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01-06-2013 | Brief Report

Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families

Auteurs: Stephen G. Post, John Pomeroy, Carla C. Keirns, Virginia Isaacs Cover, Michael Leverett Dorn, Louis Boroson, Florence Boroson, Anne Coulehan, Jack Coulehan, Kim Covell, Kim Kubasek, Elizabeth Luchsinger, Shana Nichols, James Parles, Linda Schreiber, Samara P. Tetenbaum, Rose Ann Walsh

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2013

Abstract

The increased prevalence of autism spectrum disorders (ASD), with associated societal and clinical impacts, calls for a broad community-based dialogue on treatment related ethical and social issues. The Stony Brook Guidelines, based on a community dialogue process with affected individuals, families and professionals, identify and discuss the following topics: treatment goals and happiness, distributive justice, managing the hopes for a cure, sibling responsibilities, intimacy and sex, diagnostic ethics, and research ethics. Our guidelines, based not on “top-down” imposition of professional expertise but rather on “bottom-up” grass roots attention to the voices of affected individuals and families speaking from experience, can inform clinical practice and are also meaningful for the wider social conversation emerging over the treatment of individuals with ASD.

vorige artikel Brief Report: Learning Via the Electronic Interactive Whiteboard for Two Students with Autism and a Student with Moderate Intellectual Disability

volgende artikel Brief Report: Children with ADHD Without Co-morbid Autism do not have Impaired Motor Proficiency on the Movement Assessment Battery for Children

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