Skip to main content
Top
Gepubliceerd in:

02-07-2020 | Original Paper

Characterization of Family-Directed Care Coordination and Involvement in Behavioral Treatments in an Autism-Specific Medicaid Waiver

Auteurs: Gregory S. Chasson, Karen Goldrich Eskow, Jean Ann Summers, Taylor M. Dreher

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 2/2021

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Services for children with autism spectrum disorder (ASD) and their families have evolved with the advent of the Medicaid waiver, leading to more family-based coordination of care. Evaluating family involvement, the current investigation compared 230 families of children with ASD receiving Medicaid waiver services to a propensity-score matched group of 230 families who were waiting for such services (i.e., registry families). Compared to the registry, waiver families reported more involvement in service planning tasks, but not activities related to future-planning, managing crisis situations, or searching for and securing funding. Additional analyses characterize waiver families as engaging in high levels of coordinating and delivering behavioral interventions for their child. Implications for family burden and future programming for waiver programs are discussed.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Voetnoten
1
Waiver eligibility requires at least 15 h per week of special education or similar service. Thus, some families on the waiver may report fewer than 15 h per week of special education services.
 
Literatuur
go back to reference Caldwell, J., Heller, T., & Taylor, S. J. (2007). Longitudinal outcomes of a consumer-directed program supporting adults with developmental disabilities and their families. Intellectual and Developmental Disabilities, 45 (3), 161–173.CrossRef Caldwell, J., Heller, T., & Taylor, S. J. (2007). Longitudinal outcomes of a consumer-directed program supporting adults with developmental disabilities and their families. Intellectual and Developmental Disabilities, 45 (3), 161–173.CrossRef
go back to reference Heller, T., Miller, A. B., & Hsieh, K. (1999). Impact of a consumer-directed family support program on adults with developmental disabilities and their family caregivers. Family Relations: An Interdisciplinary Journal of Applied Family Studies, 48 (4), 419–427. https://doi.org/10.2307/585250.CrossRef Heller, T., Miller, A. B., & Hsieh, K. (1999). Impact of a consumer-directed family support program on adults with developmental disabilities and their family caregivers. Family Relations: An Interdisciplinary Journal of Applied Family Studies, 48 (4), 419–427. https://​doi.​org/​10.​2307/​585250.CrossRef
go back to reference Lopez, K., Magaña, S., Xu, Y., & Guzman, J. (2018). Mother’s reaction to autism diagnosis: A qualitative analysis comparing Latino and White parents. Journal of Rehabilitation, 84 (1), 41–50. Lopez, K., Magaña, S., Xu, Y., & Guzman, J. (2018). Mother’s reaction to autism diagnosis: A qualitative analysis comparing Latino and White parents. Journal of Rehabilitation, 84 (1), 41–50.
go back to reference Postorino, V., Sharp, W. G., McCracken, C. E., Bearss, K., Burrell, T. L., Evans, A. N., et al. (2017). A systematic review and meta-analysis of parent training for disruptive behavior in children with autism spectrum disorder. Clinical Child and Family Psychology Review, 20 (4), 391–402. https://doi.org/10.1007/s10567-017-0237-2.CrossRefPubMed Postorino, V., Sharp, W. G., McCracken, C. E., Bearss, K., Burrell, T. L., Evans, A. N., et al. (2017). A systematic review and meta-analysis of parent training for disruptive behavior in children with autism spectrum disorder. Clinical Child and Family Psychology Review, 20 (4), 391–402. https://​doi.​org/​10.​1007/​s10567-017-0237-2.CrossRefPubMed
go back to reference Vohra, R., Madhavan, S., Sambamoorthi, U., & St Peter, C. (2014). Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions. Autism : The International Journal of Research and Practice, 18 (7), 815–826. https://doi.org/10.1177/1362361313512902.CrossRef Vohra, R., Madhavan, S., Sambamoorthi, U., & St Peter, C. (2014). Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions. Autism : The International Journal of Research and Practice, 18 (7), 815–826. https://​doi.​org/​10.​1177/​1362361313512902​.CrossRef
Metagegevens
Titel
Characterization of Family-Directed Care Coordination and Involvement in Behavioral Treatments in an Autism-Specific Medicaid Waiver
Auteurs
Gregory S. Chasson
Karen Goldrich Eskow
Jean Ann Summers
Taylor M. Dreher
Publicatiedatum
02-07-2020
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 2/2021
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-020-04583-4