Skip to main content
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Journal of Autism and Developmental Disorders 7/2016

05-03-2016 | Brief Report

Brief Report: The Feasibility and Effectiveness of an Advocacy Program for Latino Families of Children with Autism Spectrum Disorder

Auteurs: Meghan M. Burke, Sandra Magaña, Marlene Garcia, Maria P. Mello

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2016

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Latino, Spanish-speaking families of children with autism spectrum disorder (ASD) face unique barriers in special education advocacy. Although advocacy programs are becoming more common in the United States, none of these programs target Latino families. This is a pilot study to examine the feasibility and effectiveness of an advocacy program for Latino families of children with ASD. Using a quasi-experimental design, 40 Latino family members of children with ASD participated in this study. Results demonstrated consistent attendance, low attrition, and high participant satisfaction. Intervention (versus control) group participants demonstrated significantly increased empowerment and special education knowledge, and stronger family–school partnerships. Findings provide preliminary support for advocacy programs for Latino families of children with ASD.
Literatuur
go back to reference Balcells-Balcells, A., Giné, C., Guárdia-Olmos, J., & Summers, J. A. (2011). Family quality of life: Adaptation to Spanish population of several family support questionnaires. Journal of Intellectual Disability Research, 55, 1151–1163. CrossRefPubMed Balcells-Balcells, A., Giné, C., Guárdia-Olmos, J., & Summers, J. A. (2011). Family quality of life: Adaptation to Spanish population of several family support questionnaires. Journal of Intellectual Disability Research, 55, 1151–1163. CrossRefPubMed
go back to reference Berument, S. K., Lord, C., Rutter, M., Pickles, A., & Bailey, A. (1999). Autism screening questionnaire: Diagnostic validity. British Journal of Psychiatry, 175, 444–451. CrossRefPubMed Berument, S. K., Lord, C., Rutter, M., Pickles, A., & Bailey, A. (1999). Autism screening questionnaire: Diagnostic validity. British Journal of Psychiatry, 175, 444–451. CrossRefPubMed
go back to reference Brislin, R. W. (1970). Back translation for cross-cultural research. Journal of Cross-Cultural Psychology, 1, 185–216. CrossRef Brislin, R. W. (1970). Back translation for cross-cultural research. Journal of Cross-Cultural Psychology, 1, 185–216. CrossRef
go back to reference Burke, M. M. (2013). Improving parental involvement: Training special education advocates. Journal of Disability Policy Studies, 23, 225–234. CrossRef Burke, M. M. (2013). Improving parental involvement: Training special education advocates. Journal of Disability Policy Studies, 23, 225–234. CrossRef
go back to reference Burke, M. M., & Sandman, L. (in press). The effectiveness of a parent advocacy training upon legislative advocacy. Journal of Policy and Practice in Intellectual Disabilities. Burke, M. M., & Sandman, L. (in press). The effectiveness of a parent advocacy training upon legislative advocacy. Journal of Policy and Practice in Intellectual Disabilities.
go back to reference Canino, G., Vila, D., Normand, S. T., Acosta-Pérez, E., Ramírez, R., García, P., & Rand, C. (2008). Reducing asthma health disparities in poor Puerto Rican children: The effectiveness of a culturally tailored family intervention. Journal of Allergy and Clinical Immunology, 121, 665–670. CrossRefPubMed Canino, G., Vila, D., Normand, S. T., Acosta-Pérez, E., Ramírez, R., García, P., & Rand, C. (2008). Reducing asthma health disparities in poor Puerto Rican children: The effectiveness of a culturally tailored family intervention. Journal of Allergy and Clinical Immunology, 121, 665–670. CrossRefPubMed
go back to reference Cohen, S. (2013). Advocacy for the ‘Abandonados’: Harnessing cultural beliefs for Latino families and their children with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 10, 71–78. CrossRef Cohen, S. (2013). Advocacy for the ‘Abandonados’: Harnessing cultural beliefs for Latino families and their children with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 10, 71–78. CrossRef
go back to reference Davis, R. E., Resnicow, K., & Couper, M. P. (2011). Survey response styles, acculturation, and culture among a sample of Mexican American Adults. Journal of Cross-Cultural Psychology, 42, 1219–1236. CrossRefPubMedPubMedCentral Davis, R. E., Resnicow, K., & Couper, M. P. (2011). Survey response styles, acculturation, and culture among a sample of Mexican American Adults. Journal of Cross-Cultural Psychology, 42, 1219–1236. CrossRefPubMedPubMedCentral
go back to reference Glaser, B. G., & Strauss, A. L. (1989). Fourth generation evaluation. Newbury Park, CA: Sage. Glaser, B. G., & Strauss, A. L. (1989). Fourth generation evaluation. Newbury Park, CA: Sage.
go back to reference Goddard, C., & Harding, W. (2003). Selecting the program that’s right for you: A feasibility assessment tool. Waltham: Education Development Center Inc. Goddard, C., & Harding, W. (2003). Selecting the program that’s right for you: A feasibility assessment tool. Waltham: Education Development Center Inc.
go back to reference Gutierrez, L. M. (1990). Working with women of color: An empowerment perspective. Social Work, 35, 149–153. Gutierrez, L. M. (1990). Working with women of color: An empowerment perspective. Social Work, 35, 149–153.
go back to reference Hughes, M. T., Valle-Riestra, D. M., & Arguelles, M. E. (2002). Experiences of Latino families with their child’s special education program. Multicultural Perspectives, 4, 11–17. CrossRef Hughes, M. T., Valle-Riestra, D. M., & Arguelles, M. E. (2002). Experiences of Latino families with their child’s special education program. Multicultural Perspectives, 4, 11–17. CrossRef
go back to reference Koren, P. E., Dechillo, N., & Friesen, B. J. (1992). Measuring empowerment in families whose children have emotional disabilities: A brief questionnaire. Rehabilitation Psychology, 37, 305–321. CrossRef Koren, P. E., Dechillo, N., & Friesen, B. J. (1992). Measuring empowerment in families whose children have emotional disabilities: A brief questionnaire. Rehabilitation Psychology, 37, 305–321. CrossRef
go back to reference Magaña, S. M. (2000). Mental retardation research methods in Latino communities. Mental Retardation, 38, 303–315. CrossRefPubMed Magaña, S. M. (2000). Mental retardation research methods in Latino communities. Mental Retardation, 38, 303–315. CrossRefPubMed
go back to reference Mercadante, M. T., Evans-Lacko, S., & Paula, C. S. (2009). Perspectives of intellectual disability in Latin American countries: Epidemiology, policy, and services for children and adults. Current Opinionin Psychiatry, 22, 469–474. CrossRef Mercadante, M. T., Evans-Lacko, S., & Paula, C. S. (2009). Perspectives of intellectual disability in Latin American countries: Epidemiology, policy, and services for children and adults. Current Opinionin Psychiatry, 22, 469–474. CrossRef
go back to reference Puente, C., & Castillo, M. (2015). Latino parent leadership support project curriculum. Puente, C., & Castillo, M. (2015). Latino parent leadership support project curriculum.
go back to reference Shapiro, J., Monzo, L. D., Rueda, R., Gomez, J. A., & Blacher, J. (2004). Alienated advocacy: Perspectives of Latina mothers of young adults with developmental disabilities on service systems. Mental Retardation, 42, 37–54. CrossRefPubMed Shapiro, J., Monzo, L. D., Rueda, R., Gomez, J. A., & Blacher, J. (2004). Alienated advocacy: Perspectives of Latina mothers of young adults with developmental disabilities on service systems. Mental Retardation, 42, 37–54. CrossRefPubMed
go back to reference Summers, J. A., Hoffman, L., Marquis, J., Turnbull, A. P., Poston, D., & Nelson, L. L. (2005). Measuring the quality of family–professional partnerships in special education services. Exceptional Children, 72, 65–83. CrossRef Summers, J. A., Hoffman, L., Marquis, J., Turnbull, A. P., Poston, D., & Nelson, L. L. (2005). Measuring the quality of family–professional partnerships in special education services. Exceptional Children, 72, 65–83. CrossRef
go back to reference Summers, J. A., Marquis, J., Mannan, H., Turnbull, A. P., Fleming, K., Poston, D. J., et al. (2007). Relationship of perceived adequacy of services, family–professional partnerships, and family quality of life in early-childhood service programmes. International Journal of Disability, Development, and Education, 54, 319–338. CrossRef Summers, J. A., Marquis, J., Mannan, H., Turnbull, A. P., Fleming, K., Poston, D. J., et al. (2007). Relationship of perceived adequacy of services, family–professional partnerships, and family quality of life in early-childhood service programmes. International Journal of Disability, Development, and Education, 54, 319–338. CrossRef
Metagegevens
Titel
Brief Report: The Feasibility and Effectiveness of an Advocacy Program for Latino Families of Children with Autism Spectrum Disorder
Auteurs
Meghan M. Burke
Sandra Magaña
Marlene Garcia
Maria P. Mello
Publicatiedatum
05-03-2016
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 7/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-016-2765-x