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Journal of Autism and Developmental Disorders

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21-11-2017 | Brief Report

Brief Report: Mapping Systems of Support and Psychological Well-Being of Mothers of Adolescents with Autism Spectrum Disorders

Auteurs: Jocelyn Kuhn, Katie Ford, Leann Smith Dawalt

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 3/2018

Abstract

Parents of children with autism spectrum disorders are generally known to experience elevated levels of stress and poorer psychological well-being. To provide treatments and resources that most effectively support parent mental health, it is critical to understand how parents’ connections with various networks and systems impact their well-being. This study examined the relationship between the psychological well-being of mothers of adolescents with ASD (n = 20) and their systems of support from an ecological systems theoretical framework. Findings indicated that most connections across mothers’ ecosystems were strong in nature. However, the presence of strong connections was not significantly related to psychological well-being. In contrast, stressful/weak connections were significantly related to elevated levels of depressive symptoms, perceived stress, and sense of burden.

vorige artikel Brief Report: Checklist for Autism Spectrum Disorder: Most Discriminating Items for Diagnosing Autism

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Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, down syndrome, or fragile X syndrome. American Journal on Mental Retardation, 109(3), 237–254.CrossRefPubMed

Barker, E. T., Mailick, M. R., & Smith, L. E. (2014). Chronic parenting stress in mothers of adolescents and adults with autism: Vulnerability and resilience. In The Comprehensive Guide to Autism (pp. 207–222). London: Springer.CrossRef

Baumgartner, J., Burnett, L., DiCarlo, C. F., & Buchanan, T. (2012). An inquiry of children’s social support networks using eco-maps. Child & Youth Care Forum, 41(4), 357–369.CrossRef

Bédard, M., Molloy, D. W., Squire, L., Dubois, S., Lever, J. A., & O’Donnell, M. (2001). The Zarit burden interview a new short version and screening version. The Gerontologist, 41(5), 652–657.CrossRefPubMed

Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17(4), 208–215.CrossRef

Bronfenbrenner, U. (1977). Toward an experimental ecology of human development. American Psychologist, 32, 582–590.CrossRef

Bronfenbrenner, U. (1979). The ecology of human development: experiments by nature and design. Cambridge, MA: Harvard University Press.

Bronfenbrenner, U. (1986). Ecology of the family as a context for human development: Research perspectives. Developmental Psychology, 22(6), 723–742.CrossRef

Bronfenbrenner, U. (1999). Environments in developmental perspective: Theoretical and operational models. In S. L. Friedman & T. D. Wachs (Eds.), Measuring environment across the life span: Emerging methods and concepts (pp. 3–28). Washington, D.C.: American Psychological Association Press.CrossRef

Cadman, T., Eklund, H., Howley, D., Hayward, H., Clarke, H., Findon, J., … Glaser, K. (2012). Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom. Journal of the American Academy of Child & Adolescent Psychiatry, 51(9), 879–888.CrossRef

Carter, A. S., de Martinez-Pedraza, F. L., & Gray, S. A. O. (2009). Stability and individual change in depressive symptoms among mothers raising young children with ASD: Maternal and child correlates. Journal of Clinical Psychology, 65(12), 1270–1280.CrossRefPubMed

Cohen, S., & Janicki-Deverts, D. (2012). Who’s stressed? Distributions of psychological stress in the United States in probability samples from 1983, 2006, and 2009. Journal of Applied Social Psychology, 42(6), 1320–1334.CrossRef

Cohen, S., & Williamson, G. (1988). Perceived stress in a probability sample of the United States. In S. Spacapan, S. Oskamp (Eds.), The Social Psychology of Health. Newbury Park, CA: Sage.

DaWalt, L. S., Greenberg, J. S., & Mailick, M. R. (2017). Transitioning together: A multi-family group psychoeducation program for adolescents with ASD and their parents. Journal of Autism and Developmental Disorders. 1–13

Dente, C. L., & Coles, K. P. (2012). Ecological approaches to transition planning for students with Autism and Asperger’s Syndrome. Children & Schools, 34(1), 27–36.CrossRef

Ekas, N., & Whitman, T. L. (2010). Autism symptom topography and maternal socioemotional functioning. American Journal on Intellectual and Developmental Disabilities, 115(3), 234–249.CrossRefPubMed

Green, S. A., & Carter, A. S. (2014). Predictors and course of daily living skills development in toddlers with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(2), 256–263.CrossRefPubMedPubMedCentral

Hartman, A. (1995). Diagrammatic assessment of family relationships. Families in Society, 76(2), 111.

Hayes, S. A., & Watson, S. L. (2012). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642.CrossRef

Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 337–344.CrossRef

Keenan, B. M., Newman, L. K., Gray, K. M., & Rinehart, N. J. (2016). Parents of children with ASD experience more psychological distress, parenting stress, and attachment-related anxiety. Journal of Autism and Developmental Disorders, 46(9), 2979–2991.CrossRefPubMed

Kring, S. R., Greenberg, J. S., & Seltzer, M. M. (2010). The impact of health problems on behavior problems in adolescents and adults with autism spectrum disorder: Implications for maternal burden. Social Work in Mental Health, 8(1), 54–71.CrossRefPubMedPubMedCentral

Lee, L. C., Harrington, R. A., Louie, B. B., & Newschaffer, C. J. (2007). Children with autism: Quality of life and parental concerns. Journal of Autism and Developmental Disorders, 38(6), 1147–1160.CrossRefPubMed

Murphy, N. A., Christian, B., Caplin, D. A., & Young, P. C. (2007). The health of caregivers for children with disabilities: Caregiver perspectives. Child: Care, Health and Development, 33(2), 180–187.

Peterson, C. (2000). The future of optimism. American Psychologist, 55(1), 44–55.CrossRefPubMed

Radloff, L. S. (1977). The CES-D Scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1(3), 385–401.CrossRef

Ray, R. A., & Street, A. F. (2005). Ecomapping: An innovative research tool for nurses. Journal of Advanced Nursing, 50(5), 545–552.CrossRefPubMed

Rook, K. S. (1984). The negative side of social interaction: Impact on psychological well-being. Journal of Personality and Social Psychology, 46(5), 1097–1108.CrossRefPubMed

Rutter, M., Bailey, A., & Lord, C. (2003). Social Communication Questionnaire (SCQ). Los Angeles: Western Psychological Services.

Shattuck, P. T., Wagner, M., Narendorf, S., Sterzing, P., & Hensley, M. (2011). Post-high school service use among young adults with an autism spectrum disorder. Archives of Pediatrics & Adolescent Medicine, 165(2), 141–146.CrossRef

Smith, L. E., Greenberg, J. S., & Mailick, M. R. (2012). Adults with autism: Outcomes, family effects, and the multi-family group psychoeducation model. Current Psychiatry Reports, 14(6), 732–738.CrossRefPubMedPubMedCentral

Smith, L. E., Greenberg, J. S., & Seltzer, M. M. (2012). Social support and well-being at mid-life among mothers of adolescents and adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42(9), 1818–1826.CrossRefPubMedPubMedCentral

Taylor, J. L., & Seltzer, M. M. (2011). Changes in the mother-child relationship during the transition to adulthood for youth with autism spectrum disorder. Journal of Autism and Developmental Disorders, 41(10), 1397–1410.CrossRefPubMedPubMedCentral

Valentine, D. (1993). Children with special needs: Sources of support and stress for families. Journal of Social Work and Human Sexuality, 8(2), 107.CrossRef

Vohra, R., Madhavan, S., Sambamoorthi, U., & Peter, St., C (2014). Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions. Autism: The International Journal of Research and Practice, 18(7), 815–826.CrossRef

Washington, L. (2009). A contextual analysis of caregivers of children with disabilities. Journal of Human Behavior in the Social Environment, 19(5), 554–571.CrossRef

Titel: Brief Report: Mapping Systems of Support and Psychological Well-Being of Mothers of Adolescents with Autism Spectrum Disorders
Auteurs: Jocelyn Kuhn
Katie Ford
Leann Smith Dawalt
Publicatiedatum: 21-11-2017
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 3/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-017-3381-0

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