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04-02-2019

Beyond care burden: associations between positive psychological appraisals and well-being among informal caregivers in Europe

Auteurs: Rebecca Maguire, Paul Hanly, Phil Maguire

Gepubliceerd in: Quality of Life Research | Uitgave 8/2019

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Abstract

Purpose

The burden of caring for a family member or friend can have a negative impact on caregiver health and well-being, yet caring can also have positive consequences. Understanding the factors that may enhance caregiver well-being is merited.

Methods

We used data gathered from the European Quality of Life Survey (EQLS). Using complete case analysis followed by multiple imputation analysis, a series of multilevel regression models were developed to systematically explore the role of three distinct blocks of factors in predicting caregiver well-being as measured by the WHO-5 well-being index: (1) sociodemographic and health factors, (2) care and burden-related factors, and (3) psychological and social appraisals. Differences between frequent caregivers and the general population were also compared on all measures.

Results

36,908 respondents took part in EQLS, with 4171 (11%) identifying as frequent carers. While frequent caregivers reported lower well-being compared to the remaining population, most were happy with the amount of time spent caring. Our model explained approximately 32% of variance in well-being scores. After examining the role of known risk factors, all positive psychological appraisals were associated with higher well-being (p < .001). In order of magnitude these were optimism, perceived autonomy, sense of purpose, resilience, and perceived levels of social inclusion. Self-rated health was the strongest predictor of well-being while female carers and those with high levels of various burden measures reported lower well-being.

Conclusions

Findings suggest that caregiver well-being is influenced by more than simply the burden of care. As well as attempting to reduce burden, interventions aimed at supporting caregivers could focus on fostering more positive appraisals to enhance well-being in this group.
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Literatuur
4.
go back to reference Gately, M., & Ladin, K. (2018). Family and other caregivers. In T. Daaleman & M. Helton (Eds.), Chronic illness care. Cham: Springer. Gately, M., & Ladin, K. (2018). Family and other caregivers. In T. Daaleman & M. Helton (Eds.), Chronic illness care. Cham: Springer.
8.
go back to reference De Oliveira, D. C., & Hlebec, V. (2016). Predictors of satisfaction with life in family carers: Evidence from the third European Quality of Life Survey. Teorija in Praksa, 53(2), 503–523. De Oliveira, D. C., & Hlebec, V. (2016). Predictors of satisfaction with life in family carers: Evidence from the third European Quality of Life Survey. Teorija in Praksa, 53(2), 503–523.
20.
go back to reference Leventhal, H. O. R., Brissette, I., & Leventhal, E. A. (2003). The common-sense model of self-regulation of health and illness. In L. Cameron & H. Leventhal (Eds.), The self-regulation of health and illness behaviour (pp. 42–65). New York: Routledge. Leventhal, H. O. R., Brissette, I., & Leventhal, E. A. (2003). The common-sense model of self-regulation of health and illness. In L. Cameron & H. Leventhal (Eds.), The self-regulation of health and illness behaviour (pp. 42–65). New York: Routledge.
21.
go back to reference Chambers, S., Baade, P., Youl, P., Aitken, J., Occhipinti, S., Vinod, S., Valery, P., Garvey, G., Fong, K., Ball, D., Zorbas, H., Dunn, J., & O’Connell, D. (2015). Psychological distress and quality of life in lung cancer: The role of health-related stigma, illness appraisals and social constraints. Psycho-oncology, 24(11), 1569–1577. https://doi.org/10.1002/pon.3829.CrossRefPubMedPubMedCentral Chambers, S., Baade, P., Youl, P., Aitken, J., Occhipinti, S., Vinod, S., Valery, P., Garvey, G., Fong, K., Ball, D., Zorbas, H., Dunn, J., & O’Connell, D. (2015). Psychological distress and quality of life in lung cancer: The role of health-related stigma, illness appraisals and social constraints. Psycho-oncology, 24(11), 1569–1577. https://​doi.​org/​10.​1002/​pon.​3829.CrossRefPubMedPubMedCentral
22.
24.
go back to reference Hanks, R., Rapport, L., & Vangel, S. (2007). Caregiving appraisal after traumatic brain injury: The effects of functional status, coping style, social support and family functioning. Neurorehabilitation, 22(1), 43–52.CrossRef Hanks, R., Rapport, L., & Vangel, S. (2007). Caregiving appraisal after traumatic brain injury: The effects of functional status, coping style, social support and family functioning. Neurorehabilitation, 22(1), 43–52.CrossRef
25.
go back to reference Scheier, M. F., Carver, C. S., & Bridges, M. W. (2001). Optimism, pessimism, and psychological well-being. Optimism and Pessimism: Implications for Theory, Research, and Practice, 1, 189–216. Scheier, M. F., Carver, C. S., & Bridges, M. W. (2001). Optimism, pessimism, and psychological well-being. Optimism and Pessimism: Implications for Theory, Research, and Practice, 1, 189–216.
27.
go back to reference Conditions. EFftIoLaW (2018) European Quality of Life Survey integrated data file, 2003-2016 [data collection] (3rd ed.). https://doi.org/10.5255/UKDA-SN-7348-3 Conditions. EFftIoLaW (2018) European Quality of Life Survey integrated data file, 2003-2016 [data collection] (3rd ed.). https://​doi.​org/​10.​5255/​UKDA-SN-7348-3
29.
go back to reference Burnham, K., & Anderson, D. (2002). Model selection and multimodel inference (2nd ed.). New York, NY: Springer. Burnham, K., & Anderson, D. (2002). Model selection and multimodel inference (2nd ed.). New York, NY: Springer.
30.
go back to reference Xu, R. (2003). Measuring explained variation in linear mixed effects models. Statistics in Medicine, 22(22), 3527–3541.CrossRef Xu, R. (2003). Measuring explained variation in linear mixed effects models. Statistics in Medicine, 22(22), 3527–3541.CrossRef
31.
go back to reference Little, R. J., & Rubin, D. B. (2014). Statistical analysis with missing data, vol 333. Hoboken: Wiley. Little, R. J., & Rubin, D. B. (2014). Statistical analysis with missing data, vol 333. Hoboken: Wiley.
32.
go back to reference Lorah, J. (2018). Effect size measures for multilevel models: Definition, interpretation, and TIMSS example. Large-Scale Assessments in Education, 6(1), 8.CrossRef Lorah, J. (2018). Effect size measures for multilevel models: Definition, interpretation, and TIMSS example. Large-Scale Assessments in Education, 6(1), 8.CrossRef
33.
go back to reference Lee, V. E. (2000). Using hierarchical linear modeling to study social contexts: The case of school effects. Educational Psychologist, 35(2), 125–141.CrossRef Lee, V. E. (2000). Using hierarchical linear modeling to study social contexts: The case of school effects. Educational Psychologist, 35(2), 125–141.CrossRef
34.
go back to reference Kamradt, M., Krisam, J., Kiel, M., Qreini, M., Besier, W., Szecsenyi, J., & Ose, D. (2017). Health-related quality of life in primary care: Which aspects matter in multimorbid patients with type 2 diabetes mellitus in a community setting? PLoS ONE, 12(1), e0170883.CrossRef Kamradt, M., Krisam, J., Kiel, M., Qreini, M., Besier, W., Szecsenyi, J., & Ose, D. (2017). Health-related quality of life in primary care: Which aspects matter in multimorbid patients with type 2 diabetes mellitus in a community setting? PLoS ONE, 12(1), e0170883.CrossRef
37.
go back to reference Hellman, C. M., Worley, J. A., & Munoz, R. T. (2018). Hope as a coping resource for caregiver resilience and well-being. In W. Bailey & A. Harrist (Eds.), Family caregiving. emerging issues in family and individual resilience. Cham: Springer. Hellman, C. M., Worley, J. A., & Munoz, R. T. (2018). Hope as a coping resource for caregiver resilience and well-being. In W. Bailey & A. Harrist (Eds.), Family caregiving. emerging issues in family and individual resilience. Cham: Springer.
Metagegevens
Titel
Beyond care burden: associations between positive psychological appraisals and well-being among informal caregivers in Europe
Auteurs
Rebecca Maguire
Paul Hanly
Phil Maguire
Publicatiedatum
04-02-2019
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 8/2019
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-019-02122-y