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Gepubliceerd in: Journal of Autism and Developmental Disorders 11/2017

28-07-2017 | Brief Report

Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults

Auteurs: Renske Herrema, Deborah Garland, Malcolm Osborne, Mark Freeston, Emma Honey, Jacqui Rodgers

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2017

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Abstract

Very little is known about autism and adulthood. Family members are often the primary support for autistic adults and frequently express concerns about what the future will hold and what support will be available for their relative. 120 family members of autistic adults completed an online survey exploring concerns about the future for their relative. The most endorsed concerns were “their needs won’t be met” (77% worried weekly), “whether they will be happy” (72% worried weekly) and “who will care for them” (58% worried weekly). The results highlight the importance of implementing structured and timely support through collaboration with governmental policy, local commissioning and communication with charities to help prepare family members and their autistic relative for the future.
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Metagegevens
Titel
Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults
Auteurs
Renske Herrema
Deborah Garland
Malcolm Osborne
Mark Freeston
Emma Honey
Jacqui Rodgers
Publicatiedatum
28-07-2017
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 11/2017
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-017-3254-6