Abstract
Over the 30 years since the formal establishment of the field of pediatric psychology, a number of transformations have occurred that have affected the nature and focus of research in this field, some of which also are applicable to the field of clinical child psychology. Early publications in the Journal of Pediatric Psychology were based on observations described in case reports or single-subject designs. These reflected the growing awareness of the potential unexplored relationships between the behavioral and medical aspects of various diseases and the procedures used to treat them. As the field matured, research drifted away from the focus on individual cases and began to rely more on group designs and methodology. This focus resulted in a new set of difficulties, characterized by small, potentially nonrepresentative samples, broadband research with little consideration of specific disease, treatment, or developmental variations and restrictions on the types of research possible due to limited access to populations. In an effort to solve these problems, current efforts in pediatrics, including pediatric psychology, are moving toward increased research collaboration, both across institutions and across disciplines, although at a somewhat slow pace. Of the 186 empirical articles published in the Journal of Pediatric Psychology between January 1993 and August 1997, only 10 (5%) involved collaborations that included data collection at multiple institutions. Thus, while there is evidence of multisite collaboration occurring in the field, it is still in its relative infancy. To promote a better understanding of this approach, it is our intention to identify several models of multisite collaborative research, pointing out the benefits and pitfalls that may be encountered.
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References
American Psychological Association. (1992). Ethical principles of psychologists and code of conduct. American Psychologist.
Armstrong, F. D. (1995). Commentary: Childhood cancer. Journal of Pediatric Psychology, 4, 417–421.
Armstrong, F. D., Toledano, S. R., Miloslovich, K., Lackman-Zeman, L., Levy, J. D., Gay, C. L., Schuman, W. B., & Fishkin, P. (in press). The Miami Pediatric Quality of Life Questionnaire: Parent Scale. International Journal of Cancer.
Brocklehurst, P., Elbourne, D., Garcia, T., & McCandlish, R. (1996). Clinical trials and rare diseases: Trials of adequate size are possible with the right organization. British Medical Journal, 312, 910.
Brown, R. T., Armstrong, F. D., & Eckman, J. R. (1993). Neurocognitive aspects of sickle cell disease. Journal of Learning Disabilities, 26, 33–45.
Chordokoff, J., & Whitten, C. F. (1963). Intellectual status of children with sickle cell anemia. Journal of Pediatrics, 63, 29–35.
Crooks, S. W., Colman, S. B., & Campbell, I. A. (1996). Costs and getting ethical approval deter doctors from participating in multicentre trials. British Medical Journal, 312, 1669.
Davies, H. D., Langley, J. M., & Speert, D. P. (1996). Rating authors’ contributions to collaborative research: The PICNIC survey of university departments of pediatrics. Canadian Medical Association Journal, 155, 877–882.
Diabetes Control and Complications Trial Research Group. (1993). The effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus. New England Journal of Health, 329, 977–986.
Drotar, D. (1993). Influences on collaborative activities among psychologists and pediatricians: Implications for practice, training, and research. Journal of Pediatric Psychology, 18, 159–172.
Drotar, D. (1995). Consulting with pediatricians: Psychological perspectives. New York: Plenum Press.
Drotar, D., Agle, D. P., Eckl, C.L., & Thompson, P. A. (1996). Impact of the repressive personality style on the measurement of psychological distress in children and adolescents with chronic illness: An example from hemophilia. Journal of Pediatric Psychology, 21, 283–293.
Farber, M. D., Koshy, M., & Kinney, T. R. (1985). Cooperative Study of Sickle Cell Disease: Demographic and socioeconomic characteristics of patients and families with sickle cell disease. Journal of Chronic Diseases, 38, 495–505.
Fowler, M. G., Whitt, J. K., Lallanger, R. R., Nash, K. B., Atkinson, S. S., Wells, R. J., & McMillan, C. (1988). Neuropsychologic and academic functioning of children with sickle cell anemia. Journal of Developmental and Behavioral Pediatrics, 9, 213–220.
Gaston, M., Smith, J., Gallagher, D., Flournoy-Gill, Z., West, S., Bellevue, R., Farber, M., Graver, R., Koshy, M., Ritchey, A. K., et al. (198 7). Recruitment in the Cooperative Study of Sickle Cell Disease (CSSCD). Controlled Clinical Trials, 8, 131S–140S.
Gonzalez, J. C., Routh, D. K., Saab, P. E., Armstrong, F. D., Guerra, E., Shifman, L., & Fawcett, N. (1989). Effects of parent presence on children’s reactions to injections: Behavioral, physiological, and subjective aspects. Journal of Pediatric Psychology, 14, 449–462.
Hardy, M. S., Armstrong, F. D., Routh, D. K., Albrecht, J., & Davis, J. (1994). Coping and communication among parents and children with human immunodeficiency virus and cancer. Journal of Developmental and Behavioral Pediatrics, 15, S49–S53.
Hillgartner, M. W., Donfield, S. M, Willoughby, A., Contant, C. F. Jr., Evatt, B. L., Gomperts, E. D., Hoots, W. K., Jason, J., Loveland, K. A., McKinlay, S. M., & Stehbens, J. A. (1993). Hemophilia growth and development study: Design, methods and entry data. American Journal of Pediatric Hematology Oncology, 15, 208–218.
International Committee of Medical Journal Editors. (1994). Uniform requirements for manuscripts submitted to biomedical journals. Philadelphia: American College of Physicians.
Kazak, A. E., Penati, B., Boyer, B. A., Himelstein, B., Brophy, P., Waibel, M. K., Blackall, G. F., Daller, R., & Johnson, K. (1996). A randomized controlled prospective outcome study of a psychological and pharmacological intervention protocol for procedural distress in pediatric leukemia. Journal of Pediatric Psychology, 21, 615–632.
Lantz, J., Reed, R. C, & Lewkowitz, S. (1994). Collaborative research-academic appointments: The myth and reality. Nursing Administration Quarterly, 18, 38–43.
Lemanek, K. L., Horwitz, W., & Ohene-Frempong, K. (1994). A multiperspective investigation of social competence in children with sickle cell disease. Journal of Pediatric Psychology, 19, 443–456.
Loveland, K. A., Stehbens, J., Contant, C., Bordeaux, J. D., Sirois, P., Bell, T. S., Hill, S., Scott, A., Bowman, M., Schiller, M., Watkins, J., Olson, R., Moylan, P., Cool, V., & Beiden, B. (1994). Hemophilia growth and development study: Baseline neurodevelopmental findings. Journal of Pediatric Psychology, 19, 223–239.
Morrow, G. R., & Bellig, A. J. (1994). Behavioral science in translational research and cancer control. Cancer, 74, 1409–1417.
Onufrak, B., Saylor, C. F., Taylor, M. J., Eyberg, S. M., & Boyce, G. C. (1995). Determinants of responsiveness in mothers of children with intraventricular hemorrhage. Journal of Pediatric Psychology, 20, 587–599.
Pediatric Oncology Group. (1992). Progress against childhood cancer: The Pediatric Oncology Group experience. Pediatrics, 89, 597–600.
Pegelow, C. H., Armstrong, F. D., Light, S., Toledano, S. R., & Davis, J. (1991). Experience with the use of prophylactic penicillin in children with sickle cell anemia. Journal of Pediatrics, 118, 736–738.
Quittner, A. L., Tolbert, V. E., Regoli, M. J., Orenstein, D. M., Hollingsworth, J. L., & Eigen, H. (1996). Development of the Role-play Inventory of Situations and Coping Strategies for parents of children with cystic fibrosis. Journal of Pediatric Psychology, 21, 209–235.
Rosendorf, L. L., Dafni, U., Amato, D. A., Lunghofer, B., Bartlett, J. G., Leedom, J. M., Wara, D. W., Armstrong, J. A., Godfrey, E., Sukkestad, E., & Cunts, G. W. (1993). Performance evaluation in multicenter clinical trials: Development of a model by the AIDS Clinical Trials Group. Controlled Clinical Trials, 14, 523–537.
Sargent, J. R., Sahler, O. J. Z., Roghmann, K. J., Mulhern, R. K., Barbarian, O. A., Carpenter, P. J., Copeland, D. R., Dolgin, M. J., & Zeltzer, L. K. (1995). Sibling Adaptation of Childhood Cancer Study: Siblings’ perceptions of the cancer experience. Journal of Pediatric Psychology, 20, 151–164.
Smyth, J. F., Mossman, J., Hall, R., Hepburn, S., Pinkerton, R., Richards, M., Thatcher, N., & Box, J. (1994). Conducting clinical research in the new NHS: The model of cancer. British Medical Journal, 309, 457–461.
Snyder, C. R., Hoza, B., Pelham, W. E., Rapoff, M., Ware, L., Danovsky, Highberger, L., Rubinstein, H., & Stahl, K. J. (1997). Journal of Pediatric Psychology, 22, 399–421.
Stowe, S. M., Hammond, G. D., Chard, R., Hornberger, J. A., Honour, R. C., Sposto, R., & Weiner, J. M. (1984). Monitoring clinical research. A report from the Children’s Cancer Study Group. American Journal of Clinical Oncology, 7, 557–566.
Swift, A. V., Cohen, M. J., Hynd, G. W., Wisenbaker, J. M., McKie, K. M., Makari, G., & McKie, V. (1989). Neuropsychological impairment in children with sickle cell anemia. Pediatrics, 84, 1077–1085.
Thomas, A. M., Peterson, L., & Goldstein, D. (1997). Problem solving and diabetes regimen adherence by children and adolescents with IDDM in social pressure situations: A reflection of normal development. Journal of Pediatric Psychology, 22, 541–561.
US Department of Health and Human Services, Public Health Service. (1997). Grant Application (PHS 398). OMB No. 0925-0001.
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Armstrong, F.D., Drotar, D. (2000). Multi-Institutional and Multidisciplinary Research Collaboration. In: Drotar, D. (eds) Handbook of Research in Pediatric and Clinical Child Psychology. Issues in Clinical Child Psychology. Springer, Boston, MA. https://doi.org/10.1007/978-1-4615-4165-3_13
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DOI: https://doi.org/10.1007/978-1-4615-4165-3_13
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