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01-05-2010 | Brief Report | Uitgave 5/2010

Brief Report: Under-Representation of African Americans in Autism Genetic Research: A Rationale for Inclusion of Subjects Representing Diverse Family Structures

Tijdschrift:: Journal of Autism and Developmental Disorders > Uitgave 5/2010

Auteurs:: Claudia L. Hilton, Robert T. Fitzgerald, Kelley M. Jackson, Rolanda A. Maxim, Christopher C. Bosworth, Paul T. Shattuck, Daniel H. Geschwind, John N. Constantino

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Abstract

African American children with autism are seriously under-represented in existing genetic registries and biomedical research studies of autism. We estimated the number of African American children with autism in the St. Louis region using CDC surveillance data and present the outcomes of a concerted effort to enroll approximately one-third of that population into either of two large national genetic autism registries. The results revealed that even after traditional barriers to research participation were addressed and all contacted families expressed a willingness to participate, 67% of the reachable families were disqualified from participation because of family structure alone. Comprehensive efforts—including expansion of eligibility to families of diverse structure—are warranted to facilitate the inclusion of African American children in biomedical research.

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Titel: Brief Report: Under-Representation of African Americans in Autism Genetic Research: A Rationale for Inclusion of Subjects Representing Diverse Family Structures
Auteurs:: Claudia L. Hilton
Robert T. Fitzgerald
Kelley M. Jackson
Rolanda A. Maxim
Christopher C. Bosworth
Paul T. Shattuck
Daniel H. Geschwind
John N. Constantino
Publicatiedatum: 01-05-2010
DOI: https://doi.org/10.1007/s10803-009-0905-2
Uitgeverij: Springer US
Tijdschrift: Journal of Autism and Developmental Disorders
Uitgave 5/2010
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432

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