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Insight and quality of life in chizophrenia spectrum disorders

An examination of their paradoxical relationship

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Quality of Life Impairment in Schizophrenia, Mood and Anxiety Disorders
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While interest has grown steadily in understanding how persons with schizophrenia appraise their disorder and subsequent needs, the nature of the impact of awareness or admission of disorder on various domains of quality of life has remained a matter of considerable debate. At the level of both theory and empirical study it has been alternately held that acknowledgement of one’s mental illness is a detriment and a key to successful adaptation. From one perspective, acceptance of illness has been advanced as a key to making informed decisions about one’s future, to free oneself from blame for difficulties linked with illness and to forming bonds with others who are aware of one’s difficulties. From another view, however, “awareness of illness” has been suggested to represent the acceptance of a system of social power in which one’s individuality and dignity is at risk of being diminished. Indeed empirical studies suggest both awareness and lack of awareness have significant risks associated with them. In this chapter we review this evidence and present data which suggest that the impact of insight on quality of life may be mitigated by the degree to which persons have internalized stigmatizing beliefs about their illness. Clinical and theoretical implications are discussed

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References

  1. Amador, XF, Strauss DH, Yale SA, & Gorman JM. Awareness of illness in schizophrenia. Schizophr Bull, 1991; 17: 113–132.

    PubMed  CAS  Google Scholar 

  2. David AS. Insight and psychosis. Br J Psychiatry, 1990; 156: 798–805.

    Article  PubMed  CAS  Google Scholar 

  3. Lysaker PH, Wickett AM, Wilke N & Lysaker JT. Narrative incoherence in schizophrenia: The absent agent-protagonist and the collapse of internal dialogue. Am J Psychotherapy, 2003; 57: 153–166.

    Google Scholar 

  4. Startup M. Awareness of own and others’ schizophrenic illness. Schizophr Res 1997; 29, 203–211.

    Article  Google Scholar 

  5. Pescosolido BA. Beyond rational choice: The social dynamics of how people seek help. American Journal of Sociology, 1997; 97: 1096–1138.

    Article  Google Scholar 

  6. Pescosolido BA. Illness careers and network ties: A conceptual model of utilization and compliance. Adv Med Sociol, 1991; 2: 161–184.

    Google Scholar 

  7. Bartko G, HerczegI, Zador G. Clinical symptomatology and drug compliance in schizophrenia. Acta Psychiatr Scand, 1988; 77: 74–76.

    PubMed  CAS  Google Scholar 

  8. Cuffel BJ, Alford J, Fischer EP, Owen RR. Awareness of illness in schizophrenia and outpatient treatment compliance. J Nerv Ment Dis 1996; 184: 653–659.

    Article  PubMed  CAS  Google Scholar 

  9. Olfson M, Marcus SC, Wilk J, West JC. Awareness of illness and nonadherence to antipsychotic medications among persons with schizophrenia. Psychiatr Serv, 2006; 57: 205–211.

    Article  PubMed  Google Scholar 

  10. Schwartz RC. The relationship between insight, illness and treatment outcome in schizophrenia. Psychiatr Q 1998; 69: 1–22.

    Article  PubMed  CAS  Google Scholar 

  11. Heinrichs DW, Cohen BP, & Carpenter WT (1985) Early insight and the management of schizophrenic decompensation. J Nerv Ment Dis, 1985; 173: 133–138.

    CAS  Google Scholar 

  12. McEvvoy JP, Freter S, Everett G, Geller JL, Appelbaum P, Apperson LJ, & Roth L Insight and clinical outcome of schizophrenic patients. J Nerv Ment Dis, 1989;177(1): 48–51.

    Article  Google Scholar 

  13. Keshavan MS, Rabinowitz J, DeSmedt G, Harvey PD & Schooler N. Correlates of insight in first episode psychosis. Schizophr Res, 2004; 70: 187–194.

    Article  PubMed  Google Scholar 

  14. Mintz AR, Addington J & Addington D. Insight in early psychosis: A one year follow up. Schizophr Res, 2004; 67: 213–218.

    Article  PubMed  Google Scholar 

  15. Francis JL, Penn, DL. The relationship between insight and social skill in persons with severe mental illness. J Nerv Ment Dis, 2001; 189: 822–829.

    Article  PubMed  CAS  Google Scholar 

  16. Lysaker PH, Bell MD, Bryson GJ, Kaplan EZ. Insight and interpersonal function in schizophrenia. J Nerv Ment Dis 1998; 186: 432–436.

    Article  PubMed  CAS  Google Scholar 

  17. Debowska G, Grzywa A & Kucharska-Pieture K . Insight in paranoid schizophrenia: Its relationship to psychopathology and premorbid adjustment. Compr Psychiatry, 1998; 39: 255–260.

    Article  PubMed  CAS  Google Scholar 

  18. Lysaker PH, Bryson GJ, Bell MD. Insight and work performance in schizophrenia. J Nerv Ment Dis, 2002; 190: 142–146.

    Article  PubMed  Google Scholar 

  19. Mintz AR, Dobson KS, Romney, DM. Insight in schizophrenia: A meta-analysis. Schizophr Res, 2003; 61: 75–88.

    Article  PubMed  Google Scholar 

  20. Pyne JM, Bean D, Sullivan G. Characteristics of patients with schizophrenia who do not believe they are mentally ill. J Nerv Ment Dis, 2001; 189: 146–153.

    Article  PubMed  CAS  Google Scholar 

  21. Moore O, Cassidy E, Carr A, O’Callaghan E. Unawareness of illness and its relationship with depression and self-deception in schizophrenia. Eur Psychiatry, 1999; 14: 264–269.

    Article  PubMed  CAS  Google Scholar 

  22. Warner R, Taylor D, Powers M, Hyman, R. Acceptance of the mental illness label by psychotic patients: effects on functioning. Am J Orthopsychiatry, 1989; 59: 389–409.

    Google Scholar 

  23. Thompson EH. Variations in the self-concept of young adult chronic patients: Chronicity reconsidered. Hosp Comm Psychiatry, 1988; 39: 771–775.-2

    Google Scholar 

  24. Kravetz, S., Faust, M., & David, M. Accepting the mental illness label, perceived control over the illness, and quality of life. Psychiatr Rehabil J, 2000; 23: 323–332.

    Google Scholar 

  25. Hasson-Ohayon I, Kravetz S, Roe D, Weiser M. Insight Into Severe Mental illness, Perceived Control Over the Illness, And Quality of Life. Compr Psychiatry, 2006; 47: 265–269.

    Article  PubMed  Google Scholar 

  26. Roe D, Kravetz S. Different Ways of Being Aware of and Acknowledging a Psychiatric Disability. A Multifunctional NarrativeApproach to Insight into Mental Disorder. J Nerv Ment Dis, 2003; 191:417–24.

    PubMed  Google Scholar 

  27. Lysaker, P. H., Clements, C. A., Plascak-Hallberg, C. D., Knipscheer, S. J., & Wright, D.E. Insight and personal narratives of illness in schizophrenia. Psychiatry, 2002; 65(3): 197–206.

    PubMed  Google Scholar 

  28. Lambert, BL, Levy, N A, & Winer, J. Keeping the Balance and Monitoring the Self-System: Towards a More Comprehensive Model of Medication Management in Psychiatry. In D. Brashers and D. Goldsmith (Eds.), Communication and the Management of Health and Illness. New Jersey, Erlbaum, (in press).

    Google Scholar 

  29. Carter, B, Lambrenos, K, Thursfielf, J. A pain workshop: an approach to eliciting the views of young people with chronic pain. J Clin Nurs, 2002; 11: 753–762.

    Article  PubMed  Google Scholar 

  30. Witt Sherman, D. The perceptions and experiences of patients with AIDS: implications egarding quality of life and palliative care. Journal of Hospice and Palliative Nursing, 2001; 3(1):7–16.

    Google Scholar 

  31. Juraskova, I, Butow, P, Robertson, R, Sharpe, L, McLeod, C, & Hacker, N. Post- treatment sexual adjustment following cervical and endometrial cancer: a qualitative insight. Psycho-Oncology, 2003; 2: 267–279.

    Article  Google Scholar 

  32. Swindle, R., Heller, K., Pescosolido, BA. & Kikuzawa, S. Responses to nervous breakdowns in America over a 40-year period: Mental health policy implications. Am Psychol, 2000; 55: 740–749.

    Article  PubMed  Google Scholar 

  33. Link, BG., Phelan, M., Bresnahan, M., Stueve, A. & Pescosolido, BA. Public conceptions of mental illness: Labels, causes, dangerousness and social distance. Am J of Public Hea, 1999; 89: 1328–1333.

    CAS  Google Scholar 

  34. Pescosolido, BA., Monahan, J., Link, B.G., Stueve, A. & Kikuzawa, S. The public’s view of the competence, dangerousness, and need for legal coercion of person with mental health problems. Am J of Public Hea, 1999; 89: 1339–1345.

    Article  CAS  Google Scholar 

  35. Martin, JK, Pescosolido, BA & Tuch, SA. Of fear and loathing: The role of ‘‘disturbing behavior,’’ labels and causal attributions in shaping public attitudes toward persons with mental illness. J Health Soc Behav, 2000; 41(2):208–233.

    Article  Google Scholar 

  36. Lysaker PH, Roe D & Yanos PT. Toward Understanding the Insight Paradox: Internalized Stigma Moderates the Association Between Insight and Social Functioning, Hope and Self-Esteem Among People with Schizophrenia Spectrum Disorders. Schizophr Bull, (in press).

    Google Scholar 

  37. Amador XF, Strauss DH, Yale SA, Flaum MM, Andreasen NC, Yale SA, Clark SC, Gorman JM. Awareness of illness in schizophrenia. Arch Gen Psychiatry 1994; 51: 826–836.

    PubMed  CAS  Google Scholar 

  38. Ritsher JB, Otilingam PG, Grajales M. Internalized stigma of mental illness: Psychometric properties of a new measure. Psychiatric Res 2003; 121: 31–49.

    Article  Google Scholar 

  39. Beck AT, Weissman A, Lester D, Trexler L. The measurement of pessimism: The Hopelessness Scale. J Consult Clin Psychol 1974; 42: 861–865.

    Article  PubMed  CAS  Google Scholar 

  40. O’Brien EJ, Epstein S. MSEI: The multidimensional self-esteem inventory Professional Manual. Psychological Assessment Resources, Inc., Lutz FL, 1998.

    Google Scholar 

  41. Heinrichs, DW, Hanlon TE, Carpenter WT. The Quality of Life Scale: An instrument for assessing the schizophrenic deficit syndrome. Schizophr Bull 1984; 10: 388–396.

    PubMed  CAS  Google Scholar 

  42. Lysaker PH, Davis LD, Eckert GJ, Strasburger A, Hunter N, Buck, KD. Changes in narrative structure and content in schizophrenia in long term individual psychotherapy: A single case study. Clin Psychol Psychotherapy 2005; 12: 406–416.

    Article  Google Scholar 

  43. Lysaker PH, Buck KD, Hammoud, K, Taylor, AC, Roe D. Associations of symptom remission, psychosocial function and hope with qualities of self experience in schizophrenia: Comparisons of objective and subjective indicators of recovery. Schizophr Res 2006; 82: 241–249.

    Article  PubMed  Google Scholar 

  44. Roe D, Davidson L. Self and narrative in schizophrenia: time to author a new story, J. Med. Humanit 2005; 31: 89–94.

    Article  Google Scholar 

  45. Lysaker PH, Lysaker, JT. A typology of narrative impoverishment in schizophrenia: Implications for understanding the processes of establishing and sustaining dialogue in individual psychotherapy. Couns Psychol Q, 2006; 19: 57–68.

    Article  Google Scholar 

  46. Elliot, TR, Uswatte, G, Lewis, L, Palmatier, A. (2000). Goal instability and adjustment to physical disability. J Couns Psychol. 2000; 47(2):251–265.

    Article  Google Scholar 

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Lysaker, P.H., Louria, S. (2007). Insight and quality of life in chizophrenia spectrum disorders. In: Ritsner, M.S., Awad, A.G. (eds) Quality of Life Impairment in Schizophrenia, Mood and Anxiety Disorders. Springer, Dordrecht. https://doi.org/10.1007/978-1-4020-5779-3_11

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  • DOI: https://doi.org/10.1007/978-1-4020-5779-3_11

  • Publisher Name: Springer, Dordrecht

  • Print ISBN: 978-1-4020-5777-9

  • Online ISBN: 978-1-4020-5779-3

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