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Journal of Autism and Developmental Disorders

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06-07-2017 | Brief Report

Brief Report: Social Support and Coping Strategies of Mothers of Children Suffering from ASD in Kuwait

Auteurs: S. Al-Kandari, A. Alsalem, S. Abohaimed, F. Al-Orf, M. Al-Zoubi, R. Al-Sabah, N. Shah

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 10/2017

Abstract

This cross-sectional study provides a general profile of mothers of children with ASDs in Kuwait and examines their use of social support resources and coping strategies (using the Brief COPE questionnaire). The majority of mothers reported decreased ability to perform social duties (62.4%) and take care of themselves (50.5%). Overall, 57.7% of mothers reported a decreased ability to enjoy life; this difference was more pronounced among non-Kuwaiti mothers compared to Kuwaiti mothers (p value = 0.03), and in mothers with a bachelor’s degree or higher (p value = 0.011). There was a significant association between the mothers’ ability to enjoy life and receiving support from the family (p value = 0.021) and support groups (p value = 0.003). “Religion”, “Acceptance”, and “Positive Reframing” were the 3 most common coping strategies.

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Al-Farsi, Y., Waly, M., Al-Sharbati, M., Al-Shafaee, M., Al-Farsi, O., Al-Fahdi, S., Ouhtit, A., Al-Khaduri, M. and Al-Adawi, S. (2013). Variation in socio-economic burden for caring of children with autism spectrum disorder in Oman: Caregiver perspectives. Journal of Autism and Developmental Disorders, 43(5), 1214–1221.CrossRefPubMed

Al-Salehi, S. M., Al-Hifthy, E. H., & Ghaziuddin, M. (2009). Autism in Saudi Arabia: Presentation, clinical correlates and comorbidity. Transcultural Psychiatry, 46(2), 340–347. doi:10.1177/1363461509105823.CrossRefPubMed

American Psychiatric Association (2013). DSM-5 and diagnoses for children. Retrieved from http://www.psychiatry.org/psychiatrists/practice/dsm/dsm-5.

Ano, G. G., & Vasconcelles, E. B. (2005). Religious coping and psychological adjustment to stress: A meta-analysis. Journal of Clinical Psychology, 61(4), 461–480. doi:10.1002/jclp.20049.CrossRefPubMed

Benson, P. R. (2010). Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders, 4, 217–228. doi:10.1016/j.rasd.2009.09.008.CrossRef

Benson, P. R. (2014). Coping and psychological adjustment among mothers of children with ASD: An accelerated longitudinal study. Journal of Autism and Developmental Disorders, 44(8), 1793–1807. doi:10.1007/s10803-014-2079-9.CrossRefPubMed

Bilgin, H., & Kucuk, L. (2010). Raising an autistic child: Perspectives from Turkish mothers. Journal of Child and Adolescent Psychiatric Nursing, 23(2), 92–99.CrossRefPubMed

Boyd, B. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17, 208–215.CrossRef

Buescher, A. V., Cidav, Z., Knapp, M., & Mandell, D. S. (2014). Costs of autism spectrum disorders in the United Kingdom and the United States. JAMA Psychiatry, 168(8), 721–728. doi:10.1001/jamapediatrics.2014.210.

Carver, C. S. (1997). You want to measure coping but your protocol’s too long: Consider the brief COPE. International Journal of Behavioral Medicine, 4(1), 92–100. doi:10.1207/s15327558ijbm0401_6.CrossRefPubMed

CDC (2017). Autism spectrum disorder: Data and statistics. Retrieved from Centers for disease control and prevention website: https://www.cdc.gov/ncbddd/autism/data.html Retrieved from https://www.cdc.gov/ncbddd/autism/data.html.

Crabtree, S. (2007). Family responses to the social inclusion of children with developmental disabilities in the United Arab Emirates. Disability and Society, 22(1), 49–62.CrossRef

Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research: JIDR, 54(3), 266–280. doi:10.1111/j.1365-2788.2010.01258.x.CrossRefPubMed

Ewles, G., Clifford, T., & Minnes, P. (2014). Predictors of advocacy in parents of children with autism spectrum disorders. Journal on Developmental Disabilities, 20(1), 73–82.

Favero-Nunes, M. A., & dos Santos, M. A. (2010). Depression and quality of life in mothers of children with pervasive developmental disorders. Revista Latino-Americana de Enfermagem, 18(1), 33–40.CrossRefPubMed

Fombonne, E. (2009). Epidemiology of pervasive developmental disorders. Pediatric Research, 65(6), 591–598. doi:10.1203/PDR.0b013e31819e7203.CrossRefPubMed

Gold, M. (2017). Parent perceptions of the relation between resilience, autism, and sibling relationship quality. (Doctor of Philosophy). New York: Fordham University.

Hersinta. (2012). How Religious Beliefs Influence Understanding on Disability: A Study of Muslim Family’s Perception on Autism Jogja International Conference on Communication.

Khanna, R., Madhavan, S., Smith, M., Patrick, J., Tworek, C., & Becker-Cottrill, B. (2011). Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41, 1227–1241.CrossRef

Krok, D. (2008). The role of spirituality in coping: Examining the relationships between spiritual dimensions and coping styles. Mental Health, Religion & Culture, 11(7), 643–653.CrossRef

Langley, E., Totsika, V., & Hastings, R. P. (2017). Parental relationship satisfaction in families of children with autism spectrum disorder (ASD): A multilevel analysis. Autism Research. doi:10.1002/aur.1773.PubMed

Levy, S., Mandell, S., & Schultz, R. (2011). Autism. Lancet. doi:10.1016/S0140-6736(09)61376-3.

Luthra, N. (2010). Family impact of raising a child with autism across different cultures (Masters Thesis), York University Ontario Proquest database.

Meyer, B. (2001). Coping with severe mental illness: Relations of the brief COPE with symptoms, functioning, and well-being. Journal of Psychopathology and Behavioral Assessment, 23(4), 265–277.CrossRef

Obeid, R., & Daou, N. (2014). The effects of coping style, social support, and behavioral problems on the well-being of mothers of children with autism spectrum disorders in Lebanon. Research in Autism Spectrum Disorders, 10, 59–70.CrossRef

Samadi, S. A., & McConkey, R. (2011). Autism in developing countries: Lessons from Iran. Autism Research and Treatment, 2011, 145359. doi:10.1155/2011/145359.CrossRefPubMedPubMedCentral

Smith, L., Seltzer, M., Tager-Flusberg, H., Greenberg, J., & Carter, A. (2008). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders, 38(5), 876–889. doi:10.1007/s10803-007-0461-6.CrossRefPubMedPubMedCentral

Valente, S. (2004). Autism. Journal of the American Psychiatric Nurses Association. doi:10.1177/1078390304269789.

Vasilopoulou, E., & Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder: A systematic review. Research in Autism Spectrum Disorders, 23, 36–49.CrossRef

Weiss, J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism: The International Journal of Research and Practice, 6(1), 115–130.CrossRef

Zaidman-Zait, A., Mirenda, P., Duku, E., Vaillancourt, T., Smith, I. M., Szatmari, P., … Thompson, A. (2016). Impact of personal and social resources on parenting stress in mothers of children with autism spectrum disorder. Autism: The International Journal of Research and Practice. doi:10.1177/1362361316633033.

Titel: Brief Report: Social Support and Coping Strategies of Mothers of Children Suffering from ASD in Kuwait
Auteurs: S. Al-Kandari
A. Alsalem
S. Abohaimed
F. Al-Orf
M. Al-Zoubi
R. Al-Sabah
N. Shah
Publicatiedatum: 06-07-2017
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 10/2017
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-017-3225-y

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