Skip to main content

Using Quality of Life to Assess Performance of Agencies Assisting People with Intellectual Disabilities

  • Chapter
  • First Online:
Enhancing the Quality of Life of People with Intellectual Disabilities

Part of the book series: Social Indicators Research Series ((SINS,volume 41))

Abstract

Performance measurement is important for agencies assisting people with intellectual disabilities in terms of measuring the efficiency and effectiveness of the agency’s service provision. In this chapter we argue that agencies that assist people with intellectual disabilities can use quality of life as one potential measure of performance. This is demonstrated with reference to research conducted by Kober (2006) on the effect of different methods of employment on the quality of life for people with intellectual disabilities. The performance of agencies and/or programs can be assessed based on comparisons of quality of life outcomes under different methods of employment.

This chapter is an updated and edited version of the article Kober and Eggleton (2006). We thank the publisher for granting us permission to edit and update the article for inclusion in this book.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 129.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 169.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 169.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Notes

  1. 1.

    For a more detailed explanation of the modified Eggleton (1991) framework refer to Kober and Eggleton (2009).

  2. 2.

    Open employment is where people with intellectual disabilities work alongside people without disabilities in integrated, meaningful employment in a community setting, supported by their employment agency. The alternative terms of competitive employment or supported employment are also often used.

  3. 3.

    Sheltered employment refers to the situation where people with intellectual disabilities work alongside other people with a disability in a segregated, specially tailored setting. Typically, in this setting, the only people without disabilities in the workplace with whom people with intellectual disabilities would interact would be their supervisors.

  4. 4.

    The results relating to quality of life from Kober (2006) are partially reported in Kober and Eggleton (2005).

  5. 5.

    Functional work ability was measured by the functional assessment inventory (FAI) (Crewe & Athelstan, 1984). The FAI consists of 30 behaviorally anchored rating items, ranging from 0 (no significant impairment) to 3 (severe impairment), which assess a person’s work capabilities and deficiencies, thus giving a theoretical range of 0–90; the higher the score, the lower the person’s functional work ability. Low functional work ability was defined as a score of equal to or greater than 26, with high functional work ability defined as a score of 20 or less. These cut-off scores were selected as they represented approximately the top and bottom 40% of the sample, respectively.

References

  • Baker, F., & Intagliata, J. (1982). Quality of life in the evaluation of community support systems. Evaluation and Program Planning, 5, 69–79.

    Article  Google Scholar 

  • Camp, R. C. (1989). Benchmarking: The search for industry best practices that lead to superior performance. Milwuakee, WI: Quality Press.

    Google Scholar 

  • Conley, R. W., Rusch, F. R., McCaughrin, W. B., & Tines, J. (1989). Benefits and costs of supported employment: An analysis of the Illinois supported employment project. Journal of Applied Behavior Analysis, 22, 441–447.

    Article  Google Scholar 

  • Crewe, N. M., & Athelstan, G. T. (1984). Functional assessment inventory manual. Menomonie, WI: Stout Vocational Rehabilitation Institute, University of Wisconsin-Stout.

    Google Scholar 

  • Cummins, R. A., & Baxter, C. (1994). Choice of outcome measures in service evaluations for people with an intellectual disability. Evaluation Journal of Australasia, 6, 22–30.

    Google Scholar 

  • DeStefano, L. (1990). Designing and implementing program evaluation. In F. Rusch (Ed.), Supported employment: Models, methods, issues (pp. 229–246). Sycamore, IL: Sycamore Publishing Company.

    Google Scholar 

  • Eggleton, I. R. C. (1991). Performance measurement for public sector organisations. Perth, WA: Decision Consulting Training and Research/New Zealand Society of Accountants.

    Google Scholar 

  • Eggleton, I. R. C. (1994). A benchmarking methodology for the Australian water industry (Urban Water Research Association of Australia, Research Report No. 77, Melbourne, Victoria, Australia).

    Google Scholar 

  • Eggleton, I. R. C., Silalahi, S., Chong, V. K., & Kober, R. (2005). Antecedents and consequences of performance indicators in the public sector. Working Paper, Waikato Management School, University of Waikato, Hamilton, New Zealand.

    Google Scholar 

  • Fabian, E. S. (1991). Using quality-of-life indicators in rehabilitation program evaluation. Rehabilitation Counseling Bulletin, 34, 344–356.

    Google Scholar 

  • Hill, M. L., Banks, P. D., Handrich, R. R., Wehman, P. H., Hill, J. W., & Shafer, M. S. (1987). Benefit-cost analysis of supported competitive employment for persons with mental retardation. Research in Developmental Disabilities, 8, 71–89.

    Article  Google Scholar 

  • Hill, M., & Wehman, P. (1983). Cost benefit analysis of placing moderately and severely handicapped individuals into competitive employment. TASH Journal, 8, 30–38.

    Google Scholar 

  • Inge, K. J., Banks, P. D., Wehman, P., Hill, J. W., & Shafer, M. S. (1988). Quality of life for individuals who are labelled mentally retarded: Evaluating competitive employment versus sheltered workshop employment. Education and Training in Mental Retardation, 23, 97–104.

    Google Scholar 

  • Kaul, M. (1997). The new public administration: management innovations in government. Public Administration and Development, 17, 13–26.

    Article  Google Scholar 

  • Kober, R. O. (2006). The effectiveness of different methods of employment for people with intellectual disabilities. PhD thesis, The University of Western Australia, Crawley, Western Australia, Australia.

    Google Scholar 

  • Kober, R., & Eggleton, I. (2005). The effects of different types of employment on quality of life. Journal of Intellectual Disability Research, 49, 756–760.

    Article  Google Scholar 

  • Kober, R., & Eggleton, I. R. C. (2006). Using quality of life to assess performance in the disability services sector. Applied Research in Quality of Life, 1, 63–77.

    Article  Google Scholar 

  • Kober, R., & Eggleton, I. R. C. (2009). Using quality of life to evaluate outcomes and measure effectiveness. Journal of Policy and Practice in Intellectual Disability, 6, 40–51.

    Article  Google Scholar 

  • Landesman, S. (1986). Quality of life and personal life satisfaction: Definition and measurement. Mental Retardation, 33, 141–143.

    Google Scholar 

  • McCaughrin, W. B., Ellis, W. K., Rusch, F. R., & Heal, L. W. (1993). Cost-effectiveness of supported employment. Mental Retardation, 31, 41–48.

    Google Scholar 

  • McVilly, K. R., & Rawlinson, R. B. (1998). Quality of life issues in the development and evaluation of services for people with intellectual disability. Journal of Intellectual and Developmental Disability, 23, 199–218.

    Article  Google Scholar 

  • Miller, E., Copper, S., Cook, A., & Petch, A. (2008). Outcomes important to people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 5, 150–158.

    Article  Google Scholar 

  • Modell, S. (2005). Performance management in the public sector: past experiences, current practices and future challenges. Australian Accounting Review, 37, 56–66.

    Article  Google Scholar 

  • Murrell, S. A., & Norris, F. H. (1983). Quality of life as the criterion for need assessment and community psychology. Journal of Community Psychology, 11, 88–97.

    Article  Google Scholar 

  • Noble, J. H., Conley, R. W., & Banerjee, S. (1991). Supported employment in New York state: A comparison of benefits and costs. Journal of Disability Policy Studies, 2, 39–71.

    Article  Google Scholar 

  • Parmenter, T. R. (1990). Evaluation and service delivery research in the area of severe intellectual disability in Australia. Australia and New Zealand Journal of Developmental Disabilities, 16, 187–193.

    Google Scholar 

  • Rusch, F. R., Conley, R. W., & McCaughrin, W. B. (1993). Benefit-cost analysis of supported employment in Illinois. Journal of Rehabilitation, 59, 31–36.

    Google Scholar 

  • Schalock, R. L. (1999). Could Mother Teresa survive an outcomes-oriented world? Australian Society for the Study of Intellectual Disability Conference, Sydney.

    Google Scholar 

  • Schalock, R. L. (2004). The concept of quality of life: What we know and do not know. Journal of Intellectual Disability Research, 48, 203–216.

    Article  Google Scholar 

  • Schalock, R. L., & Keith, K. D (1993). Quality of life manual. Nebraska: Self published.

    Google Scholar 

  • Schalock, R. L., & Lilley, M. A. (1986). Placement from community-based mental retardation programs: How well do clients do after 8 to 10 years. American Journal of Mental Deficiency, 90, 669–676.

    Google Scholar 

  • Shearn, J., Beyer, S., & Felce, D. (2000). The cost-effectiveness of supported employment for people with severe intellectual disabilities and high support needs: A pilot study. Journal of Applied Research in Intellectual Disabilities, 13, 29–37.

    Article  Google Scholar 

  • Tines, J., Rusch, F. R., McCaughrin, W., & Conley, R. W. (1990). Benefit-cost analysis of supported employment in Illinois: A statewide evaluation. American Journal on Mental Retardation, 95, 44–54.

    Google Scholar 

  • Tuckerman, P., Smith, R., & Borland, J. (1999). The relative cost of employment for people with a significant intellectual disability: The Australian experience. Journal of Vocational Rehabilitation, 13, 109–116.

    Google Scholar 

  • Wehman, P., Kregel, J., Banks, P. D., Hill, M., & Moon, M. S. (1987). Sheltered versus supported work programs: A second look. Rehabilitation Counseling Bulletin, 31, 42–53.

    Google Scholar 

  • World Health Organization. (2001). International classification of functioning, disability and health. Geneva: World Health Organization.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Ralph Kober .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2010 Springer Science+Business Media B.V.

About this chapter

Cite this chapter

Kober, R., Eggleton, I.R. (2010). Using Quality of Life to Assess Performance of Agencies Assisting People with Intellectual Disabilities. In: Kober, R. (eds) Enhancing the Quality of Life of People with Intellectual Disabilities. Social Indicators Research Series, vol 41. Springer, Dordrecht. https://doi.org/10.1007/978-90-481-9650-0_5

Download citation

Publish with us

Policies and ethics