Skip to main content
Bohn Stafleu van Loghum
ZOEKEN
MENU 1 2 3 4
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Journal of Autism and Developmental Disorders 4/2018

11-10-2017 | S.I. : Parenting Children with ASD

Challenges of Females with Autism: A Parental Perspective

Auteurs: Marilena Mademtzi, Pavita Singh, Fred Shic, Kathy Koenig

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2018

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

Most studies investigating the experiences and needs of individuals with ASD have largely focused on males. Hence, this study investigates parents’ perspectives on the challenges that their daughters with ASD face. In total, 40 parents of 40 females with autism (age range = 4–29 years; mean = 15.9) participated in the study. Five separate, 2-h long focus groups were conducted, with 7–10 participants in each group. Field notes were analyzed using thematic analysis. Some of the issues parents discussed were similar to those experienced by males with ASD, such as challenges in social interactions. However, other issues discussed were of particular relevance to girls with ASD, including difficulties socializing with other girls, sex-specific puberty issues, barriers in accessing intervention and sexual vulnerability.
vorige artikel Emotion Regulation Strategies in Preschoolers with Autism: Associations with Parent Quality of Life and Family Functioning
volgende artikel Family-centered Services for Children with ASD and Limited Speech: The Experiences of Parents and Speech-language Pathologists
Literatuur
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5 ®). Arlington: American Psychiatric Pub. CrossRef
Aronson, J. (1995). A pragmatic view of thematic analysis. The Qualitative Report, 2(1), 1–3.
Baron-Cohen, S., Lombardo, M. V., Auyeung, B., Ashwin, E., Chakrabarti, B., & Knickmeyer, R. (2011). Why are autism spectrum conditions more prevalent in males? PLoS Biology, 9(6), e1001081. CrossRefPubMedPubMedCentral
Bauminger, N., Finzi-Dottan, R., Chason, S., & Har-Even, D. (2008). Intimacy in adolescent friendship: The roles of attachment, coherence, and self-disclosure. Journal of Social and Personal Relationships, 25(3), 409–428. CrossRef
Begeer, S., Mandell, D., Wijnker-Holmes, B., Venderbosch, S., Rem, D., Stekelenburg, F., & Koot, H. M. (2013). Sex differences in the timing of identification among children and adults with autism spectrum disorders. Journal of Autism And Developmental Disorders, 43(5), 1151–1156. CrossRefPubMed
Bellini, S. (2004). Social skill deficits and anxiety in high-functioning adolescents with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 19(2), 78–86. CrossRef
Bernard, H. R., Wutich, A., & Ryan, G. W. (2016). Analyzing qualitative data: Systematic approaches. Thousand Oaks: SAGE.
Bishop, S. L., Veenstra-VanderWeele, J., & Sanders, S. J. (2016). Attention finally being paid to girls at risk of Autism. Journal of the American Academy of Child and Adolescent Psychiatry, 55(3), 159. CrossRefPubMed
Bolick, T. (2001). Asperger syndrome and adolescence: Helping preteens and teens get ready for the real world. Beverly: Fair Winds Press.
Bölte, S., Duketis, E., Poustka, F., & Holtmann, M. (2011). Sex differences in cognitive domains and their clinical correlates in higher-functioning autism spectrum disorders. Autism: The International Journal of Research and Practice, 15(4), 497–511. CrossRef
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. CrossRef
Brewin, B. J., Renwick, R., & Fudge Schormans, A. (2008). Parental perspectives of the quality of life in school environments for children with Asperger syndrome. Focus on Autism and Other Developmental Disabilities, 23(4), 242–252. CrossRef
Brown-Lavoie, S. M., Viecili, M. A., & Weiss, J. A. (2014). Sexual knowledge and victimization in adults with autism spectrum disorders. Journal of Autism And Developmental Disorders, 44(9), 2185–2196. CrossRefPubMedPubMedCentral
Byers, E. S., Nichols, S., Voyer, S. D., & Reilly, G. (2013). Sexual well-being of a community sample of high-functioning adults on the autism spectrum who have been in a romantic relationship. Autism: The International Journal of Research and Practice, 17(4), 418–433. CrossRef
Campbell, J. L., Quincy, C., Osserman, J., & Pedersen, O. K. (2013). Coding in-depth semistructured interviews: Problems of unitization and intercoder reliability and agreement. Sociological Methods & Research, 42(3), 294–320. CrossRef
CDC. (2014). Prevalence of autism spectrum disorders among children aged 8 years: autism and developmental disabilities monitoring network, 11 sites, United States, 2010. MMWR Surveillance Summaries, 63(2), 1–22.
Chan, J., & John, R. M. (2012). Sexuality and sexual health in children and adolescents with autism. The Journal for Nurse Practitioners, 8(4), 306–315. CrossRef
Cridland, E. K., Jones, S. C., Caputi, P., & Magee, C. A. (2014). Being a girl in a boys’ world: Investigating the experiences of girls with autism spectrum disorders during adolescence. Journal of Autism And Developmental Disorders, 44(6), 1261–1274. CrossRefPubMed
Davidovitch, M., Hemo, B., Manning-Courtney, P., & Fombonne, E. (2013). Prevalence and incidence of autism spectrum disorder in an Israeli population. Journal of Autism and Developmental Disorders, 43(4), 785–793. CrossRefPubMed
Dean, M., Harwood, R., & Kasari, C. (2016). The art of camouflage: Gender differences in the social behaviors of girls and boys with autism spectrum disorder. Autism, p. 1362361316671845.
Dworzynski, K., Ronald, A., Bolton, P., & Happé, F. (2012). How different are girls and boys above and below the diagnostic threshold for autism spectrum disorders? Journal of the American Academy of Child & Adolescent Psychiatry, 51(8), 788–797. CrossRef
Edwards, C., & Titchen, A. (2003). Research into patients’ perspectives: Relevance and usefulness of phenomenological sociology. Journal of Advanced Nursing, 44(5), 450–460. CrossRefPubMed
Elsabbagh, M., Divan, G., Koh, Y. J., Kim, Y. S., Kauchali, S., Marcín, C., … & Yasamy, M. T. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research, 5(3), 160–179. CrossRefPubMedPubMedCentral
Fontana, A., & Frey, J. H. (2003). The interviews: From structured questions to negotiated texts. IN N. K. Denzin & Y. S. Lincoln (Eds.) Collecting and interpreting qualitative materials. Thousand Oaks: Sage.
Giarelli, E., Wiggins, L. D., Rice, C. E., Levy, S. E., Kirby, R. S., Pinto-Martin, J., & Mandell, D. (2010). Sex differences in the evaluation and diagnosis of autism spectrum disorders among children. Disability and Health Journal, 3(2), 107–116. CrossRefPubMed
Gotham, K., Brunwasser, S. M., & Lord, C. (2015). Depressive and anxiety symptom trajectories from school age through young adulthood in samples with autism spectrum disorder and developmental delay. Journal of the American Academy of Child & Adolescent Psychiatry, 54(5), 369–376. CrossRef
Harrop, C., Shire, S., Gulsrud, A., Chang, Y. C., Ishijima, E., Lawton, K., & Kasari, C. (2015). Does gender influence core deficits in ASD? An investigation into social-communication and play of girls and boys with ASD. Journal of Autism and Developmental Disorders, 45(3), 766–777. CrossRefPubMed
Hellemans, H., Colson, K., Verbraeken, C., Vermeiren, R., & Deboutte, D. (2007). Sexual behavior in high-functioning male adolescents and young adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 37(2), 260–269. CrossRefPubMed
Hendricks, D. R., & Wehman, P. (2009). Transition from school to adulthood for youth with autism spectrum disorders: Review and recommendations. Focus on Autism and Other Developmental Disabilities, 24(2), 77–88. CrossRef
Hiller, R. M., Young, R. L., & Weber, N. (2014). Sex differences in autism spectrum disorder based on DSM-5 criteria: Evidence from clinician and teacher reporting. Journal of Abnormal Child Psychology, 42(8), 1381–1393. CrossRefPubMed
Hofvander, B., Delorme, R., Chaste, P., Nydén, A., Wentz, E., Ståhlberg, O., … & Råstam, M. (2009). Psychiatric and psychosocial problems in adults with normal-intelligence autism spectrum disorders. BMC Psychiatry, 9(1), 35. CrossRefPubMedPubMedCentral
Jamison, T. R., & Schuttler, J. O. (2017). Overview and preliminary evidence for a social skills and self-care curriculum for adolescent females with autism: The girls night out model. Journal of Autism and Developmental Disorders, 47(1), 110–125. CrossRefPubMed
Kirkovski, M., Enticott, P. G., & Fitzgerald, P. B. (2013). A review of the role of female gender in autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(11), 2584–2603. CrossRefPubMed
Koenig, K., & Tsatsanis, K. D. (2005). Pervasive developmental disorders in girls. In Handbook of behavioral and emotional problems in girls (pp. 211–237). NewYork: Springer. CrossRef
Krueger, R. A., & Casey, M. A. (2000). Focus groups. Thousand Oaks, CA: SAGE. CrossRef
Lai, M. C., Lombardo, M. V., Auyeung, B., Chakrabarti, B., & Baron-Cohen, S. (2015). Sex/gender differences and autism: Setting the scene for future research. Journal of the American Academy of Child & Adolescent Psychiatry, 54(1), 11–24. CrossRef
Lai, M. C., Lombardo, M. V., Ruigrok, A. N., Chakrabarti, B., Auyeung, B., Szatmari, P., … & Baron-Cohen, S. (2016). Quantifying and exploring camouflaging in men and women with autism. Autism, p. 1362361316671012.
Mandell, D. S., Walrath, C. M., Manteuffel, B., Sgro, G., & Pinto-Martin, J. A. (2005). The prevalence and correlates of abuse among children with autism served in comprehensive community-based mental health settings. Child Abuse & Neglect, 29(12), 1359–1372. CrossRef
Mandy, W., Chilvers, R., Chowdhury, U., Salter, G., Seigal, A., & Skuse, D. (2012). Sex differences in autism spectrum disorder: Evidence from a large sample of children and adolescents. Journal of Autism and Developmental Disorders, 42(7), 1304–1313. CrossRefPubMed
Nichols, S., & Blakeley-Smith, A. (2009). “I’m not sure we’re ready for this…”: Working with families toward facilitating healthy sexuality for individuals with autism spectrum disorders. Social Work in Mental Health, 8(1), 72–91. CrossRef
Nichols, S., Moravcik, G. M., & Tetenbaum, S. P. (2009). Girls growing up on the autism spectrum: What parents and professionals should know about the pre-teen and teenage years. London: Jessica Kingsley.
Pugliese, C. E., Anthony, L. G., Strang, J. F., Dudley, K., Wallace, G. L., Naiman, D. Q., & Kenworthy, L. (2016). Longitudinal examination of adaptive behavior in autism spectrum disorders: Influence of executive function. Journal of Autism and Developmental Disorders, 46(2), 467–477. CrossRefPubMedPubMedCentral
Rivet, T. T., & Matson, J. L. (2011). Review of gender differences in core symptomatology in autism spectrum disorders. Research in Autism Spectrum Disorders, 5(3), 957–976. CrossRef
Ryle, R. (2011). Questioning gender: A sociological exploration. Thousand Oaks, CA: Pine Forge Press.
Solomon, M., Miller, M., Taylor, S. L., Hinshaw, S. P., & Carter, C. S. (2012). Autism symptoms and internalizing psychopathology in girls and boys with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42(1), 48–59. CrossRefPubMed
Stokes, M. A., & Kaur, A. (2005). High-functioning autism and sexuality a parental perspective. Autism: The International Journal of Research and Practice, 9(3), 266–289. CrossRef
Van Wijngaarden-Cremers, P. J., van Eeten, E., Groen, W. B., Van Deurzen, P. A., Oosterling, I. J., & Van der Gaag, R. J. (2014). Gender and age differences in the core triad of impairments in autism spectrum disorders: A systematic review and meta-analysis. Journal of Autism and Developmental Disorders, 44(3), 627–635. CrossRefPubMed
Volkmar, F. R., Szatmari, P., & Sparrow, S. S. (1993). Sex differences in pervasive developmental disorders. Journal of Autism and Developmental Disorders, 23(4), 579–591. CrossRefPubMed
Metagegevens
Titel
Challenges of Females with Autism: A Parental Perspective
Auteurs
Marilena Mademtzi
Pavita Singh
Fred Shic
Kathy Koenig
Publicatiedatum
11-10-2017
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 4/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-017-3341-8

Andere artikelen Uitgave 4/2018

Journal of Autism and Developmental Disorders 4/2018 Naar de uitgave

S.I. : Parenting Children with ASD

Parent-Implemented Bedtime Fading and Positive Routines for Children with Autism Spectrum Disorders

S.I. : Parenting Children with ASD

Social Support as Mediator and Moderator of the Relationship Between Parenting Stress and Life Satisfaction Among the Chinese Parents of Children with ASD

S.I. : Local vs. Global processing in Autism Spectrum Disorders

Color Afterimages in Autistic Adults

S.I. : Parenting Children with ASD

Documenting and Understanding Parent’s Intervention Choices for Their Child with Autism Spectrum Disorder

Brief Report

Brief Report: Agreement Between Parents and Day-Care Professionals on Early Symptoms Associated with Autism Spectrum Disorders

S.I. : Parenting Children with ASD

Predictors of Mental Health in Chinese Parents of Children with Autism Spectrum Disorder (ASD)

Version: 0.2067.0