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Adjustment to Serious Childhood Illness

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Advances in Clinical Child Psychology

Part of the book series: Advances in Clinical Child Psychology ((ACCP,volume 13))

Abstract

Health care professionals have come to recognize how distressing serious illness can be, how severely it can impede the day-to-day functioning of children and their families, and how much it challenges children’s sense of competence and well-being (Chesler & Barbarin, 1987; Christ & Flomenhaft, 1984). Mounting evidence of a relations between illness and psychological disturbance has given rise to concerns about the increased risk of deleterious psychosocial outcomes for children with serious illness and their families. The frequent hospitalizations, the intrusive regimes of medical care, and the uncertainty of survival associated with serious illness hamper adjustment and constitute a formidable obstacle to normal development. The number of children with illness severe enough to cause significant life disruption may be larger and increasing more rapidly than many of us realize.

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References

  • Allen, L., & Zigler, E. (1986). Psychological adjustment of seriously ill children. Journal of the American Academy of Child and Adolescent Psychiatry, 25, 708–712.

    Google Scholar 

  • American Psychiatric Association. (1980). Diagnostic and Statistical Manual of Mental Disorders (3rd ed.). Washington, DC: Author.

    Google Scholar 

  • Anderson, B., Hagen, J. W., Barclay, C. R., Goldstein, G., Kandt, R., & Bacon, G. (1984). Cognitive and school performance in diabetic children. Diabetics, 33, 81A.

    Google Scholar 

  • Barbarin, O. (1983). Coping with ecological transitions by black families: A psychosocial mode. Journal of Community Psychology, 11, 308–322.

    Google Scholar 

  • Barbarin, O. (1986). Family experience of stigma in childhood cancer. In G. Becker, S. Ainlay & L. Coleman (Eds.), The dilemma of difference: Multi-disciplinary perspectives of stigma. New York: Plenum Press.

    Google Scholar 

  • Barbarin, O. (1987). Psychosocial risks and invulnerability: A review of the theoretical and empirical bases of preventive family-focused services for survivors of childhood cancer. Journal of Psychosocial Oncolygy, 5(4), 25–41.

    Google Scholar 

  • Barbarin, O., & Chesler, M. (1983). Children with cancer. Oak Brook, II: Etema Press.

    Google Scholar 

  • Barbarin, O., Hughes, D., & Chesler, M. (1985). Stress, coping, and marital functioning among parents of children with cancer. Journal of Marriage and Family, 47(2), 473–480.

    Google Scholar 

  • Bearison, D., & Padfici, C. (1984). Psychological studies of children who have cancer. Journal of Applied Developmental Psychology, 5, 263–280.

    Google Scholar 

  • Bedell, J. R., Giordani, B., & Armour, J. L. (1977). Life stress and the psychological and medical adjustment of chronically ill children. Journal of Psychosomatic Research, 21, 237–243.

    PubMed  Google Scholar 

  • Boyle, I. R., DiSant’ Agnese, P. A., Sach, S., MĂĽlican, F., & Kulczycki, L. L. (1976). Emotional adjustment of adolescents and young adults with cystic fibrosis. Journal of Pediatrics, 88, 318–326.

    PubMed  Google Scholar 

  • Breslau, N. (1983). The psychological study of chronically ill and disabled children; Are healthy siblings appropriate controls? Journal of Abnormal Child Psychology, 3, 379–391.

    Google Scholar 

  • Breslau, N. (1985). Psychiatric disorder in children with disabilities. Journall of the American Academy of Child Psychiatry, 24, 87–94.

    Google Scholar 

  • Breslau, N., & Marshall, I. A. (1985). Psychological disturbance in children with physical disabilities: Continuity and change in a 5-year follow-up. Journal of Abnormal Child Psychology, 13, 199–216.

    PubMed  Google Scholar 

  • Broheim, S. P. (1978). Cystic fibrosis. In P. Magrab (Ed.), Psychological management of pediatric problems. Baltimore: University Park Press.

    Google Scholar 

  • Bruhn, J. G. (1974). Psychological influences in diabetes mellitus. Postgraduate Medicine, 56(2), 113–118.

    PubMed  Google Scholar 

  • Bums, W., & Zwieg, G. (1980). Self-concepts of chronically ill children.Journal of Genetic Psychology, 137, 179–190.

    Google Scholar 

  • Burr, C. K. (1981). The impact on family functioning of a child with a chronic illness. Center for the Study of Families and Children. Nashville, TN: Vanderbilt Institute for Public Policy Studies.

    Google Scholar 

  • Bush, J., Melamed, B., Sheras, P., & Greenbaum, P. (1986). Mother-child patterns of coping with anticipatory medical stress. Health Psychology, 5(2), 137–157.

    PubMed  Google Scholar 

  • Cadman, D., Boyle, M., Szatmari, P., & Offord, D. R. (1987). Chronic illness, disability, and mental and social well-being: Findings of the Ontario Child Health Study. Pediatrics, 79(5), 805–813.

    PubMed  Google Scholar 

  • Cairns, N. U., Clark, G. M., Smith, S. P., & Lansky, S. B. (1975). Adaptation of siblings to childhood malignancy. Journal of Pediatrics, 95, 484–487.

    Google Scholar 

  • Calef, V. (1959). Report of panel: Psychological consequences of physical illness in children. Journal of the American Psychoanalytic Association, 1, 155–162.

    Google Scholar 

  • Chang, P., Nesbit, M. E., Youngren, N., & Robison, L. L. (1987). Personality characteristics and psychosocial adjustment of long-term survivors of childhood cancer. Journal of Psychosocial Oncology, 5(4), 43–58.

    Google Scholar 

  • Chesler, M., & Barbarin, O. (1987). Childhood cancer and the family. New York: Brunner- Mazel.

    Google Scholar 

  • Christ, A. E., & Flomenhaft, K. (Ed.) (1984). Childhood cancer: Impact on the family. New York: Plenum Press.

    Google Scholar 

  • Conyard, S., Krishnmurthy, M., & Dusik, H. (1980). Psychological aspects of sickle cell anemia in adolescents. Health and Social Work, 5, 20–26.

    PubMed  Google Scholar 

  • Cytryn, L., Moore, P. V., & Robinson, M. E. (1973). Psychological adjustment of children with cystic fibrosis. In E. J. Anthony & C. Koupemik (Ed.), The child and his family: The impact of disease and death. New York: Wiley.

    Google Scholar 

  • Czajkowski, D. R., & Koocher, G. P. (1986). Predicting medical compliance among adolescents with cystic fibrosis. Health Psychology, 5(3), 297–395.

    PubMed  Google Scholar 

  • Damlouji, N., Kevess-Cohen, R., Charache, S., Georgopoulos, S., & Folstein, M. (1982). Social disability and psychiatric morbidity in sickle cell anemia and diabetes patients. Psychosomatics, 9, 925–931.

    Google Scholar 

  • Daniels, D., Moos, R., Billings, A., & Miller, J. (1987). Psychosocial risk and resistance factors among children with chronic illness, healthy, siblings and healthy controls. Journal of Abnormal Child Psychology, 15(2), 295–308.

    PubMed  Google Scholar 

  • Deasy-Spinetta, P. (1981). The school and the child with cancer. In J. J. Spinetta & P. Deasy- Spinetta (Eds.), Living with childhood cancer. St. Louis: Mosby.

    Google Scholar 

  • Deasy-Spinetts, P., & Spinetta, J. (1980). The child with cancer in school: Teachers’ appraisal. American Journal of Pediatric Hematology Oncology, 2, 89–94.

    Google Scholar 

  • Deaujo, G., VanArsdale, O. P., Holmes, T. H., & Dudley, D. L. (1973). Life changes coping ability and chronic and transient anemia. Journal of Psychosomatic Research, 17, 359–363.

    Google Scholar 

  • Drotar, D. (1981). Psychological perspectives in childhood chronic illness. Journal of Pediatric Psychology, 6, 211–228.

    PubMed  Google Scholar 

  • Eason, L., Finch, A., Brasted, W., & Saylor, C. (1985). The assessment of depression and anxiety in hospitalized pediatric patients.Child Psychiatry and Human Development, 16(1), 57–64.

    PubMed  Google Scholar 

  • Fergusson, J. H. (1976). Later psychologic effects of a serious illness in childhood. Nursing Clinics of North America, 11, 83–93.

    PubMed  Google Scholar 

  • Garner, A. M., & Thompson, C. W. (1978). Juvenile diabetes. In P. Magarb (Ed.), Psychological management of pediatric problems. Baltimore: University Park Press.

    Google Scholar 

  • Gavaghan, M., & Roach, J. (1987). Ego identity development of adolescents with cancer. Journal of Pediatric Psychology, 12(2), 203–213.

    PubMed  Google Scholar 

  • Gayton, W. F., & Friedman, S. B. (1973). Psychosocial aspects of cystic fibrosis: A review of the literature. American Journal of the Diseases of Childhood, 126, 856–859.

    Google Scholar 

  • Gayton, W., Friedman, S., Tavormina, J., & Tucker, F. (1977). Children with cystic fibrosis: 1. Psychological test findings of patients, siblings and parents. Pedriatics, 59, 888–894.

    Google Scholar 

  • Geist, R. A. (1970). Onset of chronic illness in children and adolescence: Psychotherapeutic and consultive intervention. American Journal of Orthopsychiatry, 49, 4–23.

    Google Scholar 

  • Gogan, J. L., Koocher, G. P., Fine, W. E., Foster, D. I., & O’Malley, J. E. (1979). Pediatric cancer survival and marriage: Issues affecting adult adjustment.American Journal of Orthopsychiatry, 49, 423–430.

    PubMed  Google Scholar 

  • Goggin, E., Lansky, S., & Hassanein, K. (1976). Psychological reactions of children with malignancies. Journal of the American Academy of Child and Adolescent Psychiatry, 14, 314–325.

    Google Scholar 

  • Gotay, C. C. (1987). Quality of life among survivors of childhood cancer: A critical review and implications for interventions. Journal of Psychosocial Oncology, 5(4), 5–23.

    Google Scholar 

  • Graham, P., Rutter, M., Yule, W., & Press, I. (1967). Childhood asthma: A psychosomatic disorder? Clinical and epidemiological considerations. British Journal of Preventive Social Medicine, 21, 78–85.

    PubMed  Google Scholar 

  • Hauser, S. T., Pollets, D., Turner, B. L., Jacobson, A., Powers, S., & Noam, G. (1979). Ego development and self-esteem in diabetic adolescents. Diabetes Care, 2(6), 465–471.

    Google Scholar 

  • Hayden, P. W., Davenport, S. L. H., & Campbell, M. M. (1979). Adolescents with myelodysplasia: Impact of physical disability on emotional maturation. Pediatrics, 64, 53–59.

    PubMed  Google Scholar 

  • Herjanic, B., & Cambell, T. (1977). Differentiating psychiatrically disturbed children on the basis of a structural interview. Journal of Abnormal Child Psychology, 5, 127–134.

    PubMed  Google Scholar 

  • Herjanic, B., & Reich, W. (1982). Development of a structured psychiatric interview of children: Agreement between child and parent on individual symptoms.Journal of Abnormr “Child Psychology”, 10, 307–324.

    Google Scholar 

  • Herjanic, t., Herjanic, M., Brown, F., & Wheatt, T. (1975). Are children reliable reporters? Journal of Abnormal Child Psychology, 3, 41–48.

    PubMed  Google Scholar 

  • Hofman, M. D., & Becker, A. M. (1973). Psychotherapeutic approaches to the physically ill adolescent. International Journal of Child Psychotherapy, 2, 492–512.

    Google Scholar 

  • Holmes, H. A., & Holmes, F. F. (1975). After ten years, what are the handicaps and lifestyles of children treated for cancer? An examination of the present status of 124 such survivors. Clinical Pediatrics, 14, 819–823.

    PubMed  Google Scholar 

  • Hughes, J. G. (1976). The emotional impact of chronic disease.American Journal of the Diseases of Children, 130, 1199–1203.

    Google Scholar 

  • Hurtig, A., & White, L. (1986). Psychosocial adjustment in children and adolescents with sickle cell disease.Journal of Pediatric Psychology, 21(3), 411–427.

    Google Scholar 

  • Hurwitz, J. I., Kaplan, D. M., & Kaiser, E. (1962). Designing an instrument to assess parental coping mechanisms. Social Casework, 10, 527–532.

    Google Scholar 

  • Ireys, H. T, Moynihan, L. C., Perrin, J. M., & Shane, M. W. (1983). Chronically ill chĂĽdren in America: Background and recommendations. Center for the Study of Families and Children. Vanderbuilt Institute for Public Policy Studies.

    Google Scholar 

  • Jackson, D. (1965). Family rules: The marital quid pro quo. Archives of General Psychiatry, 12, 589–594.

    PubMed  Google Scholar 

  • Jensen, P. S. (1983). A study of risk, protective factors, and supportive intervention and patients with chronic airway obstruction. Archives of General Psychiatry, 40, 1203–1207.

    PubMed  Google Scholar 

  • Johnson, F. L., Rudolph, L., & Hartman, J. (1979). Helping the family cope with childhood cancer. Psychosomatics, 20, 241–251.

    PubMed  Google Scholar 

  • Johnson, S. B. (1980). Psychological factors in juvenile diabetes: A review. Journal of Behavioral Medicine, 3, 95–116.

    PubMed  Google Scholar 

  • Johnson, S. B., & Rosenbaum, A. L. (1982). Behavioral aspects of diabetes mellitus in childhood and adolescence. Pediatric Clinics of North America, 5, 357–369.

    Google Scholar 

  • Kagen, L. (1976). Use of denial in adolescents with bone cancer. Health and Social Work, 1(4), 71–86.

    Google Scholar 

  • Kagen-Goodheart, L. (1977). Reentry: Living with childhood cancer. American Journal of Orthopsychiatry, 47, 651–658.

    PubMed  Google Scholar 

  • Kashani, J., & Hakami, N. (1982). Depression in children and adolescents with malignancy. Canadian Journal of Psychiatry, 27, 474–477.

    Google Scholar 

  • Kashani, J., König, P., Shepperd, J., & Wilfley, D. (1988). Psychopathology and self-concept in asthmatic children. Journal of Pediatric Psychology, 13(4), 509–520.

    PubMed  Google Scholar 

  • Kaufman, R. V. (1972). Body-image changes in physically ill teenagers. Journal of the American Academy of Child Psychiatry, 11, 157–170.

    PubMed  Google Scholar 

  • Kaufman, R. V., & Hersher, B. (1971). Body changes in teenage diabetics.Pediatrics, 48, 123–128.

    PubMed  Google Scholar 

  • Kazdin, A. E., French, N. H., Unis, A. S., Esveldt-Dawson, K., & Sherick, R. S. (1983). Hopelessness, depression, and suicidal intent among psychiatrically disturbed inpatient children. Journal of Consulting Clinical Psychology, 51, 504–510.

    Google Scholar 

  • Kellerman, J., Zelter, L., Ellenberg, L., Dash, D., & Rigler, D. (1980). Psychological effects of illness in adolescents: Anxiety, self esteem, and perceptions of control. Journal of Pediatrics, 97, 126–131.

    PubMed  Google Scholar 

  • Kimball, C. P. (1971). Emotional and psychosocial aspects of diabetes mellitus. Pediatric Clinics of North America, 55, 1007–1018.

    Google Scholar 

  • Knowles, H. C. (1971). Diabetes mellitus in childhood and adolescence. Pediatric Clinics of North America, 55, 975–987.

    Google Scholar 

  • Koocher, G. P. (1980). Pediatric cancer: Psychosocial problems and the high cost of helping. Journal of Clinical Child Psychology, 8, 2–5.

    Google Scholar 

  • Koocher, G. P. (1986). Psychosocial issues during the acute treatment of pediatric cancer. Cancer, 58 (2 Supplement), 468–472.

    PubMed  Google Scholar 

  • Koocher, G. P., & O’Malley, J. E. (1981). The Damocles syndrome: Psychosocial consequences of surviving childhood cancer. New York: McGraw-Hill.

    Google Scholar 

  • Koocher, G. P., O’Malley, J. E., & Gogan, J. L. (1980). Psychological adjustment among pediatric cancer survivors. Journal of Child Psychology and Psychiatry, 21, 163–174.

    PubMed  Google Scholar 

  • Kosacoff, M., Seligman, B., & Dosik, H. (1974). Psychological aspects of Sickle cell and variants. Proceedings of the First National Symposium on Sickle Cell Disease. Rockville, MD: U. S. Department of Health and Human Services. Publication Number 75–723.

    Google Scholar 

  • Kovacs, M., Feinberg, T. L., Paulauskas, S., Finkelstein, R., Pollack, M., & Crouse-Novak, M. (1985). Initial coping responses and psychosocial characteristics of children with insulin dependent diabetes mellitus. Journal of Pediatrics, 106(5), 827–834.

    PubMed  Google Scholar 

  • Kuda, C., Drotar, D., Doershuk, C., Stern, R. C., Boat, T. F., & Matthews, L. (1979). Home observation of family interaction and childhood adjustments to cystic fibrosis. Journal of Pediatric Psychology, 4, 189–196.

    Google Scholar 

  • Kumar, S., Powars, D., & Haywood, L. (1976). Anxiety, self-concept, and personal and social adjustments in children with sickle cell anemia. Pediatrics, 88, 859–865.

    Google Scholar 

  • Lawler, R. H., Nakielny, W., & Wright, N. A. (1966). Psychological implications of cystic fibrosis. Canadian Medical Association Journal, 94, 1043–1046.

    PubMed  Google Scholar 

  • LeBaron, S., & Zeltzer, L. (1985). The role of imagery in the treatment of dying children and adolescents. Journal of Developmental Behavioral Pediatrics, 6(5), 252–258.

    Google Scholar 

  • LeBaron, S. Zeltzer, L. K., Ratner, P., & Kniker, W. T. (1985). A controlled study of education for improving compliance with cromolynb sodium (Intal): the importance of physician-patient communication. Annals of Allergy, 55(6), 811–818.

    PubMed  Google Scholar 

  • Leventhal, J. M. (1984). Psychosocial assessment of children with chronic physical disease. Pediatric Clinics of North America, 31(1), 71–85.

    PubMed  Google Scholar 

  • Marda, J. (1966). Development and validation of ego identity status. Journal of Personality and Social Psychology, 3, 551–558.

    Google Scholar 

  • Mattsson, A. (1972). Long-term physical illness in childhood: A challenge to psychosodal adaptation. Pediatrics, 50, 801.

    PubMed  Google Scholar 

  • McAnamey, E., Pless, I. B., Satterwhite, B., & Friedman, S. (1974). Psychological problems of children with juvenile rheumatoid arthritis. Pediatrics, 53, 523–535.

    Google Scholar 

  • Moise, J. (1986). Toward a model of competence and coping. In A. Hurtig & C. Viera (Eds.), Sickle cell disease: Psychological and psychosocial issues. Champaign, II: University of Illinois Press.

    Google Scholar 

  • Mrazek, D. A. (1985). Childhood asthma. Advances in Psychosomatic Medicine, 14, 16–32.

    PubMed  Google Scholar 

  • Mrazek, D. A. (1986). Childhood asthma: Two central questions for child psychiatry. Journal of Child Psychiatry, 27, 1–5.

    Google Scholar 

  • Mrazek, D., Anderson, I., & Strunk, R. (1985). Disturbed emotional development of severely asthmatic preschool children. In J. Stevenson (Ed.),Recent research in developmental psychopathology. Journal of Child Psychology & Psychiatry (Book Suppl. No. 4, pp. 81–94). Oxford: Pergamon Press.

    Google Scholar 

  • Nagera, H. (1978). Children’s reactions to hospitalization and illness. Child Psychiatry and Human Development, 9(1), 3–19.

    PubMed  Google Scholar 

  • Nannis, E., Susman, E., Strope, B., Woodruff, P., Hersh, S., Levine, A., & Pizzo, P. (1982). Correlates of control in pediatric cancer patients and their families. Journal of Pediatric Psychology, 7, 174–180.

    Google Scholar 

  • Newacheck, P. W., Budetti, P. P., & Halfon, N. (1986). Trends in activity-limiting chronic conditions among children. American Journal of Public Health, 76(2), 178–184.

    PubMed  Google Scholar 

  • Nishiura, E., & Whitten, C. (1980). Psychosocial problems in families of children with sickle cell anemia. Urban Health, 9, 32–35.

    Google Scholar 

  • Norrish, M., Tooley, M., & Godfrey, S. (1977). Clinical, psychological, and psysiological study of asthmatic children attending a hospital clinic. Archives of Disease in Childhood, 52, 912–917.

    PubMed  Google Scholar 

  • Nucholls, K. v., Cassell, J., & Chaplin, B. H. (1972). Psychosocial aspects, life crisis and prognosis in pregnancy. American Journal of Obstetrics, 95, 431–441.

    Google Scholar 

  • Orr, D. P., Weiler, S. C., Satterwhite, B., & Pless, I. B. (1984). Psychosocial implications of chronic illness in adolescence. Journal of Pediatrics, 104(1), 152–157.

    PubMed  Google Scholar 

  • Pandes, W, & Ziller, R. (1981). The self-perceptions of children with asthma and asthmaenuesis. Journal of Psychosomatic Research, 25, 51–56.

    Google Scholar 

  • Perrin, E. C., & Gerrity, P. S. (1974). Development of children with chronic illness.Pediatric Clinics of North America, 31(1), 19–31.

    Google Scholar 

  • Perrin, J. M. (1986). Chronically ill children: An overview. In S. G. Garwood (Ed.), Topics in early childhood special education: Chronically ill children. Austin, TX: Pro-Ed.

    Google Scholar 

  • Pless, I. B. (1984). Clinical assessment: Physical and psychological functioning. Pediatric Clinics of North America, 31(1), 259–273.

    PubMed  Google Scholar 

  • Pless, I. B., & Pinkerton, P. (1975). Chronic childhood disorder: Promoting patterns of adjustment. Chicago: Year Book Medical Publications.

    Google Scholar 

  • Pless, I. B., & Roghmann, K. (1971). Chronic illness and its consequences: Results from three epidemiological surveys.Journal of Pediatrics, 79, 351–359.

    PubMed  Google Scholar 

  • Plutchnik, R., Williams, M. H., Jr., Jerret, I., Karasu, T. B., & Kane, C. (1978). Emotions, personality and life stresses in asthma. Journal of Psychosomatic Research, 22, 425–431.

    Google Scholar 

  • Prugh, D., Staub, E. M., Sands, H. H., Kirshbaum, R. M., & Leihan, E. A. (1953). A study of the emotional reactions of children and families to hospitalization and illness. American Journal of Orthopsychiatry, 23, 167–179.

    Google Scholar 

  • Purcell, K., & Weiss, J. H. (1970). Asthma. In C. G. Costello (Ed.), Symptoms of psycho- pathology. New York: Wiley.

    Google Scholar 

  • Reich, W, Herjanic, B., Welner, Z., & Gandhy, P. R. (1982). Development of a structured psychiatric interview for children: Agreement on diagnosis comparing child and parent interviews. Journal of Abnormal Child Psychology, 10(4), 325–336.

    PubMed  Google Scholar 

  • Reiss, D. (1981). The family’s construction of reality. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Schowalter, J. E. (1977). Psychological reactions to physical illness and hospitalization in adolescence. Journal of the American Academy of Child Psychiatry, 16, 500–516.

    PubMed  Google Scholar 

  • Schachman, H. & Kulczycki, L. (1958). Long-term Study of 105 patients with cystic fibrosis. American Journal of Diseases of Children, 96, 6–15.

    Google Scholar 

  • Sillanpaa, M. (1987). Social adjustment and functioning of chronically ill and iihpaired children and adolescents. Acta Paediatrica Scandinavia, 340(Supplement), 1–70.

    Google Scholar 

  • Skipper, J. K., & Leonard, R. C. (1972). The mental health of siblings of congenitally abnormal children. Journal of Child Psychology and Psychiatry, 13, 211–218.

    Google Scholar 

  • Spinetta, J. (1977). Adjustment in children with cancer. Journal of Pediatric Psychology, 2, 49–51.

    Google Scholar 

  • Spinetta, J. J. (1981). Adjustment and adaptation in children with cancer: A 3-year study. In J. J. Spinetta & P. Deasy-Spinetta (Eds.), Living with childhood cancer (pp. 5–23). St. Louis: Mosby.

    Google Scholar 

  • Spinetta, J., & Deasy-Spinetta, P. (1981). Living with childhood cancer. St. Louis, MO: C. V. Mosby.

    Google Scholar 

  • Starfield, B. (1983). The state of research on chronically all children. Center for the Study of Families and Children. Vanderbuilt Institute for Public Policy Studies.

    Google Scholar 

  • Stein, R. & Jessop, D. J. (1982). A non-categorical approach to chronic childhood illness. Public Health Reports, 97(4), 354–362.

    PubMed  Google Scholar 

  • Stein, R., & Jessop, D. J. (1984). Relationship between health status and psychological adjustments among children with chronic conditions. Pediatrics, 73(2), 169–174.

    PubMed  Google Scholar 

  • Stein, S. P., & Charles, E. (1971). Emotional factors in juvenile diabetes mellitus: A study of early life experiences of adolescent diabetes. American Journal of Psychiatry, 128, 700–704.

    PubMed  Google Scholar 

  • Steinhausen, H. (1982). Locus of control among psychosomatically and chronically ill children and adolescents. Journal of Abnormal Child Psychology, 10, 609–616.

    PubMed  Google Scholar 

  • Steinhausen, H., Schindler, H., & Stephan, H. (1983). Correlates of psychopathology in sick children: An empirical model. Journal of American Academy of Child Psychiatry, 22, 559–564.

    Google Scholar 

  • Strunk, R., Mrazek, D., Wolfson, F., & LaBrecque, J. (1985). Psychologic and psychological characteristics associated with death due to asthma in childhood: A case controlled study Journal of the American Medical Association, 245, 1193–1198.

    Google Scholar 

  • Sullivan, B. J. (1979). Adjustment in diabetic adolescent girls: Depression in diabetic adolescent girls. Psychosomatic Medicine, 41, 127–138.

    PubMed  Google Scholar 

  • Swift, C., Seidman, F., & Stein, H. (1967). Adjustment problems in juvenile diabetics. Psychosomatic Medicine, 29, 555–570.

    PubMed  Google Scholar 

  • Tattersall R. B., & Lowe, J. (1981). Diabetes in adolescence. Diabetologia, 20, 517–523.

    PubMed  Google Scholar 

  • Tavormina, J. B., Kastner, L. S., Slater, P. M., & Watt, S. (1976). Chronically ill children: A psychologically and emotionally deviant population? Journal of Abnormal Child Psychology, 4, 99–110.

    PubMed  Google Scholar 

  • Teta, M. J., DelPo, M. D., Kasl, S. V., Meigs, J. W., Meyers, M. H., & Mulvihill, J. J. (1986). Psychological consequences of childhood and adolescent cancer survival.Journal of Chronic Disease, 39, 751–759.

    Google Scholar 

  • Wallander, J. L., Varni, J. W., Babani, L., Banis, H. T, & Wilcox, K. T. (1988). ChĂĽdren with chronic physical disorders: Maternal reports of their psychological adjustment. Journal of Pediatric Psychology, 13, 197–212.

    PubMed  Google Scholar 

  • Whitten, C. & Nishiura, E. (1985). Sickle cell anemia: Public policy issues. In N. Hobbs and J. Perrin (Eds.), Issues in the care of children with chronic illness (pp. 236–260). San Francisco: Jossey-Bass, Inc.

    Google Scholar 

  • Worchel, F., Nolan, B., Wilson, V., Purser, J., Copeland, D., & Pfefferbaum, B. (1988). Assessment of depression in children with cancer. Journal of Pediatric Psychology, 13(1), 101–112.

    PubMed  Google Scholar 

  • Zigler, E., Levine, J. & Gould, L. (1966). Cognitive processes in the development of children’s appreciation of humor. Child Development, 37, 507–518.

    PubMed  Google Scholar 

  • Zlatich, D., Kenny, T. J., SĂĽa, U., & Huang, S. (1982). Parent-child life events: Relation to treatment in asthma. Journal of Development and Behavioral Pediatrics, 3, 69–72.

    Google Scholar 

  • Zlatich, D., Kenny, T. J., SĂĽa, U., & Huang, S. (1982). Parent-chĂĽd life events: Relation to treatment in asthma. Journal of Development and Behavioral Pediatrics, 3, 69–72.

    Google Scholar 

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Barbarin, O.A. (1990). Adjustment to Serious Childhood Illness. In: Lahey, B.B., Kazdin, A.E. (eds) Advances in Clinical Child Psychology. Advances in Clinical Child Psychology, vol 13. Springer, Boston, MA. https://doi.org/10.1007/978-1-4613-9835-6_10

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  • DOI: https://doi.org/10.1007/978-1-4613-9835-6_10

  • Publisher Name: Springer, Boston, MA

  • Print ISBN: 978-1-4613-9837-0

  • Online ISBN: 978-1-4613-9835-6

  • eBook Packages: Springer Book Archive

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