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Gepubliceerd in: Journal of Autism and Developmental Disorders 3/2022

22-04-2021 | Original Paper

Autism and the Knowledge and Beliefs of Specialists in Kazakhstan

Auteurs: Michelle Somerton, Valentina Stolyarova, Stanislav Khanin

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 3/2022

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Abstract

In Kazakhstan, the diagnosis of autism relies upon the expertise of various specialists and a range of measures that have not been researched to date. The present study collected data from a range of health specialists across Kazakhstan currently known to be involved in the diagnosis of children with autism. The research was an explanatory mixed methods design; survey followed by interviews. Participants included psychiatrists, pediatric neurologists, general practitioners, and other specialists. Analysis showed a range of beliefs including common misconceptions concerning the etiology and manifestation of autism not aligned with current research knowledge. These beliefs were shown to persist across disciplines and were not restricted to any specific region of the country, or particular profession.
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Literatuur
go back to reference American Psychiatric Association. (1987). Diagnostic and statistical manual of mental disorders (3rd ed., text rev). Author. American Psychiatric Association. (1987). Diagnostic and statistical manual of mental disorders (3rd ed., text rev). Author.
go back to reference American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Author. American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Author.
go back to reference American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Author. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Author.
go back to reference Atun-Einy, O., & Ben-Sasson, A. (2018). Pediatric allied healthcare professionals’ knowledge and self-efficacy regarding ASD. Research in Autism Spectrum Disorders, 47, 1–13CrossRef Atun-Einy, O., & Ben-Sasson, A. (2018). Pediatric allied healthcare professionals’ knowledge and self-efficacy regarding ASD. Research in Autism Spectrum Disorders, 47, 1–13CrossRef
go back to reference Boyle, C., Boulet, S., Schieve, L., Cohen, R., Blumberg, S., Yeargin-Allsopp, M., Visser, S., & Kogan, M. (2011). Trends in the prevalence of developmental disabilities in US children, 1997–2008. Pediatrics, 127(6), 1034–1042CrossRef Boyle, C., Boulet, S., Schieve, L., Cohen, R., Blumberg, S., Yeargin-Allsopp, M., Visser, S., & Kogan, M. (2011). Trends in the prevalence of developmental disabilities in US children, 1997–2008. Pediatrics, 127(6), 1034–1042CrossRef
go back to reference British Educational Research Association. (2011). Revised ethical guidelines for educational research. Author British Educational Research Association. (2011). Revised ethical guidelines for educational research. Author
go back to reference Caruth, G. D. (2013). Demystifying mixed methods research design: A review of the literature. Online Submission, 3(2), 112–122 Caruth, G. D. (2013). Demystifying mixed methods research design: A review of the literature. Online Submission, 3(2), 112–122
go back to reference Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders: Autism and developmental disabilities monitoring network, 14 sites, United States, 2008 (Vol. 61). Centers for Disease Control and Prevention. Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders: Autism and developmental disabilities monitoring network, 14 sites, United States, 2008 (Vol. 61). Centers for Disease Control and Prevention.
go back to reference Cohen, L., Manion, L., & Morrison, K. (2013). Research methods in education. Routledge.CrossRef Cohen, L., Manion, L., & Morrison, K. (2013). Research methods in education. Routledge.CrossRef
go back to reference Dillenburger, K., Jordan, J. A., McKerr, L., Devine, P., & Keenan, M. (2013). Awareness and knowledge of autism and autism interventions: A general population survey. Research in Autism Spectrum Disorders, 7(12), 1558–1567CrossRef Dillenburger, K., Jordan, J. A., McKerr, L., Devine, P., & Keenan, M. (2013). Awareness and knowledge of autism and autism interventions: A general population survey. Research in Autism Spectrum Disorders, 7(12), 1558–1567CrossRef
go back to reference Eseigbe, E. E., Nuhu, F. T., Sheikh, T. L., Eseigbe, P., Sanni, K. A., & Olisah, V. O. (2015). Knowledge of childhood autism and challenges of management among medical doctors in Kaduna State. (p. 2015). Northwest Nigeria. Eseigbe, E. E., Nuhu, F. T., Sheikh, T. L., Eseigbe, P., Sanni, K. A., & Olisah, V. O. (2015). Knowledge of childhood autism and challenges of management among medical doctors in Kaduna State. (p. 2015). Northwest Nigeria.
go back to reference Fombonne, E. (2018). Editorial: the rising prevalence of autism. The journal of Child Psychology and Psychiatry, 59(7), 717–720CrossRef Fombonne, E. (2018). Editorial: the rising prevalence of autism. The journal of Child Psychology and Psychiatry, 59(7), 717–720CrossRef
go back to reference Frith, U., Morton, J., & Leslie, A. M. (1991). The cognitive basis of a biological disorder: Autism. Trends in neurosciences, 14(10), 433–438CrossRef Frith, U., Morton, J., & Leslie, A. M. (1991). The cognitive basis of a biological disorder: Autism. Trends in neurosciences, 14(10), 433–438CrossRef
go back to reference Harry, B., Sturges, K. M., & Klingner, J. K. (2005). Mapping the process: An exemplar of process and challenge in grounded theory analysis. Educational Researcher, 34(2), 3–13CrossRef Harry, B., Sturges, K. M., & Klingner, J. K. (2005). Mapping the process: An exemplar of process and challenge in grounded theory analysis. Educational Researcher, 34(2), 3–13CrossRef
go back to reference Heidgerken, A., Geffken, G., Modi, A., & Frakey, L. (2005). A survey of autism knowledge in a health care setting. Journal of Autism and Developmental Disorders, 35(3), 323–330CrossRef Heidgerken, A., Geffken, G., Modi, A., & Frakey, L. (2005). A survey of autism knowledge in a health care setting. Journal of Autism and Developmental Disorders, 35(3), 323–330CrossRef
go back to reference Iarskaia-Smirnova, E., Romanov, P., & Yarskaya, V. (2015). Parenting children with disabilities in Russia: Institutions, discourses and identities. Europe-Asia Studies, 67(10), 1606–1634CrossRef Iarskaia-Smirnova, E., Romanov, P., & Yarskaya, V. (2015). Parenting children with disabilities in Russia: Institutions, discourses and identities. Europe-Asia Studies, 67(10), 1606–1634CrossRef
go back to reference Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2, 217–250 Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2, 217–250
go back to reference Kanner, L., & Eisenberg, L. (1957). Early infantile autism, 1943–1955. Psychiatric Research Reports of the American Psychiatric Association., 7, 55–65 Kanner, L., & Eisenberg, L. (1957). Early infantile autism, 1943–1955. Psychiatric Research Reports of the American Psychiatric Association., 7, 55–65
go back to reference Lapham, K., & Rouse, M. (2013). Learning to see invisible children: Inclusion of children with disabilities in Central Asia. Central European University Press. Lapham, K., & Rouse, M. (2013). Learning to see invisible children: Inclusion of children with disabilities in Central Asia. Central European University Press.
go back to reference Lord, C., Risi, S., DiLavore, P. S., Shulman, C., Thurm, A., & Pickles, A. (2006). Autism from 2 to 9 years of age. Archives of General Psychiatry, 63(6), 694–701CrossRef Lord, C., Risi, S., DiLavore, P. S., Shulman, C., Thurm, A., & Pickles, A. (2006). Autism from 2 to 9 years of age. Archives of General Psychiatry, 63(6), 694–701CrossRef
go back to reference Lord, C., Rutter, M., DiLavore, P., & Risi, S. (2001). Autism Diagnostic Observation Schedule-WPS Edition (ADOS-WPS). Western Psychological Services. Lord, C., Rutter, M., DiLavore, P., & Risi, S. (2001). Autism Diagnostic Observation Schedule-WPS Edition (ADOS-WPS). Western Psychological Services.
go back to reference Matson, J. L., & Kozlowski, A. M. (2011). The increasing prevalence of autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 418–425CrossRef Matson, J. L., & Kozlowski, A. M. (2011). The increasing prevalence of autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 418–425CrossRef
go back to reference Mertens, D. M. (2014). Research and evaluation in education and psychology: Integrating diversity with quantitative, qualitative, and mixed methods. Sage. Mertens, D. M. (2014). Research and evaluation in education and psychology: Integrating diversity with quantitative, qualitative, and mixed methods. Sage.
go back to reference Mesibov, G. B., Adams, L. W., & Klinger, L. G. (2013). Autism: Understanding the disorder. Springer Science & Business Media. Mesibov, G. B., Adams, L. W., & Klinger, L. G. (2013). Autism: Understanding the disorder. Springer Science & Business Media.
go back to reference Morris, R., Greenblatt, A., & Saini, M. (2019). Healthcare providers’ experiences with autism: a scoping review. Journal of autism and developmental disorders, 49(6), 2374–2388CrossRef Morris, R., Greenblatt, A., & Saini, M. (2019). Healthcare providers’ experiences with autism: a scoping review. Journal of autism and developmental disorders, 49(6), 2374–2388CrossRef
go back to reference Perfilyeva, A. V., Bespalova, K. B., Skvortsova, L. A., Surdeanu, A., Garshin, A. A., Perfilyeva, Y. V., Khamdiyeva, O. K., Bekmanov, B. O., & Djansugurova, L. B. (2019). No association between the rs1799836 Polymorphism of the Monoamine Oxidase B Gene and the risk of autism spectrum disorders in the Kazakhstani population. Disease Markers. https://doi.org/10.1155/2019/2846394CrossRefPubMedPubMedCentral Perfilyeva, A. V., Bespalova, K. B., Skvortsova, L. A., Surdeanu, A., Garshin, A. A., Perfilyeva, Y. V., Khamdiyeva, O. K., Bekmanov, B. O., & Djansugurova, L. B. (2019). No association between the rs1799836 Polymorphism of the Monoamine Oxidase B Gene and the risk of autism spectrum disorders in the Kazakhstani population. Disease Markers. https://​doi.​org/​10.​1155/​2019/​2846394CrossRefPubMedPubMedCentral
go back to reference Punch, K. F., & Oancea, A. (2014). Introduction to research methods in education. Sage. Punch, K. F., & Oancea, A. (2014). Introduction to research methods in education. Sage.
go back to reference Rahbar, M. H., Ibrahim, K., & Assassi, P. (2011). Knowledge and attitude of general practitioners regarding autism in Karachi, Pakistan. Journal of Autism and Developmental Disorders, 41(4), 465–474CrossRef Rahbar, M. H., Ibrahim, K., & Assassi, P. (2011). Knowledge and attitude of general practitioners regarding autism in Karachi, Pakistan. Journal of Autism and Developmental Disorders, 41(4), 465–474CrossRef
go back to reference Saldana, J. (2011). The coding manual for qualitative researchers. Sage. Saldana, J. (2011). The coding manual for qualitative researchers. Sage.
go back to reference Schwartz, H., & Drager, K. D. (2008). Training and knowledge in autism among speech-language pathologists: A survey. Language, Speech, and Hearing Services in Schools, 39(1), 66–77CrossRef Schwartz, H., & Drager, K. D. (2008). Training and knowledge in autism among speech-language pathologists: A survey. Language, Speech, and Hearing Services in Schools, 39(1), 66–77CrossRef
go back to reference Self, T. L., Coufal, K., & Parham, D. F. (2010). Allied healthcare providers’ role in screening for autism spectrum disorders. Journal of Allied Health, 39(3), 165–174PubMed Self, T. L., Coufal, K., & Parham, D. F. (2010). Allied healthcare providers’ role in screening for autism spectrum disorders. Journal of Allied Health, 39(3), 165–174PubMed
go back to reference Sorokin, A. (2015). Russian and autism. Springer Science+Business. Sorokin, A. (2015). Russian and autism. Springer Science+Business.
go back to reference Stone, W. K. (1987). Cross-Disciplinary perspectives on autism. Journal of Pediatric Psychology, 21, 615–630CrossRef Stone, W. K. (1987). Cross-Disciplinary perspectives on autism. Journal of Pediatric Psychology, 21, 615–630CrossRef
go back to reference Thorogood, L. (2009). Children with special education needs in Kazakhstan, Kyrgyzstan, and Tajikistan. Open Society Institute. Thorogood, L. (2009). Children with special education needs in Kazakhstan, Kyrgyzstan, and Tajikistan. Open Society Institute.
go back to reference Tipton, L. A., & Blacher, J. (2014). Brief report: Autism awareness: Views from a campus community. Journal of autism and developmental disorders, 44(2), 477–483CrossRef Tipton, L. A., & Blacher, J. (2014). Brief report: Autism awareness: Views from a campus community. Journal of autism and developmental disorders, 44(2), 477–483CrossRef
go back to reference Volkmar, F. R., Klin, A., & Cohen, D. J. (1997). Diagnosis and classification of autism and related conditions: Consensus and issues. In D. J. Cohen & F. R. Volkmar (Eds.), Handbook of autism and pervasive developmental disorders (2nd ed., pp. 5-40), Wiley. Volkmar, F. R., Klin, A., & Cohen, D. J. (1997). Diagnosis and classification of autism and related conditions: Consensus and issues. In D. J. Cohen & F. R. Volkmar (Eds.), Handbook of autism and pervasive developmental disorders (2nd ed., pp. 5-40), Wiley.
go back to reference Waltz, M. (2013). Autism: A social and medical history. Palgrave Macmillan. Waltz, M. (2013). Autism: A social and medical history. Palgrave Macmillan.
Metagegevens
Titel
Autism and the Knowledge and Beliefs of Specialists in Kazakhstan
Auteurs
Michelle Somerton
Valentina Stolyarova
Stanislav Khanin
Publicatiedatum
22-04-2021
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 3/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-021-05021-9

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