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Journal of Autism and Developmental Disorders

Gepubliceerd in:

13-06-2021 | Original Paper

Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD

Auteurs: Dorothea Iannuzzi, Lucy Fell, Christina Luberto, Brett M. Goshe, Giselle Perez, Elyse Park, Sydney Crute, Karen Kuhlthau, Lara Traeger

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2022

Abstract

Adolescent and young adult (AYA) siblings of individuals with autism experience unique challenges that can promote both growth and emotional maladjustment. This study explored sibling and parent reports of siblings’ lived experiences and identified learning, stressors, and concerns from those experiences. 20 neurotypical (NT) AYA siblings (ages 13–24), and 21 parents were interviewed. Themes that emerged from the data analysis included: (1) learning, empathy, and compassion (2) relationship between the degree of functional impairment and the nature of the sibling relationship; (3) reluctance to share information about siblings with peers; (4) hypervigilance associated with unpredictable behavior; (5) worries and concerns about the future. These findings contribute to the existing literature on the impact and nature of neurotypical siblings’ lived experience.

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Titel: Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD
Auteurs: Dorothea Iannuzzi
Lucy Fell
Christina Luberto
Brett M. Goshe
Giselle Perez
Elyse Park
Sydney Crute
Karen Kuhlthau
Lara Traeger
Publicatiedatum: 13-06-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 6/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-05135-0

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