Skip to main content
Top
Gepubliceerd in: Journal of Autism and Developmental Disorders 5/2017

17-02-2017 | Brief Report

Brief Report: Meeting the Needs of Medically Hospitalized Adults with Autism: A Provider and Patient Toolkit

Auteurs: Jocelyn Carter, Sarabeth Broder-Fingert, Ann Neumeyer, Ann Giauque, Ann Kao, Christiana Iyasere

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 5/2017

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

In an effort to meet the needs of adults with autism spectrum disorder (ASD) while hospitalized, a team of experts and providers from Massachusetts General Hospital (MGH), MGH for Children as well as parents of individuals with ASD was sparked in 2013. This became a multidisciplinary collaborative, the MGH Autism Care Collaborative, to improve adult care for inpatients with ASD. The collaborative was created with three goals in mind: (1) to educate internal medicine adult inpatient providers and staff on the unique needs of adults with ASD when hospitalized; (2) to create ASD specific resources for internal medicine adult inpatient providers; (3) to optimize patient care from admission to discharge among adults with ASD admitted to internal medicine services.
Literatuur
go back to reference American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders, (5th ed.). Washington, D.C: American Psychiatric Publishing.CrossRef American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders, (5th ed.). Washington, D.C: American Psychiatric Publishing.CrossRef
go back to reference Broder-Fingert, S., Shui, A., Ferrone, C., Iannuzzi, D., Cheng, E., Giauque, A., Connors, S., McDougle, C., Donelan, K., Neumeyer, A., & Kuhlthau, K. (2016). A Pilot Study of Autism-Specific Care Plans During Hospital Admission. Pediatrics, 137(Suppl 2), 196–204.CrossRef Broder-Fingert, S., Shui, A., Ferrone, C., Iannuzzi, D., Cheng, E., Giauque, A., Connors, S., McDougle, C., Donelan, K., Neumeyer, A., & Kuhlthau, K. (2016). A Pilot Study of Autism-Specific Care Plans During Hospital Admission. Pediatrics, 137(Suppl 2), 196–204.CrossRef
go back to reference Bruder, M.B., Kerins, G., Mazzarella, C., Sims, J., & Stein, N. (2012) Brief report: The medical care of adults with autism spectrum disorders: identifying the needs. Journal of Autism and Developmental Disorders, 42(11), 2498–2508.CrossRefPubMed Bruder, M.B., Kerins, G., Mazzarella, C., Sims, J., & Stein, N. (2012) Brief report: The medical care of adults with autism spectrum disorders: identifying the needs. Journal of Autism and Developmental Disorders, 42(11), 2498–2508.CrossRefPubMed
go back to reference Brugha, T., McManus, S., Bankart, J., Scott, F., Purdon, S., Smith, J., Bebbington, P., Jenkins, R., & Meltzer, H. (2011). Epidemiology of autism spectrum disorders in adults in the community in England. Archieves of General. Psychiatry, 68(5), 459–465. Brugha, T., McManus, S., Bankart, J., Scott, F., Purdon, S., Smith, J., Bebbington, P., Jenkins, R., & Meltzer, H. (2011). Epidemiology of autism spectrum disorders in adults in the community in England. Archieves of General. Psychiatry, 68(5), 459–465.
go back to reference Centers for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorder among children aged years-auism and developmental disabilities monitoring network, 61, 1–21. Centers for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorder among children aged years-auism and developmental disabilities monitoring network, 61, 1–21.
go back to reference Gabriels, R. L., Agnew, J. A., Beresford, C., Morrow, M. A., Mesibov, G., & Wamboldt, M. (2012). Improving psychiatric hospital care for pediatric patients with autism spectrum disorders and intellectual disabilities. Autism Research and Treatment, 68, 50–53. Gabriels, R. L., Agnew, J. A., Beresford, C., Morrow, M. A., Mesibov, G., & Wamboldt, M. (2012). Improving psychiatric hospital care for pediatric patients with autism spectrum disorders and intellectual disabilities. Autism Research and Treatment, 68, 50–53.
go back to reference Giarelli, E., Nocera, R., Turchi, R., Hardie, T. L., Pagano, R., & Yuan, C. (2014). Sensory stimuli as obstacles to emergency care for children with autism spectrum disorder. Advanced Emergency Nursing Journal, 36(2), 145–163.CrossRefPubMed Giarelli, E., Nocera, R., Turchi, R., Hardie, T. L., Pagano, R., & Yuan, C. (2014). Sensory stimuli as obstacles to emergency care for children with autism spectrum disorder. Advanced Emergency Nursing Journal, 36(2), 145–163.CrossRefPubMed
go back to reference Golnik, A., Ireland, M., & Borowsky, I. W. (2009). Medical homes for children with autism: a physician survey. Pediatrics, 123(3), 966–971.CrossRefPubMed Golnik, A., Ireland, M., & Borowsky, I. W. (2009). Medical homes for children with autism: a physician survey. Pediatrics, 123(3), 966–971.CrossRefPubMed
go back to reference Gotham, K., Marvin, A., Taylor, J., Warren, Z., Anderson, C., Law, P., Law, J., & Lipkin, P. (2015). Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data. Autism, 19(7), 794–804.CrossRefPubMedPubMedCentral Gotham, K., Marvin, A., Taylor, J., Warren, Z., Anderson, C., Law, P., Law, J., & Lipkin, P. (2015). Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data. Autism, 19(7), 794–804.CrossRefPubMedPubMedCentral
go back to reference Isong, I., Rao, S., Holifield, C., Iannuzzi, D., Hanson, E., Ware, J., & Nelson, L. (2014). Addressing dental fear in children with autism spectrum disorders: a randomized controlled pilot study using electronic screen media. Clinical Pediatrics, 53(3), 230–237.CrossRefPubMed Isong, I., Rao, S., Holifield, C., Iannuzzi, D., Hanson, E., Ware, J., & Nelson, L. (2014). Addressing dental fear in children with autism spectrum disorders: a randomized controlled pilot study using electronic screen media. Clinical Pediatrics, 53(3), 230–237.CrossRefPubMed
go back to reference Kuhlthau, K., Warfield, M., Hurson, J., Delahaye, J., & Crossman, M. (2015). Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: current strategies and promising new directions. Autism, 19(3), 262–271.CrossRefPubMed Kuhlthau, K., Warfield, M., Hurson, J., Delahaye, J., & Crossman, M. (2015). Pediatric provider’s perspectives on the transition to adult health care for youth with autism spectrum disorder: current strategies and promising new directions. Autism, 19(3), 262–271.CrossRefPubMed
go back to reference Liptak, G., Stuart, T., & Auinger, P. (2006). Health care utilization and expenditures for children with autism: data from U.S. national samples. Journal of Autism and Developmental Disorders, 36(7), 871–879.CrossRefPubMed Liptak, G., Stuart, T., & Auinger, P. (2006). Health care utilization and expenditures for children with autism: data from U.S. national samples. Journal of Autism and Developmental Disorders, 36(7), 871–879.CrossRefPubMed
go back to reference Marion, I., Nelson, T., Sheller, B., McKinney, C., Scott, J. (2016). Dental stories for children with autism, Special Care in Dentistry, 36(4), 181–186.CrossRefPubMed Marion, I., Nelson, T., Sheller, B., McKinney, C., Scott, J. (2016). Dental stories for children with autism, Special Care in Dentistry, 36(4), 181–186.CrossRefPubMed
go back to reference May-Benson, T. A., & Koomar, J. A. (2010). Systematic review of the research evidence examining the effectiveness of interventions using a sensory integrative approach for children. American Journal of Occupational Therapy, 64(3), 403–414.CrossRefPubMed May-Benson, T. A., & Koomar, J. A. (2010). Systematic review of the research evidence examining the effectiveness of interventions using a sensory integrative approach for children. American Journal of Occupational Therapy, 64(3), 403–414.CrossRefPubMed
go back to reference McGonigle, J., Migyanka, J., Glor-Scheib, S., Cramer, R., Fratangeli, J., Hegde, G., Shang, J., & Venkat, A. (2014). Development and evaluation of educational materials for pre-hospital and emergency department personnel on the care of patients with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(5), 1252–1259.CrossRefPubMed McGonigle, J., Migyanka, J., Glor-Scheib, S., Cramer, R., Fratangeli, J., Hegde, G., Shang, J., & Venkat, A. (2014). Development and evaluation of educational materials for pre-hospital and emergency department personnel on the care of patients with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(5), 1252–1259.CrossRefPubMed
go back to reference McGuire, K., Fung, L., Hagopian, L., Vasa, R., Mahajan, R., Bernal, P., Silberman, A., Wolfe, A., Coury, D., Hardan, A., Veenstra-VanderWeele, J., & Whitaker, A. (2016). Irritability and problem behavior in autism spectrum disorder: A practice pathway for pediatric primary care. Pediatrics, 137(Suppl 2), 136–148.CrossRef McGuire, K., Fung, L., Hagopian, L., Vasa, R., Mahajan, R., Bernal, P., Silberman, A., Wolfe, A., Coury, D., Hardan, A., Veenstra-VanderWeele, J., & Whitaker, A. (2016). Irritability and problem behavior in autism spectrum disorder: A practice pathway for pediatric primary care. Pediatrics, 137(Suppl 2), 136–148.CrossRef
go back to reference Mesibov, G., Browder, D., & Kirkland, C. (2002). Using individualized schedules as a component of positive behavior support for students with developmental disabilities. Journal of Positive Behavior Interventions, 25, 58–72. Mesibov, G., Browder, D., & Kirkland, C. (2002). Using individualized schedules as a component of positive behavior support for students with developmental disabilities. Journal of Positive Behavior Interventions, 25, 58–72.
go back to reference Nicolaidis, C., Raymaker, D., McDonald, K., Dern, S., Boisclair, W., Ashkenazy, E., & Baggs, A. (2013). Comparison of healthcare experiences in autistic and non-autistic adults: a cross-sectional online survey facilitated by an academic-community partnership. Journal of General Internal Medicine, 28(6), 761–769.CrossRefPubMed Nicolaidis, C., Raymaker, D., McDonald, K., Dern, S., Boisclair, W., Ashkenazy, E., & Baggs, A. (2013). Comparison of healthcare experiences in autistic and non-autistic adults: a cross-sectional online survey facilitated by an academic-community partnership. Journal of General Internal Medicine, 28(6), 761–769.CrossRefPubMed
go back to reference Siegel, M., Doyle, K., Chemelski, B., Payne, D., Ellsworth, B., Harmon, J., Robbins, D., Milligan, B., & Lubetsky, M. (2012). Specialized inpatient psychiatry units for children with autism and developmental disorders: A United States survey. Journal of Autism and Developmental Disorders, 42(9), 1863–1869.CrossRefPubMed Siegel, M., Doyle, K., Chemelski, B., Payne, D., Ellsworth, B., Harmon, J., Robbins, D., Milligan, B., & Lubetsky, M. (2012). Specialized inpatient psychiatry units for children with autism and developmental disorders: A United States survey. Journal of Autism and Developmental Disorders, 42(9), 1863–1869.CrossRefPubMed
go back to reference Siegel, M., Milligan, B., Chemelski, B., Payne, D., Ellsworth, B., Harmon, J., Teer, O., & Smith, K. A. (2014). Specialized inpatient psychiatry for serious behavioral disturbance in autism and intellectual disability. Journal of Autism and Developmental Disorders, 44(12), 3026–3032.CrossRefPubMed Siegel, M., Milligan, B., Chemelski, B., Payne, D., Ellsworth, B., Harmon, J., Teer, O., & Smith, K. A. (2014). Specialized inpatient psychiatry for serious behavioral disturbance in autism and intellectual disability. Journal of Autism and Developmental Disorders, 44(12), 3026–3032.CrossRefPubMed
go back to reference Suarez, M. (2012). Sensory processing in children with autism spectrum disorders and impact on functioning. Pediatric Clinics of North America, 59(1), 203–214.CrossRefPubMed Suarez, M. (2012). Sensory processing in children with autism spectrum disorders and impact on functioning. Pediatric Clinics of North America, 59(1), 203–214.CrossRefPubMed
go back to reference Vaz, I. (2013). Visual symbols in health care settings for children with learning disabilities and autism spectrum disorder. British Journal of Nursing, 22, 156–159.CrossRefPubMed Vaz, I. (2013). Visual symbols in health care settings for children with learning disabilities and autism spectrum disorder. British Journal of Nursing, 22, 156–159.CrossRefPubMed
go back to reference Vlassakova, B., & Emmanouil, D. (2016). Perioperative considerations in children with autism spectrum disorder, Current Opinion in Anaesthesiology, 29(3), 359–366.CrossRefPubMed Vlassakova, B., & Emmanouil, D. (2016). Perioperative considerations in children with autism spectrum disorder, Current Opinion in Anaesthesiology, 29(3), 359–366.CrossRefPubMed
go back to reference Warfield, M., Crossman, M., Delahaye, J., Der Weerd, E., & Kuhlthau, K. (2015). Physician perspectives on providing primary medical care to adults with autism spectrum disorders (ASD). Journal of Autism and Developmental Disorders, 45(7), 2209–2217.CrossRefPubMed Warfield, M., Crossman, M., Delahaye, J., Der Weerd, E., & Kuhlthau, K. (2015). Physician perspectives on providing primary medical care to adults with autism spectrum disorders (ASD). Journal of Autism and Developmental Disorders, 45(7), 2209–2217.CrossRefPubMed
go back to reference Wu, C., Kung, P., Li, C., Tsai, W. (2014). The difference in medical utilization and associated factors between children and adolescents with and without autism spectrum disorders. Research in Developmental Disabilities, 36 C, 78–86. Wu, C., Kung, P., Li, C., Tsai, W. (2014). The difference in medical utilization and associated factors between children and adolescents with and without autism spectrum disorders. Research in Developmental Disabilities, 36 C, 78–86.
go back to reference Zerbo, O., Massolo, M., Qian, Y., & Croen, L. (2015). A study of physician knowledge and experience with autism in adults in a large integrated healthcare system. Journal of Autism and Developmental Disorders, 45(12), 4002–4014.CrossRefPubMed Zerbo, O., Massolo, M., Qian, Y., & Croen, L. (2015). A study of physician knowledge and experience with autism in adults in a large integrated healthcare system. Journal of Autism and Developmental Disorders, 45(12), 4002–4014.CrossRefPubMed
Metagegevens
Titel
Brief Report: Meeting the Needs of Medically Hospitalized Adults with Autism: A Provider and Patient Toolkit
Auteurs
Jocelyn Carter
Sarabeth Broder-Fingert
Ann Neumeyer
Ann Giauque
Ann Kao
Christiana Iyasere
Publicatiedatum
17-02-2017
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 5/2017
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-017-3040-5

Andere artikelen Uitgave 5/2017

Journal of Autism and Developmental Disorders 5/2017 Naar de uitgave