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Gepubliceerd in: Journal of Autism and Developmental Disorders 4/2018

10-01-2018 | S.I. : Parenting Children with ASD

Associations Between Resilience and the Well-Being of Mothers of Children with Autism Spectrum Disorder and Other Developmental Disabilities

Auteurs: Elizabeth Halstead, Naomi Ekas, Richard P. Hastings, Gemma M. Griffith

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2018

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Abstract

There is variability in the extent to which mothers are affected by the behavior problems of their children with developmental disabilities (DD). We explore whether maternal resilience functions as a protective or compensatory factor. In Studies 1 and 2, using moderated multiple regression models, we found evidence that maternal resilience functioned as a compensatory factor—having a significant independent main effect relationship with well-being outcomes in mothers of children with DD and autism spectrum disorder. However, there was no longitudinal association between resilience and maternal well-being outcomes. There was little evidence of the role of resilience as a protective factor between child behavior problems and maternal well-being in both studies.

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Literatuur
go back to reference Aiken, L. S., & West, S. G. (1991). Multiple regression: Testing and interpreting interactions. Thousand Oak: Sage Publications, Inc. Aiken, L. S., & West, S. G. (1991). Multiple regression: Testing and interpreting interactions. Thousand Oak: Sage Publications, Inc.
go back to reference Andrews, G., Page, A. C., & Neilson, M. (1993). Sending your teenagers away: controlled stress decreases neurotic vulnerability. Archives of General Psychiatry, 50(7), 585–589. CrossRefPubMed Andrews, G., Page, A. C., & Neilson, M. (1993). Sending your teenagers away: controlled stress decreases neurotic vulnerability. Archives of General Psychiatry, 50(7), 585–589. CrossRefPubMed
go back to reference Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Edelbrock, C., & Low, C. (2003). Pre- school children with and without developmental delay: Behaviour problems and parenting stress over time. Journal of Intellectual Disability Research, 47(4-5), 217–230. CrossRefPubMed Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Edelbrock, C., & Low, C. (2003). Pre- school children with and without developmental delay: Behaviour problems and parenting stress over time. Journal of Intellectual Disability Research, 47(4-5), 217–230. CrossRefPubMed
go back to reference Bayat, M. (2007). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research, 51, 702–714. CrossRefPubMed Bayat, M. (2007). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research, 51, 702–714. CrossRefPubMed
go back to reference Beck, A., Daley, D., Hastings, R. P., & Stevenson, J. (2004a). Mothers’ expressed emotion towards children with and without intellectual disabilities. Journal of Intellectual Disability Research, 48(7), 628–638. CrossRefPubMed Beck, A., Daley, D., Hastings, R. P., & Stevenson, J. (2004a). Mothers’ expressed emotion towards children with and without intellectual disabilities. Journal of Intellectual Disability Research, 48(7), 628–638. CrossRefPubMed
go back to reference Beck, A., Hastings, R. P., Daley, D., & Stevenson, J. (2004b). Pro-social behaviour and behaviour problems independently predict maternal stress. Journal of Intellectual and Developmental Disability, 29(4), 339–349. CrossRef Beck, A., Hastings, R. P., Daley, D., & Stevenson, J. (2004b). Pro-social behaviour and behaviour problems independently predict maternal stress. Journal of Intellectual and Developmental Disability, 29(4), 339–349. CrossRef
go back to reference Bedard, M., Felteau, M., Mazmanian, D., Fedyk, K., Klein, R., Richardson, J., Parkinson, W., & Minthorn-Biggs, M. B. (2003). Pilot evaluation of a mindfulness-based intervention to improve quality of life among individuals who sustained traumatic brain injuries. Disability and Rehabilitation, 25(13), 722–731. CrossRefPubMed Bedard, M., Felteau, M., Mazmanian, D., Fedyk, K., Klein, R., Richardson, J., Parkinson, W., & Minthorn-Biggs, M. B. (2003). Pilot evaluation of a mindfulness-based intervention to improve quality of life among individuals who sustained traumatic brain injuries. Disability and Rehabilitation, 25(13), 722–731. CrossRefPubMed
go back to reference Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50(3), 184–198. CrossRefPubMed Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50(3), 184–198. CrossRefPubMed
go back to reference Block, J., & Kremen, A. M. (1996). IQ and ego-resiliency: conceptual and empirical connections and separateness. Journal of Personality and Social Psychology, 70(2), 349–361. CrossRefPubMed Block, J., & Kremen, A. M. (1996). IQ and ego-resiliency: conceptual and empirical connections and separateness. Journal of Personality and Social Psychology, 70(2), 349–361. CrossRefPubMed
go back to reference Bowerman, B. L., & O’Connell, R. T. (1990). Linear statistical models: An applied approach (2nd edn.). Belmont, CA: Duxbury. Bowerman, B. L., & O’Connell, R. T. (1990). Linear statistical models: An applied approach (2nd edn.). Belmont, CA: Duxbury.
go back to reference Brook, J. S., Whiteman, M., Gordon, A. S., & Cohen, P. (1986). Dynamics of childhood and adolescent personality traits and adolescent drug use. Developmental Psychology, 22(3), 403–414. CrossRef Brook, J. S., Whiteman, M., Gordon, A. S., & Cohen, P. (1986). Dynamics of childhood and adolescent personality traits and adolescent drug use. Developmental Psychology, 22(3), 403–414. CrossRef
go back to reference Brook, J. S., Whiteman, M., Gordon, A. S., & Cohen, P. (1989). Changes in drug involvement: A longitudinal study of childhood and adolescent determinants. Psychological Reports, 65(3), 707–726. CrossRefPubMed Brook, J. S., Whiteman, M., Gordon, A. S., & Cohen, P. (1989). Changes in drug involvement: A longitudinal study of childhood and adolescent determinants. Psychological Reports, 65(3), 707–726. CrossRefPubMed
go back to reference Clifford, T., & Minnes, P. (2013). Who participates in support groups for parents of children with autism spectrum disorders? The role of beliefs and coping style. Journal of Autism and Developmental Disorders, 43(1), 179–187. CrossRefPubMed Clifford, T., & Minnes, P. (2013). Who participates in support groups for parents of children with autism spectrum disorders? The role of beliefs and coping style. Journal of Autism and Developmental Disorders, 43(1), 179–187. CrossRefPubMed
go back to reference Constantino, J. N., Przybeck, T., Friesen, D., & Todd, R. D. (2000). Reciprocal social behavior in children with and without pervasive developmental disorders. Journal of Developmental and Behavioral Pediatrics, 21(1), 2–11. CrossRefPubMed Constantino, J. N., Przybeck, T., Friesen, D., & Todd, R. D. (2000). Reciprocal social behavior in children with and without pervasive developmental disorders. Journal of Developmental and Behavioral Pediatrics, 21(1), 2–11. CrossRefPubMed
go back to reference Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280. CrossRefPubMed Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280. CrossRefPubMed
go back to reference Devins, G. M., Orme, C. M., Costello, C. G., Binik, Y. M., Frizzell, B., Stam, H. J., & Pullin, W. M. (1988). Measuring depressive symptoms in illness populations: Psychometric properties of the Center for Epidemiologic Studies Depression (CES-D) scale. Psychology and Health, 2(2), 139–156. CrossRef Devins, G. M., Orme, C. M., Costello, C. G., Binik, Y. M., Frizzell, B., Stam, H. J., & Pullin, W. M. (1988). Measuring depressive symptoms in illness populations: Psychometric properties of the Center for Epidemiologic Studies Depression (CES-D) scale. Psychology and Health, 2(2), 139–156. CrossRef
go back to reference Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well-being. Journal of Intellectual Disability Research, 49(9), 657–671. CrossRefPubMedPubMedCentral Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well-being. Journal of Intellectual Disability Research, 49(9), 657–671. CrossRefPubMedPubMedCentral
go back to reference Ekas, N. V., Keylon, L., Pruitt, M., Ghilain, C., & Alessandri, M. (2015). The power of positivity: Predictors of relationship satisfaction for parents of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45, 1997–2007. CrossRefPubMed Ekas, N. V., Keylon, L., Pruitt, M., Ghilain, C., & Alessandri, M. (2015). The power of positivity: Predictors of relationship satisfaction for parents of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45, 1997–2007. CrossRefPubMed
go back to reference Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being among mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 1274–1284. CrossRefPubMed Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being among mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 1274–1284. CrossRefPubMed
go back to reference Ekas, N. V., Pruitt, M. M., & McKay, E. (2016). Hope, social relations, and depression symptoms in mothers of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 29–30, 8–18. CrossRef Ekas, N. V., Pruitt, M. M., & McKay, E. (2016). Hope, social relations, and depression symptoms in mothers of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 29–30, 8–18. CrossRef
go back to reference Ello, L. M., & Donovan, S. J. (2005). Assessment of the relationship between parenting stress and a child’s ability to functionally communicate. Research on Social Work Practice, 15(6), 531–544. CrossRef Ello, L. M., & Donovan, S. J. (2005). Assessment of the relationship between parenting stress and a child’s ability to functionally communicate. Research on Social Work Practice, 15(6), 531–544. CrossRef
go back to reference Fava, G. A., Rafanelli, C., Cazzaro, M., Conti, S., & Grandi, S. (1998). Well-being therapy. A novel psychotherapeutic approach for residual symptoms of affective disorders. Psychological Medicine, 28(02), 475–480. CrossRefPubMed Fava, G. A., Rafanelli, C., Cazzaro, M., Conti, S., & Grandi, S. (1998). Well-being therapy. A novel psychotherapeutic approach for residual symptoms of affective disorders. Psychological Medicine, 28(02), 475–480. CrossRefPubMed
go back to reference Fergus, S., & Zimmerman, M. A. (2005). Adolescent resilience: A framework for understanding healthy development in the face of risk. Annual Review of Public Health, 26, 399–419. CrossRefPubMed Fergus, S., & Zimmerman, M. A. (2005). Adolescent resilience: A framework for understanding healthy development in the face of risk. Annual Review of Public Health, 26, 399–419. CrossRefPubMed
go back to reference Firth, I., & Dryer, R. (2013). The predictors of distress in parents of children with autism spectrum disorder. Journal of Intellectual and Developmental Disability, 38(2), 163–171. CrossRefPubMed Firth, I., & Dryer, R. (2013). The predictors of distress in parents of children with autism spectrum disorder. Journal of Intellectual and Developmental Disability, 38(2), 163–171. CrossRefPubMed
go back to reference Fletcher, D., & Sarkar, M. (2013). Psychological resilience. European Psychologist, 18, 12–23. CrossRef Fletcher, D., & Sarkar, M. (2013). Psychological resilience. European Psychologist, 18, 12–23. CrossRef
go back to reference Friborg, O., Hjemdal, O., Rosenvinge, J. H., & Martinussen, M. (2003). A new rating scale for adult resilience: What are the central protective resources behind healthy adjustment? International Journal of Methods in Psychiatric Research, 12(2), 65–76. CrossRefPubMed Friborg, O., Hjemdal, O., Rosenvinge, J. H., & Martinussen, M. (2003). A new rating scale for adult resilience: What are the central protective resources behind healthy adjustment? International Journal of Methods in Psychiatric Research, 12(2), 65–76. CrossRefPubMed
go back to reference Gerstein, E. D., Crnic, K., Blacher, J., & Baker, B. L. (2009). Resilience and the course of daily parenting stress in families of young children with intellectual disabilities. Journal of Intellectual Disability Research, 53(12), 981–997. CrossRefPubMedPubMedCentral Gerstein, E. D., Crnic, K., Blacher, J., & Baker, B. L. (2009). Resilience and the course of daily parenting stress in families of young children with intellectual disabilities. Journal of Intellectual Disability Research, 53(12), 981–997. CrossRefPubMedPubMedCentral
go back to reference Goodman, R. (1997). The Strengths and Difficulties Questionnaire: A research note. Journal of Child Psychology and Psychiatry, 38(5), 581–586. CrossRefPubMed Goodman, R. (1997). The Strengths and Difficulties Questionnaire: A research note. Journal of Child Psychology and Psychiatry, 38(5), 581–586. CrossRefPubMed
go back to reference Goodman, R., Meltzer, H., & Bailey, V. (1998). The strengths and difficulties questionnaire: A pilot study on the validity of the self-report version. European Child and Adolescent Psychiatry, 7(3), 125–130. CrossRefPubMed Goodman, R., Meltzer, H., & Bailey, V. (1998). The strengths and difficulties questionnaire: A pilot study on the validity of the self-report version. European Child and Adolescent Psychiatry, 7(3), 125–130. CrossRefPubMed
go back to reference Grant, S., Cross, E., Wraith, J. E., Jones, S., Mahon, L., Lomax, M., Bigger, B., & Hare, D. (2013). Parental social support, coping strategies, resilience factors, stress, anxiety and depression levels in parents of children with MPS III (Sanfilippo syndrome) or children with intellectual disabilities (ID). Journal of Inherited Metabolic Disease, 36(2), 281–291. CrossRefPubMed Grant, S., Cross, E., Wraith, J. E., Jones, S., Mahon, L., Lomax, M., Bigger, B., & Hare, D. (2013). Parental social support, coping strategies, resilience factors, stress, anxiety and depression levels in parents of children with MPS III (Sanfilippo syndrome) or children with intellectual disabilities (ID). Journal of Inherited Metabolic Disease, 36(2), 281–291. CrossRefPubMed
go back to reference Griffith, G. M., Hastings, R. P., Oliver, C., Howlin, P., Moss, J., Petty, J., & Tunnicliffe, P. (2011). Psychological wellbeing in parents of children with Angelman, Cornelia de Lange and Cri du Chat syndromes. Journal of Intellectual Disability Research, 55(4), 397–410. CrossRefPubMed Griffith, G. M., Hastings, R. P., Oliver, C., Howlin, P., Moss, J., Petty, J., & Tunnicliffe, P. (2011). Psychological wellbeing in parents of children with Angelman, Cornelia de Lange and Cri du Chat syndromes. Journal of Intellectual Disability Research, 55(4), 397–410. CrossRefPubMed
go back to reference Grossman, P., Tiefenthaler-Gilmer, U., Raysz, A., & Kesper, U. (2007). Mindfulness training as an intervention for fibromyalgia: evidence of postintervention and 3-year follow-up benefits in well-being. Psychotherapy and Psychosomatics, 76(4), 226–233. CrossRefPubMed Grossman, P., Tiefenthaler-Gilmer, U., Raysz, A., & Kesper, U. (2007). Mindfulness training as an intervention for fibromyalgia: evidence of postintervention and 3-year follow-up benefits in well-being. Psychotherapy and Psychosomatics, 76(4), 226–233. CrossRefPubMed
go back to reference Gutierrez, L. M. (1994). Beyond coping: An empowerment perspective on stressful life events. Journal of Sociology and Social Welfare, 21, 201–220. Gutierrez, L. M. (1994). Beyond coping: An empowerment perspective on stressful life events. Journal of Sociology and Social Welfare, 21, 201–220.
go back to reference Hastings, R. P. (2016). Do children with intellectual and developmental disabilities have a negative impact on other family members? The case for rejecting a negative narrative. International Review of Research in Developmental Disabilities, 50, 165–194. CrossRef Hastings, R. P. (2016). Do children with intellectual and developmental disabilities have a negative impact on other family members? The case for rejecting a negative narrative. International Review of Research in Developmental Disabilities, 50, 165–194. CrossRef
go back to reference Hastings, R. P., & Brown, T. (2002). Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal on Mental Retardation, 107, 222–232. CrossRefPubMed Hastings, R. P., & Brown, T. (2002). Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal on Mental Retardation, 107, 222–232. CrossRefPubMed
go back to reference Hastings, R. P., Daley, D., Burns, C., & Beck, A. (2006). Maternal distress and expressed emotion: Cross-sectional and longitudinal relationships with behavior problems of children with intellectual disabilities. American Journal on Mental Retardation, 111, 48–61. CrossRefPubMed Hastings, R. P., Daley, D., Burns, C., & Beck, A. (2006). Maternal distress and expressed emotion: Cross-sectional and longitudinal relationships with behavior problems of children with intellectual disabilities. American Journal on Mental Retardation, 111, 48–61. CrossRefPubMed
go back to reference Hastings, R. P., & Johnson, E. (2001). Stress in UK families conducting intensive home- based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31(3), 327–336. CrossRefPubMed Hastings, R. P., & Johnson, E. (2001). Stress in UK families conducting intensive home- based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31(3), 327–336. CrossRefPubMed
go back to reference Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., Espinosa, D., F., & Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9(4), 377–391. CrossRefPubMed Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., Espinosa, D., F., & Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9(4), 377–391. CrossRefPubMed
go back to reference Hastings, R. P., & Taunt, H. M. (2002). Positive perceptions in families of children with developmental disabilities. American Journal on Mental Retardation, 107, 116–127. CrossRefPubMed Hastings, R. P., & Taunt, H. M. (2002). Positive perceptions in families of children with developmental disabilities. American Journal on Mental Retardation, 107, 116–127. CrossRefPubMed
go back to reference Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642. CrossRefPubMed Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642. CrossRefPubMed
go back to reference Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50(12), 874–882. CrossRefPubMed Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50(12), 874–882. CrossRefPubMed
go back to reference Hill-Chapman, C. R., Herzog, T. K., & Maduro, R. S. (2013). Aligning over the child: Parenting alliance mediates the association of autism spectrum disorder atypicality with parenting stress. Research in Developmental Disabilities, 34(5), 1498–1504. CrossRefPubMed Hill-Chapman, C. R., Herzog, T. K., & Maduro, R. S. (2013). Aligning over the child: Parenting alliance mediates the association of autism spectrum disorder atypicality with parenting stress. Research in Developmental Disabilities, 34(5), 1498–1504. CrossRefPubMed
go back to reference Jones, L., Totsika, V., Hastings, R. P., & Petalas, M. A. (2013). Gender differences when parenting children with autism spectrum disorders: A multilevel modeling approach. Journal of Autism and Developmental Disorders, 43(9), 2090–2098. CrossRefPubMed Jones, L., Totsika, V., Hastings, R. P., & Petalas, M. A. (2013). Gender differences when parenting children with autism spectrum disorders: A multilevel modeling approach. Journal of Autism and Developmental Disorders, 43(9), 2090–2098. CrossRefPubMed
go back to reference Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50(3), 172–183. CrossRefPubMed Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50(3), 172–183. CrossRefPubMed
go back to reference Lloyd, T., & Hastings, R. P. (2009). Hope as a psychological resilience factor in mothers and fathers of children with intellectual disabilities. Journal of Intellectual Disability Research, 53, 957–968. CrossRefPubMed Lloyd, T., & Hastings, R. P. (2009). Hope as a psychological resilience factor in mothers and fathers of children with intellectual disabilities. Journal of Intellectual Disability Research, 53, 957–968. CrossRefPubMed
go back to reference Lyons, D. M., & Parker, K. J. (2007). Stress inoculation-induced indications of resilience in monkeys. Journal of Traumatic Stress, 20(4), 423–433. CrossRefPubMed Lyons, D. M., & Parker, K. J. (2007). Stress inoculation-induced indications of resilience in monkeys. Journal of Traumatic Stress, 20(4), 423–433. CrossRefPubMed
go back to reference MacDonald, E. E., Hastings, R. P., & Fitzsimons, E. (2010). Psychological acceptance mediates the impact of the behaviour problems of children with intellectual disability on fathers’ psychological adjustment. Journal of Applied Research in Intellectual Disabilities, 23(1), 27–37. CrossRef MacDonald, E. E., Hastings, R. P., & Fitzsimons, E. (2010). Psychological acceptance mediates the impact of the behaviour problems of children with intellectual disability on fathers’ psychological adjustment. Journal of Applied Research in Intellectual Disabilities, 23(1), 27–37. CrossRef
go back to reference Masten, A. S., & Obradović, J. (2006). Competence and resilience in development. Annals of the New York Academy of Sciences, 1094(1), 13–27. CrossRefPubMed Masten, A. S., & Obradović, J. (2006). Competence and resilience in development. Annals of the New York Academy of Sciences, 1094(1), 13–27. CrossRefPubMed
go back to reference Masten, A. S., Powell, J. L., & Luthar, S. S. (2003). A resilience framework for research, policy, and practice. Luthar, S. S. (Ed.), Resilience and vulnerability: Adaptation in the context of childhood adversities (pp. 1–25). Cambridge: Cambridge University Press. Masten, A. S., Powell, J. L., & Luthar, S. S. (2003). A resilience framework for research, policy, and practice. Luthar, S. S. (Ed.), Resilience and vulnerability: Adaptation in the context of childhood adversities (pp. 1–25). Cambridge: Cambridge University Press.
go back to reference McConnell, D., & Savage, A. (2015). Stress and resilience among families caring for children with intellectual disability: Expanding the research Agenda. Current Developmental Disorders Reports, 2(2), 100–109. CrossRef McConnell, D., & Savage, A. (2015). Stress and resilience among families caring for children with intellectual disability: Expanding the research Agenda. Current Developmental Disorders Reports, 2(2), 100–109. CrossRef
go back to reference Myers, R. (1990). Classical and modern regression with applications (2nd edn.). Boston, MA: Duxbury. Myers, R. (1990). Classical and modern regression with applications (2nd edn.). Boston, MA: Duxbury.
go back to reference Oldehinkel, A. J., & Ormel, J. (2014). A longitudinal perspective on childhood adversities and onset risk of various psychiatric disorders. European Child and Adolescent Psychiatry, 24, 641–650. CrossRefPubMedPubMedCentral Oldehinkel, A. J., & Ormel, J. (2014). A longitudinal perspective on childhood adversities and onset risk of various psychiatric disorders. European Child and Adolescent Psychiatry, 24, 641–650. CrossRefPubMedPubMedCentral
go back to reference Olson, D. (2011). FACES IV and the circumplex model: Validation study. Journal of Marital and Family Therapy, 37(1), 64–80. CrossRefPubMed Olson, D. (2011). FACES IV and the circumplex model: Validation study. Journal of Marital and Family Therapy, 37(1), 64–80. CrossRefPubMed
go back to reference Olson, D. H., & Wilson, M. (1982). Family satisfaction. In D. H. Olson, H. I. McCubbin, H. Barnes, A. Larsen, M. Muxen & M. Wilson (Eds.), Family inventories: Inventories used in a national survey of families across the family life cycle. Family social science. St. Paul (MN): University of Minnesota. Olson, D. H., & Wilson, M. (1982). Family satisfaction. In D. H. Olson, H. I. McCubbin, H. Barnes, A. Larsen, M. Muxen & M. Wilson (Eds.), Family inventories: Inventories used in a national survey of families across the family life cycle. Family social science. St. Paul (MN): University of Minnesota.
go back to reference Pakenham, K. I., Samios, C., & Sofronoff, K. (2005). Adjustment in mothers of children with Asperger syndrome an application of the double ABCX model of family adjustment. Autism, 9(2), 191–212. CrossRefPubMed Pakenham, K. I., Samios, C., & Sofronoff, K. (2005). Adjustment in mothers of children with Asperger syndrome an application of the double ABCX model of family adjustment. Autism, 9(2), 191–212. CrossRefPubMed
go back to reference Peer, J. W., & Hillman, S. B. (2014). Stress and resilience for parents of children with intellectual and developmental disabilities: A review of key factors and recommendations for practitioners. Journal of Policy and Practice in Intellectual Disabilities, 11(2), 92–98. CrossRef Peer, J. W., & Hillman, S. B. (2014). Stress and resilience for parents of children with intellectual and developmental disabilities: A review of key factors and recommendations for practitioners. Journal of Policy and Practice in Intellectual Disabilities, 11(2), 92–98. CrossRef
go back to reference Peplau, L. A., & Cutrona, C. E. (1980). The revised UCLA Loneliness Scale: Concurrent and discriminant validity evidence. Journal of Personality and Social Psychology, 39(3), 472–480. CrossRefPubMed Peplau, L. A., & Cutrona, C. E. (1980). The revised UCLA Loneliness Scale: Concurrent and discriminant validity evidence. Journal of Personality and Social Psychology, 39(3), 472–480. CrossRefPubMed
go back to reference Radloff, L. S. (1977). The CES-D scale a self-report depression scale for research in the general population. Applied Psychological Measurement, 1(3), 385–401. CrossRef Radloff, L. S. (1977). The CES-D scale a self-report depression scale for research in the general population. Applied Psychological Measurement, 1(3), 385–401. CrossRef
go back to reference Reaven, J., Washington, L., Moody, E. J., Stern, J. A., Hepburn, S. L., & Blakeley-Smith, A. (2015). Examining the relationship between parental anxiety and treatment response in children and adolescents with autism spectrum disorder and anxiety. Journal of Autism and Developmental Disorders, 45(8), 2464–2473. CrossRefPubMedPubMedCentral Reaven, J., Washington, L., Moody, E. J., Stern, J. A., Hepburn, S. L., & Blakeley-Smith, A. (2015). Examining the relationship between parental anxiety and treatment response in children and adolescents with autism spectrum disorder and anxiety. Journal of Autism and Developmental Disorders, 45(8), 2464–2473. CrossRefPubMedPubMedCentral
go back to reference Ruiz-Robledillo, N., De Andrés-García, S., Pérez-Blasco, J., González-Bono, E., & Moya- Albiol, L. (2014). Highly resilient coping entails better perceived health, high social support and low morning cortisol levels in parents of children with autism spectrum disorder. Research in Developmental Disabilities, 35(3), 686–695. CrossRefPubMed Ruiz-Robledillo, N., De Andrés-García, S., Pérez-Blasco, J., González-Bono, E., & Moya- Albiol, L. (2014). Highly resilient coping entails better perceived health, high social support and low morning cortisol levels in parents of children with autism spectrum disorder. Research in Developmental Disabilities, 35(3), 686–695. CrossRefPubMed
go back to reference Russell, D. W. (1996). UCLA Loneliness Scale (Version 3): Reliability, validity, and factor structure. Journal of Personality Assessment, 66(1), 20–40. CrossRefPubMed Russell, D. W. (1996). UCLA Loneliness Scale (Version 3): Reliability, validity, and factor structure. Journal of Personality Assessment, 66(1), 20–40. CrossRefPubMed
go back to reference Rutter, M. (1987). Psychosocial resilience and protective mechanisms. American Journal of Orthopsychiatry, 57(3), 316–331. CrossRefPubMed Rutter, M. (1987). Psychosocial resilience and protective mechanisms. American Journal of Orthopsychiatry, 57(3), 316–331. CrossRefPubMed
go back to reference Rutter, M. (2006). Implications of resilience concepts for scientific understanding. Annals of the New York Academy of Sciences, 1094(1), 1–12. CrossRefPubMed Rutter, M. (2006). Implications of resilience concepts for scientific understanding. Annals of the New York Academy of Sciences, 1094(1), 1–12. CrossRefPubMed
go back to reference Scorgie, K., & Sobsey, D. (2000). Transformational outcomes associated with parenting children who have disabilities. Mental Retardation, 38(3), 195–206. CrossRefPubMed Scorgie, K., & Sobsey, D. (2000). Transformational outcomes associated with parenting children who have disabilities. Mental Retardation, 38(3), 195–206. CrossRefPubMed
go back to reference Seery, M. D., Holman, E. A., & Silver, R. C. (2010). Whatever does not kill us: cumulative lifetime adversity, vulnerability, and resilience. Journal of Personality and Social Psychology, 99(6), 1025–1041. CrossRefPubMed Seery, M. D., Holman, E. A., & Silver, R. C. (2010). Whatever does not kill us: cumulative lifetime adversity, vulnerability, and resilience. Journal of Personality and Social Psychology, 99(6), 1025–1041. CrossRefPubMed
go back to reference Seligman, M. E., Steen, T. A., Park, N., & Peterson, C. (2005). Positive psychology progress: Empirical validation of interventions. American Psychologist, 60(5), 410–421. CrossRefPubMed Seligman, M. E., Steen, T. A., Park, N., & Peterson, C. (2005). Positive psychology progress: Empirical validation of interventions. American Psychologist, 60(5), 410–421. CrossRefPubMed
go back to reference Shattuck, P. T., Seltzer, M. M., Greenberg, J. S., Orsmond, G. I., Bolt, D., Kring, S., … & Lord, C. (2007). Change in autism symptoms and maladaptive behaviors in adolescents and adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 37(9), 1735–1747. CrossRefPubMed Shattuck, P. T., Seltzer, M. M., Greenberg, J. S., Orsmond, G. I., Bolt, D., Kring, S., … & Lord, C. (2007). Change in autism symptoms and maladaptive behaviors in adolescents and adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 37(9), 1735–1747. CrossRefPubMed
go back to reference Sin, N. L., & Lyubomirsky, S. (2009). Enhancing well-being and alleviating depressive symptoms with positive psychology interventions: A practice-friendly meta- analysis. Journal of Clinical Psychology, 65(5), 467–487. CrossRefPubMed Sin, N. L., & Lyubomirsky, S. (2009). Enhancing well-being and alleviating depressive symptoms with positive psychology interventions: A practice-friendly meta- analysis. Journal of Clinical Psychology, 65(5), 467–487. CrossRefPubMed
go back to reference Sinclair, V. G., & Wallston, K. A. (2004). The development and psychometric evaluation of the brief resilient coping scale. Assessment, 11(1), 94–101. CrossRefPubMed Sinclair, V. G., & Wallston, K. A. (2004). The development and psychometric evaluation of the brief resilient coping scale. Assessment, 11(1), 94–101. CrossRefPubMed
go back to reference Smith, L. E., Seltzer, M. M., Tager-Flusberg, H., Greenberg, J. S., & Carter, A. S. (2008). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders, 38(5), 876–889. CrossRefPubMedPubMedCentral Smith, L. E., Seltzer, M. M., Tager-Flusberg, H., Greenberg, J. S., & Carter, A. S. (2008). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders, 38(5), 876–889. CrossRefPubMedPubMedCentral
go back to reference Spielberger, C. D. (1983). Manual for the State-Trait Anxiety Inventory STAI (form Y)(“self-evaluation questionnaire”). Spielberger, C. D. (1983). Manual for the State-Trait Anxiety Inventory STAI (form Y)(“self-evaluation questionnaire”).
go back to reference Tang, S. T., Chang, W. C., Chen, J. S., Wang, H. M., Shen, W. C., Li, C. Y., & Liao, Y. C. (2013). Course and predictors of depressive symptoms among family caregivers of terminally ill cancer patients until their death. Psycho-Oncology, 22(6), 1312–1318. CrossRefPubMed Tang, S. T., Chang, W. C., Chen, J. S., Wang, H. M., Shen, W. C., Li, C. Y., & Liao, Y. C. (2013). Course and predictors of depressive symptoms among family caregivers of terminally ill cancer patients until their death. Psycho-Oncology, 22(6), 1312–1318. CrossRefPubMed
go back to reference Tedeschi, R. G., & Calhoun, L. G. (1996). The Posttraumatic Growth Inventory: Measuring the positive legacy of trauma. Journal of Traumatic Stress, 9(3), 455–471. CrossRefPubMed Tedeschi, R. G., & Calhoun, L. G. (1996). The Posttraumatic Growth Inventory: Measuring the positive legacy of trauma. Journal of Traumatic Stress, 9(3), 455–471. CrossRefPubMed
go back to reference Totsika, V., Hastings, R. P., Emerson, E., Lancaster, G. A., & Berridge, D. M. (2011). A population-based investigation of behavioural and emotional problems and maternal mental health: Associations with autism spectrum disorder and intellectual disability. Journal of Child Psychology and Psychiatry, 52(1), 91–99. CrossRefPubMed Totsika, V., Hastings, R. P., Emerson, E., Lancaster, G. A., & Berridge, D. M. (2011). A population-based investigation of behavioural and emotional problems and maternal mental health: Associations with autism spectrum disorder and intellectual disability. Journal of Child Psychology and Psychiatry, 52(1), 91–99. CrossRefPubMed
go back to reference Walsh, F. (1998). Strengthening family resilience. The Guilford Family Therapy Series. Walsh, F. (1998). Strengthening family resilience. The Guilford Family Therapy Series.
go back to reference Walsh, F. (2006). Strengthening family resilience. New York: Guilford Press. Walsh, F. (2006). Strengthening family resilience. New York: Guilford Press.
go back to reference Weiss, J. A., Cappadocia, M. C., MacMullin, J. A., Viecili, M. A., & Lunsky, Y. (2012). Psychological acceptance and empowerment as mediators of the impact of problem behaviour in children with autism spectrum disorders on parent mental health. Autism, 16, 261–274. CrossRefPubMed Weiss, J. A., Cappadocia, M. C., MacMullin, J. A., Viecili, M. A., & Lunsky, Y. (2012). Psychological acceptance and empowerment as mediators of the impact of problem behaviour in children with autism spectrum disorders on parent mental health. Autism, 16, 261–274. CrossRefPubMed
go back to reference Windle, G. (2011). What is resilience? A review and concept analysis. Reviews in Clinical Gerontology, 21(02), 152–169. CrossRef Windle, G. (2011). What is resilience? A review and concept analysis. Reviews in Clinical Gerontology, 21(02), 152–169. CrossRef
go back to reference Zeedyk, S. M., & Blacher, J. (2015). Chapter one-maternal depression and child behavior problems: Longitudinal considerations. International Review of Research in Developmental Disabilities, 49, 1–43. CrossRef Zeedyk, S. M., & Blacher, J. (2015). Chapter one-maternal depression and child behavior problems: Longitudinal considerations. International Review of Research in Developmental Disabilities, 49, 1–43. CrossRef
go back to reference Zigmond, A. S., & Snaith, R. P. (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 67(6), 361–370. CrossRefPubMed Zigmond, A. S., & Snaith, R. P. (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 67(6), 361–370. CrossRefPubMed
Metagegevens
Titel
Associations Between Resilience and the Well-Being of Mothers of Children with Autism Spectrum Disorder and Other Developmental Disabilities
Auteurs
Elizabeth Halstead
Naomi Ekas
Richard P. Hastings
Gemma M. Griffith
Publicatiedatum
10-01-2018
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 4/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-017-3447-z