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Journal of Autism and Developmental Disorders

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01-08-2014 | Original Paper

Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol

Auteurs: Renske Hoefman, Nalin Payakachat, Job van Exel, Karen Kuhlthau, Erica Kovacs, Jeffrey Pyne, J. Mick Tilford

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 8/2014

Abstract

This study describes the impact of caregiving on parents of children with autism spectrum disorders (ASDs). Secondly, we investigate construct validation of the care-related quality of life instrument (CarerQol) measuring impact of caregiving. Primary caregivers of children with ASDs were included. Many parents experienced considerable problems combining daily activities with care, had financial problems or suffered from depressive mood. Validity tests showed that a higher impact of caring on the CarerQol was positively associated with higher subjective burden and lower family quality of life. Most of the associations between CarerQol scores and background characteristics confirmed previous research. The CarerQol validly measures the impact of caregiving for children with ASDs on caregivers in our sample. The CarerQol may therefore be useful for including parent outcomes in research on ASDs.

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Titel: Caring for a Child with Autism Spectrum Disorder and Parents’ Quality of Life: Application of the CarerQol
Auteurs: Renske Hoefman
Nalin Payakachat
Job van Exel
Karen Kuhlthau
Erica Kovacs
Jeffrey Pyne
J. Mick Tilford
Publicatiedatum: 01-08-2014
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 8/2014
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-014-2066-1

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