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01-03-2015 | Brief Report | Uitgave 3/2015

Journal of Autism and Developmental Disorders 3/2015

Brief Report: Independent Validation of Autism Spectrum Disorder Case Status in the Utah Autism and Developmental Disabilities Monitoring (ADDM) Network Site

Tijdschrift:
Journal of Autism and Developmental Disorders > Uitgave 3/2015
Auteurs:
Amanda V. Bakian, Deborah A. Bilder, Paul S. Carbone, Tyler D. Hunt, Brent Petersen, Catherine E. Rice
Belangrijke opmerkingen
This study is dedicated to our friend and co-author, Dr. Brent Petersen who passed away prior to the completion of this manuscript. Brent dedicated his life to serving others including children with autism and their families.
Brent Petersen: Deceased.

Abstract

An independent validation was conducted of the Utah Autism and Developmental Disabilities Monitoring Network’s (UT-ADDM) classification of children with autism spectrum disorder (ASD). UT-ADDM final case status (n = 90) was compared with final case status as determined by independent external expert reviewers (EERs). Inter-rater reliability (ICC = 0.84), specificity [0.83 (95 % CI 0.74–0.90)], and sensitivity [0.99 (95 % CI 0.96–1.00)] were high for ASD case versus non-case classification between UT-ADDM and EER. At least one EER disagreed with UT-ADDM on ASD final case status on nine out of 30 records; however, all three EERs disagreed with UT-ADDM for only one record. Findings based on limited data suggest that children with ASD as identified by UT-ADDM are consistently classified as ASD cases by independent autism experts.

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