Journal of Autism and Developmental Disorders

Gepubliceerd in:

02-02-2021 | Original Paper

“Best Things”: Parents Describe Their Children with Autism Spectrum Disorder Over Time

Auteurs: Katherine T. Cost, Anat Zaidman-Zait, Pat Mirenda, Eric Duku, Lonnie Zwaigenbaum, Isabel M. Smith, Wendy J. Ungar, Connor Kerns, Theresa Bennett, Peter Szatmari, Stelios Georgiades, Charlotte Waddell, Mayada Elsabbagh, Tracy Vaillancourt

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2021

Abstract

This study examined parental perceptions of the character traits of children with autism from early childhood to age 11. Parents (n = 153) provided descriptions of the “best things” about their children on the Child Behavior Checklist (CBCL) at ages 3–4, 7–8, and 10–11 years. Descriptions were coded using the framework of the Values in Action Classification of Strengths, with additional traits added as needed. Parent-endorsed traits included love, kindness, happiness, and humor in children across all ages and traits such as perseverance as children entered school. Higher CBCL scores were associated with a lower likelihood of endorsement for Humanity traits. Results are congruent with a contemporary neurodiversity perspective that emphasizes strengths and resilience.

vorige artikel Private music teachers’ knowledge of and attitudes toward students with autism spectrum disorder

volgende artikel Correction to: “Best Things”: Parents Describe Their Children with Autism Spectrum Disorder Over Time

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Achenbach, T. M., & Rescorla, L. A. (2000). Manual for ASEBA preschool forms and profiles. Burlington, VT: University of Vermont, Research Center for Children, Youth, and Families.

Achenbach, T. M., & Rescorla, L. A. (2001). Manual for ASEBA school-age forms and profiles. Burlington, VT: University of Vermont, Research Center for Children, Youth, and Families.

American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders, 4th edition, text revision (DSM-IV-TR). Arlington, VA: APA.CrossRef

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders 5th edition, (DSM-5). Arlington, VA: APA.CrossRef

Bennett, T., Boyle, M., Georgiades, K., Georgiades, S., Thompson, A., & DukuSzatmari, E. S. (2012). Influences of reporting effects on the association between maternal depression and child autism spectrum disorder behaviors. Journal of Child Psychology and Psychiatry, 53, 89–96. https://doi.org/10.1111/j.1469-7610.2011.02451.x.CrossRefPubMed

Browne, D. T., Leckie, G., Prime, H., Perlman, M., & Jenkins, J. M. (2016). Observed sensitivity during family interactions and cumulative risk: A study of multiple dyads per family. Developmental Psychology, 52(7), 1128–1138. https://doi.org/10.1037/dev0000143.CrossRefPubMed

Campaign 2000 (2015). Let’s do this: Let’s end child poverty for good, 2015 report card on child and family poverty in Canada. Toronto, ON: Family Services Ontario. Retrieved June 20 2017 from http://campaign2000.ca/wp-content/uploads/2016/03/2015-Campaign2000-Report-Card-Final-English.pdf.

Carter, E., Boehm, T., Biggs, E., Annandale, N., Taylor, C., Loock, A., & Liu, R. (2015). Known for my strengths: Positive traits of transition-age youth with intellectual disability and/or autism. Research and Practice for Persons with Severe Disabilities, 40(2), 101–119. https://doi.org/10.1177/1540796915592158.CrossRef

Carter, E., Carlton, M., & Travers, H. (2020). Seeing strengths: Young adults and their siblings with autism or intellectual disability. Journal of Applied Research in Intellectual Disabilities. https://doi.org/10.1111/jar.12701.CrossRefPubMedPubMedCentral

Colavita, V., Luthra, N., & Perry, A. (2014). Brief report: Strengths and challenges of children with a developmental disability: A qualitative analysis of parent perceptions. Journal on Developmental Disabilities, 20(3), 80–87.

Cosden, M., Koegel, L., Koegel, R., Greenwell, A., & Klein, E. (2006). Strength-based assessment for children with autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 31(2), 134–143.CrossRef

Cost, K., Unternaehrer, E., Pruessner, J., Abramovich, A., Cleverley, K., & Szatmari, P. (2020). Checking assumptions: Advancing the analysis of sex and gender in health sciences. Toronto, Canada: University of Toronto.

De Los Reyes, A., & Kazdin, A. (2005). Informant discrepancies in the assessment of childhood psychopathology: A critical review, theoretical framework, and recommendations for further study. Psychological Bulletin, 131(4), 483–509.CrossRef

Derogatis, L. (1994). Symptom checklist-90-R: Administration, scoring and procedure manual for the revised version of the SCL-90. Minneapolis, MN: National Computer Systems.

Gotham, K., Pickles, A., & Lord, C. (2009). Standardizing ADOS scores for a measure of severity in autism spectrum disorders. Journal of Autism and Developmental Disorders, 39, 693–705. https://doi.org/10.1007/s10803-008-0674-3.CrossRefPubMed

Hastie, J., & Stephens, C. (2019). Vicarious futurity: Parents’ perspectives on locating strengths in adolescents with autism. Aotearoa New Zealand Social Work, 31(1), 89–100. https://doi.org/10.11157/anzswj-vol31iss1id505.CrossRef

Kallitsounaki, A., & Williams, D. A. (2020). Relation between autism traits and gender self-concept: Evidence from explicit and implicit measures. Journal of Autism and Developmental Disorders, 50, 429–439. https://doi.org/10.1007/s10803-019-04262-z.CrossRefPubMed

Kapp, S., Gillespie-Lynch, K., Sherman, L., & Hutman, T. (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59–71. https://doi.org/10.1037/a0028353.CrossRefPubMed

Kirchner, J., Ruch, W., & Dziobek, I. (2016). Brief report: Character strengths in adults with autism spectrum disorder without intellectual impairment. Journal of Autism and Developmental Disorders, 46, 3330–3337. https://doi.org/10.1007/s10803-016-2865-7.CrossRefPubMed

Lam, G. Y. H., Holden, E., Fitzpatrick, M., Mendez, L., & Berkman, K. (2020). “Different but connected”: Participatory action research using Photovoice to explore well-being in autistic young adults. Autism. https://doi.org/10.1177/1362361319898961.CrossRefPubMed

Lee, V., Duku, E., Zwaigenbaum, L., Bennett, T., Szatmari, P., Elsabbagh, M., & Georgiades, S. (2020). Temperament influences the relationship between symptom severity and adaptive functioning in children with autism spectrum disorder. Autism The International Journal of Research and Practice, 24(8), 2057–2070.CrossRef

Lerner, R. M., & Schmid Callina, K. (2014). The study of character development: Towards tests of a relational developmental systems model. Human Development, 57, 322–346. https://doi.org/10.1159/000368784.CrossRef

Lord, C., Risi, S., Lambrecht, L., Cook, E. H., Leventhal, B. L., DiLavore, P. C., & Rutter, M. (2000). The autism diagnostic observation schedule—generic: A standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disorders, 30, 205–223. https://doi.org/10.1023/A:1005592401947.CrossRefPubMed

McCrimmon, A., & Montgomery, J. (2014). Resilience-based perspectives for autism spectrum disorder. In S. Prince-Embury & D. H. Saklofske (Eds.), Resilience interventions for youth in diverse populations (pp. 375–396). New York: Springer.CrossRef

Niemiec, R. M., Shogren, K., & Wehmeyer, M. (2017). Character strengths and intellectual and developmental disability: A strengths-based approach from positive psychology. Education and Training in Autism and Developmental Disabilities, 52(1), 13–25.

Nicholas, D., Orjasaeter, J., & Zwaigenbaum, L. (2019). Considering methodological accommodation to the diversity of ASD: A realist synthesis review of data collection methods for examining first-person experiences. Review Journal of Autism and Developmental Disorders, 6, 216–232. https://doi.org/10.1007/s40489-019-00164-z.CrossRef

Ofner, M., Coles, A., Decou, M. L., Do, M., Bienek, A., Snider, J., & Ugnat, A.-M. (2018). Autism spectrum disorder among children and youth in Canada 2018: A report of the National autism spectrum disorder surveillance system. Ottawa, ON: Minister of Health.

Park, N. (2004). The role of subjective well-being in positive youth development. Annals of the American Academy of Political and Social Science, 591, 25–39. https://doi.org/10.1177/0002716203260078.CrossRef

Park, N., & Peterson, C. (2006a). Character strengths and happiness among young children: Content analysis of parental descriptions. Journal of Happiness Studies, 7, 323–334. https://doi.org/10.1007/s10902-005-3648-6.CrossRef

Park, N., & Peterson, C. (2006b). Moral competence and character strengths among adolescents: The development and validation of the values in action inventory of strengths for youth. Journal of Adolescence, 29, 891–909. https://doi.org/10.1016/j.adolescence.2006.04.011.CrossRefPubMed

Park, N., & Peterson, C. (2009). Character strengths: Research and practice. Journal of College and Character, 10(4), 1–10. https://doi.org/10.2202/1940-1639.1042.CrossRef

Park, N., Peterson, C., & Seligman, M. (2004). Strengths of character and well-being. Journal of Social and Clinical Psychology, 23(5), 603–619. https://doi.org/10.1521/jscp.23.5.603.50748.CrossRef

Park, N., Peterson, C., & Seligman, M. (2006). Character strengths in fifty-four nations and the fifty US states. Journal of Positive Psychology, 1(3), 118–129. https://doi.org/10.1080/17439760600619567.CrossRef

Peterson, C., & Seligman, M. (2004). Character strengths and virtues: A handbook and classification. Washington, DC: American Psychological Association.

Potter, C. (2016). ‘I accept my son for who he is – he has incredible character and personality’: Fathers’ positive experiences of parenting children with autism. Disability and Society, 31(7), 948–965. https://doi.org/10.1080/09687599.2016.1216393.CrossRef

R Core Team. (2019). R: A language and environment for statistical computing. Vienna, Austria: R Foundation for Statistical Computing. Retrieved December 23, 2020 from https://www.R-project.org/.

R Core Team. (2020). R: A language and environment for statistical computing. Vienna, Austria: R Foundation for Statistical Computing. Retrieved December 23, 2020 from https://www.R-project.org/.

Rashid, T., Anjum, A., Lennox, C., Quinlan, D., Niemiec, R., Mayerson, D., & Kazemi, F. (2013). Assessment of character strengths in children and adolescents. In C. Proctor & P. A. Linley (Eds.), Research, applications, and interventions for children and adolescents: A positive psychology perspective (pp. 81–115). New York: Springer.CrossRef

Robertson, S. (2010). Neurodiversity, quality of life, and autistic adults: Shifting research and professional focuses onto real-life challenges. Disability Studies Quarterly, 30(1). Retrieved from https://dsq-sds.org/article/view/1069/1234.

Rothbart, M. K., & Posner, M. I. (2006). Temperament, attention, and developmental psychopathology. In D. Cicchetti & D. Cohen (Eds.), Developmental psychopathology: Developmental neuroscience (pp. 465–501). Hoboken, NJ: John Wiley and Sons.

Ruch, W., Weber, M., Park, N., & Peterson, C. (2014). Character strengths in children and adolescents: Reliability and initial validity of the German values in action inventory of strengths for youth (German VIA-Youth). European Journal of Psychological Assessment, 30(1), 57–64. https://doi.org/10.1027/1015-5759/a000169.CrossRef

Russell, G., Kapp, S., Elliott, D., Elphick, C., Gwernan-Jones, R., & Owens, C. (2019). Mapping the autistic advantage from the accounts of adults diagnosed with autism: A qualitative study. Autism in Adulthood, 1(2), 124–133. https://doi.org/10.1089/aut.2018.0035.CrossRefPubMedPubMedCentral

Rutter, M., Le Couteur, A., & Lord, C. (2003). Autism diagnostic interview-revised. Los Angeles, CA: Western Psychological Services.

Sabapathy, T., Madduri, N., Deavenport-Saman, A., Zamora, I., Schrager, S., & Vanderbilt, D. (2017). Parent-reported strengths in children with autism spectrum disorders at the time of an interdisciplinary diagnostic evaluation. Journal of Developmental and Behavioral Pediatrics, 38, 181–186. https://doi.org/10.1097/DBP.0000000000000423.CrossRefPubMed

Samson, A., & Antonelli, Y. (2013). Humor as character strength and its relation to life satisfaction and happiness in autism spectrum disorders. Humor, 26(3), 477–491. https://doi.org/10.1515/humor-2013-0031.CrossRef

Seligman, M., & Csikszentmihalyi, M. (2000). Positive psychology: An introduction. American Psychologist, 55(1), 5–14. https://doi.org/10.1037//0003-066X.55.1.5.CrossRef

Shoshani, A., & Aviv, I. (2012). The pillars of strength for first-grade adjustment – Parental and children’s character strengths and the transition to elementary school. Journal of Positive Psychology, 7(4), 315–326. https://doi.org/10.1080/17439760.2012.691981.CrossRef

Shoshani, A., & Slone, M. (2013). Middle school transition from the strengths perspective: Young adolescents’ character strengths, subjective well-being, and school adjustment. Journal of Happiness Studies, 14, 1163–1181. https://doi.org/10.1007/s10902-012-9374-y.CrossRef

Shoshani, A., & Shwartz, L. (2018). From character strengths to children’s well-being: Development and validation of the character strengths inventory for elementary school children. Frontiers in Psychology, 9, 1–4. https://doi.org/10.3389/fpsyg.2018.02123.CrossRef

Steiner, A. M. (2011). A strength-based approach to parent education for children with autism. Journal of Positive Behavior Interventions, 13(3), 178–190. https://doi.org/10.1177/1098300710384134.CrossRef

Szatmari, P., Zwaigenbaum, L., Georgiades, S., Elsabbagh, M., & WaddellBennettVolden, C. T. J. (2016). Resilience and developmental health in autism spectrum disorder. In M. Hodes & S. Gau (Eds.), Positive mental health, fighting stigma, and promoting resiliency and children and adolescents (pp. 91–109). New York: Academic Press/Elsevier.

Tesfaye, R., Courchesne, V., Yusuf, A., Savion-Lemieux, T., Singh, I., Shikako-Thomas, K., & Elsabbagh, M. (2019). Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities. Autism, 23, 1882–1896. https://doi.org/10.1177/1362361319831487.CrossRefPubMedPubMedCentral

Teti, M., Cheak-Zamora, N., Lolli, B., & Maurer-Batjer, A. (2016). Reframing autism: Young adults with autism share their strengths through photo-stories. Journal of Pediatric Nursing, 31, 619–629. https://doi.org/10.1016/j.pedn.2016.07.002.CrossRefPubMed

Wagner, L. (2019). Good character is what we look for in a friend: Character strengths are positively related to peer acceptance and friendship quality in early adolescents. Journal of Early Adolescence, 39(6), 864–903. https://doi.org/10.1177/0272431618791286.CrossRef

Warren, N., Eatchel, B., Kirby, A., Diener, M., Wright, C., & D’Astous, V. (2020). Parent-identified strengths of autistic youth. Autism. https://doi.org/10.1177/1362361320945556.CrossRefPubMed

Wickham, H., Averick, M., Bryan, J., Chang, W., D’Agostino McGowan, L., Francois, R., & Yutani, H. (2019). Welcome to the Tidyverse. Journal of Open Source Software, 4(43), 1686. https://doi.org/10.21105/joss.01686.CrossRef

Woodard, C. (2009). Psychometric properties of the ASPeCT-DD: Measuring positive traits in persons with developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 22, 433–444. https://doi.org/10.1111/j.1468-3148.2009.00494.x.CrossRef

Zaidman-Zait, A., Mirenda, P., Szatmari, P., Duku, E., Smith, I., Vaillancourt, T., & Elsabbagh, M. (2020). Profiles and predictors of academic and social school functioning among children with autism spectrum disorder. Journal of Clinical Child and Adolescent Psychology. https://doi.org/10.1080/15374416.2020.1750021.CrossRefPubMed

Titel: “Best Things”: Parents Describe Their Children with Autism Spectrum Disorder Over Time
Auteurs: Katherine T. Cost
Anat Zaidman-Zait
Pat Mirenda
Eric Duku
Lonnie Zwaigenbaum
Isabel M. Smith
Wendy J. Ungar
Connor Kerns
Theresa Bennett
Peter Szatmari
Stelios Georgiades
Charlotte Waddell
Mayada Elsabbagh
Tracy Vaillancourt
Publicatiedatum: 02-02-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 12/2021
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-04890-4

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