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Journal of Autism and Developmental Disorders

Gepubliceerd in:

24-09-2015 | Brief Report

Brief Report: Recruitment and Retention of Minority Children for Autism Research

Auteurs: Irina Zamora, Marian E. Williams, Marcia Higareda, Barbara Y. Wheeler, Pat Levitt

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 2/2016

Abstract

Given the underrepresentation of ethnic minorities in health research (Heiat et al. in Arch Int Med 162(15):1–17, 2002; Kelly et al. in J Nat Med Assoc 97:777–783, 2005; United States Department of Health and Human Services. Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research. http://orwh.od.nih.gov/research/inclusion/reports.asp, 2013), this study evaluated promising strategies to effectively recruit Latinos into genetic research on autism spectrum disorders (ASD). The study included 97 children, aged 5–17 years, with ASD; 82.5 % of the participants were identified as Latino/Hispanic. Traditional and culture-specific recruitment and retention strategies were compared between the Latino and non-Latino groups. Culture-specific, parent-centered approaches were found to be successful in engaging and retaining Latino participants for research involving genetic testing.

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Titel: Brief Report: Recruitment and Retention of Minority Children for Autism Research
Auteurs: Irina Zamora
Marian E. Williams
Marcia Higareda
Barbara Y. Wheeler
Pat Levitt
Publicatiedatum: 24-09-2015
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 2/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-015-2603-6

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