Abstract
Beginning with an overview of bioethical theories, this chapter identifies the ways in which cancer communication research and practice can inform understanding and knowledge of bioethics. Contributions of communication research to informed consent and decision making are discussed in the context of palliative care. The chapter concludes with a discussion of the ethical obligations of cancer communication researchers including the need to be sensitive concerning whose values are being upheld or promoted, and the difference between persuasive and coercive use of effective models of communication.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Allaire, A. S., Labrecque, M., et al. (2011). Barriers and facilitators to the dissemination of DECISION+, a continuing medical education program for optimizing decisions about antibiotics for acute respiratory infections in primary care: A study protocol. Implement Science, 6, 3.
Anderson, H., Espinosa, E., et al. (2001). Evaluation of the chemotherapy patient monitor: An interactive tool for facilitating communication between patients and oncologists during the cancer consultation. European Journal of Cancer Care (Engl), 10(2), 115–123.
Back, M. F., & Huak, C. Y. (2005). Family centred decision making and non-disclosure of diagnosis in a South East Asian oncology practice. Psychooncology, 14(12), 1052–1059.
Ballard-Reisch, D. S., & Letner, J. A. (2003). Centering families in cancer communication research: Acknowledging the impact of support, culture and process on client/provider communication in cancer management. Patient Education and Counseling, 50(1), 61–66.
Beuchamps, T., & Childress, J. F. (2008). Principles of biomedical ethics. Oxford: Oxford University Press.
Botelho, R. J., Lue, B. H., et al. (1996). Family involvement in routine health care: A survey of patients’ behaviors and preferences. The Journal of Family Practice, 42(6), 572–576.
Brittain, K., Loveland-Cherry, C., et al. (2012). Sociocultural differences and colorectal cancer screening among African American men and women. Oncology Nursing Forum, 39(1), 100–107.
Brown, J. B., Brett, P., et al. (1998). Roles and influence of people who accompany patients on visits to the doctor. Canadian Family Physician, 44, 1644–1650.
Brown, R. F., Butow, P. N., et al. (2004). Seeking informed consent to cancer clinical trials: Describing current practice. Social Science and Medicine, 58(12), 2445–2457.
Bucher, J. A., Loscalzo, M., et al. (2001). Problem-solving cancer care education for patients and caregivers. Cancer practice, 9(2), 66–70.
Charles, C., Gafni, A., et al. (1999). Decision-making in the physician-patient encounter: Revisiting the shared treatment decision-making model. Social Science and Medicine, 49(5), 651–661.
Clayman, M. L., Roter, D., et al. (2005). Autonomy-related behaviors of patient companions and their effect on decision-making activity in geriatric primary care visits. Social Science and Medicine, 60(7), 1583–1591.
Degner, L. S., & Sloan, J. A. (1992). Decision making during serious illness: What role do patients really want to play? Journal of Clinical Epidemiology, 45(9), 941–950.
DuBenske, L. L., Gustafson, D. H., et al. (2010). Web-based cancer communication and decision making systems: Connecting patients, caregivers, and clinicians for improved health outcomes. Medical Decision Making, 30(6), 732–744.
Eggly, S., Penner, L. A., et al. (2012). Patient, companion, and oncologist agreement regarding information discussed during triadic oncology clinical interactions. Psychooncology, 22, 637–645.
Ford, S., Hall, A., et al. (2000). The medical interaction process system (MIPS): An instrument for analysing interviews of oncologists and patients with cancer. Social Science and Medicine, 50(4), 553–566.
Fried, T. R., Bradley, E. H., et al. (2005). Unmet desire for caregiver-patient communication and increased caregiver burden. Journal of the American Geriatrics Society, 53(1), 59–65.
Fried, T. R., Bradley, E. H., et al. (2003). Valuing the outcomes of treatment: Do patients and their caregivers agree? Archives of Internal Medicine, 163(17), 2073–2078.
Gaugler, J. E., Hanna, N., et al. (2005). Cancer caregiving and subjective stress: A multi-site, multi-dimensional analysis. Psycho-Oncology, 14(9), 771–785.
Gilbar, R., & Gilbar, O. (2009). The medical decision-making process and the family: The case of breast cancer patients and their husbands. Bioethics, 23(3), 183–192.
Given, B. A., Given, C. W., et al. (2001). Family support in advanced cancer. CA: A Cancer Journal for Clinicians, 51(4), 213–231.
Given, C. W., Given, B., et al. (1992). The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Research in Nursing & Health, 15(4), 271–283.
Gleason, M. E., Harper, F. W., et al. (2009). The influence of patient expectations regarding cure on treatment decisions. Patient Education and Counseling, 75(2), 263–269.
Gotcher, J. (1993). The effects of family communication on psychosocial adjustment of cancer patients. Journal of Applied Communication Research, 21(2), 176–188.
Gotcher, J. (1995). Well-adjusted and maladjusted cancer patients: An examination of communication variables. Health Communication, 7(1), 21–33.
Ho, A. (2008). Relational autonomy or undue pressure? Family’s role in medical decision-making. Scandinavian Journal of Caring Sciences, 22(1), 128–135.
Indeck, B., & Bunney, M. (1997). Community resources. In V. T. DeVita, S. Hellman Jr., & S. A. Rosenberg (Eds.), Cancer: Principles and practice of oncology (5th ed., pp. 2891–2904). Philadelphia: Lippincott Williams & Wilkins.
Jones, R. A., Steeves, R., & Williams, I. (2010). Family and friend interactions among African-American men deciding whether or not to have a prostate cancer screening. Urologic Nursing, 30(3), 189–193.
Kahana, E., & Kahana, B. (2003). Patient proactively enhancing doctor-patient-family communication in cancer prevention and care among the aged. Patient Education and Counseling, 50(1), 67–73.
Kimberlin, C., Brushwood, D., et al. (2004). Cancer patient and caregiver experiences: Communication and pain management issues. Journal of Pain and Symptom Management, 28(6), 566–578.
Kristjanson, L. J., Atwood, J., et al. (1995). Validity and reliability of the family inventory of needs (FIN): Measuring the care needs of families of advanced cancer patients. Journal of Nursing Measurement, 3(2), 109–126.
Kristjanson, L. J., Leis, A., et al. (1997). Family members’ care expectations, care perceptions, and satisfaction with advanced cancer care: Results of a multi-site pilot study. Journal of Palliative Care, 13(4), 5–13.
Krones, T., Keller, H., et al. (2008). Absolute cardiovascular disease risk and shared decision making in primary care: A randomized controlled trial. Annals of Family Medicine, 6(3), 218–227.
Kuczewski, M. G. (1996). Reconceiving the family: The process of consent in medical decision making. Hastings Center Report, 26(2), 30–37.
Lobchuk, M. M., McPherson, C. J., et al. (2012). A comparison of patient and family caregiver prospective control over lung cancer. Journal of Advanced Nursing, 68(5), 1122–1133.
Man-Son-Hing, M., Laupacis, A., et al. (1999). A patient decision aid regarding antithrombotic therapy for stroke prevention in atrial fibrillation: A randomized controlled trial. JAMA, 282(8), 737–743.
Mazanec, P., & Bartel, J. (2002). Family caregiver perspectives of pain management. Cancer Practice, 10(Suppl 1), S66–S69.
Nolan, M. T., Hughes, M. T., et al. (2009). Development and validation of the family decision-making self-efficacy scale. Palliative Support Care, 7(3), 315–321.
Northouse, L., Kershaw, T., et al. (2005). Effects of a family intervention on the quality of life of women with recurrent breast cancer and their family caregivers. Psychooncology, 14(6), 478–491.
O’Connor, A. M., Bennett, C. L., et al. (2009). Decision aids for people facing health treatment or screening decisions. Cochrane Database of Systematic Reviews, 3(3), CD001431.
O’Connor, P. J., Sperl-Hillen, J. M., et al. (2011). Impact of electronic health record clinical decision support on diabetes care: A randomized trial. The Annals of Family Medicine, 9(1), 12–21.
Oberst, M. T., Thomas, S. E., et al. (1989). Caregiving demands and appraisal of stress among family caregivers. Cancer Nursing, 12(4), 209–215.
Ohlen, J., Balneaves, L. G., et al. (2006). The influence of significant others in complementary and alternative medicine decisions by cancer patients. Social Science and Medicine, 63(6), 1625–1636.
Prohaska, T. R., & Glasser, M. (1996). Patients’ views of family involvement in medical care decisions and encounters. Research on Aging, 18, 52–69.
Rim, S. H., Hall, I. J., et al. (2011). Considering racial and ethnic preferences in communication and interactions among the patient, family member, and physician following diagnosis of localized prostate cancer: Study of a US population. International Journal of General Medicine, 4, 481–486.
Rogers, E., & Kincaid, D. L. (1981). Communication networks: Towards a new paradigm for research. New York: The Free Press.
Rose, J. H. (1999). Book review: Communication and the cancer patient: Information and truth. Journal of Ethics, Law and Aging, 5(1), 71–73.
Sanford, J., Townsend-Rocchicciolli, J., et al. (2011). A process of decision making by caregivers of family members with heart failure. Research Theory Nursing Practice, 25(1), 55–70.
Sayers, S. L., White, T., et al. (2006). Family involvement in the care of healthy medical outpatients. Family Practice, 23(3), 317–324.
Schafer, C., Putnik, K., et al. (2006). Medical decision-making of the patient in the context of the family: Results of a survey. Supportive Care in Cancer, 14(9), 952–959.
Schilling, L. M., Scatena, L., et al. (2002). The third person in the room: Frequency, role, and influence of companions during primary care medical encounters. Journal of Family Practice, 51(8), 685–690.
Sebern, M. D. (2008). Refinement of the shared care instrument-revised: A measure of a family care interaction. Journal of Nursing Measurement, 16(1), 43–60.
Siminoff, L. A., Gordon, N. H., et al. (2006). A decision aid to assist in adjuvant therapy choices for breast cancer. Psycho-Oncology, 15(11), 1001–1013.
Siminoff, L. A., & Step, M. M. (2005). A communication model of shared decision making: Accounting for cancer treatment decisions. Health Psychology: Official Journal of the Division of Health Psychology, American Psychological Association, 24(4 Suppl), S99–S105.
Siminoff, L. A., & Step, M. M. (2011). A comprehensive observational coding scheme for analyzing instrumental, affective, and relational communication in health care contexts. Journal of health communication, 16(2), 178–197.
Siminoff, L. A., Wilson-Genderson, M., et al. (2010). Depressive symptoms in lung cancer patients and their family caregivers and the influence of family environment. Psycho-Oncology, 19(12), 1285–1293.
Siminoff, L. A., Zyzanski, S. J., et al. (2008). The cancer communication assessment tool for patients and families (CCAT-PF): A new measure. Psycho-Oncology, 17(12), 1216–1224.
Simon, D., Loh, A., et al. (2007). Measuring (shared) decision-making—A review of psychometric instruments. Zeitschrift Arztliche Fortbildung Qualitatssich, 101(4), 259–267.
Spiegle, G., Al-Sukhni, E., et al. (2012). Patient decision aids for cancer treatment: Are there any alternatives? Cancer, 119, 189–200.
Street, R. L, Jr., Makoul, G., et al. (2009). How does communication heal? Pathways linking clinician-patient communication to health outcomes. Patient Education and Counseling, 74(3), 295–301.
Street, R. L, Jr., & Millay, B. (2001). Analyzing patient participation in medical encounters. Health Communication, 13(1), 61–73.
Towle, A., & Godolphin, W. (1999). Framework for teaching and learning informed shared decision making. BMJ (Clinical Research ed.), 319, 766–771.
Walsh-Burke, K. (1992). Family communication and coping with cancer: Impact of the we can weekend. Journal of Psychosocial Oncology, 10(1), 63–81.
Yun, Y. H., Lee, M. K., et al. (2011). Use of a decision aid to help caregivers discuss terminal disease status with a family member with cancer: A randomized controlled trial. Journal of Clinical Oncology, 29(36), 4811–4819.
Zeliadt, S. B., Penson, D. F., et al. (2011). Provider and partner interactions in the treatment decision-making process for newly diagnosed localized prostate cancer. BJU International, 108(6), 851–856. (discussion 856–857).
Zhang, A. Y., & Siminoff, L. A. (2003). Silence and cancer: Why do families and patients fail to communicate? Health Communication, 15(4), 415–429.
Zhang, A. Y., Zyzanski, S. J., et al. (2011). Ethnic differences in the caregiver’s attitudes and preferences about the treatment and care of advanced lung cancer patients. Psycho-Oncology, 21, 1250–1253.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2016 Springer Science+Business Media New York
About this chapter
Cite this chapter
Siminoff, L.A., Thomson, M.D. (2016). Decision Making in the Family. In: Diefenbach, M., Miller-Halegoua, S., Bowen, D. (eds) Handbook of Health Decision Science. Springer, New York, NY. https://doi.org/10.1007/978-1-4939-3486-7_13
Download citation
DOI: https://doi.org/10.1007/978-1-4939-3486-7_13
Published:
Publisher Name: Springer, New York, NY
Print ISBN: 978-1-4939-3484-3
Online ISBN: 978-1-4939-3486-7
eBook Packages: Behavioral Science and PsychologyBehavioral Science and Psychology (R0)