Top

Optie A:

Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
Optie B:

Deel de link per e-mail
Link delen

vorige artikel Brief Report: Two Day-Date Processing Methods i...

volgende artikel Brief Report: Non-right-Handedness Within the A...

Tip

Swipe om te navigeren naar een ander artikel

19-10-2015 | Brief Report | Uitgave 3/2016

Brief Report: Burden of Care in Mothers of Children with Autism Spectrum Disorder or Intellectual Disability

Tijdschrift:: Journal of Autism and Developmental Disorders > Uitgave 3/2016

Auteurs:: Jenny Fairthorne, Nick de Klerk, Helen Leonard

» Toegang tot de volledige tekst krijgen

Abstract

Compared to other mothers, mothers of children with autism spectrum disorder (ASD) or intellectual disability (ID) have higher rates of treatment episodes for psychiatric disorders. We aimed to estimate the maternal burden of care by comparing the length of hospitalisations for psychiatric disorders and the treatment rates for psychiatric disorders after the birth in mothers of children with ASD/ID and no psychiatric history to that of other mothers with no psychiatric history. Mothers of children with ID of known cause (not Down syndrome) and mothers of children ASD without ID emerged as particularly vulnerable. Mothers of children with Down syndrome were resilient. The development of specialised organisations to provide support to mothers of children with ID of known cause (not Down syndrome) and mothers of children with ASD without ID could assist them to maintain their mental health.

Log in om toegang te krijgen

Hier inloggen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Met BSL Psychologie Totaal blijf je als professional steeds op de hoogte van de nieuwste ontwikkelingen binnen jouw vak. Met het online abonnement heb je toegang tot een groot aantal boeken, protocollen, vaktijdschriften en e-learnings op het gebied van psychologie en psychiatrie. Zo kun je op je gemak en wanneer het jou het beste uitkomt verdiepen in jouw vakgebied.

Meer informatie

Abbeduto, L., Seltzer, M., Shattuck, P., Krauss, M., Orsmond, G., & Murphy, M. (2004). Psychological well-being and coping in mothers of youths with autism, down syndrome, or fragile X syndrome. American Journal on Mental Retardation, 109(3), 237–254. CrossRefPubMed

American Psychiatric Association. (2013). The diagnostic and statistical manual of mental disorders: DSM 5. Arlington, VA: BookpointUS. CrossRef

Astley, S., Bailey, D., Talbot, C., & Clarren, S. (2000). Fetal alcohol syndrome (FAS) primary prevention through FAS diagnosis: Identification of high-risk birth mothers through the diagnosis of their children. Alcohol and Alcoholism, 35(5), 499–508. CrossRefPubMed

Autism Association of Western Australia. (2012). Helping children with autism package-early intervention funding. from http://www.autism.org.au/services-we-provide/autism-advisor-program/early-intervention-funding.aspx

Baker, B., Blacher, J., Crnic, K., & Edelbrock, C. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal on Mental Retardation, 107(6), 433–444. CrossRefPubMed

Centers for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorder among children aged 8 years-autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report, 63(2), 1–21.

Daniels, J., Forssen, U., Hultman, C., Cnattingius, S., Savitz, D., Feychting, M., & Sparen, P. (2008). Parental psychiatric disorders associated with autism spectrum disorders in the offspring. Pediatrics, 121(5), 1357–1362. CrossRef

Department of Health. (2014). Information about health data. Retrieved 2014 July 16, from http://www.health.wa.gov.au/healthdata/statewide/midwives.cfm

Education and Health Standing Committee. (2012). A child who is healthy, attends school, and is able to read will have better educational outcomes. Perth, Western Australia: Government of Western Australia. Retrieved from http://www.parliament.wa.gov.au/Parliament/commit.nsf/28Evidence+Lookup+by+Com+ID29/A742EA66F4D283AB48257AB70006CAB5?opendocument

Einfeld, S., & Tonge, B. (1996). Population prevalence of psychopathology in children and adolescents with intellectual disability: II epidemiological findings. Journal of Intellectual Disability Research, 40(2), 99–109. CrossRefPubMed

Emerson, E. (2003a). Mothers of children and adolescents with intellectual disability: social and economic situation, mental health status, and the self-assessed social and psychological impact of the child’s difficulties. Journal of Intellectual Disability Research, 47(4–5), 385–399. CrossRefPubMed

Emerson, E. (2003b). Prevalence of psychiatric disorders in children and adolescents with and without intellectual disability. Journal of Intellectual Disability Research, 47(1), 51–58. doi: 10.1046/j.1365-2788.2003.00464.x. CrossRefPubMed

Emerson, E., Hatton, C., Llewellyn, G., Blacker, J., & Graham, H. (2006). Socio-economic position, household composition, health status and indicators of the well-being of mothers of children with and without intellectual disabilities. Journal of Intellectual Disability Research, 50(12), 862–873. CrossRefPubMed

Fairthorne, J., Hammond, G., Bourke, J., de Klerk, N., & Leonard, H. (2015a). Maternal psychiatric disorder and the risk of autism spectrum disorder or intellectual disability in subsequent offspring. Journal of Austism and Developmental Disorders. doi: 10.1007/s10803-015-2594-3.

Fairthorne, J., Jacoby, P., Bourke, J., de Klerk, N., & Leonard, H. (2015b). Onset of maternal psychiatric disorders after the birth of a child with autism spectrum disorder: A retrospective cohort study. Autism. doi: 10.1177/1362361314566048. PubMed

Fairthorne, J., Jacoby, P., Bourke, J., de Klerk, N., & Leonard, H. (2015c). Onset of maternal psychiatric disorders after the birth of a child with intellectual disability: A retrospective cohort study. Journal of Psychiatry Research, 61, 223–230. doi: 10.1016/j.jpsychires.2014.11.011. CrossRef

Frenette, P., Dodds, L., MacPherson, K., Flowerdew, G., Hennen, B., & Bryson, S. (2013). Factors affecting the age at diagnosis of autism spectrum disorders in Nova Scotia, Canada. Autism, 17(2), 184–195. CrossRefPubMed

Ghose, A. (2007). Children and young people with a disability in Western Australia. Perth, Western Australia: National Disability Services WA.

Gray, D. (2002). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual and Developmental Disability, 27(3), 215–222. CrossRef

Green, S. (2007). We’re tired, not sad: Benefits and burdens of mothering a child with a disability. Social Science and Medicine, 64(1), 150–163. CrossRefPubMed

Hagerman, R. (2006). Lessons from fragile X regarding neurobiology, autism, and neurodegeneration. Journal of Developmental and Behavioral Pediatrics, 27(1), 63–74. CrossRefPubMed

Hoppes, K., & Harris, S. (1990). Perceptions of child attachment and maternal gratification in mothers of children with autism and down syndrome. Journal of Clinical Child and Adolescent Psychology, 19(4), 365–370. CrossRef

Jokiranta, E., Brown, A., Heinimaa, M., Cheslack-Postava, K., Suominen, A., & Sourander, A. (2013). Parental psychiatric disorders and autism spectrum disorders. Psychiatry Research, 207(3), 203–211. PubMedCentralCrossRefPubMed

Larsson, H., Eaton, W., Madsen, K., Vestergaard, M., Olesen, A., Agerbo, E., & Mortensen, P. (2005). Risk factors for autism: perinatal factors, parental psychiatric history, and socioeconomic status. American Journal of Epidemiology, 161(10), 916–925. CrossRefPubMed

Leonard, H., Glasson, E., Nassar, N., Whitehouse, A., Bebbington, A., Bourke, J., & Stanley, F. (2011). Autism and intellectual disability are differentially related to sociodemographic background at birth. PLoS One, 6(3), e17875. PubMedCentralCrossRefPubMed

Leyfer, O., Folstein, S., Bacalman, S., Davis, N., Dinh, E., Morgan, J., & Lainhart, J. (2006). Comorbid psychiatric disorders in children with autism: Interview development and rates of disorders. Journal of Autism and Developmental Disorders, 36(7), 849–861. CrossRefPubMed

Mak, S., & Cheung, R. (2008). Affiliate stigma among caregivers of people with intellectual disability or mental illness. Journal of Applied Research in Intellectual Disabilities, 21(6), 532–545. CrossRef

Petterson, B., Leonard, H., Bourke, J., Sanders, R., Chalmers, R., Jacoby, P., & Bower, C. (2005). IDEA (intellectual disability exploring answers): A population-based database for intellectual disability in Western Australia. Annals of Human Biology, 32(2), 237–243. CrossRefPubMed

Richdale, A. (1999). Sleep problems in autism: prevalence, cause, and intervention. Developmental Medicine and Child Neurology, 41(1), 60–66. CrossRefPubMed

Richdale, A., Andre, F., Gavidia-Payne, S., & Cotton, S. (2000). Stress, behaviour, and sleep problems in children with an intellectual disability. Journal of Intellectual and Developmental Disability, 25(2), 147–161. CrossRef

Shearn, J., & Todd, S. (2000). Maternal employment and family responsibilities: The perspectives of mothers of children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 13(3), 109–131. CrossRef

Singhi, P., Goyal, L., Pershad, D., Singhi, S., & Walia, B. (1990). Psychosocial problems in families of disabled children. British Journal of Medical Psychology, 63(2), 173–182. CrossRefPubMed

Sullivan, P., Magnusson, C., Reichenberg, A., Boman, M., Dalman, C., Davidson, M., & Långström, N. (2012). Family history of schizophrenia and bipolar disorder as risk factors for autism. Archives of General Psychiatry, 2, 1–5.

Weiss, M. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6(1), 115–130. CrossRefPubMed

World Health Organisation. (2006). International statistical classification of diseases and related health problems, 10th revision, version for 2007 http://apps.who.int/classifications/apps/icd/icd10online/

Titel: Brief Report: Burden of Care in Mothers of Children with Autism Spectrum Disorder or Intellectual Disability
Auteurs:: Jenny Fairthorne
Nick de Klerk
Helen Leonard
Publicatiedatum: 19-10-2015
DOI: https://doi.org/10.1007/s10803-015-2629-9
Uitgeverij: Springer US
Tijdschrift: Journal of Autism and Developmental Disorders
Uitgave 3/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Tip

Swipe om te navigeren naar een ander artikel

Brief Report: Burden of Care in Mothers of Children with Autism Spectrum Disorder or Intellectual Disability

Abstract

Log in om toegang te krijgen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Tip

Swipe om te navigeren naar een ander artikel

Abstract

Log in om toegang te krijgen

Met onderstaand(e) abonnement(en) heeft u direct toegang:

BSL Psychologie Totaal

Andere artikelen Uitgave 3/2016

Relationship Between Self-Reported Health and Stress in Mothers of Children with Autism Spectrum Disorders

Language Differences at 12 Months in Infants Who Develop Autism Spectrum Disorder

Body Constraints on Motor Simulation in Autism Spectrum Disorders

Brief Report: Whole Blood Serotonin Levels and Gastrointestinal Symptoms in Autism Spectrum Disorder

Health Services Utilization Among Children With and Without Autism Spectrum Disorders

Uh, Um, and Autism: Filler Disfluencies as Pragmatic Markers in Adolescents with Optimal Outcomes from Autism Spectrum Disorder