Abstract
The traditional goal of cure for localized cancer by surgery or radiotherapy is now supplemented by an intention to cure many patients who have widespread disease with drugs. However, the majority of patients with common cancers will not be cured by local or systemic therapy. For these patients the purpose of medical care is to prolong their lives and to maintain the quality of those lives. The quality of life may be impaired by the disease, but treatments may also have deleterious effects so that overall benefit from a treatment is often uncertain.
Based in part on assessing quality of life in cancer patients. British Journal of Cancer 1989;60:437–440 and Measurement of the quality of life — the particular problems of cancer patients. Proceedings of a Royal College of Physicians meeting, 1992, with permission.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Preview
Unable to display preview. Download preview PDF.
Similar content being viewed by others
References
Aaronson, N.K. Methodological issues in psychosocial oncology with special reference to clinical trials. In Ventafridda, V,. Van Dam, F.S.A.M., Yancik, R. et al. (eds) Assessment of Quality of Life and Cancer Treatment. Amsterdam, Elsevier Science Publishers, 1986, pp. 19–29.
Aaronson, N.K., Bakker, W., Stewart, A.L. et al. A multidimensional approach to the quality of life in lung cancer clinical trials. In Aaronson, N.K. (ed.) Quality of Life in Cancer, EORTC Monograph Series. New York, Raven Press, 1986, pp. 171–192.
Ahmed, P.I. and Kolker, A. The role of indigenous medicine in WHO's definition of health. In Adhmed, P.I. and Coelho, C.O. (eds) Towards a New Definition of Health. New York, Plenum Press, 1979, p. 113.
Bardelli, D. and Saracci, R. Measuring the quality of life in cancer clinical trials. Methods and impact of controlled therapeutic trials in cancer. IUCC Technical Report Series, 1978, No 36, pp. 75–97.
Barofsky, I. Function states: quality of life. In Holland, J.C.B. (ed.) Proceedings of Conference on Research Methodology in Psychosocial Oncology. Cancer 1984; 53 (Suppl): 2299–2302.
Baum, M., Priestman, T., West, R.R. et al. A comparison of subjective responses in a trial comparing endocrine with cytotoxic treatment in advanced carcinoma of the breast. In Mourisden and Palshof (eds) Breast Cancer-Experimental and Clinical Methods. London, Pergamon Press, 1980, pp. 223–228.
Bell, D.R., Tannock, I.F. and Boyd, N.F. Quality of life measurement in breast cancer patients. Br. J. Cancer 1985; 51: 577–580.
Bergner, M., Babbitt, R.A., Carter, W.B. et al. The Sickness Impact Profile: development and final revision of a health status measure. Med. Care 1981; 19: 787–805.
Bergner, M. Development testing and use of the Sickness Impact Profile. In Walker, S.R and Rosser, R.M. (eds) Quality of Life: Assessment and Application. MTP Press, Lancaster, 1988, p. 79.
Bliss, J.M., Selby, P., Robertson, B. and Powles, T.J. A method for assessing the quality of life of cancer patients: replication of the factor structure. Br. J. Cancer, 1992. In press
Blohnik, 1980, quoted by Fox, B.H., 1984 (See Ref. 25).
Bond, A. and Lader, M. The use of analogue scales ill rating subjective feelings. Br. J. Med. Psychol. 1974; 47: 211–218.
Caiman, K.C. Quality of life in cancer patients-a hypothesis. J. Med. Ethics 1984; 10: 124–127.
Campbell, A., Converse, P.E. and Rodgers, W.L. The Quality of American Life. New York, Sage, 1976, p. 4.
Clark, A. and Fallowfield, L.J. Quality of life measurements in patients with malignant disease: a review. J. R. Soc. Med. 1986; 79: 165–169.
Cronbach, L.J. Coefficient alpha and the internal structure of tests. Psychometrika 1951; 16: 297–334.
de Haes, J.C.J.M. and van Knippenberg, F.C.E. The quality of life of cancer patients: a review of the literature. Social Sci. Med. 1985; 20: 809–817.
de Haes, J.C.J.M., van Knippenberg, F.C.E. and Neijt, J.P. Measuring psychological and physical distress in cancer patients: structure and application of the Rotterdam Symptom Checklist. Br. J. Cancer 1990; 62: 1034–1038.
Derogatis, L.R., Akeloff, M.D. and Melisaratos, N. Psychological coping mechanisms and survival time in breast cancer. J. Am. Med. Assoc. 1979; 242: 1504–1509.
Devlen, J.L. The psychological and social consequences of Hodgkin's disease and its treatment. In Selby, P. and McElwain T.J. (eds) Hodgkin's Disease. Oxford, Blackwell Scientific Publications, 1986.
Fayers, P.M. and Jones, D.R. Measuring and analysing quality of life in cancer clinical trials. Sial Med. 1983; 2: 429–446.
Gelbert, R.D. and Goldhirsh, A. A new endpoint for the assessment of adjuvant therapy in postmenopausal women with operable breast cancer. J. Clin. Oncol. 1986; 4: 1772–1779.
Goldberg, D.P. Detection of Psychiatric Illness by Questionnaire. Oxford, Oxford University Press, 1972.
Goldberg, D. and Hillier V.F. A scaled version of the General Health Questionnaire. Psychol. Med. 1979; 31: 139.
Gorsuch, R.L. Factor Analysis. Philadelphia, Saunders, 1974.
Gough, I.R., Furnival, C.M., Schilder, L. and Grove, N. Assessment of the quality of life of patients with advanced cancer. Eur J. Cancer Clin. Oncol. 1983; 19: 1161.
Greer, S. Cancer: psychiatric aspects. In Granville-Grossmark, K. (ed). Recent Advances in Clinical Psychiatry. Volume 5. London, Churchill Livingstone, 1985, pp. 87–104.
Holland, J.C.B. (ed). Proceedings of Conference on Research Methodology in Psychosocial Oncology. Cancer 1984; 53; (Suppl): 2217–2384.
Hutchinson, T.A., Boyd, N.F. and Feinstein, A.R. Scientific problems in clinical scales as demonstrated in the Karnofsky index of performance status. J. Chronic Dis. 1979; 32: 661–666.
Iszack, F. and Medalie, J.H. Comprehensive follow up of carcinoma patients. J. Chronic Dis. 1971; 24: 179.
Kaplan, R.M., Bush, J.W. and Berry, C.C. Health status: types of validity for an index of well-being. Health Serv. Res. 1976; 11: 478–507.
Karnofsky, D.A., Abelmann, W.H., Craver, L.F. and Burchenal, J.H. The use of nitrogen mustards in the palliative treatment of carcinoma. Cancer 1948; 1: 634.
Karnofsky, D.A. and Burchenal, J.H. The clinical evaluation of chemotherapeutic agents against cancer. In McLeod, C.M. (ed.) Evaluation of Chemotherapeutic Agents. New York, Columbia University Press, 1949.
Katz, S. and Akpom, C.A. A measure of primary sociobiological functions. Int. J. Health Serv. 1976; 6: 493–499.
Katz, S., Ford, A.B., Moskowitz R.W. et al. Studies of illness in the aged. J. Am. Med. Assoc. 1963; 185: 914–919.
Leibel, S.A., Pino, Y., Torres, J.L. et al. Improved quality of life following radical therapy for early stage carcinoma of the prostate. Urol. Clinic N. Am. 1980; 7: 593–604.
Mahoney, F.I. and Barthel, D.W. Functional evaluation: the Barthel Index. Md State Med. J. 1965; 14: 61–65.
Maguire, G.P., Tait, A., Brook, M. et al. Psychiatric morbidity and physical toxicity associated with adjuvant chemotherapy after mastectomy. Br. Med. J. 1980; 281: 1179–1180.
Maguire, G.P. et al. Psychiatric problems in the first year after mastectomy. Br. Med. J. 1978; 1: 963–965.
Maguire, P. and Selby, P. Assessing the quality of life in cancer patients. Br. J. Cancer 1989; 60: 437.
Matell, M.S. and Jacoby, J. Is there an optional number of alternatives for Likert scale items? Educ. Psychol. Meas. 1971; 31: 657–674.
McArdle, C.S., Caiman, K.C., Cooper, A.F. et al. The social, emotional and financial implications of adjuvant chemotherapy in breast cancer. Br. J. Surg. 1981; 68: 261–266.
McDowell, I. and Newell, C. Measuring Health. A Guide to Rating Scales and Questionnaires. Oxford, Oxford University Press 1987, p. 204.
Medical Research Council, quoted by Fayers, P.M. and Jones D.R. 1983 (see. Ref 24).
Meyerowitz, B.E., Watkins, I.K. and Sparks, F.C. Quality of life of breast cancer patients receiving adjuvant chemotherapy. Am. J. Nurs. 1983; 2: 232–235.
Morris, J.N., Suisson, S., Sherwood, S. et al. Last days: a study of the quality of life of terminally ill cancer patients. J. Chronic Dis. 1986; 39: 47–62.
Morrow, G.R., Chiarello, R.J. and Derogatis, L.R. A new scale for assessing patients' psychological adjustment to medical illness. Psychol. Med. 1978; 8: 605–610.
Nunnally, J.C. Psychometric Theory. 2nd edn. New York, McGraw-Hill, 1978.
Oborne, D.J. and Clarke, M.J. Questionnaire surveys of passenger comfort. Appl. Ergonom. 1975; 6: 97–103.
Padilla, G., Presant, C.A., Grant, M. et al. Assessment of quality of life in cancer patients. Proc. Am. Assoc. Cancer Res. 1981; 22: 397.
Palmer, B.V., Walsh, G.A., McKinnae, J.A. et al. Adjuvant chemotherapy for breast cancer, side effects and quality of life. Br. Med. J. 1980; 281: 1594–1597.
Priestman, T.J. and Baum, M. Evaluation of quality of life in patients receiving treatment for advanced breast cancer. Lancet 1976; 1: 899–901.
Remington, M., Tyrer, P.J., Newsom-Smith, J. et al. Comparative reliability of categorical and analogue rating scales in the assessment of psychiatric symptomatology. Psychol. Med. 1979; 9: 765–770.
Rosser R.M. and Kind, P. A scale of valuations of states of illness; is there a social consensus? Int. J. Epidemiol. 1978; 7: 347.
Schipper, H., Clinch, J., McMurray, A. et al. Measuring the quality of life of cancer patients. The functional living index-cancer: development and validation. J. Clin. Oncol. 1984; 2: 472–483.
Schipper, H. and Levitt, M. Quality of life in cancer trials: What is it? Why measure it? In Ventrafridda, V., van Dam, F.S.A.M., Yancik, R. et al.. (eds) Assessment of Quality of Life and Cancer Treatment. Amsterdam, Elsevier Science Publishers, 1986, pp. 19–29.
Scott, J. and Huskinsson, E.C. Graphic representation of pain. Pain 1976; 2: 175–184.
Selby, P.J., Chapman, J.A., Etazadi Amoli, J. et al. The development of a method for assessing the quality of life of cancer patients. Br. J. Cancer 1984; 50: 13.
Selby, P.J. Measurement of the quality of life after cancer treatment. Br. J. Hosp. Med. 1985; 33: 267–271.
Selby, P. and Robertson, B. Measurement of quality of life in patients with cancer. Cancer Surveys 1987; 6: 521.
Selby, P. Measurement of the quality of life-the particular problems of cancer patients. Proceedings of a Royal College of Physicians meeting, 1991.
Slevin, M., Stubbs, L., Plant, H. et al. Attitudes to chemotherapy: comparing views of patients with cancer with those of doctors, nurses and general public. Br. Med. J. 1990; 300: 1458–60.
Sontag, S. Illness as a Metaphor. Penguin Books, 1988, London.
Spitzer, W.O., Dobson, A.J., Hall, J. et al. Measuring the quality of life of cancer patients. J. Chronic Dis. 1981; 34: 595–597.
Stewart, A.L., Ware, J.E. and Brook, R.H. Advances in the measurement of functional status: construction of aggregate indices. Med. Care 1981; 19: 473–488.
Stoll, B. Coping with Cancer Stress. Dordrecht, Martinus Nijhoff, 1986.
Thorne, F.C. The personal health survey. J. Clin. Psycho. 1978; 34: 262–268.
Torrance, G.W. Health status index models: identified view. Management Sci. 1976; 22: 990–1001.
Torrance, G.W. Towards a utility theory foundation for health status index models. Health Serv. Res. 1976; 11: 349–369.
Ventafridda, V., van Dam, F.S.A.M., Yancik R. et al. (eds) Assessment of Quality of Life and Cancer Treatment. Amsterdam, Elsevier Science Publishers, 1986.
Vera, M.I. Quality of life following pelvic exenteration. Gynaecol. Oncol. 1981; 12: 355–366.
Walker, S.R. and Rosser, R.M. (eds) Quality of Life Assessment and Application. MTP Press, Lancaster, 1988.
Warde, P., Sturgeon, J.F., Fine, S. et al. Quality of life assessment in patients with carcinoma of the ovary. Proceedings ASCO 1984; 3: 68.
Williams, N.S. and Johnston, D. The quality of life after rectal excision for low rectal cancer. Br. J. Surg. 1983; 70: 460–462.
Williams A.H. Economics of coronary artery by-pass grafts. Br. Med. J. 1985; 291: 326.
Wing, J.K., Nixon, J., Mann, A. et al. Reliability of the PSE used in a population study. Psychol, Med. 1977; 7: 505–516.
World Health Organization. WHO Handbookfor Reporting Results of Cancer Treatment. Geneva, WHO, Geneva Offset Publication No. 48, 1979.
Zigmond, A. and Snaith, P. The Hospital Anxiety and Depression Questionnaire. Acta Scand. Psychiat. 1983; 67: 361–368.
Zubrod C.G., Schneiderman, M., Frei, E. et al. Appraisal for methods for the study of chemotherapy in man. J. Chronic Dis. 1960; 11: 7.
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 1993 Springer Science+Business Media Dordrecht
About this chapter
Cite this chapter
Selby, P. (1993). Measuring the quality of life of patients with cancer. In: Walker, S.R., Rosser, R.M. (eds) Quality of Life Assessment: Key Issues in the 1990s. Springer, Dordrecht. https://doi.org/10.1007/978-94-011-2988-6_14
Download citation
DOI: https://doi.org/10.1007/978-94-011-2988-6_14
Publisher Name: Springer, Dordrecht
Print ISBN: 978-94-010-5328-0
Online ISBN: 978-94-011-2988-6
eBook Packages: Springer Book Archive