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18-01-2020 | Brief Report | Uitgave 4/2020

Journal of Autism and Developmental Disorders 4/2020

Brief Report: Assessment Experiences of Children with Neurogenetic Syndromes: Caregivers’ Perceptions and Suggestions for Improvement

Journal of Autism and Developmental Disorders > Uitgave 4/2020
Bridgette Kelleher, Taylor Halligan, Tessa Garwood, Samantha Howell, Breanna Martin-O’Dell, Amber Swint, Liberty-Ann Shelton, Joey Shin
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The online version of this article (https://​doi.​org/​10.​1007/​s10803-020-04363-0) contains supplementary material, which is available to authorized users.

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It is well-recognized that measurement options for diagnosing and monitoring children with neurogenetic syndromes (NGS) associated with moderate to severe intellectual impairment are limited (Berry-Kravis, Dev Med Child Neurol https://​doi.​org/​10.​1111/​dmcn.​13018, 2016), and caregivers experience significant concerns regarding the assessment process. However to date, these concerns have not been summarized into actionable steps for clinicians and test-makers. As such, we used a mixed methods approach to assess caregiver-derived perceptions and suggestions for improving assessments in NGS. Results indicated many shared challenges and suggestions for improvement, particularly in the domains of testing procedures and examiner communication. Integrating these suggestions into future protocols is an important next step toward improving the quality of assessment procedures for children with NGS and their families across both clinical and research contexts.

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