Hinds, Lillian Sung, Deborah Tomlinson, David R. Freyer, Jennifer W. Mack, Justin N. Baker, Bryce B. Reeve

Gepubliceerd in: Quality of Life Research | Uitgave 2/2018

Abstract

Objective

Previous work in pediatric oncology has found that clinicians and parents tend to under-report the frequency and severity of treatment-related symptoms compared to child self-report. As such, there is a need to identify high-quality self-report instruments to be used in pediatric oncology research studies. This study’s objective was to conduct a systematic literature review of existing English language instruments used to measure self-reported symptoms in children and adolescents undergoing cancer treatment.

Methods

A comprehensive literature search was conducted in MEDLINE/PubMed, EMBASE, CINAHL, and PsycINFO to identify relevant articles published through November 10, 2016. Using pre-specified inclusion/exclusion criteria, six trained reviewers carefully screened abstracts and full-text articles for eligibility.

Results

There were 7738 non-duplicate articles identified in the literature search. Forty articles met our eligibility criteria, and within these articles, there were 38 self-report English symptom instruments. Most studies evaluated only cross-sectional psychometric properties, such as reliability or validity. Ten studies assessed an instrument’s responsiveness or ability to detect changes in symptoms over time. Eight instruments met our criteria for use in future longitudinal pediatric oncology studies.

Conclusions

This systematic review aids pediatric oncology researchers in identifying and selecting appropriate symptom measures with strong psychometric evidence for their studies. Enhancing the child’s voice in pediatric oncology research studies allows us to better understand the impact of cancer and its treatment on the lives of children.

vorige artikel Psychometric validation of the SF-36® Health Survey in ulcerative colitis: results from a systematic literature review

volgende artikel The Minneapolis-Manchester Quality of Life Instrument: reliability and validity of the Adult Form in cancer survivors

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Titel: Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review
Auteurs: Laura C. Pinheiro
Molly McFatrich
Nicole Lucas
Jennifer S. Walker
Janice S. Withycombe
Pamela S. Hinds
Lillian Sung
Deborah Tomlinson
David R. Freyer
Jennifer W. Mack
Justin N. Baker
Bryce B. Reeve
Publicatiedatum: 06-09-2017
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 2/2018
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-017-1692-4

Bohn Stafleu van Loghum

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Abstract

Objective

Methods

Results

Conclusions

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