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Gepubliceerd in: Mindfulness 9/2020

11-07-2020 | ORIGINAL PAPER

Caregivers of Children with Fetal Alcohol Spectrum Disorder: Psychosocial Factors and Evidence for Self-compassion as a Potential Intervention Target

Auteurs: Zoe Biddle, Frances V. O’Callaghan, Amy L. Finlay-Jones, Natasha E. Reid

Gepubliceerd in: Mindfulness | Uitgave 9/2020

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Abstract

Objectives

Fetal alcohol spectrum disorder (FASD) is a common neurodevelopmental condition involving lifelong challenges for both children and their families. The aim of the current study was to explore experiences of caregivers of children, adolescents and young adults diagnosed with FASD. More specifically, we examined the relationship between shame, guilt, pride, self-compassion and caregiver psychological distress. It was hypothesised that shame, guilt, pride and self-compassion would be uniquely associated with caregiver psychological distress. We also examined differences between biological and non-biological caregivers on these variables. It was hypothesised that relative to non-biological caregivers, biological parents would (i) report significantly higher levels of psychological distress, guilt and shame and (ii) report significantly lower self-compassion scores.

Methods

The current study included 175 caregivers of children and young people diagnosed with FASD. Caregivers completed an online survey that included a range of standardised self-report measures that assessed psychological distress, shame, guilt, pride and self-compassion.

Results

Caregiver self-compassion was negatively correlated with psychological distress, shame and guilt, and positively correlated with pride. Hierarchical multiple regression controlling for significant caregiver demographics revealed that shame, pride, guilt and self-compassion accounted for 68.1% of the variance in caregiver psychological distress. Shame and self-compassion were both unique significant factors in the final model. Some preliminary differences between caregiver groups were also found; specifically, biological parents reported higher levels of guilt compared with non-biological caregivers.

Conclusions

The current findings revealed shame, pride, guilt and self-compassion were associated with caregiver psychological distress. Self-compassion and shame were identified as unique contributors to caregiver psychological distress. Future longitudinal research is required to establish if these associations may be casual, which will provide a useful starting point for further investigation into the efficacy of interventions that target self-compassion for promoting better psychological outcomes in this population.
Literatuur
go back to reference Gilbert, P. (2011). Shame in psychotherapy and the role of compassion focused therapy. In R. L. Dearing & J. P. Tangney (Eds.), Shame in the therapy hour (pp. 325–354). Washington: American Psychological Society. CrossRef Gilbert, P. (2011). Shame in psychotherapy and the role of compassion focused therapy. In R. L. Dearing & J. P. Tangney (Eds.), Shame in the therapy hour (pp. 325–354). Washington: American Psychological Society. CrossRef
go back to reference Marschall, D., Sanftner, J., & Tangney, J. P. (1994). The State Shame and Guilt Scale. VA: George Mason University: Fairfax. Marschall, D., Sanftner, J., & Tangney, J. P. (1994). The State Shame and Guilt Scale. VA: George Mason University: Fairfax.
go back to reference Poole, N. (2008). Fetal alcohol spectrum disorder (FASD) prevention: Canadian perspectives. Ottawa, On: Public Health Agency of Canada. Poole, N. (2008). Fetal alcohol spectrum disorder (FASD) prevention: Canadian perspectives. Ottawa, On: Public Health Agency of Canada.
Metagegevens
Titel
Caregivers of Children with Fetal Alcohol Spectrum Disorder: Psychosocial Factors and Evidence for Self-compassion as a Potential Intervention Target
Auteurs
Zoe Biddle
Frances V. O’Callaghan
Amy L. Finlay-Jones
Natasha E. Reid
Publicatiedatum
11-07-2020
Uitgeverij
Springer US
Gepubliceerd in
Mindfulness / Uitgave 9/2020
Print ISSN: 1868-8527
Elektronisch ISSN: 1868-8535
DOI
https://doi.org/10.1007/s12671-020-01443-1

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