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Journal of Autism and Developmental Disorders

Gepubliceerd in:

01-06-2012 | Original Paper

Autism-Specific Primary Care Medical Home Intervention

Auteurs: Allison Golnik, Peter Scal, Andrew Wey, Philippe Gaillard

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2012

Abstract

Forty-six subjects received primary medical care within an autism-specific medical home intervention (www.autismmedicalhome.com) and 157 controls received standard primary medical care. Subjects and controls had autism spectrum disorder diagnoses. Thirty-four subjects (74%) and 62 controls (40%) completed pre and post surveys. Controlling for pre-survey medical home status, subjects had 250% greater odds of receipt of a medical home at the study end compared to controls (p = 0.021). Compared to controls, subjects receiving the intervention reported significantly more satisfaction (p = 0.0004), greater shared decision making (p = 0.0005) and fewer unmet needs (p = 0.067). However, subjects reported no change in family stress (p = 0.204).

vorige artikel The Structure of Autism Symptoms as Measured by the Autism Diagnostic Observation Schedule

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Agency for Healthcare Research and Quality, United States Department of Health and Human Services (2010) CAPS Survey and Tools to Advance Patient Centered Care. Retrieved August 2011 from www.cahps.ahrq.gov/default.asp.

American Academy of Pediatrics Medical Home Initiatives for Children With Special Needs Project Advisory Committee. (2002). Policy Statement: The medical home. Pediatrics, 110, 184–186.CrossRef

Brachlow, A. E., Ness, K. K., McPheeters, M. L., & Gurney, J. G. (2007). Comparison of indicators for a primary care medical home between children with autism or asthma and other special health care needs: National Survey of Children’s Health. Archives of Pediatrics and Adolescent Medicine, 161, 399–405.PubMedCrossRef

Carbone, P. S., Behl, D. D., Azor, V., & Murphy, N. A. (2009). The medical home for children with autism spectrum disorders: Parent and pediatrician Perspectives. Journal of Autism and Developmental Disorders, 40(3), 317–324.PubMedCrossRef

CDC. (2009). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, United States, 2006. MMWR Surveillance Summaries, 58, 1–20.

Clark, N. M., Gong, M., Schork, M. A., Evans, D., Roloff, D., Hurwitz, M., et al. (1998). Impact of education for physicians on patient outcomes. Pediatrics, 101, 831–836.PubMedCrossRef

U.S. Census. (2000). Public Law 94-171 and Summary File 1. Retrieved August 2011 from www.crcworks.org/hennepin/censusrace.htm.

Frosch, D. L., & Kaplan, R. M. (1999). Shared decision making in clinical medicine: past research and future directions. American Journal of Preventive Medicine, 17, 285–294.PubMedCrossRef

Gray, D. E. (2006). Coping over time: the parents of children with autism. Journal of Intellectual Disability Research, 50, 970–976.PubMedCrossRef

Greenfield, S., Kaplan, S. H., Ware, J. E., Jr., Yano, E. M., & Frank, H. J. (1988). Patients’ participation in medical care: Effects on blood sugar control and quality of life in diabetes. Journal of General Internal Medicine, 3, 448–457.PubMedCrossRef

Homer, C. J., Klatka, K., Romm, D., Kuhlthau, K., Bloom, S., Newacheck, P., et al. (2008). A review of the evidence for the medical home for children with special health care needs. Pediatrics, 122, e922–e937.PubMedCrossRef

Kaplan, S. H., Greenfield, S., & Ware, J. E., Jr. (1989). Assessing the effects of physician-patient interactions on the outcomes of chronic disease. Medical Care, 27, S110–S127.PubMedCrossRef

Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122, e1149–e1158.PubMedCrossRef

Lee, L. C., Harrington, R. A., Louie, B. B., & Newschaffer, C. J. (2008). Children with autism: quality of life and parental concerns. Journal of Autism and Developmental Disorders, 38, 1147–1160.PubMedCrossRef

Liptak, G. S., Orlando, M., Yingling, J. T., Theurer-Kaufman, K. L., Malay, D. P., Tompkins, L. A., et al. (2006a). Satisfaction with primary health care received by families of children with developmental disabilities. Journal of Pediatric Health Care, 20, 245–252.PubMedCrossRef

Liptak, G. S., Stuart, T., & Auinger, P. (2006b). Health care utilization and expenditures for children with autism: Data from U.S. national samples. Journal of Autism and Developmental Disorders, 36(7), 871–879.PubMedCrossRef

Roter, D. L., & Hall, J. A. (1992). Doctors talking with patients, patients talking with doctors. Dover, MA: Aburn House.

Shadish, W. R. (2001). Experimental and quasi-experimental designs for generalized causal inference (2nd ed.). England: Wadsworth Publishing.

Sheldrick, R. C., & Perrin, E. C. (2010). Medical home services for children with behavioral health conditions. Journal of Developmental and Behavioral Pediatrics, 31, 92–99.PubMedCrossRef

Silverman, C., & Brosco, J. P. (2007). Understanding autism: Parents and pediatricians in historical perspective. Archives of Pediatrics and Adolescent Medicine, 161, 392–398.PubMedCrossRef

Autism Speaks. (2009). Interactive Autism Network Research Report: Family Stress—Part 1. Retrieved August 2011 from www.iancommunity.org/cs/ian_research_reports/ian_research_report_april_2009.

Stewart, M. A. (1995). Effective physician-patient communication and health outcomes: a review. Canadian Medical Association Journal, 152, 1423–1433.PubMed

Tuckett, D., Boulton, M., Olson, I., & Williams, A. (1985). Meetings between experts: an approach to sharing ideas in medical consultations. London, England: Travistock Publications.

Whitney, S. N. (2003). A new model of medical decisions: exploring the limits of shared decision making. Medical Decision Making, 23, 275–280.PubMedCrossRef

Titel: Autism-Specific Primary Care Medical Home Intervention
Auteurs: Allison Golnik
Peter Scal
Andrew Wey
Philippe Gaillard
Publicatiedatum: 01-06-2012
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 6/2012
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-011-1351-5

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