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Gepubliceerd in: Journal of Autism and Developmental Disorders 6/2012

01-06-2012 | Original Paper

Characteristics and Quality of Autism Websites

Auteurs: Brian Reichow, Jason I. Halpern, Timothy B. Steinhoff, Nicole Letsinger, Adam Naples, Fred R. Volkmar

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2012

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Abstract

The World Wide Web is a common method for obtaining information on autism spectrum disorders, however, there are no guidelines for finding websites with high quality. We conducted two studies examining the characteristics and/or quality of autism websites in 2009 and 2010. We found websites with a .gov top-level domain had a statistically significant association with high quality websites and websites offering a product or service and websites promoting a non-evidence-based practice had a statistically significant association with poor quality websites. Based on our work we concluded that online information should not replace the information consumers obtain from professionals. Further implications for practice, overview of study limitations and future directions are provided.
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Literatuur
go back to reference Abbey, D. (2009). Helping families find the best evidence: CAM therapies for autism spectrum disorders and Asperger’s disorder. Journal for Specialists in Pediatric Nursing, 13(3), 200–202.CrossRef Abbey, D. (2009). Helping families find the best evidence: CAM therapies for autism spectrum disorders and Asperger’s disorder. Journal for Specialists in Pediatric Nursing, 13(3), 200–202.CrossRef
go back to reference Bernstam, E. V., Shelton, D. M., Walji, M., & Meric-Bernstam, F. (2005). Instruments to assess the quality of health information on the World Wide Web: What can our patients actually use. International Journal of Medical Informatics, 74, 13–19.PubMedCrossRef Bernstam, E. V., Shelton, D. M., Walji, M., & Meric-Bernstam, F. (2005). Instruments to assess the quality of health information on the World Wide Web: What can our patients actually use. International Journal of Medical Informatics, 74, 13–19.PubMedCrossRef
go back to reference Bloomquist, S. (2005). Autism resources for public libraries: Issues, challenges, and recommended resources. Indiana Libraries, 24(3), 23–31. Bloomquist, S. (2005). Autism resources for public libraries: Issues, challenges, and recommended resources. Indiana Libraries, 24(3), 23–31.
go back to reference Bradford, K. (2010). Supporting families dealing with autism and Asperger’s disorders. Journal of Family Psychotherapy, 21(2), 149–156.CrossRef Bradford, K. (2010). Supporting families dealing with autism and Asperger’s disorders. Journal of Family Psychotherapy, 21(2), 149–156.CrossRef
go back to reference Burkell, J. (2004). Health information seals of approval: What do they signify? Information, Communication & Society, 7, 491–509.CrossRef Burkell, J. (2004). Health information seals of approval: What do they signify? Information, Communication & Society, 7, 491–509.CrossRef
go back to reference Charman, T. (1999). Autism resources and information on the Internet or World Wide Web. Autism, 3, 97–100.CrossRef Charman, T. (1999). Autism resources and information on the Internet or World Wide Web. Autism, 3, 97–100.CrossRef
go back to reference Charnock, D. (1998). The DISCERN handbook: Quality criteria for consumer health information on treatment choices. Abingdon, Oxon: Radcliffe Medical Press. Charnock, D. (1998). The DISCERN handbook: Quality criteria for consumer health information on treatment choices. Abingdon, Oxon: Radcliffe Medical Press.
go back to reference Chowdhury, J., Drummond, J., Fleming, D., & Neitfeld, S. (2002). Content analysis of online autism specific sites. Journal on Developmental Disabilities, 9(2), 157–165. Chowdhury, J., Drummond, J., Fleming, D., & Neitfeld, S. (2002). Content analysis of online autism specific sites. Journal on Developmental Disabilities, 9(2), 157–165.
go back to reference Clauson, K. A., Polen, H. H., Boulos, M. N. K., & Dzenowagis, J. H. (2008). Scope, completeness, and accuracy of drug information in Wikipedia. The Annals of Pharmacotherapy, 42, 1814–1821.PubMedCrossRef Clauson, K. A., Polen, H. H., Boulos, M. N. K., & Dzenowagis, J. H. (2008). Scope, completeness, and accuracy of drug information in Wikipedia. The Annals of Pharmacotherapy, 42, 1814–1821.PubMedCrossRef
go back to reference Coates, H. (2009). Autism spectrum disorders: Wading through the controversies on the web. Medical Reference Services Quarterly, 28, 259–267.PubMedCrossRef Coates, H. (2009). Autism spectrum disorders: Wading through the controversies on the web. Medical Reference Services Quarterly, 28, 259–267.PubMedCrossRef
go back to reference Curtis, S. M. K. (2010). BUGS code for item response theory. Journal of Statistical Software, 36, 1–34. Curtis, S. M. K. (2010). BUGS code for item response theory. Journal of Statistical Software, 36, 1–34.
go back to reference D’Auria, J. P. (2010). Autism on the web: “Oh, the places you’ll go!”. Journal of Pediatric Health Care, 24, e11–e15.PubMedCrossRef D’Auria, J. P. (2010). Autism on the web: “Oh, the places you’ll go!”. Journal of Pediatric Health Care, 24, e11–e15.PubMedCrossRef
go back to reference Davis, T. C., Mayeaux, E. J., Fredrickson, D., Jr Bocchini, J. A., Jackson, R. H., & Murphy, P. W. (1994). Reading ability of parents compared with reading level of pediatric patient education materials. Pediatrics, 93(3), 460–468.PubMed Davis, T. C., Mayeaux, E. J., Fredrickson, D., Jr Bocchini, J. A., Jackson, R. H., & Murphy, P. W. (1994). Reading ability of parents compared with reading level of pediatric patient education materials. Pediatrics, 93(3), 460–468.PubMed
go back to reference eEurope. (2002). Quality criteria for health related websites. Journal of Medical Internet Research, 4(3), e15. eEurope. (2002). Quality criteria for health related websites. Journal of Medical Internet Research, 4(3), e15.
go back to reference Eysenbach, G., & Köhler, C. (2002). How do consumers search for and appraise health information on the World Wide Web? Qualitative study using focus groups, usability tests, and in-depth interviews. British Medical Journal, 324, 573–577.PubMedCrossRef Eysenbach, G., & Köhler, C. (2002). How do consumers search for and appraise health information on the World Wide Web? Qualitative study using focus groups, usability tests, and in-depth interviews. British Medical Journal, 324, 573–577.PubMedCrossRef
go back to reference Eysenbach, G., Powell, J., Kuss, O., & Sa, E. R. (2002). Empirical studies assessing the quality of health information for consumers on the World Wide Web: A systematic review. Journal of the American Medical Association, 287, 2691–2700.PubMedCrossRef Eysenbach, G., Powell, J., Kuss, O., & Sa, E. R. (2002). Empirical studies assessing the quality of health information for consumers on the World Wide Web: A systematic review. Journal of the American Medical Association, 287, 2691–2700.PubMedCrossRef
go back to reference Fallis, D., & Fricke, M. (2001). Indicators of accuracy of consumer health information on the Internet: A study of indicators relating to information for managing fever in children in the home. Journal of the American Medical Informatics Association, 9(1), 73–79.CrossRef Fallis, D., & Fricke, M. (2001). Indicators of accuracy of consumer health information on the Internet: A study of indicators relating to information for managing fever in children in the home. Journal of the American Medical Informatics Association, 9(1), 73–79.CrossRef
go back to reference Ferdig, R. E., Amberg, H. G., Elder, J. H., Donaldson, S. A., Valcante, G., & Bendixen, R. (2009). Autism and family interventions through technology: A description of a web-based tool to educate fathers of children with autism. International Journal of Web-Based Learning and Teaching Technologies, 4(3), 55–69.CrossRef Ferdig, R. E., Amberg, H. G., Elder, J. H., Donaldson, S. A., Valcante, G., & Bendixen, R. (2009). Autism and family interventions through technology: A description of a web-based tool to educate fathers of children with autism. International Journal of Web-Based Learning and Teaching Technologies, 4(3), 55–69.CrossRef
go back to reference Fox, S., & Fallows, D. (2003). Internet health resources. Washington, DC: Pew Internet & American Life Project. Fox, S., & Fallows, D. (2003). Internet health resources. Washington, DC: Pew Internet & American Life Project.
go back to reference Fox, S., & Jones, S. (2009). The social life of health information: Americans’ pursuit of health takes place within a widening network of both online and offline sources. Washington, DC: Pew Internet & American Life Project. Fox, S., & Jones, S. (2009). The social life of health information: Americans’ pursuit of health takes place within a widening network of both online and offline sources. Washington, DC: Pew Internet & American Life Project.
go back to reference Fox, S., & Rainne, L. (2002). How Internet users decide what information to trust when they or their loved ones are sick. Washington, DC: Pew Internet & American Life Project. Fox, S., & Rainne, L. (2002). How Internet users decide what information to trust when they or their loved ones are sick. Washington, DC: Pew Internet & American Life Project.
go back to reference Fricke, M., & Fallis, D. (2004). Indicators of accuracy for answers to ready reference questions on the Internet. Journal of the American Society for Information Science and Technology, 55(3), 238–245.CrossRef Fricke, M., & Fallis, D. (2004). Indicators of accuracy for answers to ready reference questions on the Internet. Journal of the American Society for Information Science and Technology, 55(3), 238–245.CrossRef
go back to reference Gagliardi, A., & Jadad, A. R. (2002). Examination of instruments used to rate quality of health information on the Internet: Chronicle of a voyage with an unclear destination. British Medical Journal, 324, 569–573.PubMedCrossRef Gagliardi, A., & Jadad, A. R. (2002). Examination of instruments used to rate quality of health information on the Internet: Chronicle of a voyage with an unclear destination. British Medical Journal, 324, 569–573.PubMedCrossRef
go back to reference Ghidella, C. L., Murray, S. J., Smart, M. J., McKenna, K. T., & Worrall, L. E. (2005). Aphasia websites: An examination of their quality and communicative accessibility. Aphasiology, 19(12), 1134–1146.CrossRef Ghidella, C. L., Murray, S. J., Smart, M. J., McKenna, K. T., & Worrall, L. E. (2005). Aphasia websites: An examination of their quality and communicative accessibility. Aphasiology, 19(12), 1134–1146.CrossRef
go back to reference Jadad, A. R., & Gagliardi, A. (1998). Rating health information on the Internet: Navigating to knowledge or to Babel? Journal of the American Medical Association, 279, 611–614.PubMedCrossRef Jadad, A. R., & Gagliardi, A. (1998). Rating health information on the Internet: Navigating to knowledge or to Babel? Journal of the American Medical Association, 279, 611–614.PubMedCrossRef
go back to reference Jordan, C. J. (2010). Evolution of autism support and understanding via the World Wide Web. Intellectual and Developmental Disabilities, 48(3), 220–227.PubMedCrossRef Jordan, C. J. (2010). Evolution of autism support and understanding via the World Wide Web. Intellectual and Developmental Disabilities, 48(3), 220–227.PubMedCrossRef
go back to reference Khoo, K., Bolt, P., Babl, F. E., Jury, S., & Goldman, R. D. (2008). Health information seeking by parents in the Internet age. Journal of Paediatrics and Child Health, 44, 419–423.PubMedCrossRef Khoo, K., Bolt, P., Babl, F. E., Jury, S., & Goldman, R. D. (2008). Health information seeking by parents in the Internet age. Journal of Paediatrics and Child Health, 44, 419–423.PubMedCrossRef
go back to reference Kim, P., Eng, T. R., Deering, M. J., & Maxfield, A. (1999). Review of published criteria for evaluating health related websites. Western Journal of Medicine, 170, 329–332.PubMed Kim, P., Eng, T. R., Deering, M. J., & Maxfield, A. (1999). Review of published criteria for evaluating health related websites. Western Journal of Medicine, 170, 329–332.PubMed
go back to reference Kunst, H., Groot, D., Latthe, P. M., Latthe, M., & Khan, K. S. (2002). Accuracy of information on apparently credible websites: Survey of five common health topics. British Medical Journal, 324, 581–582.PubMedCrossRef Kunst, H., Groot, D., Latthe, P. M., Latthe, M., & Khan, K. S. (2002). Accuracy of information on apparently credible websites: Survey of five common health topics. British Medical Journal, 324, 581–582.PubMedCrossRef
go back to reference Laurent, M. R., & Vickers, T. J. (2009). Seeking health information online: Does Wikipedia matter? Journal of the American Medical Informatics Association, 16(4), 471–479.PubMedCrossRef Laurent, M. R., & Vickers, T. J. (2009). Seeking health information online: Does Wikipedia matter? Journal of the American Medical Informatics Association, 16(4), 471–479.PubMedCrossRef
go back to reference Mackintosh, V. H., Myers, B. J., & Goin-Kochel, R. P. (2005). Sources of information and support used by parents of children with autism spectrum disorders. Journal on Developmental Disabilities, 12, 41–51. Mackintosh, V. H., Myers, B. J., & Goin-Kochel, R. P. (2005). Sources of information and support used by parents of children with autism spectrum disorders. Journal on Developmental Disabilities, 12, 41–51.
go back to reference Mansell, W., & Morris, K. (2004). A survey of parents’ reactions to the diagnosis of an autistic spectrum disorder by a local service. Autism, 8(4), 387–407.PubMedCrossRef Mansell, W., & Morris, K. (2004). A survey of parents’ reactions to the diagnosis of an autistic spectrum disorder by a local service. Autism, 8(4), 387–407.PubMedCrossRef
go back to reference Polirstok, S. R., & Lesser, D. R. (2003). Useful online information, resources, and interventions for speech language pathologists and teachers of students with autistic spectrum disorders. Topics in Language Disorders, 23, 166–167.CrossRef Polirstok, S. R., & Lesser, D. R. (2003). Useful online information, resources, and interventions for speech language pathologists and teachers of students with autistic spectrum disorders. Topics in Language Disorders, 23, 166–167.CrossRef
go back to reference Provost, M., Koompalum, D., Dong, D., & Martin, B. C. (2006). The initial development of the WebMedQual scale: Domain assessment of the construct of quality of health web sites. International Journal of Medical Informatics, 75, 42–57.PubMedCrossRef Provost, M., Koompalum, D., Dong, D., & Martin, B. C. (2006). The initial development of the WebMedQual scale: Domain assessment of the construct of quality of health web sites. International Journal of Medical Informatics, 75, 42–57.PubMedCrossRef
go back to reference Reichow, B., & Volkmar, F. R. (2011). Evidence-based practices in autism: Where we started. In B. Reichow, P. Doehring, D. V. Cicchetti, & F. R. Volkmar (Eds.), Evidence-based practices and treatments for children with autism (pp. 3–24). New York, NY: Springer.CrossRef Reichow, B., & Volkmar, F. R. (2011). Evidence-based practices in autism: Where we started. In B. Reichow, P. Doehring, D. V. Cicchetti, & F. R. Volkmar (Eds.), Evidence-based practices and treatments for children with autism (pp. 3–24). New York, NY: Springer.CrossRef
go back to reference Sabo, R. M., & Lorenzen, J. M. (2008). Consumer health web sites for parents of children with autism. Journal of Consumer Health on the Internet, 12, 37–49.CrossRef Sabo, R. M., & Lorenzen, J. M. (2008). Consumer health web sites for parents of children with autism. Journal of Consumer Health on the Internet, 12, 37–49.CrossRef
go back to reference Samejima, F. (1997). Graded response models. In W. J. Linden & R. K. Hambleton (Eds.), Handbook of modern item response theory. New York: Springer. Samejima, F. (1997). Graded response models. In W. J. Linden & R. K. Hambleton (Eds.), Handbook of modern item response theory. New York: Springer.
go back to reference Scullard, P., Peacock, C., & Davies, P. (2010). Googling children’s health: Reliability of medical advice on the internet. Archives of Disease in Childhood, 95, 580–582.PubMedCrossRef Scullard, P., Peacock, C., & Davies, P. (2010). Googling children’s health: Reliability of medical advice on the internet. Archives of Disease in Childhood, 95, 580–582.PubMedCrossRef
go back to reference Seeman, C. (2005). Autism spectrum disorders: A resource for ASD information on the web. College & Resource Libraries, 66(9), 646–649. Seeman, C. (2005). Autism spectrum disorders: A resource for ASD information on the web. College & Resource Libraries, 66(9), 646–649.
go back to reference Silberg, W. M., Lundberg, G. D., & Musacchio, R. A. (1997). Assessing, controlling, and assuring the quality of medical information on the Internet: Caveant lector et viewor-Let the reader and viewer beware. Journal of the American Medical Association, 277(15), 1244–1245.PubMedCrossRef Silberg, W. M., Lundberg, G. D., & Musacchio, R. A. (1997). Assessing, controlling, and assuring the quality of medical information on the Internet: Caveant lector et viewor-Let the reader and viewer beware. Journal of the American Medical Association, 277(15), 1244–1245.PubMedCrossRef
go back to reference Spiegelhalter, D. J., Thomas, A., & Best, N. G. (1999). WinBUGS version 1.2 user manual. MRC Biostatistics Unit. Spiegelhalter, D. J., Thomas, A., & Best, N. G. (1999). WinBUGS version 1.2 user manual. MRC Biostatistics Unit.
go back to reference Straus, S. E., Richardson, W. S., Glasziou, P., & Haynes, R. B. (2005). Evidence-based medicine: How to practice and teach EBM (3rd ed.). Edinburgh, Scotland: Elsevier. Straus, S. E., Richardson, W. S., Glasziou, P., & Haynes, R. B. (2005). Evidence-based medicine: How to practice and teach EBM (3rd ed.). Edinburgh, Scotland: Elsevier.
go back to reference Wainstein, B. K., Sterling-Levis, K., Baker, S. A., Taitz, J., & Brydon, M. (2006). Use of the Internet by parents of paediatric patients. Journal of Paediatrics and Child Health, 42, 528–532.PubMedCrossRef Wainstein, B. K., Sterling-Levis, K., Baker, S. A., Taitz, J., & Brydon, M. (2006). Use of the Internet by parents of paediatric patients. Journal of Paediatrics and Child Health, 42, 528–532.PubMedCrossRef
go back to reference Walther, J. B., Wang, Z., & Loh, T. (2004). The effect of top-level domains and advertisements on health web site credibility. Journal of Medical Internet Research, 6(3), e24.PubMedCrossRef Walther, J. B., Wang, Z., & Loh, T. (2004). The effect of top-level domains and advertisements on health web site credibility. Journal of Medical Internet Research, 6(3), e24.PubMedCrossRef
go back to reference Winker, M. A., Flanagin, A., Chi-Lum, B., White, J., Andres, J., Kennett, R. L., et al. (2000). Guidelines for medical and health information sites on the Internet: Principles governing AMA web sites. Journal of the American Medical Association, 283(12), 1600–1606.PubMedCrossRef Winker, M. A., Flanagin, A., Chi-Lum, B., White, J., Andres, J., Kennett, R. L., et al. (2000). Guidelines for medical and health information sites on the Internet: Principles governing AMA web sites. Journal of the American Medical Association, 283(12), 1600–1606.PubMedCrossRef
Metagegevens
Titel
Characteristics and Quality of Autism Websites
Auteurs
Brian Reichow
Jason I. Halpern
Timothy B. Steinhoff
Nicole Letsinger
Adam Naples
Fred R. Volkmar
Publicatiedatum
01-06-2012
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 6/2012
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-011-1342-6

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