Skip to main content
Bohn Stafleu van Loghum
ZOEKEN
MENU 1 2 3 4
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Journal of Autism and Developmental Disorders 3/2016

19-10-2015 | Brief Report

Brief Report: Burden of Care in Mothers of Children with Autism Spectrum Disorder or Intellectual Disability

Auteurs: Jenny Fairthorne, Nick de Klerk, Helen Leonard

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 3/2016

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

Compared to other mothers, mothers of children with autism spectrum disorder (ASD) or intellectual disability (ID) have higher rates of treatment episodes for psychiatric disorders. We aimed to estimate the maternal burden of care by comparing the length of hospitalisations for psychiatric disorders and the treatment rates for psychiatric disorders after the birth in mothers of children with ASD/ID and no psychiatric history to that of other mothers with no psychiatric history. Mothers of children with ID of known cause (not Down syndrome) and mothers of children ASD without ID emerged as particularly vulnerable. Mothers of children with Down syndrome were resilient. The development of specialised organisations to provide support to mothers of children with ID of known cause (not Down syndrome) and mothers of children with ASD without ID could assist them to maintain their mental health.
vorige artikel Brief Report: Two Day-Date Processing Methods in an Autistic Savant Calendar Calculator
volgende artikel Brief Report: Non-right-Handedness Within the Autism Spectrum Disorder
Literatuur
Abbeduto, L., Seltzer, M., Shattuck, P., Krauss, M., Orsmond, G., & Murphy, M. (2004). Psychological well-being and coping in mothers of youths with autism, down syndrome, or fragile X syndrome. American Journal on Mental Retardation, 109(3), 237–254. CrossRefPubMed
American Psychiatric Association. (2013). The diagnostic and statistical manual of mental disorders: DSM 5. Arlington, VA: BookpointUS. CrossRef
Astley, S., Bailey, D., Talbot, C., & Clarren, S. (2000). Fetal alcohol syndrome (FAS) primary prevention through FAS diagnosis: Identification of high-risk birth mothers through the diagnosis of their children. Alcohol and Alcoholism, 35(5), 499–508. CrossRefPubMed
Baker, B., Blacher, J., Crnic, K., & Edelbrock, C. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal on Mental Retardation, 107(6), 433–444. CrossRefPubMed
Centers for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorder among children aged 8 years-autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report, 63(2), 1–21.
Daniels, J., Forssen, U., Hultman, C., Cnattingius, S., Savitz, D., Feychting, M., & Sparen, P. (2008). Parental psychiatric disorders associated with autism spectrum disorders in the offspring. Pediatrics, 121(5), 1357–1362. CrossRef
Einfeld, S., & Tonge, B. (1996). Population prevalence of psychopathology in children and adolescents with intellectual disability: II epidemiological findings. Journal of Intellectual Disability Research, 40(2), 99–109. CrossRefPubMed
Emerson, E. (2003a). Mothers of children and adolescents with intellectual disability: social and economic situation, mental health status, and the self-assessed social and psychological impact of the child’s difficulties. Journal of Intellectual Disability Research, 47(4–5), 385–399. CrossRefPubMed
Emerson, E., Hatton, C., Llewellyn, G., Blacker, J., & Graham, H. (2006). Socio-economic position, household composition, health status and indicators of the well-being of mothers of children with and without intellectual disabilities. Journal of Intellectual Disability Research, 50(12), 862–873. CrossRefPubMed
Fairthorne, J., Hammond, G., Bourke, J., de Klerk, N., & Leonard, H. (2015a). Maternal psychiatric disorder and the risk of autism spectrum disorder or intellectual disability in subsequent offspring. Journal of Austism and Developmental Disorders. doi: 10.​1007/​s10803-015-2594-3.
Fairthorne, J., Jacoby, P., Bourke, J., de Klerk, N., & Leonard, H. (2015b). Onset of maternal psychiatric disorders after the birth of a child with autism spectrum disorder: A retrospective cohort study. Autism. doi: 10.​1177/​1362361314566048​. PubMed
Frenette, P., Dodds, L., MacPherson, K., Flowerdew, G., Hennen, B., & Bryson, S. (2013). Factors affecting the age at diagnosis of autism spectrum disorders in Nova Scotia, Canada. Autism, 17(2), 184–195. CrossRefPubMed
Ghose, A. (2007). Children and young people with a disability in Western Australia. Perth, Western Australia: National Disability Services WA.
Gray, D. (2002). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual and Developmental Disability, 27(3), 215–222. CrossRef
Green, S. (2007). We’re tired, not sad: Benefits and burdens of mothering a child with a disability. Social Science and Medicine, 64(1), 150–163. CrossRefPubMed
Hagerman, R. (2006). Lessons from fragile X regarding neurobiology, autism, and neurodegeneration. Journal of Developmental and Behavioral Pediatrics, 27(1), 63–74. CrossRefPubMed
Hoppes, K., & Harris, S. (1990). Perceptions of child attachment and maternal gratification in mothers of children with autism and down syndrome. Journal of Clinical Child and Adolescent Psychology, 19(4), 365–370. CrossRef
Jokiranta, E., Brown, A., Heinimaa, M., Cheslack-Postava, K., Suominen, A., & Sourander, A. (2013). Parental psychiatric disorders and autism spectrum disorders. Psychiatry Research, 207(3), 203–211. PubMedCentralCrossRefPubMed
Larsson, H., Eaton, W., Madsen, K., Vestergaard, M., Olesen, A., Agerbo, E., & Mortensen, P. (2005). Risk factors for autism: perinatal factors, parental psychiatric history, and socioeconomic status. American Journal of Epidemiology, 161(10), 916–925. CrossRefPubMed
Leonard, H., Glasson, E., Nassar, N., Whitehouse, A., Bebbington, A., Bourke, J., & Stanley, F. (2011). Autism and intellectual disability are differentially related to sociodemographic background at birth. PLoS One, 6(3), e17875. PubMedCentralCrossRefPubMed
Leyfer, O., Folstein, S., Bacalman, S., Davis, N., Dinh, E., Morgan, J., & Lainhart, J. (2006). Comorbid psychiatric disorders in children with autism: Interview development and rates of disorders. Journal of Autism and Developmental Disorders, 36(7), 849–861. CrossRefPubMed
Mak, S., & Cheung, R. (2008). Affiliate stigma among caregivers of people with intellectual disability or mental illness. Journal of Applied Research in Intellectual Disabilities, 21(6), 532–545. CrossRef
Petterson, B., Leonard, H., Bourke, J., Sanders, R., Chalmers, R., Jacoby, P., & Bower, C. (2005). IDEA (intellectual disability exploring answers): A population-based database for intellectual disability in Western Australia. Annals of Human Biology, 32(2), 237–243. CrossRefPubMed
Richdale, A. (1999). Sleep problems in autism: prevalence, cause, and intervention. Developmental Medicine and Child Neurology, 41(1), 60–66. CrossRefPubMed
Richdale, A., Andre, F., Gavidia-Payne, S., & Cotton, S. (2000). Stress, behaviour, and sleep problems in children with an intellectual disability. Journal of Intellectual and Developmental Disability, 25(2), 147–161. CrossRef
Shearn, J., & Todd, S. (2000). Maternal employment and family responsibilities: The perspectives of mothers of children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 13(3), 109–131. CrossRef
Singhi, P., Goyal, L., Pershad, D., Singhi, S., & Walia, B. (1990). Psychosocial problems in families of disabled children. British Journal of Medical Psychology, 63(2), 173–182. CrossRefPubMed
Sullivan, P., Magnusson, C., Reichenberg, A., Boman, M., Dalman, C., Davidson, M., & Långström, N. (2012). Family history of schizophrenia and bipolar disorder as risk factors for autism. Archives of General Psychiatry, 2, 1–5.
Weiss, M. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6(1), 115–130. CrossRefPubMed
Metagegevens
Titel
Brief Report: Burden of Care in Mothers of Children with Autism Spectrum Disorder or Intellectual Disability
Auteurs
Jenny Fairthorne
Nick de Klerk
Helen Leonard
Publicatiedatum
19-10-2015
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 3/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-015-2629-9

Andere artikelen Uitgave 3/2016

Journal of Autism and Developmental Disorders 3/2016 Naar de uitgave

Original Paper

Relationship Between Self-Reported Health and Stress in Mothers of Children with Autism Spectrum Disorders

Original Paper

Atypical Neural Activity in Males But Not Females with Autism Spectrum Disorder

Original Paper

Early Predictors of Growth in Diversity of Key Consonants Used in Communication in Initially Preverbal Children with Autism Spectrum Disorder

Original Paper

Pharmacological Modulation of GABA Function in Autism Spectrum Disorders: A Systematic Review of Human Studies

Original Paper

Uh, Um, and Autism: Filler Disfluencies as Pragmatic Markers in Adolescents with Optimal Outcomes from Autism Spectrum Disorder

Original Paper

Autism Spectrum Disorders (ASD) in Blind Children: Very High Prevalence, Potentially Better Outlook

Version: 0.2067.0