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Gepubliceerd in: Journal of Autism and Developmental Disorders 11/2018

15-06-2018 | Brief Report

Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders

Auteurs: Thomas W. Frazier, Geraldine Dawson, Donna Murray, Andy Shih, Jessica Snyder Sachs, Angela Geiger

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2018

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Abstract

Inclusion of stakeholder voices in the allocation of research funding can increase the relevance of results and improve community engagement in research. We describe the results of an online survey that gathered input from community stakeholders regarding autism research priorities. A demographically diverse sample of respondents (N = 6004; 79.1% female; 72.5% ages 30–59; 86.4% USA) completed the survey. Results indicated a preference for applied relative to basic science topics, though both basic and applied science areas were rated as important. Respondents gave their highest ratings to research focused on co-occurring conditions, health and well-being, adult transition, and lifespan issues. These results can guide decision-making by public and private funders when developing science funding priorities and engaging in science dissemination activities.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
go back to reference Jivraj, J., Sacrey, L. A., Newton, A., Nicholas, D., & Zwaigenbaum, L. (2014). Assessing the influence of researcher-partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: A scoping review. Autism, 18(7), 782–793. https://doi.org/10.1177/1362361314539858.CrossRefPubMed Jivraj, J., Sacrey, L. A., Newton, A., Nicholas, D., & Zwaigenbaum, L. (2014). Assessing the influence of researcher-partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: A scoping review. Autism, 18(7), 782–793. https://​doi.​org/​10.​1177/​1362361314539858​.CrossRefPubMed
go back to reference National Institutes of Health. (2017). Research portfolio online reporting tools (RePORT): RePORTER manual. (12/19/2017 ed., Vol. 7.24.0). National Institutes of Health. (2017). Research portfolio online reporting tools (RePORT): RePORTER manual. (12/19/2017 ed., Vol. 7.24.0).
Metagegevens
Titel
Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders
Auteurs
Thomas W. Frazier
Geraldine Dawson
Donna Murray
Andy Shih
Jessica Snyder Sachs
Angela Geiger
Publicatiedatum
15-06-2018
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 11/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-018-3642-6

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