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Integrating Systems of Care for Individuals with Intellectual and Developmental Disabilities Across the Lifespan

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Health Care for People with Intellectual and Developmental Disabilities across the Lifespan

Abstract

Individuals with intellectual and developmental disabilities (IDD) will access many systems throughout their lifetime. These systems will help define needs and abilities, provide medical treatment, intervention and education, and give care and support. In order to effectively use these systems, people with disabilities, and their caregivers, need to become well versed in understanding individuals’ needs, community and individual supports and services, and how these systems providing these supports and services affect the lives of people with IDD throughout the lifespan. Appreciating the lack of integration of these systems and how to optimize utilization of their supports and services can empower individuals with IDD and their families to lead independent, successful and happy lives.

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References

  1. Crocker AC, Cullinane MM. Coordination of services. In: Levine MD, Carey WB, Crocker AC, Gross BT, editors. Developmental behavioral pediatrics. Philadelphia: Saunders; 1983.

    Google Scholar 

  2. American Academy of Pediatrics (AAP). Policy Statement on Medical Home: American Academy of Pediatrics, Medical Home Initiatives for Children with Special Needs Project Advisory Committee. The medical home. Pediatrics. 2002;110:184–6.

    Article  Google Scholar 

  3. National Center for Medical Home Implementation. Children and youth with special health care needs. URL: http://www.medicalhomeinfo.org/

  4. US Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. URL: http://mchb.hrsa.gov/

  5. Strickland B, McPherson M, Weissman G, van Dyck P, Huang Z, Newacheck P. Access to the medical home: results of the national survey of children with special health care needs. Pediatrics. 2004;113:1485–92.

    PubMed  Google Scholar 

  6. Council on Children with Disabilities, Section on Developmental Behavioral Pediatrics, Bright Futures Steering Committee, Medical Home Initiatives for Children with Special Needs Project Advisory Committee. Identifying infants and young children with developmental disorders in the medical home: an algorithm for developmental surveillance and screening. Pediatrics. 2006;118:405–20.

    Article  Google Scholar 

  7. Johnson CP, Myers SM, Council on Children with Disabilities. Identification and evaluation of children with autism spectrum disorders. Pediatrics. 2007;5:1183–215.

    Article  Google Scholar 

  8. US Department of Health and Human Services, Administration for Children and Families, Office of Early Childhood Development. Birth to 5: Watch me thrive! 2014. URL: http://acf.hhs.gov/programs/ecd/watch-me-thrive

  9. US Department of Health and Human Services, US Department of Education. Birth to 5: Watch me rhrive! A primary care provider’s guide for developmental and behavioral screening, 2014. URL: https://www.acf.hhs.gov/sites/default/files/ecd/pc

  10. URL: http://idea.ed.gov/explore/home

  11. The Early Childhood Technical Assistance Center (ECTAC). URL: http://ectacenter.org/partc/partc.asp

  12. URL: http://childhealthdata.org/docs/drc/amchp-issue-brief--the-aca-and-cy-with-asd-dd-2012-february.pdf

  13. URL: http://familyvoices.org

  14. American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, Transitions Clinical Authoring Group. Supporting the health transition from adolescence to adulthood in the medical home. Pediatrics. 2011;128:182–200.

    Article  Google Scholar 

  15. American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110:1304–6.

    Google Scholar 

  16. Lotstein DS, Kuo AA, Strickland B, Tait F. The transition to adult health care for youth with special healthcare needs: do racial and ethnic disparities exist? Pediatrics. 2010;126:129–36.

    Article  Google Scholar 

  17. Association of University Centers on Disabilities. Research to practice in self-determination series, 2014. URL: http://www.aucd.org/template/news.cfm?news_id=6450&parent_title=AUCDPublications&url=/template/page.cfm?id%3D295

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Acknowledgements

We would like to thank and acknowledge the many families and individuals with developmental disabilities we have known through the years. The patience, strength, courage, and determination of these families have helped us understand the importance of resilience and perseverance in advocating for what they need to care for the people they love and ensure their health and well-being so that they become as independent, successful and happy as they can be. The findings and conclusions in this chapter are those of the authors and do not necessarily represent the views of the Centers for Disease Control and Prevention.

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Correspondence to Georgina Peacock M.D., MPH, FAAP .

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© 2016 Springer International Publishing Switzerland

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Peacock, G., Rhodes, C. (2016). Integrating Systems of Care for Individuals with Intellectual and Developmental Disabilities Across the Lifespan. In: Rubin, I.L., Merrick, J., Greydanus, D.E., Patel, D.R. (eds) Health Care for People with Intellectual and Developmental Disabilities across the Lifespan. Springer, Cham. https://doi.org/10.1007/978-3-319-18096-0_11

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  • DOI: https://doi.org/10.1007/978-3-319-18096-0_11

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-18095-3

  • Online ISBN: 978-3-319-18096-0

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