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Gepubliceerd in: Journal of Autism and Developmental Disorders 1/2023

25-01-2022 | Original Paper

Beyond Friendship: The Spectrum of Social Participation of Autistic Adults

Auteurs: Dara V. Chan, Julie D. Doran, Osly D. Galobardi

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2023

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Abstract

Difficulties with social interactions and communication that characterize autism persist in adulthood. While social participation in adulthood is often marked by social isolation and limited close friendships, this qualitative study describes the range of social participation activities and community contacts, from acquaintances to close relationships, that contributed to connection from the perspective of 40 autistic adults. Qualitative data from interviews around social and community involvement were analyzed and revealed five main contexts where social participation occurred: vocational contexts, neighborhoods, common interest groups, support services and inclusive environments, and online networks and apps. Implications for practice to support a range of social participation include engaging in newer social networking avenues, as well as traditional paths through employment and support services.
Literatuur
go back to reference Achat, H., Kawachi, I., Levine, S., Berkey, C., Coackley, E., & Colditz, G. (1998). Social networks, stress and health-related quality of life. Quality of Life Research, 7(8), 735–750.CrossRef Achat, H., Kawachi, I., Levine, S., Berkey, C., Coackley, E., & Colditz, G. (1998). Social networks, stress and health-related quality of life. Quality of Life Research, 7(8), 735–750.CrossRef
go back to reference American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). APA.CrossRef American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). APA.CrossRef
go back to reference Bauminger, N., Solomon, M., Aviezer, A., Heung, K., Gazit, L., Brown, J., & Rogers, S. J. (2008). Children with autism and their friends: A multidimensional study of friendship in high-functioning autism spectrum disorder. Journal of Abnormal Child Psychology, 36(2), 135–150. https://doi.org/10.1007/s10802-007-9156-xCrossRef Bauminger, N., Solomon, M., Aviezer, A., Heung, K., Gazit, L., Brown, J., & Rogers, S. J. (2008). Children with autism and their friends: A multidimensional study of friendship in high-functioning autism spectrum disorder. Journal of Abnormal Child Psychology, 36(2), 135–150. https://​doi.​org/​10.​1007/​s10802-007-9156-xCrossRef
go back to reference Hamilton, A., & Maietta, R. (2017). Rapid turn around qualitative research. Research Talk, Inc. Hamilton, A., & Maietta, R. (2017). Rapid turn around qualitative research. Research Talk, Inc.
go back to reference Henniger, N. A., & Taylor, J. L. (2012). Outcomes in adults with autism spectrum disorders: A historical perspective. Autism, 17(1), 103–116.CrossRef Henniger, N. A., & Taylor, J. L. (2012). Outcomes in adults with autism spectrum disorders: A historical perspective. Autism, 17(1), 103–116.CrossRef
go back to reference Herrick, S., Datti, P. (2020). Neuro-competence: A multicultural counseling competence model for autism spectrum disorder. The 20th annual National Council on Rehabilitation Education Conference, Online Herrick, S., Datti, P. (2020). Neuro-competence: A multicultural counseling competence model for autism spectrum disorder. The 20th annual National Council on Rehabilitation Education Conference, Online
go back to reference Howlin, P., & Taylor, J. L. (2015). Addressing the need for high quality research in autism in adulthood. Autism, 19(7), 771–773.CrossRef Howlin, P., & Taylor, J. L. (2015). Addressing the need for high quality research in autism in adulthood. Autism, 19(7), 771–773.CrossRef
go back to reference Kelly, M., Duff, H., Kelly, S., McHugh Power, J., Brennan, S., Lawlor, B., & Loughrey, D. (2017). The impact of social activities, social networks, social support and social relationships on the cognitive functioning of healthy older adults: A systematic review. Systematic Reviews. https://doi.org/10.1186/s13643-017-0632-2CrossRef Kelly, M., Duff, H., Kelly, S., McHugh Power, J., Brennan, S., Lawlor, B., & Loughrey, D. (2017). The impact of social activities, social networks, social support and social relationships on the cognitive functioning of healthy older adults: A systematic review. Systematic Reviews. https://​doi.​org/​10.​1186/​s13643-017-0632-2CrossRef
go back to reference Maenner, M. J., Smith, L. E., Hong, J., Makuch, R., Greenberg, J. S., & Malick, M. R. (2013). Evaluation of an activities of daily living scale for adolescents and adults with developmental disabilities. Disability and Health Journal, 6(1), 8–17.CrossRef Maenner, M. J., Smith, L. E., Hong, J., Makuch, R., Greenberg, J. S., & Malick, M. R. (2013). Evaluation of an activities of daily living scale for adolescents and adults with developmental disabilities. Disability and Health Journal, 6(1), 8–17.CrossRef
go back to reference Mazurek, M. (2013). Social media use among adults with autism spectrum disorders. Computers in Human Behavior, 29(4), 1709–1714.CrossRef Mazurek, M. (2013). Social media use among adults with autism spectrum disorders. Computers in Human Behavior, 29(4), 1709–1714.CrossRef
go back to reference McCollum, M., LaVesser, P., & Berg, C. (2016). Participation in daily activities of young adults with high functioning autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(3), 987–997.CrossRef McCollum, M., LaVesser, P., & Berg, C. (2016). Participation in daily activities of young adults with high functioning autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(3), 987–997.CrossRef
go back to reference McConachie, H., Wilson, C., Mason, D., Garland, D., Parr, J., Rattazzi, A., Rodgers, J., Skevington, S., Uljarevic, M., & Magiati, I. (2020). What is important in measuring quality of life? Reflections by autistic adults in four countries. Autism in Adulthood, 2(1), 4–12. https://doi.org/10.1089/aut.2019.0008CrossRef McConachie, H., Wilson, C., Mason, D., Garland, D., Parr, J., Rattazzi, A., Rodgers, J., Skevington, S., Uljarevic, M., & Magiati, I. (2020). What is important in measuring quality of life? Reflections by autistic adults in four countries. Autism in Adulthood, 2(1), 4–12. https://​doi.​org/​10.​1089/​aut.​2019.​0008CrossRef
go back to reference Morrison, K., DeBrabander, K., Jones, D., Faso, D., Ackerman, R., & Sasson, N. (2020). Outcomes of real world social interaction for autistic adults paired with autistic compared to typically developing partners. Autism, 24(5), 1067–1080.CrossRef Morrison, K., DeBrabander, K., Jones, D., Faso, D., Ackerman, R., & Sasson, N. (2020). Outcomes of real world social interaction for autistic adults paired with autistic compared to typically developing partners. Autism, 24(5), 1067–1080.CrossRef
go back to reference Myers, E., Davis, B. E., Stobbe, G., & Bjornson, K. (2015). Community and social participation among individuals with autism spectrum disorder transitioning to adulthood. Journal of Autism and Developmental Disorders, 45(8), 2373–2381.CrossRef Myers, E., Davis, B. E., Stobbe, G., & Bjornson, K. (2015). Community and social participation among individuals with autism spectrum disorder transitioning to adulthood. Journal of Autism and Developmental Disorders, 45(8), 2373–2381.CrossRef
go back to reference Pelton, M., Crawford, H., Robetson, A., Rodgers, J., Baron-Cohen, S., & Cassidy, S. (2020). Understanding suicide risk in autistic adults: Comparing the interpersonal theory of suicide in autistic and non-autistic samples. Journal of Autism and Developmental Disorders, 50(10), 3620–3637. https://doi.org/10.1007/s10803-020-04393-8CrossRef Pelton, M., Crawford, H., Robetson, A., Rodgers, J., Baron-Cohen, S., & Cassidy, S. (2020). Understanding suicide risk in autistic adults: Comparing the interpersonal theory of suicide in autistic and non-autistic samples. Journal of Autism and Developmental Disorders, 50(10), 3620–3637. https://​doi.​org/​10.​1007/​s10803-020-04393-8CrossRef
go back to reference Peplau, L. A., & Perlman, D. (1982). Loneliness: A sourcebook of current theory, research and therapy. Wiley. Peplau, L. A., & Perlman, D. (1982). Loneliness: A sourcebook of current theory, research and therapy. Wiley.
go back to reference Rowley, E., Chandler, S., Baird, G., Simonoff, E., Pickles, A., Loucas, T., & Charman, T. (2012). The experience of friendship, victimization and bullying in children with an autism spectrum disorder: Associations with child characteristics and school placement. Research in Autism Spectrum Disorders, 6(3), 1126–1134.CrossRef Rowley, E., Chandler, S., Baird, G., Simonoff, E., Pickles, A., Loucas, T., & Charman, T. (2012). The experience of friendship, victimization and bullying in children with an autism spectrum disorder: Associations with child characteristics and school placement. Research in Autism Spectrum Disorders, 6(3), 1126–1134.CrossRef
go back to reference Schalkwyk, G., Marin, C., Ortiz, M., Rolison, M., Qayyum, Z., McPartland, J., Lebowitz, E., Volkmar, F., & Silverman, W. (2017). Social media use, friendship quality, and the moderating role of anxiety in adolescents with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47(9), 2805–2813. https://doi.org/10.1007/s10803-017-3201-6CrossRef Schalkwyk, G., Marin, C., Ortiz, M., Rolison, M., Qayyum, Z., McPartland, J., Lebowitz, E., Volkmar, F., & Silverman, W. (2017). Social media use, friendship quality, and the moderating role of anxiety in adolescents with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47(9), 2805–2813. https://​doi.​org/​10.​1007/​s10803-017-3201-6CrossRef
go back to reference Steinhausen, H. C., Mohr Jensen, C., & Lauritsen, M. B. (2016). A systematic review and meta-analysis of the long-term overall outcome of autism spectrum disorders in adolescence and adulthood. Acta Psychiatrica Scandinavica, 133(6), 445–452.CrossRef Steinhausen, H. C., Mohr Jensen, C., & Lauritsen, M. B. (2016). A systematic review and meta-analysis of the long-term overall outcome of autism spectrum disorders in adolescence and adulthood. Acta Psychiatrica Scandinavica, 133(6), 445–452.CrossRef
go back to reference Tint, A., Maughan, A. L., & Weiss, J. A. (2016). Community participation of youth with intellectual disability and autism spectrum disorder. Journal of Intellectual Disability Research, 61(2), 168–180.CrossRef Tint, A., Maughan, A. L., & Weiss, J. A. (2016). Community participation of youth with intellectual disability and autism spectrum disorder. Journal of Intellectual Disability Research, 61(2), 168–180.CrossRef
go back to reference Wong, Y. I., & Solomon, P. L. (2002). Community integration of persons with psychiatric disabilities in supportive independent housing: A conceptual model and methodological considerations. Mental Health Services Research, 4(1), 13–28.CrossRef Wong, Y. I., & Solomon, P. L. (2002). Community integration of persons with psychiatric disabilities in supportive independent housing: A conceptual model and methodological considerations. Mental Health Services Research, 4(1), 13–28.CrossRef
Metagegevens
Titel
Beyond Friendship: The Spectrum of Social Participation of Autistic Adults
Auteurs
Dara V. Chan
Julie D. Doran
Osly D. Galobardi
Publicatiedatum
25-01-2022
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 1/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-022-05441-1

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