Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

02-01-2021 | Brief Report

Brief report: Changes in quality of life and social functioning during vocational program – a pilot study of autistic adults

Auteurs: Michelle R. Kandalaft, Kilee M. DeBrabander

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 10/2021

Abstract

Background

Quality of life (QoL), social-emotional and occupational functioning are often diminished in young autistic adults. Measuring these constructs as vocational training outcomes may inform future programming and relevancy of measures.

Methods

This pilot study analyzed changes in social-emotional functioning and QoL during the involvement at a vocational program for autistic adults using the WHOQOL-BREF, a modified version of the Birchwood- Social Functioning Scale (SFS-m) and a piloted measure. Participants completed these self-reported questionnaires upon admission and at 3 months.

Results

Significant change was found on the SFS-m and two WHOQOL-BREF domains: psychological and environmental.

Conclusions

This pilot study suggests that autistic adults, similar in characterization, can self-report using these QoL and social measures; further, these measures are sensitive to certain changes over time in such group programs.

vorige artikel Brief Report: Impact of COVID-19 on Individuals with ASD and Their Caregivers: A Perspective from the SPARK Cohort

volgende artikel Electroconvulsive Therapy for Catatonia with mTOR Mutation

When the paired t-test analysis was run using the dropped participant’s unfinished totaled score at Time 2, the overall change over time was not found to be significant (t(6) = −1.04, p = 0.34).

Although nP recruits both cognitively able autistic individuals as well as autistic individuals with intellectual disability, at the time of data collection, only cognitively able individuals were admitted during the time of data collection.

APA. (2013). DSM-5 table of contents. American Psychiatric Publishing. https://doi.org/10.1002/ejoc.201200111.

Ayres, M., Parr, J. R., Rodgers, J., Mason, D., Avery, L., & Flynn, D. (2018). A systematic review of quality of life of adults on the autism spectrum. Autism, 22(7), 774–783. https://doi.org/10.1177/1362361317714988.CrossRefPubMed

Balfe, M., & Tantam, D. (2010). A descriptive social and health profile of a community sample of adults and adolescents with Asperger syndrome. BMC Research Notes, 3(300).

Barneveld, P. S., Swaab, H., Fagel, S., Van Engeland, H., & De Sonneville, L. M. J. (2014). Quality of life: A case-controlled long-term follow-up study, comparing young high-functioning adults with autism spectrum disorders with adults with other psychiatric disorders diagnosed in childhood. Comprehensive Psychiatry, 55(2), 302–310. https://doi.org/10.1016/j.comppsych.2013.08.001.CrossRefPubMed

Bastiaansen, J. A., Thioux, M., Nanetti, L., Van Der Gaag, C., Ketelaars, C., Minderaa, R., & Keysers, C. (2011). Age-related increase in inferior frontal gyrus activity and social functioning in autism spectrum disorder. Biological Psychiatry, 69, 832–838. https://doi.org/10.1016/j.biopsych.2010.11.007.CrossRefPubMed

Birchwood, M., Smith, J., Cochrane, R., Wetton, S., & Copestake, S. (1990). The social functioning scale. The development and validation of a new scale of social adjustment for use in family intervention programmes with schizophrenic patients. British Journal of Psychiatry, 157, 853–859.CrossRef

Bishop-Fitzpatrick, L., Mazefsky, C. A., & Eack, S. M. (2018). The combined impact of social support and perceived stress on quality of life in adults with autism spectrum disorder and without intellectual disability. Autism, 22(6), 703–711. https://doi.org/10.1177/1362361317703090.CrossRefPubMed

Bosc, M. (2000). Assessment of social functioning in depression. Comprehensive Psychiatry, 41(1), 63–69. https://doi.org/10.1016/S0010-440X(00)90133-0.CrossRefPubMed

Chan, E. H. C., Kong, S. D. X., Park, S. H., Song, Y. J. C., Demetriou, E. A., Pepper, K. L., Glozier, N., Hickie, I. B., & Guastella, A. J. (2019). Validation of the social functioning scale: Comparison and evaluation in early psychosis, autism spectrum disorder and social anxiety disorder. Psychiatry Research, 276, 45–55. https://doi.org/10.1016/j.psychres.2019.03.037.CrossRefPubMed

Chandler, S., Charman, T., Baird, G., Simonoff, E., Sych, F. R. C. P., Loucas, T. O. M., Meldrum, D., Scott, M., & Pickles, A. (2007). Validation of the social communication questionnaire in a population cohort of children with autism Spectrum disorders. Journal of American Academy of Child and Adolescent Psychiatry, 46(10), 1324–1332. https://doi.org/10.1097/chi.0b013e31812f7d8d.CrossRef

Constantino, J. N., & Gruber, C. P. (2012). Social Responsiveness Scale—Second Edition (SRS-2). Torrance, CA: Western Psychological Services.

Constantino, J. N., Davis, S. A., Todd, R. D., Schindler, M. K., Gross, M. M., Brophy, S. L., Metzger, L. M., Shoushtari, C. S., Splinter, R., & Reich, W. (2003). Validation of a brief quantitative measure of autistic traits: Comparison of the social responsiveness scale with the autism diagnostic interview-revised. Journal of Autism and Developmental Disorders, 33(4), 427–433.CrossRef

Croen, L. A., Zerbo, O., Qian, Y., Massolo, M. L., Rich, S., Sidney, S., & Kripke, C. (2015). The health status of adults on the autism spectrum. Autism, 19(7), 814–823. https://doi.org/10.1177/1362361315577517.CrossRefPubMed

Eaves, L. C., & Ho, H. H. (2008). Young adult outcome of autism spectrum disorders. Journal of Autism and Developmental Disorders, 38(4), 739–747. https://doi.org/10.1007/s10803-007-0441-x.CrossRefPubMed

Garcia-Villamisar, D., & Hughes, C. (2006). Supported employment improves cognitive performance in adults with autism. Journal of Intellectual Disability Research, 51(2), 142–150. https://doi.org/10.1111/j.1365-2788.2006.00854.x.CrossRef

Gilotty, L., Kenworthy, L., Sirian, L., Black, D. O., & Wagner, A. E. (2002). Adaptive skills and executive function in autism Spectrum disorders. Child Neuropsychology, 4, 241–248. https://doi.org/10.1076/chin.8.4.241.13504.CrossRef

Graham Holmes, L., Zampella, C. J., Clements, C., McCleery, J. P., Maddox, B. B., Parish-Morris, J., Udhnani, M. D., Schultz, R. T., & Miller, J. S. (2020). A lifespan approach to patient-reported outcomes and quality of life for people on the autism Spectrum. Autism Research, 13(6), 970–987. https://doi.org/10.1002/aur.2275.CrossRefPubMed

Harper, A., Power, M., Orley, J., Herrman, H., Schofield, H., Murphy, B., Metelko, Z., Szabo, S., Pibernik-Okanovic, M., Quemada, N., Caria, A., Rajkumar, S., Kumar, S., Saxena, S., Chandiramani, K., Amir, M., Bar-On, D., Tazaki, M., Noji, A., et al. (1998). Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological Medicine, 28(3), 551–558. https://doi.org/10.1017/S0033291798006667.CrossRef

Hesselmark, E., Plenty, S., & Bejerot, S. (2014). Group cognitive behavioural therapy and group recreational activity for adults with autism spectrum disorders: A preliminary randomized controlled trial. Autism, 18(6), 672–683. https://doi.org/10.1177/1362361313493681.CrossRefPubMedPubMedCentral

Hirvikoski, T., Mittendorfer-Rutz, E., Boman, M., Larsson, H., Lichtenstein, P., & Bölte, S. (2016). Premature mortality in autism spectrum disorder. British Journal of Psychiatry, 208(3), 232–238. https://doi.org/10.1192/bjp.bp.114.160192.CrossRef

Hong, J., Bishop-Fitzpatrick, L., Smith, L. E., Greenberg, J. S., & Mailick, M. R. (2016). Factors associated with subjective quality of life of adults with autism Spectrum disorder: Self-report versus maternal reports. Journal of Autism and Developmental Disorders, 46, 1368–1378. https://doi.org/10.1007/s10803-015-2678-0.CrossRefPubMedPubMedCentral

Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 45(2), 212–229.CrossRef

Knüppel, A., Telléus, G. K., Jakobsen, H., & Lauritsen, M. B. (2018). Quality of life in adolescents and adults with autism spectrum disorder: Results from a nationwide Danish survey using self-reports and parental proxy-reports. Research in Developmental Disabilities, 83, 247–259. https://doi.org/10.1016/j.ridd.2018.09.004.CrossRefPubMed

Lawer, L., Brusilovskiy, E., Salzer, M. S., & Mandell, D. S. (2009). Use of vocational rehabilitative services among adults with autism. Journal of Autism and Developmental Disorders, 39(3), 487–494. https://doi.org/10.1007/s10803-008-0649-4.CrossRefPubMed

Lawrence, D. H., Alleckson, D. A., & Bjorklund, P. (2010). Beyond the roadblocks: Transitioning to adulthood with Asperger’s disorder. Archives of Psychiatric Nursing, 24(4), 227–238. https://doi.org/10.1016/j.apnu.2009.07.004.CrossRefPubMed

Leifker, F. R., Patterson, T. L., Heaton, R. K., & Harvey, P. D. (2011). Validating measures of real-world outcome: The results of the VALERO expert survey and RAND panel. Schizophrenia Bulletin, 37(2), 334–343. https://doi.org/10.1093/schbul/sbp044.CrossRefPubMed

Levy, A., & Perry, A. (2011). Outcomes in adolescents and adults with autism: A review of the literature. Research in Autism Spectrum Disorders, 5(4), 1271–1282. https://doi.org/10.1016/j.rasd.2011.01.023.CrossRef

Lord, C., Risi, S., Lambrecht, L., Cook, E. H., Leventhal, B. L., Dilavore, P. C., Pickles, A., & Rutter, M. (2000). The autism diagnostic observation schedule-generic: A standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disorders, 30(3), 205–223. https://doi.org/10.1023/A:1005592401947.CrossRefPubMed

Magiati, I., Wei, X., & Howlin, P. (2014). Cognitive, language, social and behavioural outcomes in adults with autism spectrum disorders: A systematic review of longitudinal follow-up studies in adulthood. Clinical Psychology Review, 34(1), 73–86. https://doi.org/10.1016/j.cpr.2013.11.002.CrossRefPubMed

Mason, D., McConachie, H., Garland, D., Petrou, A., Rodgers, J., & Parr, J. R. (2018). Predictors of quality of life for autistic adults. Autism Research, 11(8), 1138–1147. https://doi.org/10.1002/aur.1965.CrossRefPubMedPubMedCentral

Mason, D., Mackintosh, J., McConachie, H., Rodgers, J., Finch, T., & Parr, J. R. (2019). Quality of life for older autistic people: The impact of mental health difficulties. Research in Autism Spectrum Disorders, 63, 13–22. https://doi.org/10.1016/j.rasd.2019.02.007.CrossRef

Mawhood, L., & Howlin, P. (1999). The outcome of a supported employment scheme for high-functioning adults with autism or Asperger syndrome. Autism, 3(3), 229–254. https://doi.org/10.1177/1362361399003003003.CrossRef

McConachie, H., Mason, D., Parr, J. R., Garland, D., Wilson, C., & Rodgers, J. (2018). Enhancing the validity of a quality of life measure for autistic people. Journal of Autism and Developmental Disorders, 48(5), 1596–1611. https://doi.org/10.1007/s10803-017-3402-z.CrossRefPubMed

McConachie, H., Wilson, C., Mason, D., Garland, D., Parr, J. R., Rattazzi, A., Rodgers, J., Skevington, S., Uljarevic, M., & Magiati, I. (2020). What is important in measuring quality of life? Reflections by autistic adults in four countries. Autism in Adulthood, 2(1), 4–12. https://doi.org/10.1089/aut.2019.0008.CrossRef

Moss, P., Mandy, W., & Howlin, P. (2017). Child and adult factors related to quality of life in adults with autism. Journal of Autism and Developmental Disorders, 47(6), 1830–1837. https://doi.org/10.1007/s10803-017-3105-5.CrossRefPubMedPubMedCentral

Ne’eman, A. (2010). The future (and the past) of autism advocacy, or why the ASA’s magazine, the advocate, Wouldn’t publish this piece. Disability Studies Quarterly, 30(1). https://doi.org/10.18061/dsq.v30i1.1059.

Pellicano, E., Dinsmore, A., & Charman, T. (2014). What should autism research focus upon? Community views and priorities from the United Kingdom. Autism, 18(7), 756–770. https://doi.org/10.1177/1362361314529627.CrossRefPubMedPubMedCentral

Poustka, F., & Constantino, J. N. (2008). Assessing Autistic Traits: Cross-Cultural Validation of the Social Responsiveness Scale ( SRS ). Autism Research, December, 354–363. https://doi.org/10.1002/aur.49.

Rutter, M., Bailey, A., Lord, C., & Ph, D. (2003). The Social Communication Questionnaire. WPS Publishing.

Seltzer, M. M., Shattuck, P., Abbeduto, L., & Greenberg, J. S. (2004). Trajectory of development in adolescents and adults with autism. Mental Retardation and Developmental Disabilities Research Reviews, 10(4), 234–247. https://doi.org/10.1002/mrdd.20038.CrossRefPubMed

Taylor, J. L., McPheeters, M. L., Sathe, N. A., Dove, D., Veenstra-VanderWeele, J., & Warren, Z. (2012). A systematic review of vocational interventions for young adults with autism spectrum disorders. In Pediatrics. https://doi.org/10.1542/peds.2012-0682.

Tobin, M. C., Drager, K. D. R., & Richardson, L. F. (2014). A systematic review of social participation for adults with autism spectrum disorders: Support, social functioning, and quality of life. In Research in Autism Spectrum Disorders (Vol. 8, Issue 3, pp. 214–229). https://doi.org/10.1016/j.rasd.2013.12.002.

Van Heijst, B. F. C., & Geurts, H. M. (2015). Quality of life in autism across the lifespan: A meta-analysis. Autism, 19(2), 158–167. https://doi.org/10.1177/1362361313517053.CrossRefPubMed

Walsh, L., Lydon, S., & Healy, O. (2014). Employment and vocational skills among individuals with autism Spectrum disorder: Predictors, impact, and interventions. Review Journal of Autism and Developmental Disorders, 1, 266–275. https://doi.org/10.1007/s40489-014-0024-7.CrossRef

Wechsler, D. (2011). Wechsler Abbreviated Scale of Intelligence--Second Edition (WASI-II). In Wechsler Abbreviated Scale of Intelligence--Second Edition (WASI-II). citeulike-article-id:6135820.

Wehmeyer, M. L., & Schalock, R. L. (2001). Self-determination and quality of life: Implications for special education services and supports. Focus on Exceptional Children, 33(8), 1–16. https://doi.org/10.17161/foec.v33i8.6782.CrossRef

Wei, X., Wagner, M., Hudson, L., Yu, J. W., & Shattuck, P. (2015). Transition to adulthood: Employment, education, and disengagement in individuals with autism Spectrum disorders. Emerging Adulthood, 3(1), 37–45. https://doi.org/10.1177/2167696814534417.CrossRef

WHO. (2012). WHOQOL user manual. https://doi.org/10.1007/SpringerReference_28001.

Yang, Y. C., Boen, C., Gerken, K., Li, T., Schorpp, K., & Harris, K. M. (2016). Social relationships and physiological determinants of longevity across the human life span. Proceedings of the National Academy of Sciences of the United States of America, 3, 578–583. https://doi.org/10.1073/pnas.1511085112.CrossRef

Titel: Brief report: Changes in quality of life and social functioning during vocational program – a pilot study of autistic adults
Auteurs: Michelle R. Kandalaft
Kilee M. DeBrabander
Publicatiedatum: 02-01-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 10/2021
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-020-04821-9

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Background

Methods

Results

Conclusions

Log in om toegang te krijgen

Andere artikelen Uitgave 10/2021

Comparison of Serum VEGF, IGF-1, and HIF-1α Levels in Children with Autism Spectrum Disorder and Healthy Controls

Young Adults with Autism Spectrum Disorder and the Criminal Justice System

Predicting Parent Reactions at Diagnostic Disclosure Sessions for Autism

Sex Differences in Co-occurring Conditions Among Autistic Children and Youth in Florida: A Retrospective Cohort Study (2012–2019)

Acquisition and Use of ‘Priors’ in Autism: Typical in Deciding Where to Look, Atypical in Deciding What Is There

A Distinct Three-Factor Structure of Restricted and Repetitive Behaviors in an Epidemiologically Sound Sample of Preschool-Age Children with Autism Spectrum Disorder