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01-10-2011 | Original Paper | Uitgave 10/2011

Beyond an Autism Diagnosis: Children’s Functional Independence and Parents’ Unmet Needs

Tijdschrift:: Journal of Autism and Developmental Disorders > Uitgave 10/2011

Auteurs:: Hilary K. Brown, Hélène Ouellette-Kuntz, Duncan Hunter, Elizabeth Kelley, Virginie Cobigo, Miu Lam

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Abstract

High demand has resulted in gaps in autism service provision. Our objective was to explore the association between children’s functioning and parents’ perceived unmet needs. We conducted a cross-sectional study of 97 families of school-aged children with an autism spectrum disorder. Log binomial regression was used to examine the relative risk for unmet need. Families of children with high functional independence had lower unmet need than families of children with moderate functional independence (RR = 0.81, 95% CI = 0.67-0.99). Those who experienced greater impact of the child’s disability had greater unmet need (RR = 1.22, 95% CI = 1.03–1.45). The child’s functioning and its impact on the family provide insight into unmet need which may inform service planning.

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Meer informatie

Akshoomoff, N. A., & Stahmer, A. (2006). Early intervention programs and policies for children with autistic spectrum disorders. In H. E. Fitzgerald, B. M. Lester, & B. Zuckerman (Eds.), The crisis in youth mental health: Critical issues and effective programs, Vol. 1. childhood disorders (pp. 109–131). Westport, CT: Praeger.

All-Party Parliamentary Group on Autism. (2007). Policy into practice: Implementation of the national service framework for children, young people, and maternity services by local authorities. London, UK: The National Autistic Society.

American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders, 4th edition, text revision. Washington, DC: American Psychiatric Publishing, Inc. CrossRef

Baron, R. M., & Kenny, D. A. (1986). The moderator-mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology, 51(6), 1173–1182. PubMedCrossRef

Barros, A. J. D., & Hirakata, V. N. (2003). Alternatives for logistic regression in cross-sectional studies: An empirical comparison of models that directly estimate the prevalence ratio. BMC Medical Research Methodology, 3(21), 1–13.

Blaxill, M. F. (2004). What’s going on? The question of time trends in autism. Public Health Reports, 119(6), 536–551. PubMedCrossRef

Boulet, S. L., Boyle, C., & Schieve, L. A. (2009). Health care use and health and functional impact of developmental disabilities among US children, 1997–2005. Archives of Pediatrics and Adolescent Medicine, 163(1), 19–26. PubMedCrossRef

Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders. Autism, 8(4), 409–423. PubMedCrossRef

Brown, H. K., Ouellette-Kuntz, H., Hunter, D., & Kelley, E. (2010). Assessing need in school-aged children with an autism spectrum disorder. Research in Autism Spectrum Disorders, 4(4), 539–547. CrossRef

Bruininks, R. H., Woodcock, R. W., Weatherman, R. F., & Hill, B. K. (1996). Scales of independent behaviour-revised. Chicago, IL: Riverside.

Cassidy, A., McConkey, R., Truesdale-Kennedy, M., & Slevin, E. (2008). Preschoolers with autism spectrum disorders: The impact on families and the supports available to them. Early Childhood Development and Care, 178(2), 115–128. CrossRef

Dunst, C., Trivette, C., & Deal, A. (1988). Enabling and empowering families: Principles and guidelines for practice. Cambridge, MA: Brookline Books, Inc.

Ellis, J. T., Luiselli, J. K., Amirault, D., Byrne, S., O’Malley-Cannon, B., Taras, M., et al. (2002). Families of children with developmental disabilities: Assessment and comparison of self-reported needs in relation to situational variables. Journal of Developmental and Physical Disabilities, 14(2), 191–202. CrossRef

Farmer, J. E., Marien, W. E., Clark, M. J., Sherman, A., & Selva, T. J. (2004). Primary care supports for children with chronic health conditions: Identifying and predicting unmet family needs. Journal of Pediatric Psychology, 29(5), 355–367. PubMedCrossRef

Fombonne, E. (2005). The changing epidemiology of autism. Journal of Applied Research in Intellectual Disabilities, 18(4), 281–294. CrossRef

Granlund, M., & Roll-Pettersson, L. (2001). The perceived needs of support of parents and classroom teachers—a comparison of needs in two microsystems. European Journal of Special Needs Education, 16(3), 225–244. CrossRef

Hastings, R. P., & Brown, T. (2002). Behaviour problems of children with autism, parental self-efficacy, and mental health. American Journal on Mental Retardation, 107(3), 222–232. PubMedCrossRef

Klin, A., Saulnier, C. A., Sparrow, S. S., Cicchetti, D. V., Volkmar, F. R., & Lord, C. (2007). Social and communication abilities and disabilities in higher functioning individuals with autism spectrum disorders: The Vineland and the ADOS. Journal of Autism and Developmental Disorders, 37(4), 748–759. PubMedCrossRef

Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Paediatrics, 122(6), 1149–1158. CrossRef

Kohler, F. W. (1999). Examining the services received by young children with autism and their families: A survey of parent responses. Focus on Autism and Other Developmental Disabilities, 14(3), 150–158. CrossRef

Kreutzer, J. S., Serio, C. D., & Berquist, S. (1994). Family needs after brain injury: A quantitative analysis. Journal of Head Trauma Rehabilitation, 9(3), 104–115. CrossRef

Madore, O. (2006). Provincial and territorial funding programs for autism therapy. Accessed September 24, 2009 from http://www.parl.gc.ca/information/library/PRBpubs/prb0622-e.htm.

Matson, J. L., & Nebel-Schwalm, M. (2007). Assessing challenging behaviours in children with autism spectrum disorders: A review. Research in Developmental Disabilities, 28(6), 567–579. PubMedCrossRef

McConachie, H. (1994). Implications of a model of stress and coping for services to families of young disabled children. Child: Care, Health and Development, 20(1), 37–46. CrossRef

National Research Council. (2001). Educating children with autism. Washington, DC: National Academy Press.

Newschaffer, C. J., Croen, L. A., Daniels, J., Giarelli, E., Grether, J. K., Levy, S. E., et al. (2007). The epidemiology of autism spectrum disorders. Annual Review of Public Health, 28, 235–258. PubMedCrossRef

Ouellette-Kuntz, H., Coo, H., Lam, M., Yu, C. T., Breitenbach, M. M., Hennessey, P. E., et al. (2009). Age at diagnosis of autism spectrum disorders in four regions of Canada. Canadian Journal of Public Health, 100(4), 268–273.

Ruble, L. A., Hefflinger, C. A., Renfrew, W., & Saunders, R. C. (2005). Access and service use by children with autism spectrum disorders in medicaid managed care. Journal of Autism and Developmental Disorders, 35(1), 3–13. PubMedCrossRef

SAS Institute Inc. (2008). SAS/STAT 9.2 User’s Guide. Cary, NC: SAS Institute Inc.

Saulnier, C. A., & Klin, A. (2007). Brief report: Social and communication abilities and disabilities in higher functioning individuals with autism and Asperger syndrome. Journal of Autism and Developmental Disorders, 37(4), 788–793. PubMedCrossRef

Siklos, S., & Kerns, K. A. (2006). Assessing need for social support in parents of children with autism and Down syndrome. Journal of Autism and Developmental Disorders, 36(7), 921–933. PubMedCrossRef

Sobel, M. E. (1982). Asymptotic confidence intervals for indirect effects of structural equation models. Sociological Methodology, 13, 290–312. CrossRef

Standing Senate Committee on Social Affairs, Science, and Technology (2007). Pay now or pay later: Autism families in crisis. Accessed August 18, 2009 from http://www.parl.gc.ca/39/1/parlbus/commbus/senate/com-e/soci-e/rep-e/repfinmar07-e.htm.

Stein, R. E. K., & Jessop, D. J. (2003). The impact on family scale revisited: Further psychometric data. Developmental and Behavioural Paediatrics, 24(1), 9–16. CrossRef

Stein, R. E. K., & Riessman, C. K. (1980). The development of an impact-on-family scale: Preliminatry findings. Medical Care, 18(4), 465–472. PubMedCrossRef

Thomas, K. C., Morrissey, J. P., & McLaurin, C. (2007). Use of autism-related services by families and children. Journal of Autism and Developmental Disorders, 37(5), 818–829. PubMedCrossRef

Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviours exhibited by children with autism and maternal stress. Journal of Intellectual and Developmental Disability, 29(1), 16–26. CrossRef

Van Ness, P. H., & Allore, H. G. (2006). Using SAS to investigate effect modification. SAS Users Group International Proceedings, 31, 1–10.

Waaland, P. K., Burns, C., & Cockrell, J. (1993). Evaluation of needs of high- and low-income families following pediatric traumatic brain injury. Brain Injury, 7(2), 135–146. PubMedCrossRef

Warfield, M. E., & Gulley, S. (2006). Unmet need and problems accessing specialty medical and related services among children with special health care needs. Maternal and Child Health Journal, 10(2), 201–216. PubMedCrossRef

Titel: Beyond an Autism Diagnosis: Children’s Functional Independence and Parents’ Unmet Needs
Auteurs:: Hilary K. Brown
Hélène Ouellette-Kuntz
Duncan Hunter
Elizabeth Kelley
Virginie Cobigo
Miu Lam
Publicatiedatum: 01-10-2011
DOI: https://doi.org/10.1007/s10803-010-1148-y
Uitgeverij: Springer US
Tijdschrift: Journal of Autism and Developmental Disorders
Uitgave 10/2011
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432

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