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01-10-2011 | Original Paper | Uitgave 10/2011

Changes in the Mother–Child Relationship During the Transition to Adulthood for Youth with Autism Spectrum Disorders

Tijdschrift:: Journal of Autism and Developmental Disorders > Uitgave 10/2011

Auteurs:: Julie Lounds Taylor, Marsha Mailick Seltzer

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Abstract

We examined whether exiting high school was associated with changes in the mother–child relationship. Participants were 170 mothers of youth with ASD who were part of our larger longitudinal study and who exited high school during the study; data were collected four times over 7 years. Results indicated improvement in the mother–child relationship while in high school; however, improvement in all indices slowed or stopped after exit. Mothers of youth with ASD without an intellectual disability (ID) and who had more unmet service needs evidenced the least improvement after exit. Our findings provide further evidence that the years after high school exit are a time of increased risk, especially for those with ASD without ID and whose families are under-resourced.

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Meer informatie

Abbeduto, L., Seltzer, M. M., Shattuck, P. T., Krauss, M. K., Orsmond, G. I., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with Autism, down syndrome, of Fragile X syndrome. American Journal on Mental Retardation, 103, 237–254. CrossRef

Barrowclough, C., & Hooley, J. M. (2003). Attributions and expressed emotion: A review. Clinical Psychology Review, 23, 849–880. PubMedCrossRef

Beck, A., Daley, D., Hastings, R. P., & Stevenson, J. (2004). Mothers’ expressed emotion towards children with and without intellectual disabilities. Journal of Intellectual Disability Research, 48, 628–638. PubMedCrossRef

Bengtson, V. L., & Allen, K. R. (1993). The life course perspective applied to families over time. In P. Boss, W. Doherty, R. LaRossa, W. Schumm, & S. Steinmetz (Eds.), Sourcebook of family theories and methods: A contextual approach (pp. 469–498). New York: Plenum Press. CrossRef

Bengtson, V. L., & Schrader, S. S. (1982). Parent-child relationships. In D. J. Mangon & W. A. Peterson (Eds.), Research instruments in social gerontology (Vol. 2) (pp. 115–185). Minneapolis: University of Minnesota Press.

Bouma, R., & Schweitzer, R. (1990). The impact of chronic childhood illness of family stress: A comparison between autism and cystic fibrosis. Journal of Clinical Psychology, 46, 722–730. PubMedCrossRef

Bruininks, R. H., Woodcock, R. W., Weatherman, R. F., & Hill, B. K. (1996). Scales of independent behavior revised. Rolling Meadows, IL: Riverside Publishing.

Bryk, A. S., & Raudenbush, S. W. (1987). Application of hierarchical linear models to assessing change. Psychological Bulletin, 101, 147–158. CrossRef

Bryson, S. E., & Smith, I. M. (1998). Epidemiology of autism: Prevalence, associated characteristics, and implications for research and service delivery. Mental Retardation and Developmental Disabilities Research Reviews, 4, 97–103. CrossRef

Butzlaff, R., & Hooley, J. (1998). Expressed emotion and psychiatric relapse. Archives of General Psychiatry, 55, 547–552. PubMedCrossRef

Caspi, A., Moffit, T., Morgan, J., Rutter, M., Taylor, A., Arseneault, L., et al. (2004). Maternal expressed emotion predicts children’s antisocial behavior problems: Using monozygotic-twin differences to identify environmental effects on behavioral development. Developmental Psychology, 40, 149–161. PubMedCrossRef

Donovan, A. M. (1988). Family stress and ways of coping with adolescents who have handicaps: Maternal perceptions. American Journal on Mental Retardation, 92, 502–509. PubMed

Dossetor, D. R., Nichol, A. R., Stretch, D. D., & Rajkhowa, S. J. (1994). A study of expressed emotion in the parental primary carers of adolescents with intellectual impairment. Journal of Intellectual Disability Research, 38, 487–499. PubMedCrossRef

Dumas, J. E., Wolf, L. C., Fisman, S. N., & Culligan, A. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, behavior disorders, and normal development. Exceptionality, 2, 97–110. CrossRef

Eaves, L. C., & Ho, H. H. (2008). Young adult outcomes of autism spectrum disorders. Journal of Autism and Developmental Disorders, 38, 739–747. PubMedCrossRef

Farley, M. A., McMahon, W. M., Fombonne, E., Jenson, W. J., Miller, J., Gardner, M., et al. (2009). Twenty-year outcome for individuals with autism and average of near-average cognitive abilities. Autism Research, 2, 109–118. PubMedCrossRef

Fombonne, E. (2003). Epidemiological surveys of autism and other pervasive developmental disorders: An update. Journal of Autism and Developmental Disorders, 33, 365–382. PubMedCrossRef

Fong, L., Wilgosh, L., & Sobsey, D. (1993). The experience of parenting an adolescent with autism. International Journal of Disability, Development, and Education, 40, 105–113. CrossRef

Francis, D. J., Fletcher, J. M., Steubing, K. K., Davidson, K. C., & Thompson, N. M. (1991). Analysis of change: Modeling individual growth. Journal of Consulting and Clinical Psychology, 59, 27–37. PubMedCrossRef

Fussell, E., & Furstenberg, F. F. (2005). The transition to adulthood during the twentieth century. In R. A. Settersten, F. F. Furstenberg, & R. G. Rumbaut (Eds.), On the frontier of adulthood: Theory, research and public policy (pp. 29–75). Chicago: University of Chicago Press.

Gillberg, C., & Steffenburg, S. (1987). Outcome and prognostic factors in infantile autism and similar conditions: A population-based study of 46 cases followed through puberty. Journal of Autism and Developmental Disorders, 17, 273–287. PubMedCrossRef

Glutting, J. J., Adams, W., & Sheslow, D. (2000). Wide range intelligence test. Wilmington, DE: Wide Range.

Greenberg, J. S., Seltzer, M. M., Hong, J., & Orsmond, G. I. (2006). Bidirectional effects of expressed emotion and behavior problems and symptoms in adolescents and adults with autism. American Journal on Mental Retardation, 111, 229–249. PubMedCrossRef

Greenberg, J. S., Seltzer, M. M., Krauss, M. W., Chou, R. J., & Hong, J. (2004). The effect of quality of the relationship between mothers and adult children with disabilities: The mediating role of optimism. American Journal of Orthopsychiatry, 74, 14–25. PubMedCrossRef

Hahlweg, K., Goldstein, M. J., Nuechterlein, K. H., Magana, A. B., Mintz, J., Doane, J. A., et al. (1989). Expressed emotion and patient-relative interaction in families of recent onset schizophrenics. Journal of Consulting and Clinical Psychology, 57, 11–18. PubMedCrossRef

Hastings, R. P., Daley, D., Burns, C., & Beck, A. (2006). Maternal distress and expressed emotion: Cross-sectional and longitudinal relationships with behavior problems of children with intellectual disabilities. American Journal on Mental Retardation, 111, 48–61. PubMedCrossRef

Holroyd, J., & McArthur, D. (1976). Mental retardation and stress on the parents: A contrast between Down’s syndrome and childhood autism. American Journal on Mental Deficiency, 80, 431–436.

Howlin, P. (2005). Outcomes in autism spectrum disorders. In F. R. Volkmar, R. Paul, A. Klin, & D. Cohen (Eds.), Handbook of autism and developmental disorders, vol. 1: Diagnosis, development, neurobiology, and behavior (3rd ed., pp. 201–220). Hoboken, NJ: Wiley.

Howlin, P., Alcock, J., & Burkin, C. (2005). An 8 year follow-up of a specialist supported employment service for high-ability adults with autism or Asperger syndrome. Autism, 9, 533–549. PubMedCrossRef

Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with Autism. Journal of Child Psychology and Psychiatry, 45, 212–229. PubMedCrossRef

Kidwell, J., Fischer, J. L., Dunham, R. M., & Baranowski, M. (1983). Parents and adolescents: Push and pull of change. In H. I. McCubbin & D. R. Figley (Eds.), Stress in the family: Coping with normative transitions (pp. 74–89). New York: Bruner.

Krauss, M. W., Seltzer, M. M., & Jacobson, H. T. (2005). Adults with autism living at home or in non-familial settings: Positive and negative aspects of residential status. Journal of Intellectual Disability Research, 49, 111–124. PubMedCrossRef

Lam, D., Giles, A., & Lavender, A. (2003). Carers’ expressed emotion, appraisal of behavioural problems and stress in children attending schools for learning disabilities. Journal of Intellectual Disability Research, 47, 456–463. PubMedCrossRef

Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., et al. (2008). Disparities in diagnosis and access to health services for children with autism: Data from the national survey of children’s health. Journal of Developmental and Behavioral Pediatrics, 29, 152–160. PubMedCrossRef

Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism diagnostic interview-revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal on Mental Retardation, 112, 401–417.

Lounds, J., Seltzer, M. M., Greenberg, J. S., & Shattuck, P. T. (2007). Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being. American Journal on Mental Retardation, 112, 401–417. PubMedCrossRef

Luckasson, R., Borthwick-Duffy, S., Buntinx, W. H. E., Coulter, D. L., Craig, E. M., Reeve, A., et al. (2002). Mental retardation: Definition, classification, and systems of supports (10th ed.). Washington, DC: American Association on Mental Retardation.

Mandell, D. S., Novak, M. M., & Zubritsky, C. D. (2005). Factors associated with age of diagnosis among children with autism spectrum disorders. Pediatrics, 116, 1480–1486. PubMedCrossRef

McCarty, C., Lau, A., Valeri, S., & Weisz, J. (2004). Parent-child interactions in relation to critical and emotionally overinvolved expressed emotion (EE): Is EE a proxy for behavior? Journal of Abnormal Child Psychology, 32, 83–93. PubMedCrossRef

Montemayor, R., Eberly, M., & Flannery, D. J. (1993). Effects of pubertal status and conversation topic on parent and adolescent affective expression. Journal of Early Adolescence, 13, 431–447. CrossRef

Moore, E., & Kuipers, E. (1999). The measurement of expressed emotion in relationships between staff and services users: The use of short speech samples. British Journal of Clinical Psychology, 38, 345–356. PubMedCrossRef

Orsmond, G., Seltzer, M., Greenberg, J., & Krauss, M. (2006). Mother-child relationship quality among adolescents and adults with autism. American Journal on Mental Retardation, 111, 121–137. PubMedCrossRef

Raudenbush, S. W., & Bryk, A. S. (2002). Hierarchical linear models: Applications and data analysis methods (2nd ed.). Thousand Oaks, CA: Sage.

Rodrigue, J. R., Morgan, S. B., & Geffken, G. R. (1990). Families of autistic children: Psychological functioning of mothers. Journal of Clinical Psychology, 19, 371–379.

Rossi, A. S., & Rossi, P. H. (1990). Of human bonding: Parent-child relations across the life course. New York: de Gruyter.

Ryff, C. D., & Seltzer, M. M. (Eds.). (1996). The parental experience at midlife. Chicago: University of Chicago Press.

Seltzer, M. M., Greenberg, J. S., Taylor, J. L., Smith, L., Orsmond, G. I., Esbensen, A., & Hong, J. (in press). Adolescents and adults with Autism spectrum disorders. In D. G. Amaral, G. Dawson, & D. H. Geschwind (Eds.), Autism Spectrum Disorders. New York: Oxford University Press.

Seltzer, M. M., Krauss, M. W., Orsmond, G. I., & Vestal, C. (2001). Families of adolescents and adults with autism: Uncharted territory. International Review of Research in Mental Retardation, 23, 267–294. CrossRef

Seltzer, M. M., Krauss, M. W., Shattuck, P. T., Orsmond, G., Swe, A., & Lord, C. (2003). The symptoms of autism spectrum disorders in adolescence and adulthood. Journal of Autism and Developmental Disorders, 33, 565–581. PubMedCrossRef

Singer, J. D., & Willett, J. B. (2003). Applied longitudinal data analysis: Modeling change and even occurrence. Oxford, England: Oxford University Press.

Smith, G. C. (1997). Aging families of adults with mental retardation: Patterns and correlates of service use, need, and knowledge. American Journal on Mental Retardation, 102, 13–26. PubMedCrossRef

Smith, L., Greenberg, J., Seltzer, M., & Hong, J. (2008). Symptoms and behavior problems of adolescents and adults with autism: Effects of mother-child relationship quality, warmth, and praise. American Journal on Mental Retardation, 113, 387–402. PubMedCrossRef

Sparrow, S. S., Carter, A. S., & Cicchetti, D. V. (1993). Vineland screener: Overview, reliability, validity, administration, and scoring. New Haven: Yale University Child Study Center.

Stephens, M. P., & Kinney, J. M. (1989). Caregiver stress instruments: Assessment of content and measurement quality. Gerontology Review, 2, 40–54.

Tarrier, N., Barrowclough, C., Ward, J., Donaldson, C., Burns, A., & Gregg, L. (2002). Expressed emotion and attributions in the carers of patients with Alzheimer’s disease: The effect of carer burden. Journal of Abnormal Psychology, 111, 340–349. PubMedCrossRef

Taylor, J. L., & Seltzer, M. M. (2010a). Changes in the autism behavioral phenotype during the transition to adulthood. Journal of Autism and Developmental Disorders, 40, 1431–1446. PubMedCrossRef

Taylor, J. L., & Seltzer, M. M. (2010b). Employment and post-secondary education activities for young adults with Autism Spectrum Disorders during the transition to adulthood. Journal of Autism and Developmental Disorders. doi: 10.1007/s10803-010-1070-3.

Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007). Access to care for autism-related services. Journal of Autism and Developmental Disorders, 37, 1902–1912. PubMedCrossRef

Van Humbeeck, G., Van Audenhove, C., De Hert, M., Pieters, G., & Storms, G. (2002). Expressed emotion: A review of assessment instruments. Clinical Psychology Review, 22, 321–341. CrossRef

Vaughn, C. E., & Leff, J. P. (1976). The influence of family and social factors on the course of psychiatric illness. British Journal of Psychiatry, 129, 125–137. PubMedCrossRef

Wearden, A., Tarrier, N., Barrowclight, C., Zastowny, T., & Rahill, A. (2000). A review of expressed emotion research in health care. Clinical Psychology Review, 20, 633–666. PubMedCrossRef

Weisman, A., Lopez, S. R., Karno, M., & Jenkins, J. (1993). An attributional analysis of expressed emotion in Mexican-American families with schizophrenia. Journal of Abnormal Psychology, 102, 601–606. PubMedCrossRef

Wolf, L. C., Noh, S., Fisman, S. N., & Speechley, M. (1989). Psychological effects of parenting stress on parents of autistic children. Journal of Autism and Developmental Disorders, 19, 157–166. PubMedCrossRef

Woo, S. M., Goldstein, M. J., & Nuechterlein, K. H. (2004). Relatives’ affective style and the expression of subclinical psychopathology in patients with schizophrenia. Family Process, 43, 233–247. PubMedCrossRef

Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20, 649–655. PubMedCrossRef

Titel: Changes in the Mother–Child Relationship During the Transition to Adulthood for Youth with Autism Spectrum Disorders
Auteurs:: Julie Lounds Taylor
Marsha Mailick Seltzer
Publicatiedatum: 01-10-2011
DOI: https://doi.org/10.1007/s10803-010-1166-9
Uitgeverij: Springer US
Tijdschrift: Journal of Autism and Developmental Disorders
Uitgave 10/2011
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432

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