Skip to main content
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Journal of Autism and Developmental Disorders 11/2012

01-11-2012 | Brief Report

Brief Report: The Medical Care of Adults with Autism Spectrum Disorders: Identifying the Needs

Auteurs: Mary Beth Bruder, Gerard Kerins, Cynthia Mazzarella, Jessica Sims, Neil Stein

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2012

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

There is a lack of information concerning adults with autism spectrum disorder (ASD), especially with regards to their access to health care. A paper and electronic survey was sent to 1,580 primary care physicians in Connecticut. 346 respondents returned a survey and provided care to adults with an ASD. This physician survey provides data on adults with ASD such as: reasons for physician visits, living arrangements, employment status, and any services they are receiving. Responses revealed inadequate training in the care of adults with an ASD and physicians interest in obtaining additional training. The ability to provide a medical home for adults with autism will need to address effective strategies to train current and future physicians.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
go back to reference Ameson, C. L., Durkin, M. S., Benedict, R. E., Kirby, R. S., & Yeargin-Allsopp, M. (2009). Prevalence of cerebral palsy: Autism and developmental disabilities monitoring network, three sites, United States, 2004. Disability and Health Journal, 2, 45–48. CrossRef Ameson, C. L., Durkin, M. S., Benedict, R. E., Kirby, R. S., & Yeargin-Allsopp, M. (2009). Prevalence of cerebral palsy: Autism and developmental disabilities monitoring network, three sites, United States, 2004. Disability and Health Journal, 2, 45–48. CrossRef
go back to reference Blacher, J., & Hatton, C. (2007). Families in context: Influences on coping and adaptation. In S. L. Odom, R. H. Horner, M. E. Snell, & J. Blacher (Eds.), Handbook of developmental disorder (pp. 531–546). New York: Guilford. Blacher, J., & Hatton, C. (2007). Families in context: Influences on coping and adaptation. In S. L. Odom, R. H. Horner, M. E. Snell, & J. Blacher (Eds.), Handbook of developmental disorder (pp. 531–546). New York: Guilford.
go back to reference Brachlow, A. E., Ness, K. K., McPheeters, M. L., & Gurney, J. G. (2007). Comparison of indicators for a primary care medical home between children with autism or asthma and other special health care needs. Archives of Pediatrics and Adolescent Medicine, 161, 399–405. doi: 10.​1001/​archpedi.​161.​4.​399. PubMedCrossRef Brachlow, A. E., Ness, K. K., McPheeters, M. L., & Gurney, J. G. (2007). Comparison of indicators for a primary care medical home between children with autism or asthma and other special health care needs. Archives of Pediatrics and Adolescent Medicine, 161, 399–405. doi: 10.​1001/​archpedi.​161.​4.​399. PubMedCrossRef
go back to reference Braddock, D., Hemp, R., Rizzolo, M. C., Haffer, L., Tanis, E. S., & Wu, J. (2011). The state of the states in developmental disabilities. Boulder, CO: Coleman Institute for Cognitive Disabilities, University of Colorado. Braddock, D., Hemp, R., Rizzolo, M. C., Haffer, L., Tanis, E. S., & Wu, J. (2011). The state of the states in developmental disabilities. Boulder, CO: Coleman Institute for Cognitive Disabilities, University of Colorado.
go back to reference Bruder, M. B., Mogro-Wilson, C., & Kerins, G. J. (2010). A survey assessing the presence of “medical home” for adults with disabilities in Connecticut. Connecticut Medicine, 74(6), 341–348. PubMed Bruder, M. B., Mogro-Wilson, C., & Kerins, G. J. (2010). A survey assessing the presence of “medical home” for adults with disabilities in Connecticut. Connecticut Medicine, 74(6), 341–348. PubMed
go back to reference Brugha, T., McManus, S., Meltzer, H., Purdon, S., Scott, F., & Baron-Cohen, S. (2009). Policy research programme independent report. London: The Health and Social Care Information Centre. Brugha, T., McManus, S., Meltzer, H., Purdon, S., Scott, F., & Baron-Cohen, S. (2009). Policy research programme independent report. London: The Health and Social Care Information Centre.
go back to reference Butterworth, J., Hall, A. C., Smith, F. A., Migliore, A., & Winsor, J. (2011). StateData: The national report on employment services and outcomes. Boston, MA: Institute for Community Inclusion, University of Massachusetts Boston. Butterworth, J., Hall, A. C., Smith, F. A., Migliore, A., & Winsor, J. (2011). StateData: The national report on employment services and outcomes. Boston, MA: Institute for Community Inclusion, University of Massachusetts Boston.
go back to reference Drum, C. E., Krahn, G. L., Peterson, J. J., Horner-Johnson, W., & Newton, K. (2009). Health of people with disabilities: Determinants and disparities. In C. E. Drum, G. L. Krahn, & H. Bersani Jr (Eds.), Disability and public health (pp. 125–144). Washington, DC: American Association on Intellectual and Developmental Disabilities. CrossRef Drum, C. E., Krahn, G. L., Peterson, J. J., Horner-Johnson, W., & Newton, K. (2009). Health of people with disabilities: Determinants and disparities. In C. E. Drum, G. L. Krahn, & H. Bersani Jr (Eds.), Disability and public health (pp. 125–144). Washington, DC: American Association on Intellectual and Developmental Disabilities. CrossRef
go back to reference Friedlander, A. H., Yagiela, J. A., Paterno, V. I., & Mahler, M. E. (2006). The neuropathology, medical management and dental implications of autism. Journal of the American Dental Association, 137, 1517–1527. PubMed Friedlander, A. H., Yagiela, J. A., Paterno, V. I., & Mahler, M. E. (2006). The neuropathology, medical management and dental implications of autism. Journal of the American Dental Association, 137, 1517–1527. PubMed
go back to reference Groden, J., Goodwin, M. S., Baron, M. G., Groden, G., Velicer, W. F., & Lipsitt, L. P. (2005). Assessing cardiovascular responses to stressors in individuals with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 20(4), 244–252. doi: 10.​1177/​1088357605020004​0601. CrossRef Groden, J., Goodwin, M. S., Baron, M. G., Groden, G., Velicer, W. F., & Lipsitt, L. P. (2005). Assessing cardiovascular responses to stressors in individuals with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 20(4), 244–252. doi: 10.​1177/​1088357605020004​0601. CrossRef
go back to reference Hart, D., Girigal, M., & Weir, C. (2010). Expanding the paradigm: Postsecondary education options for individuals with autism spectrum disorder and intellectual disabilities. Focus on Autism and Other Developmental Disabilities, 25(3), 134–150. doi: 10.​1177/​1088357610373759​. CrossRef Hart, D., Girigal, M., & Weir, C. (2010). Expanding the paradigm: Postsecondary education options for individuals with autism spectrum disorder and intellectual disabilities. Focus on Autism and Other Developmental Disabilities, 25(3), 134–150. doi: 10.​1177/​1088357610373759​. CrossRef
go back to reference Hetherington, S. A., Durant-Jones, L., Johnson, K., Nolan, K., Smith, E., & Taylor-Brown, S. (2010). The lived experiences of adolescents with disabilities and their parents in transition planning. Focus on Autism and Other Developmental Disabilities, 25(3), 163–172. doi: 10.​1177/​1088357610373760​. CrossRef Hetherington, S. A., Durant-Jones, L., Johnson, K., Nolan, K., Smith, E., & Taylor-Brown, S. (2010). The lived experiences of adolescents with disabilities and their parents in transition planning. Focus on Autism and Other Developmental Disabilities, 25(3), 163–172. doi: 10.​1177/​1088357610373760​. CrossRef
go back to reference Kerins, G., & Bruder, M. B. (2003). Improving the care of older adults with developmental disabilities. Connecticut Medicine, 67(8), 511–513. PubMed Kerins, G., & Bruder, M. B. (2003). Improving the care of older adults with developmental disabilities. Connecticut Medicine, 67(8), 511–513. PubMed
go back to reference Knowles, M. S., Holton, E. F, I. I. I., & Swanson, R. A. (1998). The adult learner: The definitive classic in adult education and human resources development (5th ed.). Houston, TX: Butterworth-Heinemann. Knowles, M. S., Holton, E. F, I. I. I., & Swanson, R. A. (1998). The adult learner: The definitive classic in adult education and human resources development (5th ed.). Houston, TX: Butterworth-Heinemann.
go back to reference National Research Council. (2000). How people learn: Brain, mind, experience and school. Washington, DC: National Academy Press. National Research Council. (2000). How people learn: Brain, mind, experience and school. Washington, DC: National Academy Press.
go back to reference Reid, R. J., Fishman, P. A., Yu, O., Ross, T. R., Tufano, J. T., & Soman, M. P. (2009). Patient-centered medical home demonstration: A prospective, quasi-experimental, before and after evaluation. American Journal of Managed Care, 15(9), e71–e87. PubMed Reid, R. J., Fishman, P. A., Yu, O., Ross, T. R., Tufano, J. T., & Soman, M. P. (2009). Patient-centered medical home demonstration: A prospective, quasi-experimental, before and after evaluation. American Journal of Managed Care, 15(9), e71–e87. PubMed
go back to reference Smith, L. E., Hong, J., Seltzer, M. M., Greenberg, J. A., Almeida, D., & Bishop, S. L. (2010). Daily experiences among mothers of adolescents and adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 167–178. doi: 10.​1007/​s10803-009-0844-y. PubMedCrossRef Smith, L. E., Hong, J., Seltzer, M. M., Greenberg, J. A., Almeida, D., & Bishop, S. L. (2010). Daily experiences among mothers of adolescents and adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 167–178. doi: 10.​1007/​s10803-009-0844-y. PubMedCrossRef
go back to reference U.S. Department of Health and Human Services. (2005). The Surgeon General’s call to action to improve the health and wellness of persons with disabilities. Washington, DC: Author. U.S. Department of Health and Human Services. (2005). The Surgeon General’s call to action to improve the health and wellness of persons with disabilities. Washington, DC: Author.
Metagegevens
Titel
Brief Report: The Medical Care of Adults with Autism Spectrum Disorders: Identifying the Needs
Auteurs
Mary Beth Bruder
Gerard Kerins
Cynthia Mazzarella
Jessica Sims
Neil Stein
Publicatiedatum
01-11-2012
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 11/2012
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-012-1496-x