Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

21-03-2020 | Brief Report

Brief Report: Stress and Perceived Social Support in Parents of Children with ASD

Auteurs: Kateryna Drogomyretska, Robert Fox, Dylan Colbert

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2020

Abstract

Previous literature has indicated that perceptions of social support (PSS) may be an important predictor of parental stress levels, particularly for parents of children diagnosed with autism spectrum disorders (ASD). The current study implemented structural equation modelling to further investigate the relationship between PSS and parental stress in a sample of 454 parents of children diagnosed with ASD. Results indicate that PSS derived from friends was the most important factor in protecting against stress, with PSS from both a significant other and family appearing to be less pervasive in this regard. In addition, the importance of PSS was further underlined by the finding that it remained a significant predictor of parental stress after controlling for the absence/presence of professional support.

vorige artikel Brief Report: Predicting Social Skills from Semantic, Syntactic, and Pragmatic Language Among Young Children with Autism Spectrum Disorder

volgende artikel Brief Report: Reduced Heart Rate Variability in Children with Autism Spectrum Disorder

Anderson, J. C., & Gerbing, D. W. (1988). Structural equation modeling in practice: A review and recommended two-step approach. Psychological Bulletin, 103(3), 411–423.

Baio, J. (2012). Prevalence of autism spectrum disorders: Autism and developmental disabilities monitoring network, 14 sites, United States, 2008. Autism Spectrum Disorders: Guidance, Research and Federal Activity, 61, 1–19.

Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., et al. (2018). Prevalence of autism spectrum disorder among children aged 8 Years: Autism and developmental disabilities monitoring network, 11 Sites, United States, 2014. MMWR Surveillance Summaries, 67(6), 1–23.PubMedCentral

Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Edelbrock, C., & Low, C. (2003). Pre-school children with and without developmental delay: Behaviour problems and parenting stress over time. Journal of Intellectual Disability Research, 47, 217–230.

Barrera, M. (1981). Social support in the adjustment of pregnant adolescents: Assessment issues. Social Networks and Social Support, 9(4), 435–447.

Barroso, N. E., Mendez, L., Graziano, P. A., & Bagner, D. M. (2018). Parenting stress through the lens of different clinical groups: A systematic review & meta-analysis. Journal of Abnormal Child Psychology, 46(3), 449–461.PubMedPubMedCentral

Belsky, J. (1984). The determinants of parenting: A Process model. Child Development, 55(1), 83–96.PubMed

Bentler, P. M. (1990). Comparative fit indexes in structural models. Psychological bulletin, 107(2), 238–246.PubMed

Bollen, K. A. (1989). Structural equation modeling with latent variables. New York: Wiley.

Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17, 208–215.

Brandt, P. A., & Weinert, S. C. (1981). The prq, a social support measure. Nursing Research, 30(5), 277–280.PubMed

Christensen, D. L., Baio, J., Van Naarden Braun, K., Bilder, D., Charles, J., Constantino, J. N., et al. (2016). Prevalence and characteristics of autism spectrum disorder among children aged 8 years: Autism and developmental disabilities monitoring network, 11 sites, United States, 2012. MMWR Surveillance Summaries, 61, 1–19.

Cuzzocrea, F., Murdaca, A. M., Costa, S., Filippello, P., & Larcan, R. (2016). Parental stress, coping strategies and social support in families of children with a disability. Child Care in Practice, 22(1), 3–19.

Department of Health. (2018). Estimating Prevalence of Autism Spectrum Disorders (ASD) in the Irish Population: A review of data sources and epidemiological studies. Retrieved from https://health.gov.ie/wp-content/uploads/2018/12/ASD-Report-Final-19112018-For-publication.pdf.

Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(10), 1274–1284.PubMed

Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X.-H., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375–387.PubMed

Farel, A. M., & Hooper, S. R. (1998). Relationship between the maternal social support index and the parenting stress index in mothers of very-low-birthweight children now age 7. Psychological Reports, 83(1), 173–174.PubMed

Goedeke, S., Shepherd, D., Landon, J., & Taylor, S. (2019). How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism. Research in Autism Spectrum Disorders, 60, 36–47. https://doi.org/10.1016/j.rasd.2019.01.005.CrossRef

Gottlieb, G. (2007). Probabilistic epigenesis. Developmental Science, 10(1), 1–11.PubMed

Gouin, J. P., da Estrela, C., Desmarais, K., & Barker, E. T. (2016). The impact of formal and informal support on health in the context of caregiving stress. Family Relations, 65(1), 191–206.

Graham, L. J. (2006). Caught in the net: A Foucaultian interrogation of the incidental effects of limited notions of inclusion. International Journal of Inclusive Education, 10(1), 3–25.

Griffith, G. M., Hastings, R. P., Nash, S., & Hill, C. (2010). Using matched groups to explore child behavior problems and maternal well-being in children with down syndrome and autism. Journal of Autism and Developmental Disorders, 40(5), 610–619.PubMed

Gupta, V. B. (2007). Comparison of parenting stress in different developmental disabilities. Journal of Developmental and Physical Disabilities, 19(4), 417–425.

Hall, H. R., & Graff, J. C. (2011). The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping. Comprehensive Child and Adolescent Nursing, 34(1), 4–25.

Hall, H. R., & Graff, J. C. (2012). Maladaptive behaviors of children with autism: Parent support, stress, and coping. Comprehensive Child and Adolescent Nursing, 35(3–4), 194–214.

Halstead, E. J., Griffith, G. M., & Hastings, R. P. (2018). Social support, coping, and positive perceptions as potential protective factors for the well-being of mothers of children with intellectual and developmental disabilities. International Journal of Developmental Disabilities, 64(4–5), 288–296.

Handley, E. D., & Chassin, L. (2008). Stress-induced drinking in parents of adolescents with externalizing symptomatology: The moderating role of parent social support. American Journal on Addictions, 17(6), 469–477.PubMed

Herman, S. E., & Thompson, L. (1995). Families’ perceptions of their resources for caring for children with developmental disabilities. Mental Retardation, 33(2), 73–83.PubMed

Hu, L. T., & Bentler, P. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural equation modeling: A multidisciplinary journal, 6(1), 1–55.

Johnson, K. P., Giannotti, F., & Cortesi, F. (2009). Sleep patterns in autism spectrum disorders. Child and Adolescent Psychiatric Clinics of North America, 18(4), 917–928.PubMed

Jöreskog, K., & Sörbom, D. (1981). LISREL V: Analysis of linear structural relationships by the method of maximum likelihood. Chicago: National Educational Resources.

Ke, X., Liu, C., & Li, N. (2010). Social support and quality of life: A cross-sectional study on survivors eight months after the 2008 Wenchuan earthquake. BMC Public Health, 10, 573. https://doi.org/10.1186/1471-2458-10-573.CrossRefPubMedPubMedCentral

Kim, Y. S., Leventhal, B. L., Koh, Y. J., Fombonne, E., Laska, E., Lim, E. C., et al. (2011). Prevalence of autism spectrum disorders in a total population sample. American Journal of Psychiatry, 168(9), 904–912.PubMed

Koeske, G. F., & Koeske, R. D. (1990). The buffering effect of social support on parental stress. American Journal of Orthopsychiatry, 60(3), 440–451.PubMed

Konstantareas, M. M., & Homatidis, S. (1989). Assessing child symptom severity and stress in parents of autistic children. Journal of Child Psychology and Psychiatry, 30(3), 459–470.PubMed

Lee, J. X., Ong, S. I., Lee, V. Y., & Abd Rahman, F. N. (2017). Parenting stress among Malaysian parents of children with Autism Spectrum Disorder (ASD). Medicine & Health, 12(1), 42–55.

Montes, G., & Halterman, J. S. (2007). Bullying among children with autism and the influence of comorbidity with ADHD: A population-based study. Ambulatory Pediatrics, 199(5), 1040–1046.

Muthén, L. K., & Muthén, B. O. (2012). Mplus User’s Guide (7th ed.). Los Angeles, CA: Muthén.

Neece, C. L., Green, S. A., & Baker, B. L. (2012). Parenting stress and child behavior problems: A transactional relationship across time. American Journal on Intellectual and Developmental Disabilities, 117(1), 48–66.PubMedPubMedCentral

Onyedibe, M. C. C., Ugwu, L. I., Mefoh, P. C., & Onuiri, C. (2018). Parents of children with down syndrome: Do resilience and social support matter to their experience of career stress? Journal of Psychology in Africa, 28(2), 94–99.

Phetrasuwan, S., & Shandor Miles, M. (2009). Parenting stress in mothers of children with autism spectrum disorders. Journal for Specialists in Pediatric Nursing, 14(3), 157–165.PubMed

Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609–1620.PubMed

Saisto, T., Salmela-Aro, K., Nurmi, J. E., & Halmesmäki, E. (2008). Longitudinal study on the predictors of parental stress in mothers and fathers of toddlers. Journal of Psychosomatic Obstetrics and Gynecology, 29(3), 213–222.PubMed

Sameroff, A. J. (2009). Conceptual issues in studying the development of self-regulation. In S. L. Olson & A. J. Sameroff (Eds.), Biopsychosocial regulatory processes in the development of childhood behavioral problems (pp. 1–18). New York: Cambridge University Press.

Sarason, I. G., Sarason, B. R., Potter, E. H., & Antoni, M. H. (1985). Life events, social support, and illness. Psychosomatic Medicine, 47(2), 156–163.PubMed

Schieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle, C. (2007). The relationship between autism and parenting stress. Pediatrics, 119, 1114–1121.

Sharpley, C. F., Bitsika, V., & Efremidis, B. (1997). Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with autism. Journal of Intellectual and Developmental Disability, 22(1), 19–28.

Siedlecki, K. L., Salthouse, T. A., Oishi, S., & Jeswani, S. (2014). The relationship between social support and subjective well-being across age. Social Indicators Research, 117, 561–576. https://doi.org/10.1007/s11205-013-0361-4.CrossRefPubMed

Silva, L. M. T., & Schalock, M. (2012). Autism parenting stress index: Initial psychometric evidence. Journal of Autism and Developmental Disorders, 42(4), 566–574.PubMed

Smith, L. E., Greenberg, J. S., & Seltzer, M. M. (2012). Social support and well-being at mid-life among mothers of adolescents and adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42(9), 1818–1826.PubMedPubMedCentral

Solomon, Z., Mikulincer, M., & Hobfoll, S. E. (1987). Objective versus subjective measurement of stress and social support: Combat-related reactions. Journal of Consulting and Clinical Psychology, 55(4), 577–584.PubMed

Steiger, J. H. (1990). Structural model evaluation and modification: An interval estimation approach. Multivariate Behavioral Research, 25(2), 173–180.PubMed

Stewart, R. C., Umar, E., Tomenson, B., & Creed, F. (2014). A cross-sectional study of antenatal depression and associated factors in Malawi. Archives of Women’s Mental Health, 17(2), 145–154.PubMed

Tanaka, J. S. (1987). “How big is big enough?”: Sample size and goodness of fit in structural equation models with latent variables. Child Development, 58, 134–146.

Totsika, V., Hastings, R. P., Emerson, E., Lancaster, G. A., Berridge, D., & Vagenas, D. (2013). Is there a bidirectional relationship between maternal well-being and child behavior problems in autism spectrum disorders? Longitudinal analysis of a population-defined sample of young children. Autism Research, 6(3), 201–211. https://doi.org/10.1002/aur.1279.CrossRefPubMed

Tucker, L. R., & Lewis, C. (1973). A reliability coefficient for maximum likelihood factor analysis. Psychometrika, 38(1), 1–10.

Ullrich, G., Bobis, I., & Bewig, B. (2015). Perceived impact of motherhood on adherence to therapy in mothers with cystic fibrosis. Pneumologie, 69(11), 673–679.PubMed

Waugh, I. (2017). The prevalence of autism (including Asperger’s Syndrome) in school age children in Northern Ireland 2017. Department of Health (Northern Ireland). Retrieved September 18, 2019 from https://dera.ioe.ac.uk/29786/.

Wilcox, B. L. (1981). Social support, life stress, and psychological adjustment: A test of the buffering hypothesis. American Journal of Community Psychology, 9(4), 371–386.PubMed

Zablotsky, B., Black, L. I., Maenner, M. J., Schieve, L. A., & Blumberg, S. J. (2015). Estimated prevalence of autism and other developmental disabilities following questionnaire changes in the 2014 national health interview survey. National Health Statistics Reports, 13(87), 1–20.

Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988). The multidimensional scale of perceived social support. Journal of Personality Assessment, 52(1), 30–41.

Titel: Brief Report: Stress and Perceived Social Support in Parents of Children with ASD
Auteurs: Kateryna Drogomyretska
Robert Fox
Dylan Colbert
Publicatiedatum: 21-03-2020
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 11/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-020-04455-x

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 11/2020

Brief Report: Impact of a Physical Exercise Intervention on Emotion Regulation and Behavioral Functioning in Children with Autism Spectrum Disorder

Brief Report: Predicting Social Skills from Semantic, Syntactic, and Pragmatic Language Among Young Children with Autism Spectrum Disorder

Please, Don’t Shoot the Meta-analysis: A Response to “A Commentary to Toddler Screening for Autism Spectrum Disorder: A Meta-analysis of Diagnostic Accuracy by Sánchez-Garcia et al. 2019”

Mentalising Moderates the Link between Autism Traits and Current Gender Dysphoric Features in Primarily Non-autistic, Cisgender Individuals

Family-Centered Cognitive Behavioral Therapy for Anxiety in Very Young Children with Autism Spectrum Disorder

Brief Report: Reduced Heart Rate Variability in Children with Autism Spectrum Disorder