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24-09-2015 | Brief Report | Uitgave 2/2016

Journal of Autism and Developmental Disorders 2/2016

Brief Report: Recruitment and Retention of Minority Children for Autism Research

Journal of Autism and Developmental Disorders > Uitgave 2/2016
Irina Zamora, Marian E. Williams, Marcia Higareda, Barbara Y. Wheeler, Pat Levitt


Given the underrepresentation of ethnic minorities in health research (Heiat et al. in Arch Int Med 162(15):1–17, 2002; Kelly et al. in J Nat Med Assoc 97:777–783, 2005; United States Department of Health and Human Services. Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research. http://​orwh.​od.​nih.​gov/​research/​inclusion/​reports.​asp, 2013), this study evaluated promising strategies to effectively recruit Latinos into genetic research on autism spectrum disorders (ASD). The study included 97 children, aged 5–17 years, with ASD; 82.5 % of the participants were identified as Latino/Hispanic. Traditional and culture-specific recruitment and retention strategies were compared between the Latino and non-Latino groups. Culture-specific, parent-centered approaches were found to be successful in engaging and retaining Latino participants for research involving genetic testing.

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