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10-01-2018 | S.I. : Parenting Children with ASD

Associations Between Resilience and the Well-Being of Mothers of Children with Autism Spectrum Disorder and Other Developmental Disabilities

Auteurs: Elizabeth Halstead, Naomi Ekas, Richard P. Hastings, Gemma M. Griffith

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2018

Abstract

There is variability in the extent to which mothers are affected by the behavior problems of their children with developmental disabilities (DD). We explore whether maternal resilience functions as a protective or compensatory factor. In Studies 1 and 2, using moderated multiple regression models, we found evidence that maternal resilience functioned as a compensatory factor—having a significant independent main effect relationship with well-being outcomes in mothers of children with DD and autism spectrum disorder. However, there was no longitudinal association between resilience and maternal well-being outcomes. There was little evidence of the role of resilience as a protective factor between child behavior problems and maternal well-being in both studies.

vorige artikel Protective Factors Against Distress for Caregivers of a Child with Autism Spectrum Disorder

volgende artikel Parent Support of Preschool Peer Relationships in Younger Siblings of Children with Autism Spectrum Disorder

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Meer informatie

Aiken, L. S., & West, S. G. (1991). Multiple regression: Testing and interpreting interactions. Thousand Oak: Sage Publications, Inc.

Andrews, G., Page, A. C., & Neilson, M. (1993). Sending your teenagers away: controlled stress decreases neurotic vulnerability. Archives of General Psychiatry, 50(7), 585–589. CrossRefPubMed

Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Edelbrock, C., & Low, C. (2003). Pre- school children with and without developmental delay: Behaviour problems and parenting stress over time. Journal of Intellectual Disability Research, 47(4-5), 217–230. CrossRefPubMed

Bayat, M. (2007). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research, 51, 702–714. CrossRefPubMed

Beck, A., Daley, D., Hastings, R. P., & Stevenson, J. (2004a). Mothers’ expressed emotion towards children with and without intellectual disabilities. Journal of Intellectual Disability Research, 48(7), 628–638. CrossRefPubMed

Beck, A., Hastings, R. P., Daley, D., & Stevenson, J. (2004b). Pro-social behaviour and behaviour problems independently predict maternal stress. Journal of Intellectual and Developmental Disability, 29(4), 339–349. CrossRef

Bedard, M., Felteau, M., Mazmanian, D., Fedyk, K., Klein, R., Richardson, J., Parkinson, W., & Minthorn-Biggs, M. B. (2003). Pilot evaluation of a mindfulness-based intervention to improve quality of life among individuals who sustained traumatic brain injuries. Disability and Rehabilitation, 25(13), 722–731. CrossRefPubMed

Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50(3), 184–198. CrossRefPubMed

Block, J., & Kremen, A. M. (1996). IQ and ego-resiliency: conceptual and empirical connections and separateness. Journal of Personality and Social Psychology, 70(2), 349–361. CrossRefPubMed

Bowerman, B. L., & O’Connell, R. T. (1990). Linear statistical models: An applied approach (2nd edn.). Belmont, CA: Duxbury.

Brook, J. S., Whiteman, M., Gordon, A. S., & Cohen, P. (1986). Dynamics of childhood and adolescent personality traits and adolescent drug use. Developmental Psychology, 22(3), 403–414. CrossRef

Brook, J. S., Whiteman, M., Gordon, A. S., & Cohen, P. (1989). Changes in drug involvement: A longitudinal study of childhood and adolescent determinants. Psychological Reports, 65(3), 707–726. CrossRefPubMed

Clifford, T., & Minnes, P. (2013). Who participates in support groups for parents of children with autism spectrum disorders? The role of beliefs and coping style. Journal of Autism and Developmental Disorders, 43(1), 179–187. CrossRefPubMed

Constantino, J. N., Przybeck, T., Friesen, D., & Todd, R. D. (2000). Reciprocal social behavior in children with and without pervasive developmental disorders. Journal of Developmental and Behavioral Pediatrics, 21(1), 2–11. CrossRefPubMed

Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280. CrossRefPubMed

Devins, G. M., Orme, C. M., Costello, C. G., Binik, Y. M., Frizzell, B., Stam, H. J., & Pullin, W. M. (1988). Measuring depressive symptoms in illness populations: Psychometric properties of the Center for Epidemiologic Studies Depression (CES-D) scale. Psychology and Health, 2(2), 139–156. CrossRef

Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well-being. Journal of Intellectual Disability Research, 49(9), 657–671. CrossRefPubMedPubMedCentral

Ekas, N. V., Keylon, L., Pruitt, M., Ghilain, C., & Alessandri, M. (2015). The power of positivity: Predictors of relationship satisfaction for parents of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45, 1997–2007. CrossRefPubMed

Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being among mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 1274–1284. CrossRefPubMed

Ekas, N. V., Pruitt, M. M., & McKay, E. (2016). Hope, social relations, and depression symptoms in mothers of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 29–30, 8–18. CrossRef

Ello, L. M., & Donovan, S. J. (2005). Assessment of the relationship between parenting stress and a child’s ability to functionally communicate. Research on Social Work Practice, 15(6), 531–544. CrossRef

Fava, G. A., Rafanelli, C., Cazzaro, M., Conti, S., & Grandi, S. (1998). Well-being therapy. A novel psychotherapeutic approach for residual symptoms of affective disorders. Psychological Medicine, 28(02), 475–480. CrossRefPubMed

Fergus, S., & Zimmerman, M. A. (2005). Adolescent resilience: A framework for understanding healthy development in the face of risk. Annual Review of Public Health, 26, 399–419. CrossRefPubMed

Firth, I., & Dryer, R. (2013). The predictors of distress in parents of children with autism spectrum disorder. Journal of Intellectual and Developmental Disability, 38(2), 163–171. CrossRefPubMed

Fletcher, D., & Sarkar, M. (2013). Psychological resilience. European Psychologist, 18, 12–23. CrossRef

Friborg, O., Hjemdal, O., Rosenvinge, J. H., & Martinussen, M. (2003). A new rating scale for adult resilience: What are the central protective resources behind healthy adjustment? International Journal of Methods in Psychiatric Research, 12(2), 65–76. CrossRefPubMed

Gerstein, E. D., Crnic, K., Blacher, J., & Baker, B. L. (2009). Resilience and the course of daily parenting stress in families of young children with intellectual disabilities. Journal of Intellectual Disability Research, 53(12), 981–997. CrossRefPubMedPubMedCentral

Goodman, R. (1997). The Strengths and Difficulties Questionnaire: A research note. Journal of Child Psychology and Psychiatry, 38(5), 581–586. CrossRefPubMed

Goodman, R., Meltzer, H., & Bailey, V. (1998). The strengths and difficulties questionnaire: A pilot study on the validity of the self-report version. European Child and Adolescent Psychiatry, 7(3), 125–130. CrossRefPubMed

Grant, S., Cross, E., Wraith, J. E., Jones, S., Mahon, L., Lomax, M., Bigger, B., & Hare, D. (2013). Parental social support, coping strategies, resilience factors, stress, anxiety and depression levels in parents of children with MPS III (Sanfilippo syndrome) or children with intellectual disabilities (ID). Journal of Inherited Metabolic Disease, 36(2), 281–291. CrossRefPubMed

Griffith, G. M., Hastings, R. P., Oliver, C., Howlin, P., Moss, J., Petty, J., & Tunnicliffe, P. (2011). Psychological wellbeing in parents of children with Angelman, Cornelia de Lange and Cri du Chat syndromes. Journal of Intellectual Disability Research, 55(4), 397–410. CrossRefPubMed

Grossman, P., Tiefenthaler-Gilmer, U., Raysz, A., & Kesper, U. (2007). Mindfulness training as an intervention for fibromyalgia: evidence of postintervention and 3-year follow-up benefits in well-being. Psychotherapy and Psychosomatics, 76(4), 226–233. CrossRefPubMed

Gutierrez, L. M. (1994). Beyond coping: An empowerment perspective on stressful life events. Journal of Sociology and Social Welfare, 21, 201–220.

Hastings, R. P. (2016). Do children with intellectual and developmental disabilities have a negative impact on other family members? The case for rejecting a negative narrative. International Review of Research in Developmental Disabilities, 50, 165–194. CrossRef

Hastings, R. P., & Brown, T. (2002). Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal on Mental Retardation, 107, 222–232. CrossRefPubMed

Hastings, R. P., Daley, D., Burns, C., & Beck, A. (2006). Maternal distress and expressed emotion: Cross-sectional and longitudinal relationships with behavior problems of children with intellectual disabilities. American Journal on Mental Retardation, 111, 48–61. CrossRefPubMed

Hastings, R. P., & Johnson, E. (2001). Stress in UK families conducting intensive home- based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31(3), 327–336. CrossRefPubMed

Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., Espinosa, D., F., & Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9(4), 377–391. CrossRefPubMed

Hastings, R. P., & Taunt, H. M. (2002). Positive perceptions in families of children with developmental disabilities. American Journal on Mental Retardation, 107, 116–127. CrossRefPubMed

Hayes, A. F. (2012). PROCESS: A versatile computational tool for observed variable mediation, moderation, and conditional process modelling [White paper]. Retrieved from http://www.afhayes.com/public/process2012.pdf.

Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642. CrossRefPubMed

Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50(12), 874–882. CrossRefPubMed

Hill-Chapman, C. R., Herzog, T. K., & Maduro, R. S. (2013). Aligning over the child: Parenting alliance mediates the association of autism spectrum disorder atypicality with parenting stress. Research in Developmental Disabilities, 34(5), 1498–1504. CrossRefPubMed

Jones, L., Totsika, V., Hastings, R. P., & Petalas, M. A. (2013). Gender differences when parenting children with autism spectrum disorders: A multilevel modeling approach. Journal of Autism and Developmental Disorders, 43(9), 2090–2098. CrossRefPubMed

Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50(3), 172–183. CrossRefPubMed

Lloyd, T., & Hastings, R. P. (2009). Hope as a psychological resilience factor in mothers and fathers of children with intellectual disabilities. Journal of Intellectual Disability Research, 53, 957–968. CrossRefPubMed

Lyons, D. M., & Parker, K. J. (2007). Stress inoculation-induced indications of resilience in monkeys. Journal of Traumatic Stress, 20(4), 423–433. CrossRefPubMed

MacDonald, E. E., Hastings, R. P., & Fitzsimons, E. (2010). Psychological acceptance mediates the impact of the behaviour problems of children with intellectual disability on fathers’ psychological adjustment. Journal of Applied Research in Intellectual Disabilities, 23(1), 27–37. CrossRef

Masten, A. S., & Obradović, J. (2006). Competence and resilience in development. Annals of the New York Academy of Sciences, 1094(1), 13–27. CrossRefPubMed

Masten, A. S., Powell, J. L., & Luthar, S. S. (2003). A resilience framework for research, policy, and practice. Luthar, S. S. (Ed.), Resilience and vulnerability: Adaptation in the context of childhood adversities (pp. 1–25). Cambridge: Cambridge University Press.

McConnell, D., & Savage, A. (2015). Stress and resilience among families caring for children with intellectual disability: Expanding the research Agenda. Current Developmental Disorders Reports, 2(2), 100–109. CrossRef

Myers, R. (1990). Classical and modern regression with applications (2nd edn.). Boston, MA: Duxbury.

Oldehinkel, A. J., & Ormel, J. (2014). A longitudinal perspective on childhood adversities and onset risk of various psychiatric disorders. European Child and Adolescent Psychiatry, 24, 641–650. CrossRefPubMedPubMedCentral

Olson, D. (2011). FACES IV and the circumplex model: Validation study. Journal of Marital and Family Therapy, 37(1), 64–80. CrossRefPubMed

Olson, D. H., & Wilson, M. (1982). Family satisfaction. In D. H. Olson, H. I. McCubbin, H. Barnes, A. Larsen, M. Muxen & M. Wilson (Eds.), Family inventories: Inventories used in a national survey of families across the family life cycle. Family social science. St. Paul (MN): University of Minnesota.

Pakenham, K. I., Samios, C., & Sofronoff, K. (2005). Adjustment in mothers of children with Asperger syndrome an application of the double ABCX model of family adjustment. Autism, 9(2), 191–212. CrossRefPubMed

Peer, J. W., & Hillman, S. B. (2014). Stress and resilience for parents of children with intellectual and developmental disabilities: A review of key factors and recommendations for practitioners. Journal of Policy and Practice in Intellectual Disabilities, 11(2), 92–98. CrossRef

Peplau, L. A., & Cutrona, C. E. (1980). The revised UCLA Loneliness Scale: Concurrent and discriminant validity evidence. Journal of Personality and Social Psychology, 39(3), 472–480. CrossRefPubMed

Radloff, L. S. (1977). The CES-D scale a self-report depression scale for research in the general population. Applied Psychological Measurement, 1(3), 385–401. CrossRef

Reaven, J., Washington, L., Moody, E. J., Stern, J. A., Hepburn, S. L., & Blakeley-Smith, A. (2015). Examining the relationship between parental anxiety and treatment response in children and adolescents with autism spectrum disorder and anxiety. Journal of Autism and Developmental Disorders, 45(8), 2464–2473. CrossRefPubMedPubMedCentral

Ruiz-Robledillo, N., De Andrés-García, S., Pérez-Blasco, J., González-Bono, E., & Moya- Albiol, L. (2014). Highly resilient coping entails better perceived health, high social support and low morning cortisol levels in parents of children with autism spectrum disorder. Research in Developmental Disabilities, 35(3), 686–695. CrossRefPubMed

Russell, D. W. (1996). UCLA Loneliness Scale (Version 3): Reliability, validity, and factor structure. Journal of Personality Assessment, 66(1), 20–40. CrossRefPubMed

Rutter, M. (1987). Psychosocial resilience and protective mechanisms. American Journal of Orthopsychiatry, 57(3), 316–331. CrossRefPubMed

Rutter, M. (2006). Implications of resilience concepts for scientific understanding. Annals of the New York Academy of Sciences, 1094(1), 1–12. CrossRefPubMed

Scorgie, K., & Sobsey, D. (2000). Transformational outcomes associated with parenting children who have disabilities. Mental Retardation, 38(3), 195–206. CrossRefPubMed

Seery, M. D., Holman, E. A., & Silver, R. C. (2010). Whatever does not kill us: cumulative lifetime adversity, vulnerability, and resilience. Journal of Personality and Social Psychology, 99(6), 1025–1041. CrossRefPubMed

Seligman, M. E., Steen, T. A., Park, N., & Peterson, C. (2005). Positive psychology progress: Empirical validation of interventions. American Psychologist, 60(5), 410–421. CrossRefPubMed

Shattuck, P. T., Seltzer, M. M., Greenberg, J. S., Orsmond, G. I., Bolt, D., Kring, S., … & Lord, C. (2007). Change in autism symptoms and maladaptive behaviors in adolescents and adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 37(9), 1735–1747. CrossRefPubMed

Sin, N. L., & Lyubomirsky, S. (2009). Enhancing well-being and alleviating depressive symptoms with positive psychology interventions: A practice-friendly meta- analysis. Journal of Clinical Psychology, 65(5), 467–487. CrossRefPubMed

Sinclair, V. G., & Wallston, K. A. (2004). The development and psychometric evaluation of the brief resilient coping scale. Assessment, 11(1), 94–101. CrossRefPubMed

Smith, L. E., Seltzer, M. M., Tager-Flusberg, H., Greenberg, J. S., & Carter, A. S. (2008). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders, 38(5), 876–889. CrossRefPubMedPubMedCentral

Spielberger, C. D. (1983). Manual for the State-Trait Anxiety Inventory STAI (form Y)(“self-evaluation questionnaire”).

Tang, S. T., Chang, W. C., Chen, J. S., Wang, H. M., Shen, W. C., Li, C. Y., & Liao, Y. C. (2013). Course and predictors of depressive symptoms among family caregivers of terminally ill cancer patients until their death. Psycho-Oncology, 22(6), 1312–1318. CrossRefPubMed

Tedeschi, R. G., & Calhoun, L. G. (1996). The Posttraumatic Growth Inventory: Measuring the positive legacy of trauma. Journal of Traumatic Stress, 9(3), 455–471. CrossRefPubMed

Totsika, V., Hastings, R. P., Emerson, E., Lancaster, G. A., & Berridge, D. M. (2011). A population-based investigation of behavioural and emotional problems and maternal mental health: Associations with autism spectrum disorder and intellectual disability. Journal of Child Psychology and Psychiatry, 52(1), 91–99. CrossRefPubMed

Walsh, F. (1998). Strengthening family resilience. The Guilford Family Therapy Series.

Walsh, F. (2006). Strengthening family resilience. New York: Guilford Press.

Weiss, J. A., Cappadocia, M. C., MacMullin, J. A., Viecili, M. A., & Lunsky, Y. (2012). Psychological acceptance and empowerment as mediators of the impact of problem behaviour in children with autism spectrum disorders on parent mental health. Autism, 16, 261–274. CrossRefPubMed

Windle, G. (2011). What is resilience? A review and concept analysis. Reviews in Clinical Gerontology, 21(02), 152–169. CrossRef

Zeedyk, S. M., & Blacher, J. (2015). Chapter one-maternal depression and child behavior problems: Longitudinal considerations. International Review of Research in Developmental Disabilities, 49, 1–43. CrossRef

Zigmond, A. S., & Snaith, R. P. (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 67(6), 361–370. CrossRefPubMed

Titel: Associations Between Resilience and the Well-Being of Mothers of Children with Autism Spectrum Disorder and Other Developmental Disabilities
Auteurs: Elizabeth Halstead
Naomi Ekas
Richard P. Hastings
Gemma M. Griffith
Publicatiedatum: 10-01-2018
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 4/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-017-3447-z

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